Help for the hubby - Hope2SleepGuide2024-03-28T20:27:53Zhttp://hope2sleepguide.co.uk/forum/topics/help-for-the-hubby?commentId=6381638%3AComment%3A57705&feed=yes&xn_auth=noHi Bethany,
Just a suggestion…tag:hope2sleepguide.co.uk,2018-06-20:6381638:Comment:581032018-06-20T06:08:50.612ZAlisonhttp://hope2sleepguide.co.uk/profile/Alison282
<p>Hi Bethany,</p>
<p>Just a suggestion but has anyone mentioned narcolepsy?</p>
<p>Hi Bethany,</p>
<p>Just a suggestion but has anyone mentioned narcolepsy?</p> The two things that come to m…tag:hope2sleepguide.co.uk,2018-06-12:6381638:Comment:578052018-06-12T13:58:58.846ZSleep2snorehttp://hope2sleepguide.co.uk/profile/Sleep2snore
<p>The two things that come to mind is diabetes and low blood pressure. Though I think they would have checked for diabetes, a sudden drop in blood pressure is more difficult to catch. Has he had his heart checked? Also there is a condition that affects the brain that can make people pass out without much or any warning, the name escapes me but there is also a lot of other causes. I hate saying to someone "Look it up on the Internet" but this is an NHS page of causes.…</p>
<p>The two things that come to mind is diabetes and low blood pressure. Though I think they would have checked for diabetes, a sudden drop in blood pressure is more difficult to catch. Has he had his heart checked? Also there is a condition that affects the brain that can make people pass out without much or any warning, the name escapes me but there is also a lot of other causes. I hate saying to someone "Look it up on the Internet" but this is an NHS page of causes. <a href="https://www.nhs.uk/conditions/fainting/causes/" target="_blank" rel="noopener">NHS Fainting/Passing out causes.</a></p>
<p>It might help find if he recognises any of the symptoms, sometimes doctors need a gentle nudge in the right direction.</p>
<p>But do not panic if you do find something, it may not be that at all.</p>
<p></p>
<p>Good luck.</p> Thank you for the welcome.
I…tag:hope2sleepguide.co.uk,2018-06-08:6381638:Comment:579012018-06-08T12:26:57.566ZBethanyhttp://hope2sleepguide.co.uk/profile/Bethany
<p>Thank you for the welcome. </p>
<p>It can get very frustrating, especially when we hear stories like yours with a very long fight before getting any actual diagnosis. We have feeling that we are also going to be on a very long road before we find out. </p>
<p>Sometimes our GP is incredibly helpful and willing to listen and is open to suggestions and yet other times she gives us the impression that we may never find out and we need to just "deal with it" but, in my opinion, loosing…</p>
<p>Thank you for the welcome. </p>
<p>It can get very frustrating, especially when we hear stories like yours with a very long fight before getting any actual diagnosis. We have feeling that we are also going to be on a very long road before we find out. </p>
<p>Sometimes our GP is incredibly helpful and willing to listen and is open to suggestions and yet other times she gives us the impression that we may never find out and we need to just "deal with it" but, in my opinion, loosing consciousness because you were too active is not something we can just "deal with". Nor am I prepared to be fobbed off.<br/> <br/> <cite>Kath Hope said:</cite></p>
<blockquote cite="http://hope2sleepguide.co.uk/forum/topics/help-for-the-hubby#6381638Comment57424"><div><div class="xg_user_generated"><p>Welcome to our forum Bethany, but so sorry to read of what you're both going through. Glad your husband's severe sleep apnoea got picked up finally and at least you know he's on good treatment for that. However, it's awful when there is something else going on that you can't get a reason/diagnosis for. We had a similar thing with my husband, which I'm sure isn't the same as yours as my husband used to collapse or fit after eating, and it was actually me who finally found the reason that 10 years of medical investigations hadn't (via Google) - Swallow Syncope. Fortunately, our GP listened to what I'd found, sent him to a heart specialist and within days he was fitted with a pacemaker which solved his problem.</p>
<p>There are so many muscular problems out there and my first thought was myasthenia gravis or something similar, but I'm not sure if people lose consciousness with that. </p>
<p>I'm no doctor, but wouldn't think this was to do with your husband's sleep apnoea if it's well controlled and I do hope you get to the bottom of this. Please let us know when you do and don't give up as there will be an answer out there, even if you have to stumble across it yourself like I did for my husband.</p>
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</blockquote> His CPAP machine is currently…tag:hope2sleepguide.co.uk,2018-06-08:6381638:Comment:578012018-06-08T12:23:37.661ZBethanyhttp://hope2sleepguide.co.uk/profile/Bethany
<p>His CPAP machine is currently set at 7.5cmph, it was originally a little lower but after his check up they advised to increase it. He has follow ups with a sleep doctor every 3 months for the first year (unless we are having problems then we can go to them sooner) so its certainly something we can bring up at the next appointment. But he feels like its working well at this point. </p>
<p></p>
<p>Hes had loads of blood tests done, I would assume they would have done the general checks as well…</p>
<p>His CPAP machine is currently set at 7.5cmph, it was originally a little lower but after his check up they advised to increase it. He has follow ups with a sleep doctor every 3 months for the first year (unless we are having problems then we can go to them sooner) so its certainly something we can bring up at the next appointment. But he feels like its working well at this point. </p>
<p></p>
<p>Hes had loads of blood tests done, I would assume they would have done the general checks as well (I will have a dig through our copy of his medical notes- we have copies of all the early investigations for whenever we visit a new specialist since sometimes the computer systems dont like to play ball)</p>
<p><br/> <br/> <cite>Sleep2snore said:</cite></p>
<blockquote cite="http://hope2sleepguide.co.uk/forum/topics/help-for-the-hubby#6381638Comment57705"><div><div class="xg_user_generated"><p>Is it a CPAP machine with a fixed pressure he has?</p>
<p>It might be that a fixed pressure machine is not the right one for him or he may have a complicated Sleep Apnoea, in other words there are other things going on other than just his throat obstructing his airways. He can also just stop breathing and this has the same effect as above, if he has this he might need a different machine. The chances are you will not have a copy of his sleep study, in any case it can be masked b the Obstructive Apnoeas.</p>
<p>Has he had a full blood test done to rule out having to many white or not enough red cells in his blood?</p>
<p>Muscle wastage might not have anything to do with Sleep Apnoea, but if he is not doing much that will cause wastage in the muscles.</p>
<p>However, if he has put on some weight he might need a bit more pressure, though if he has a APAP machine he might be fine. Get him checked out for pressure.</p>
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</blockquote> Is it a CPAP machine with a f…tag:hope2sleepguide.co.uk,2018-06-06:6381638:Comment:577052018-06-06T10:24:46.587ZSleep2snorehttp://hope2sleepguide.co.uk/profile/Sleep2snore
<p>Is it a CPAP machine with a fixed pressure he has?</p>
<p>It might be that a fixed pressure machine is not the right one for him or he may have a complicated Sleep Apnoea, in other words there are other things going on other than just his throat obstructing his airways. He can also just stop breathing and this has the same effect as above, if he has this he might need a different machine. The chances are you will not have a copy of his sleep study, in any case it can be masked b the…</p>
<p>Is it a CPAP machine with a fixed pressure he has?</p>
<p>It might be that a fixed pressure machine is not the right one for him or he may have a complicated Sleep Apnoea, in other words there are other things going on other than just his throat obstructing his airways. He can also just stop breathing and this has the same effect as above, if he has this he might need a different machine. The chances are you will not have a copy of his sleep study, in any case it can be masked b the Obstructive Apnoeas.</p>
<p>Has he had a full blood test done to rule out having to many white or not enough red cells in his blood?</p>
<p>Muscle wastage might not have anything to do with Sleep Apnoea, but if he is not doing much that will cause wastage in the muscles.</p>
<p>However, if he has put on some weight he might need a bit more pressure, though if he has a APAP machine he might be fine. Get him checked out for pressure.</p> Welcome to our forum Bethany,…tag:hope2sleepguide.co.uk,2018-06-05:6381638:Comment:574242018-06-05T23:37:21.304ZKath Hopehttp://hope2sleepguide.co.uk/profile/KathHope
<p>Welcome to our forum Bethany, but so sorry to read of what you're both going through. Glad your husband's severe sleep apnoea got picked up finally and at least you know he's on good treatment for that. However, it's awful when there is something else going on that you can't get a reason/diagnosis for. We had a similar thing with my husband, which I'm sure isn't the same as yours as my husband used to collapse or fit after eating, and it was actually me who finally found the reason that…</p>
<p>Welcome to our forum Bethany, but so sorry to read of what you're both going through. Glad your husband's severe sleep apnoea got picked up finally and at least you know he's on good treatment for that. However, it's awful when there is something else going on that you can't get a reason/diagnosis for. We had a similar thing with my husband, which I'm sure isn't the same as yours as my husband used to collapse or fit after eating, and it was actually me who finally found the reason that 10 years of medical investigations hadn't (via Google) - Swallow Syncope. Fortunately, our GP listened to what I'd found, sent him to a heart specialist and within days he was fitted with a pacemaker which solved his problem.</p>
<p>There are so many muscular problems out there and my first thought was myasthenia gravis or something similar, but I'm not sure if people lose consciousness with that. </p>
<p>I'm no doctor, but wouldn't think this was to do with your husband's sleep apnoea if it's well controlled and I do hope you get to the bottom of this. Please let us know when you do and don't give up as there will be an answer out there, even if you have to stumble across it yourself like I did for my husband.</p>