Hope2SleepGuide2024-03-28T14:47:03ZDave Cheesemanhttp://hope2sleepguide.co.uk/profile/DaveCheesemanhttp://storage.ning.com/topology/rest/1.0/file/get/3814813663?profile=RESIZE_180x180&width=48&height=48&crop=1%3A1http://hope2sleepguide.co.uk/forum/topic/listForContributor?user=0jzjec8g1jr5y&feed=yes&xn_auth=noNasal valve collapsetag:hope2sleepguide.co.uk,2024-03-24:6381638:Topic:1685842024-03-24T13:23:44.693ZDave Cheesemanhttp://hope2sleepguide.co.uk/profile/DaveCheeseman
<p>Does anyone have any experience of nasal valve collapse?<br/><br/>Wondering if I have this but I don't know what the norm is.<br/><br/>Been trying widgets that hold the nose open and it's like night and day.</p>
<p>Does anyone have any experience of nasal valve collapse?<br/><br/>Wondering if I have this but I don't know what the norm is.<br/><br/>Been trying widgets that hold the nose open and it's like night and day.</p> F20 AirFit small marking bridge of nosetag:hope2sleepguide.co.uk,2024-03-19:6381638:Topic:1685732024-03-19T10:34:20.433ZDave Cheesemanhttp://hope2sleepguide.co.uk/profile/DaveCheeseman
<p>Please help or give advice all wise people on here.</p>
<p><a href="https://storage.ning.com/topology/rest/1.0/file/get/12402129066?profile=original" rel="noopener" target="_blank"><img class="align-full" src="https://storage.ning.com/topology/rest/1.0/file/get/12402129066?profile=RESIZE_710x"></img></a></p>
<p>I have had the Resmed F20 AirFit small mask for over a month. Seals yet I have red marks on the bridge of my nose. This is still there after 2+ hours.</p>
<p>I have tried to wear it looser but then it leaks.</p>
<p>I do fit test every night before I settle.</p>
<p>It also pinches my nose and…</p>
<p>Please help or give advice all wise people on here.</p>
<p><a href="https://storage.ning.com/topology/rest/1.0/file/get/12402129066?profile=original" target="_blank" rel="noopener"><img src="https://storage.ning.com/topology/rest/1.0/file/get/12402129066?profile=RESIZE_710x" class="align-full"/></a></p>
<p>I have had the Resmed F20 AirFit small mask for over a month. Seals yet I have red marks on the bridge of my nose. This is still there after 2+ hours.</p>
<p>I have tried to wear it looser but then it leaks.</p>
<p>I do fit test every night before I settle.</p>
<p>It also pinches my nose and slips done a bit.</p>
<p>I have tried rezzzes liners and have even bought elasticated liners from Temu in desperation.</p>
<p>Gekko really hurt and made mask leak.</p>
<p></p>
<p>I have even changed my mask and tried the F&P evora full mask (extra small) but that just gave me blisters either side of my nostrils and on the tip on my nose. Plus its far too loud. so went back to F20</p>
<p></p>
<p>I have go skin that marks really easily and have a small enough head to wear kids hats with ease.</p>
<p>I am a mouth open drooling sleeper who sleeps restlessly from side to side not on back.</p> Air Sense 10 - changing pressure settingstag:hope2sleepguide.co.uk,2024-03-11:6381638:Topic:1685622024-03-11T21:29:45.823ZDave Cheesemanhttp://hope2sleepguide.co.uk/profile/DaveCheeseman
<p>I have been successfully using my air sense 10 since OSA diagnosis, and my AHI is now under 2. I had an appointment with my clinic this week and have been told there is no need for further appointments and just to contact them if I need supplies or there is any problem with the machine.</p>
<p>I have used both full face and nasal masks and established which pressure settings are required for each.</p>
<p>I would like the flexibility of switching between masks as required. For example, I…</p>
<p>I have been successfully using my air sense 10 since OSA diagnosis, and my AHI is now under 2. I had an appointment with my clinic this week and have been told there is no need for further appointments and just to contact them if I need supplies or there is any problem with the machine.</p>
<p>I have used both full face and nasal masks and established which pressure settings are required for each.</p>
<p>I would like the flexibility of switching between masks as required. For example, I usually use the full face mask (and this is good when I have a cold etc), but I used the nasal mask when I had recent mouth surgery.</p>
<p>I know from experience that if I phone the clinic to ask them to change the pressure it can take ages for them to respond.</p>
<p>When I asked if it was possible to have control of the pressure settings, they advised that this is done centrally. Though they also said some people have found out how to do it themselves!</p>
<p>Has anyone had experience of having control of the pressure settings?</p>
<p>I understand that central control is important when titrating the pressures in the early stages of treatment, but I know what suits me and would love to have the ability to change the setting.</p>
<p>Alternatively would an APAP machine solve the problem?</p>
<p>Any advice?</p> A few questions..tag:hope2sleepguide.co.uk,2024-03-03:6381638:Topic:1684532024-03-03T12:25:41.901ZDave Cheesemanhttp://hope2sleepguide.co.uk/profile/DaveCheeseman
<p>A quick bit of background</p>
<p>Diagnosed with OSA about 7/8 years ago by my local sleep clinic and given a F &P Icon CPAP. After a couple of follow-up appts to sort out any issues, I was sent on my merry way. I have had no further face to face contact with the clinic since, having first ordered my consumable online and then by phone (always answerphone, never a person!). Recently I have been having early morning headaches which go when I get up, and also quite extreme face marking…</p>
<p>A quick bit of background</p>
<p>Diagnosed with OSA about 7/8 years ago by my local sleep clinic and given a F &P Icon CPAP. After a couple of follow-up appts to sort out any issues, I was sent on my merry way. I have had no further face to face contact with the clinic since, having first ordered my consumable online and then by phone (always answerphone, never a person!). Recently I have been having early morning headaches which go when I get up, and also quite extreme face marking from my full face mask. Tried phoning the sleep clinic number (answerphone telling me they are running a limited service) and asked them to call me back - but heard nothing. </p>
<p>So my questions are:</p>
<p>Should I be worried about the headaches do you think?</p>
<p>Should my CPAP have been serviced or checked in the last few years? </p>
<p>Could my pressure been incorrect? I have lost quite a bit of weight recently (deliberately) and wonder now if I need less pressure?</p>
<p>Any advice on the face marking issue - I use the mask liners (have done for almost all the time I have used the CPAP) but still get these really deep "dents" where the mask sits.</p>
<p>I wonder if I might benefit from an auto-set machine? They weren't available on prescription 7/8 years ago, but are they now? I guess it depends on your NHS Trust. I would happily buy one but am worried about not having any support in how to use it (from the Sleep Clinic).</p>
<p></p>
<p>Sorry to ramble on, but not sure how to proceed if I can't get to talk to someone at the Clinic.</p>
<p>Thanks for reading.</p>
<p></p>
<p></p>
<p></p> Airsense 10 -humidifier runs drytag:hope2sleepguide.co.uk,2024-02-26:6381638:Topic:1686342024-02-26T15:29:20.449ZDave Cheesemanhttp://hope2sleepguide.co.uk/profile/DaveCheeseman
<p>Hi. <br/>I'm finding the Airsense 10 the hospital gave me, the humidifier chamber runs dry. It's not even on max settings, which I'm guessing would empty it a lot quicker. Seems like a big design oversight to me. Does anyone else have this trouble? The water supply in the Sleepcube they gave me before would last all night easily, but they don't use them any more.</p>
<p>Hi. <br/>I'm finding the Airsense 10 the hospital gave me, the humidifier chamber runs dry. It's not even on max settings, which I'm guessing would empty it a lot quicker. Seems like a big design oversight to me. Does anyone else have this trouble? The water supply in the Sleepcube they gave me before would last all night easily, but they don't use them any more.</p> Decline in hearingtag:hope2sleepguide.co.uk,2024-02-26:6381638:Topic:1683642024-02-26T09:58:32.224ZDave Cheesemanhttp://hope2sleepguide.co.uk/profile/DaveCheeseman
<p>Hi</p>
<p></p>
<p>I have regular, well yearly check ups at work. One being a hearing test. Since having my cpap machine my hearing has declined rapidly in 1 ear.....could this be as a result of pressure? I believe I'm on 15cm p max h2o. I just use a nasal mask.</p>
<p></p>
<p>Thanks</p>
<p></p>
<p>Dave</p>
<p>Hi</p>
<p></p>
<p>I have regular, well yearly check ups at work. One being a hearing test. Since having my cpap machine my hearing has declined rapidly in 1 ear.....could this be as a result of pressure? I believe I'm on 15cm p max h2o. I just use a nasal mask.</p>
<p></p>
<p>Thanks</p>
<p></p>
<p>Dave</p> Feeling Abandoned by the Sleep Clinictag:hope2sleepguide.co.uk,2024-02-03:6381638:Topic:1684112024-02-03T12:46:37.533ZDave Cheesemanhttp://hope2sleepguide.co.uk/profile/DaveCheeseman
<div class="discussion"><div class="description"><div class="xg_user_generated"><p>I was diagnosed with OSA back in 2017 following having used the Hope 2 Sleep diagnostic home thing. (Thank you!). </p>
<p>Since being diagnosed with OSA I've also been diagnosed with hypertension and am being treated for this with medication.</p>
<p>I was given a Philips Respironics RemStar Auto A Flex (System One). Since then I was lucky enough to have a couple of reviews before Covid set in. But since then I've…</p>
</div>
</div>
</div>
<div class="discussion"><div class="description"><div class="xg_user_generated"><p>I was diagnosed with OSA back in 2017 following having used the Hope 2 Sleep diagnostic home thing. (Thank you!). </p>
<p>Since being diagnosed with OSA I've also been diagnosed with hypertension and am being treated for this with medication.</p>
<p>I was given a Philips Respironics RemStar Auto A Flex (System One). Since then I was lucky enough to have a couple of reviews before Covid set in. But since then I've not been seen, so that's around 4 years.</p>
<p>My machine isn't hooked up to Bluetooth or anything so the clinic won't be getting any of my readings so I've no idea whether the pressure on my machine is still appropriate for me. </p>
<p>In addition, I don't feel<span> </span><strong>at all</strong><span> </span>comfortable about using a machine that may have cancerous implications due to foam particles. (I believe lawsuits are taking place in the US around this.)</p>
<p>In short, I don't know if I'm doing myself more harm using the machine than not.</p>
<p>I know that the NHS is under incredible pressure and that the pandemic has caused a backlog at sleep clinics, but I just don't know what to do for the best.</p>
<p>Is anyone else in the same boat? Does anyone have any advice?</p>
<p>Thank you.</p>
</div>
</div>
</div> How often do medics tell you the cause of apnea, rather than just prescribe CPAP and forgettag:hope2sleepguide.co.uk,2024-02-02:6381638:Topic:1682982024-02-02T10:06:30.639ZDave Cheesemanhttp://hope2sleepguide.co.uk/profile/DaveCheeseman
<p>It's been about five years since I was diagnosed, still no word of what the actual cause is.<br></br>They gave me a CT scan recently to see what's going on. Five years seems a long time before investigating, although the pandemic happened and the NHS hasn't really recovered.<br></br><br></br>I ask the medics sometimes why it can't be done with ultrasound, which I would think would be great for looking at soft tissues in real time, and cheap and readily available but I haven't got much of an answer.…</p>
<p>It's been about five years since I was diagnosed, still no word of what the actual cause is.<br/>They gave me a CT scan recently to see what's going on. Five years seems a long time before investigating, although the pandemic happened and the NHS hasn't really recovered.<br/><br/>I ask the medics sometimes why it can't be done with ultrasound, which I would think would be great for looking at soft tissues in real time, and cheap and readily available but I haven't got much of an answer. Probably good reasons why not, if I thought of it I'm sure the pros have, but it's be nice to know.<br/><br/>I just want someone to say "bone there, tissue there, that thing there is why your throat is closing, and this is what can be done about it, and this is the professional who knows about it."<br/>But it seems to be more piecemeal than that.<br/><br/>I had a GP called Kelly who was also an ENT specialist, seemed really on top of it, but pandemic came and he moved on.<br/><br/>Is there a list of doctors and dentists that are really into apnea and associated problems?<br/><br/>It certainly doesn't help when the pros disagree - like my dentist who said underbite was locking my jaw and wanted to file my teeth, and the other dentist and TMJ consultant who said that was nonsense.<br/>Without my own physiology degree how do I make sense of that?</p> Are resmed airsense reports really accurate?tag:hope2sleepguide.co.uk,2024-02-01:6381638:Topic:1682902024-02-01T18:33:57.015ZDave Cheesemanhttp://hope2sleepguide.co.uk/profile/DaveCheeseman
<p>The hospital swapped out my sleep cube for an Airsense 2 about a year ago.<br></br>Now the machine reports my sleep quality to them over the airwaves.<br></br>I've never been convinced that these reports are accurate because, even though the hospital staff are breezily confident about them, I still feel knackered.<br></br><br></br>I watched a you tubevideo just now about the flags that the machine uses to report an apnea. It seem like you can still have disturbed breathing, but the machine won't flag it as…</p>
<p>The hospital swapped out my sleep cube for an Airsense 2 about a year ago.<br/>Now the machine reports my sleep quality to them over the airwaves.<br/>I've never been convinced that these reports are accurate because, even though the hospital staff are breezily confident about them, I still feel knackered.<br/><br/>I watched a you tubevideo just now about the flags that the machine uses to report an apnea. It seem like you can still have disturbed breathing, but the machine won't flag it as an apnea or hypoxia. <br/><br/>Early days on this, I've just started looking into it, but does this ring a bell?<br/><br/>Does anyone know how the reports from their machine compare with an independent device like an oxygen/heart rate monitor?<br/><br/>thanks</p> NHS waiting time for CPAP machine - can anyone beat this?tag:hope2sleepguide.co.uk,2024-01-25:6381638:Topic:1680002024-01-25T12:45:23.075ZDave Cheesemanhttp://hope2sleepguide.co.uk/profile/DaveCheeseman
<p>Diagnosed on 18th December 2023 with severe sleep apnoea.</p>
<p></p>
<p>Received letter a few days later advising that earliest I could get a CPAP is 23rd December 2024 - over a year! This is in Oxford.</p>
<p></p>
<p>I'm prepared to go anywhere in the country to get a machine although South East/London would be easiest. Does anyone have any experience of better/worse waiting times?</p>
<p></p>
<p>Thanks</p>
<p></p>
<p>Diagnosed on 18th December 2023 with severe sleep apnoea.</p>
<p></p>
<p>Received letter a few days later advising that earliest I could get a CPAP is 23rd December 2024 - over a year! This is in Oxford.</p>
<p></p>
<p>I'm prepared to go anywhere in the country to get a machine although South East/London would be easiest. Does anyone have any experience of better/worse waiting times?</p>
<p></p>
<p>Thanks</p>
<p></p>