Hope2SleepGuide

Sleep Apnoea Forum Bringing Help + Support to the Patient

hello, I have just joined and this is my first post on this site

i was diagnosed with sleep apnoea seven months ago and have worn a cpap machine since. I hate it,

It does work, and I now suffer much, much less from daytime tiredness and my partner tells me I no longer stop breathing during sleep. 

However, psychologically I am really struggling with wearing the cpap machine, it makes me feel very ugly and embarrassed. It is not helped by the fact that I am in a relatively new relationship of two years. I have to say my partner does not complain. I also love to travel and taking the cpap on holiday is cumbersome. I am ravelling up the Amazon in April and would love an alternative. 

The hub of my query really is how other people cope with all this and has anyone found a satisfactory alternative.  I have read about medication, nasal sprays and miniature cpap machines the size of a matchbox but don't seem o be able to buy these. 

Pall advice welcome. Help please. 

Regards May

Views: 28

Reply to This

Replies to This Discussion

You can buy smaller machines for travel, but they are not so adaptable.

There are also MAD devices to hold your jaw forward (these tend to only work with MILD cases) and there are also tongue holding devices that hold the tongue forward, these have limited success, but you may be a lucky one.  They are expensive for what they are, but there are Chinese copies, but buyer beware.  All they do is hold the tongue forward out of your mouth.

If they work for you that is fine, but you need to try it before you go.  If they do not work for you you will drop into exhaustion very quickly.  There are a lot more using CPAP than you might think.  It does not bother me at all, even when staying in hotels and in other peoples homes.  Now i have a quiet machine they don't even notice unless they meet me with the mask still on on the way to the toilet.  So stop being so naive and use what is best for you.  Others don't think anything of it, they may ask what it is for, but after they get a quick explanation they just accept it.  There is a lot more to worry about in the Amazon than how you look with a cpap.

Reply to Discussion

RSS

Sleep Apnoea Forum

New to the Sleep Apnoea Forum? 

1. Stop by our Sleep Apnoea Welcome Center to introduce yourself to the SleepGuide community.
2. Start a New Topic of Conversation.
3. Post your photos - of yourself, your old CPAP machine, your new CPAP machine, your pet, something about you!

Interested in advertising, have a problem or need to contact us? Click the Report an Issue page.

 

Latest Activity

Frances Coiwn updated their profile
Wednesday
Frances Coiwn replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Thanks for the warm welcome. Started CPAP therapy early December having been diagnosed with severe Sleep Apnea. Over the past 10 weeks or so I have slowly adapted to using CPAP, really struggleing at times with mask fit, the having the flu which…"
Tuesday
Frances Coiwn is now a member of Hope2SleepGuide
Tuesday
Edam replied to Edam's discussion APAP or BIPAP
"I checked with my hospital but they dont supply Bipap,s to outpatients so looks like Im stuck with the S9"
Feb 9
SleepyHead posted a discussion

NHS or Private to get diagnosis to determine treatment

Hi,  With the help of a hope2sleep screening test indicating I may have moderate sleep apnea, I am hopefully going to get my GP to finally agree to refer me to a sleep specialist (I have been trying for 6 months).  I have some concerns over how long…See More
Feb 9
SleepyHead replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"I've learnt a lot in a short space of time through Hope2Sleep. Look forward to joining discussions on the forum."
Feb 9
SleepyHead updated their profile
Feb 8
Bill Thomson replied to Bill Thomson's discussion ResMed DC-DC converter for S9 in the group Buy-Sell-Swap
"Item now sold"
Feb 7
Glen Vaal replied to Bill Thomson's discussion ResMed DC-DC converter for S9 in the group Buy-Sell-Swap
"I look forward to your text with payment account details. Either is Ok. I will reply with my address. Regards, Glen"
Feb 7
Bill Thomson replied to Bill Thomson's discussion ResMed DC-DC converter for S9 in the group Buy-Sell-Swap
"Glen - apologies for not replying sooner, but my phone died. I now have a temporary fix (the replacement should arrive today anyway) so I will text you. I have also sent a message via the forum, but they are limited to 200 characters."
Feb 7
SleepyHead is now a member of Hope2SleepGuide
Feb 7
Sleep2snore replied to May's discussion Alternatives to cpap
"You can buy smaller machines for travel, but they are not so adaptable. There are also MAD devices to hold your jaw forward (these tend to only work with MILD cases) and there are also tongue holding devices that hold the tongue forward, these have…"
Feb 6
Sleep2snore and Edam are now friends
Feb 6
Sleep2snore replied to Edam's discussion APAP or BIPAP
"An APAP with EPR is almost Bipap. The Sleep Centre would know from their readings if you would be better with another type of machine, if you had a home study you need to take it up with your GP and raise it with your Sleep Centre."
Feb 6
Sleep2snore replied to Edam's discussion Double inhaling
"EPR just reduces the pressure when you breathe out, this makes it easier to breathe out when on higher pressure. Current thought is that the higher setting the EPR is the higher pressure is required, however I have not found this, but it does affect…"
Feb 6
Glen Vaal replied to Bill Thomson's discussion ResMed DC-DC converter for S9 in the group Buy-Sell-Swap
"Thanks for the fast reply. On the basis that its all 100% Ok and no physical damage then I would like to proceed with the postage option at £30, please*. How would you like to proceed, presumably off the forum given we'll get…"
Feb 6
Bill Thomson replied to Bill Thomson's discussion ResMed DC-DC converter for S9 in the group Buy-Sell-Swap
"Glen, yes I still have the converter. i am in Storrington, which is roughly between Worthing and Horsham. bill"
Feb 5
Glen Vaal replied to Bill Thomson's discussion ResMed DC-DC converter for S9 in the group Buy-Sell-Swap
"Hi Bill, is the Resmed S9 DC converter still available? I'm not sure how public this reply message is - however I'll "risk" using my phone number 07487706664. I'm nr Woking, Surrey. Where are you in West…"
Feb 5
Glen Vaal joined The SleepGuide Crew's group
Feb 5
Glen Vaal is now a member of Hope2SleepGuide
Feb 5

© 2019   Created by The SleepGuide Crew.   Powered by

Badges  |  Report an Issue  |  Terms of Service