"It sounds like you're getting rainout issues (condensation) so here's an article to help with this.
www.hope2sleep.co.uk/water-in-the-mask-hose-known-as-rainout"
Sleep Apnoea Forum Bringing Help + Support to the Patient
Another newbie with a gazillion questions
Hi, I live near Leeds and saw the consultant in sleep clinic today at st James who has diagnosed osa. He wants me to try Cpap because I have severe fibromyalgia and am barely functioning much of the time. The pain is horrendous. He said he’d make an appointment for me to see a nurse but didn’t say how long that would be. A ballpark would be helpful if anyone knows, just so I can make car related decisions. Hardly seems worth going through the mot and taxing a car that I can’t drive!
Views: 220
Replies to This Discussion
-
Permalink Reply by Kath Hope on
-
Hi and welcome Helen. The wait is different at all clinics, but St James is a very good one. Most people find that once they're on CPAP their fibromyalgia pain does ease due to the healthy sleep and good oxygen levels. If you're experiencing daytime fatigue and have been advised to stop driving this is only temporary, and once youo're on good therapy you'll be able to drive again.
At this stage it would be helpful to think about whether you're a mouth breather during sleep, as this will help the clinic to decide which type of mask to give you.
-
Permalink Reply by Sleep2snore on
-
DVLA can be a bit tricky at times, but it is the wait before you get a machine and become compliant that is the biggest problem.
The only way round this is to get a prescription from the clinic and buy your own machine, though these are not cheap.
You can get second hand machines from America from Secondwind (google them) but you still have a mask and other bits to get, unless you ask the clinic if they will supply you with them until you get a machine from them. Then you could keep the bought machine as a backup machine. They do break down at the most inconvenient moment.
If you were to but one, go for a machine that is data compatable like the ResMed Airsense 10 Autoset or Philips Dreamstation, the formar being considered to be the better. However, if yo ask the clinic if they will look after your machine, you may have to go with the make they use, i.e. ResMed or Resperonics (Philips).
Go for an Auto machine if you can afford it. Otherwise you might have a few months to wait for one.
Some clinics are slow, others are not so bad, but if it is going to be a long wait, buy one if you can afford it.
Phone the clinic and ask how long it is likely to be or you get a machine and make your decision based on what they tell you.
-
Permalink Reply by Chris Vesey on
-
Hi,
I informed the dvla by post using the relevant form they sent me. When the form arrived i was warned that i needed to return it within 14 days! As it takes a week for any dvla letter to arrive i was not amused. Even though i had started treatment and my readings greatly improved it still took them 3 months to confirm that i was ok, it took a month from the time they received the consultants letter! I was at the stage of involving my mp when they finally replied, so expect a long delay, mot your car and then sorn it if you have off street parking,
Regards,
Chris
About
Sleep Apnoea Forum
New to the Sleep Apnoea Forum?
1. Stop by our Sleep Apnoea Welcome Center to introduce yourself to the SleepGuide community.
2. Start a New Topic of Conversation.
3. Post your photos - of yourself, your old CPAP machine, your new CPAP machine, your pet, something about you!
Interested in advertising, have a problem or need to contact us? Click the Report an Issue page.
Latest Activity
noisy humidifier normal?
Hello,I have an air sense 10 auto.When I have the humidifier and the heated tube plugged in it makes a sort of drumming noise. Like that at the gallows in films.Is this normal? It wakes me up and I have to give up and switch off for the night.See More
Dentists in Hull that know about Mewing ?
I was wondering if there are any dentists in Hull who know about John & Mike Mew, and changing jaw shape over time?I could add that I saw an ENT consultant recently and she said jaw shape, malocclusion, is genetic, which has become a debatable…See More
"I did replace the tank in my SleepCube, and had to regularly take the silicone sealing gasket out and give it a goof clean, but not infrequently found it standing in a pool of water in the morning. The machine sat on a tray because of…"
Nasal valve collapse
Does anyone have any experience of nasal valve collapse?Wondering if I have this but I don't know what the norm is.Been trying widgets that hold the nose open and it's like night and day.See More
"Wow it's the other way round for me.I found with the Sleepcube I'd often have a good bit of water still there in the morning. Today I woke up with a dry tank on the Resmed again and it's not on full heat or flow. I got it on 6…"
F20 AirFit small marking bridge of nose
Please help or give advice all wise people on here.I have had the Resmed F20 AirFit small mask for over a month. Seals yet…See More
"A very helpful reply Jonathan. I found the pressure setting for the full face mask to be too high when I changed to a nasal mask, but perhaps I should have persisted?
I'll try again and I'll also discuss with the clinic whether an APAP…"
"Ramble alert! My history is that I spent part of each week at a different location, so bought a second machine identical to my fixed pressure NHS machine and set it up to match using the clinician menu. This was a very long time…"
"Thanks Jonathan - I had seen the YouTube video. My question is really about the experience of people who have control of their pressure settings, for example those people who have bought their machines directly and not obtained them through an NHS…"
"This is NOT a recommendation
http://www.youtube.com/watch?v=VNUWhd2UgQM"
Air Sense 10 - changing pressure settings
I have been successfully using my air sense 10 since OSA diagnosis, and my AHI is now under 2. I had an appointment with my clinic this week and have been told there is no need for further appointments and just to contact them if I need supplies or…See More
"If you have a helpful GP, I would ask them to re-refer you to the sleep clinic."
A few questions..
A quick bit of backgroundDiagnosed with OSA about 7/8 years ago by my local sleep clinic and given a F &P Icon CPAP. After a couple of follow-up appts to sort out any issues, I was sent on my merry way. I have had no further face to face…See More
"I previously had a DeVilbiss Sleepcube and the dehumidifier did sometimes run dry. On the other hand I now have an AirSense 10 and it never runs dry, and I've had the humidity turned up high."
Airsense 10 -humidifier runs dry
Hi. I'm finding the Airsense 10 the hospital gave me, the humidifier chamber runs dry. It's not even on max settings, which I'm guessing would empty it a lot quicker. Seems like a big design oversight to me. Does anyone else have this trouble? The…See More
Decline in hearing
HiI have regular, well yearly check ups at work. One being a hearing test. Since having my cpap machine my hearing has declined rapidly in 1 ear.....could this be as a result of pressure? I believe I'm on 15cm p max h2o. I just use a nasal…See More
© 2024 Created by The SleepGuide Crew.
Powered by
