Hope2SleepGuide

Sleep Apnoea Forum Bringing Help + Support to the Patient

hi everyone I am considering buying a more comfortable nasal mask, I am looking at the JOYCE SILK GEL NASAL MASK.  I have looked for reviews but cannot find any , has anyone on this forum used this mask and is it worth a hundred pounds.my current hospital mask o k but a bit uncomfortable to wear all night long, my mask is the silicoe balloon type if thats the right way to describe it. im feeling that if the c pap is for life i may aswell make it as comfortable as possible. or if any one knows of a gel nasal mask they could recommend please let me know. thanks Bob.

Views: 73

Reply to This

Replies to This Discussion

I agree with giving it your best shot at getting the 'right' mask for you Bob, but even with all the best reviews in the world it's not possible to guarantee if it will be the 'right' mask for you.  It's why when people ask me which mask I rate the best I can't give an answer.  Have you asked your hospital if they have an alternative mask for you to try?

Talking about masks, we had a lady travel a 400 mile round trip today to our charity in Hull from London to to try masks on before purchase, and I shared it earlier on our Facebook Page.

Interestingly, the mask I thought would suit her better was her 2nd choice when she'd laid on the bed hooked up to her machine with them on.

Yes, masks for one person do not mean they are for everyone, getting a supplier to give ou a refund if it is not suitable is good, but trying it on and lying down with your machine on for an hour or so is the only real way of trying a mask.  Even that does not mean you will not have problems with it after you take it home.  I had a cupboard full of masks when I started until I found a mask I could at least use every night, it was not perfect, but it was the best I could get and no longer available in this country.

So I recommend you get a supplier that will refund you withing 30 days or go where you can try the mask on, even if it does mean a long journey.  The other thing is that if they have a selection of masks you might find the ideal mask for you, maybe one you never thought about.

Reply to Discussion

RSS

Sleep Apnoea Forum

New to the Sleep Apnoea Forum? 

1. Stop by our Sleep Apnoea Welcome Center to introduce yourself to the SleepGuide community.
2. Start a New Topic of Conversation.
3. Post your photos - of yourself, your old CPAP machine, your new CPAP machine, your pet, something about you!

Interested in advertising, have a problem or need to contact us? Click the Report an Issue page.

 

Latest Activity

Bill Thomson added a discussion to the group Buy-Sell-Swap
Thumbnail

ResMed DC-DC converter for S9

I have for sale a converter which allows the S9 machine, which requires a 24v supply, to run from a vehicle 12v or 24v DC socket, or direct from a 12v battery. The converter can power a humidifier and heated tube as well as the CPAP machine,…See More
Saturday
Bill Thomson joined The SleepGuide Crew's group
Saturday
Sleep2snore replied to Chris Vesey's discussion Cure for wind
"It would depend if there was a smell or not "
Tuesday
Sleep2snore replied to Edam's discussion Double inhaling
"I'll be interested to know what you have found.  Give it time so you can prove what is happening. I had my machine pulse at full pressure for the second time when it was switched on, turning it off then on again a couple of times with a…"
Tuesday
Mark bowerman is now a member of Hope2SleepGuide
Oct 9
Renee Rowlands posted a discussion

Recommendation please for Oximeter purchase.

Hello everyone!I would very much like to check my oxygen levels during the night.  Can anyone recommend an Oximeter to purchase please?My mask is a F&P Brevida which has soft straps and one of the straps slips up my head during the night, making…See More
Oct 7
Kyla Davies replied to Kyla Davies's discussion Soclean machine in the group Buy-Sell-Swap
"Thanks Kath, edited with price. "
Oct 5
Kath Hope replied to Kyla Davies's discussion Soclean machine in the group Buy-Sell-Swap
"Oh what a shame Kyla.  We are all so different with our sensitivies to smells, as I love the clean smell after using mine.  I'd advise you edit this with the price you're looking for, to save lots of messages agreeing and…"
Oct 5
Kyla Davies added a discussion to the group Buy-Sell-Swap
Thumbnail

Soclean machine

SOLD!! !  I am selling my soclean machine. It is a fantastic machine and does the job, however I am struggling with the "ozone" smell it turns my stomach. I only purchased it on 18/09/18 so only had a couple of weeks use. I purchased it with an…See More
Oct 5
Edam replied to Edam's discussion Double inhaling
"I believe I have found a reason for the pressure going up to 20 and staying there. Its early days yet and I need to find the best fix"
Sep 27
Chris Vesey replied to Chris Vesey's discussion Cure for wind
"I could always go on the stage, le petomaine made a living I believe"
Sep 26
Edam replied to Edam's discussion Double inhaling
"If the top limit is unrestricted then it will go up to 20 for up to 5 hours a night.  The hospital say that I need this pressure as my Apnea is getting worse but my AHI is nearly always under 1"
Sep 20
Sleep2snore replied to Chris Vesey's discussion Cure for wind
"It is very common for people to get wind in there stomach using CPAP/APAP.  As Kath say, at the start it can be quite bad for some people, others are not bothered.  In fact the ResMed is less likely to give you this problem, but saying…"
Sep 19
Sleep2snore replied to Edam's discussion Double inhaling
"Your machine should not go higher unless you need more pressure. The machine I have was set at 10 to 20 when I got it and it has never ventured above 12.9. I have a ResMed 10Auto which I found to be a little better than the Dreamstation.  I…"
Sep 19
Edam replied to Edam's discussion Double inhaling
"I trialled the Sleepweaver before it came out, I believe I still have it somewhere, but I could not get on with it then. I used a liner on the Dreamwear last night but still was too painful to use and had to change masks during the early hours..…"
Sep 19
Edam replied to Edam's discussion Double inhaling
Sep 19
Kath Hope replied to Chris Vesey's discussion Cure for wind
"This is a common problem Sally, and especially when new to CPAP, irrespective of whatever machines people use.  It's definitely not just an Airsense 10 problem. If you've not clicked on the link I posted above in my reply to Chris…"
Sep 17
Sally Gray replied to Chris Vesey's discussion Cure for wind
"Hi, it’s interesting to read Chris’s comment that the AirSense 10 has given him flatulence whereas his previous CPAP wasn’t a problem.  I’m new to using a CPAP and have been provided with an AirSense 10 which I’m…"
Sep 17
Kath Hope replied to Bob Blair's discussion So Clean sanitiser
"I'm not aware of finance, and we at the Hope2Sleep Charity certainly couldn't offer this unfortunately.  However, if you have a Paypal account then you can apply for Paypal Credit which is offered for products over £150 I…"
Sep 16
Kyla Davies replied to Bob Blair's discussion So Clean sanitiser
"Hi Kath In relation to the Soclean do you know if any finance is available to purchase one of these machines? I do not mind spending that amount on one but would be very helpful especially this time of year to purchase one on a finance…"
Sep 16

© 2018   Created by The SleepGuide Crew.   Powered by

Badges  |  Report an Issue  |  Terms of Service