Masks? - Hope2SleepGuide2024-03-29T11:57:09Zhttp://hope2sleepguide.co.uk/forum/topics/masks-1?commentId=6381638%3AComment%3A54234&xg_source=activity&feed=yes&xn_auth=noTo be honest, it's been good…tag:hope2sleepguide.co.uk,2017-08-24:6381638:Comment:540512017-08-24T15:42:22.658ZDavid Vinnicombehttp://hope2sleepguide.co.uk/profile/DavidVinnicombe
<p>To be honest, it's been good and bad. On a positive side I no longer have a sore nose where the previous mask hurt the bridge. The Mirage Liberty is a great mask. It's lightweight and it doesn't make me so bothered to be wearing it. I think the clips on the straps are a bit flimsy compared to my old mask. Even though it is made by the same manufacturer, I was a bit disappointed by this. But I have slept really well. At least until last night. I was woken after a couple of hours by the…</p>
<p>To be honest, it's been good and bad. On a positive side I no longer have a sore nose where the previous mask hurt the bridge. The Mirage Liberty is a great mask. It's lightweight and it doesn't make me so bothered to be wearing it. I think the clips on the straps are a bit flimsy compared to my old mask. Even though it is made by the same manufacturer, I was a bit disappointed by this. But I have slept really well. At least until last night. I was woken after a couple of hours by the increase in pressure being pumped out by the cpap machine. I have the Resmed S10 and only received it in february this year. I have just spoken to the hospital and they can't access the machine yet ( some legal issue over confidentiality) but the very helpful clinician explained that if my machine detected a leak, it would increase the pressure to try and compensate. She suggested that as I had a new mask, it was possible I had "sprung a leak" so to speak, presumably because I'm a restless sleeper, and the machine was trying to compensate. I'll try adjusting the fit tonight, and also the slightly larger nostril pieces and see if that helps. The lady at the hospital said that if I have further problems, I should go back to them for either help with fitting, or for a different mask. She was lovely. This is why it bothers me when I hear people moan about the NHS. I have only ever received great service from the doctors, nurses, clinicians etc that I have met when I had to go to hospital. They are warm and passionate people who provide superb service with limited resources. I think the do a wonderful job.</p> So how have you been getting…tag:hope2sleepguide.co.uk,2017-08-22:6381638:Comment:543532017-08-22T22:09:40.885ZSleep2snorehttp://hope2sleepguide.co.uk/profile/Sleep2snore
<p>So how have you been getting on with the new mask?</p>
<p>So how have you been getting on with the new mask?</p> I doubt the hospital will giv…tag:hope2sleepguide.co.uk,2017-08-17:6381638:Comment:542352017-08-17T15:53:58.403ZDavid Vinnicombehttp://hope2sleepguide.co.uk/profile/DavidVinnicombe
<p>I doubt the hospital will give me another mask cushion, so I just purchased one myself for the Amara view I have. This is just in case I can't get on with the Mirage Liberty. I might ask for a humidifier to accompany my machine if the dry mouth continues. I did dribble previously, so every morning I had to clean the mask etc thoroughly, but not the past 2 nights with this new mask! I'll see what happens over the next few nights.</p>
<p>I doubt the hospital will give me another mask cushion, so I just purchased one myself for the Amara view I have. This is just in case I can't get on with the Mirage Liberty. I might ask for a humidifier to accompany my machine if the dry mouth continues. I did dribble previously, so every morning I had to clean the mask etc thoroughly, but not the past 2 nights with this new mask! I'll see what happens over the next few nights.</p> Not sure if you have a CPAP H…tag:hope2sleepguide.co.uk,2017-08-17:6381638:Comment:542342017-08-17T12:39:52.485ZKath Hopehttp://hope2sleepguide.co.uk/profile/KathHope
<p>Not sure if you have a CPAP Humidifier David, but if not then I would ask the hospital for one as they help tremendously with dry mouth. If you have one try to raise the setting and if you do get any 'rainout' then a hose cover should stop this <a href="http://www.hope2sleep.co.uk/cpap-ventilator-hose-cover.html" target="_blank">http://www.hope2sleep.co.uk/cpap-ventilator-hose-cover.html</a> If you're already using a humidifier, then it's worth trying the Xylimelts which are a huge seller…</p>
<p>Not sure if you have a CPAP Humidifier David, but if not then I would ask the hospital for one as they help tremendously with dry mouth. If you have one try to raise the setting and if you do get any 'rainout' then a hose cover should stop this <a href="http://www.hope2sleep.co.uk/cpap-ventilator-hose-cover.html" target="_blank">http://www.hope2sleep.co.uk/cpap-ventilator-hose-cover.html</a> If you're already using a humidifier, then it's worth trying the Xylimelts which are a huge seller because we can use them with our masks <a href="http://www.hope2sleep.co.uk/xylimelts-dry-mouth-discs.html" target="_blank">http://www.hope2sleep.co.uk/xylimelts-dry-mouth-discs.html</a> I must say I do get more dry when using a hybrid type of mask, which is when I use the Xylimelts as well.</p>
<p>I just checked and didn't realise you'd bought the Amara View from our charity. See how you get on with the Liberty, but it might also be worth getting the Amara View small mask cushion as that could be the problem as I mentioned in my last reply.</p> I had quite a few, in fact I…tag:hope2sleepguide.co.uk,2017-08-17:6381638:Comment:541342017-08-17T12:37:50.332ZSleep2snorehttp://hope2sleepguide.co.uk/profile/Sleep2snore
<p>I had quite a few, in fact I have the box my forst machine came in stuffed full of masks that I tried and failed to get on with.</p>
<p>Nasal Pillows is the only ones I can get on with, though I do sometimes get a dry mouth. I know what happens, it is not that I open my mouth, it is the air sneaking into my mouth and building up enough pressure to force it way out of my lips. There is not a lot I am prepared to do about it. I could do what the crazy Americans do and put tape across my…</p>
<p>I had quite a few, in fact I have the box my forst machine came in stuffed full of masks that I tried and failed to get on with.</p>
<p>Nasal Pillows is the only ones I can get on with, though I do sometimes get a dry mouth. I know what happens, it is not that I open my mouth, it is the air sneaking into my mouth and building up enough pressure to force it way out of my lips. There is not a lot I am prepared to do about it. I could do what the crazy Americans do and put tape across my mouth, but for me that is not a good idea. I have enough extra pressure, so loosing a little is not a problem, and it is so tiny an amount that it does not affect me. However, if I sleep soundly it does give me a dry mouth due to the air passing through, even if it is a tiny amount (It is like a dripping tap) but it does dry out the mouth.</p>
<p>I keep a small bottle of water with one of the pull to open tops (the sport bottle type) and if I waken I just squirt in some water, this also helps with the dryness and also the leaks. However, this is not helping you.</p>
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<p>It is a shame that there was not a mask pack of masks that could be sent out to people to try, then sent back and sterilised before being sent out again. I wouldn't mind trying some masks that had been tried by others if they had been sterilised before being sent out again. Of course you would need to pay quite a substantial deposit or give your credit card number with a charge for P&P which could be charged if the masks were not returned. Though this would require some big investment by someone to set up in the first place.</p>
<p>Good luck with your masks David, this can be the biggest problem area. But do not give up, there is a mask out there that will work for you, it is just a case of finding it.</p>
<p>Even the cloth masks need improvement to make them work better.</p>
<p>Like a flexible bit of plastic round the nose to make it stay in the correct shape for the nose.</p>
<p>I always wanted to try the cloth ones, so I sent away for one (refund if it did not work) but this was before the Full-faced one came out. Didn't work for me, shame as the Sleep Clinic I go to said they would supply me with one if it worked. One a year only. Now they have two Full-faced ones out, however, Looking through <strong>TheLankyLefty's YouTube Videos</strong>, a good source of information <a href="https://www.youtube.com/user/TheLankyLefty27/videos" target="_blank">https://www.youtube.com/user/TheLankyLefty27/videos</a> he is a Sleep Tech so his videos are worth a look through. He points out the good points of all the masks he tries and the bad points. However, these points might not be the same for everyone, but it does give you a good idea.</p>
<p><strong>It is just a shame there was not a shop like Hope2Sleep's somewhere in Scotland.</strong></p>
<p><strong>It would be worth the trip just to try some masks.</strong></p>
<p>I was sent two masks form a website for review, however, I did say that what worked for me might not work for others.</p>
<p>I didn't want them to send me any more, though I think they have stopped doing this now anyway.</p>
<p>They changed the layout of the website and not only once, several times, so everyone left.</p>
<p><strong>This is the only area where it would be handy if everyone were the same and one mask fitted all</strong> <img src="http://www.bkserv.net/images/Grin.gif"/></p> I went back to the hospital t…tag:hope2sleepguide.co.uk,2017-08-17:6381638:Comment:542332017-08-17T02:59:20.817ZDavid Vinnicombehttp://hope2sleepguide.co.uk/profile/DavidVinnicombe
<p>I went back to the hospital that supplies my machine etc to ask about a different mask. They showed me the Mirage Liberty and let me try it on. It did feel a bit strange but decided to give it a go. Last night was my second night and I slept very well, though today I woke with a dry mouth. Interestingly, the clinician who gave me the new mask noted that she thought I had the wrong size of my regular mask. But as I could only leave with 1 mask, I decided to go with the Liberty. If I can't get…</p>
<p>I went back to the hospital that supplies my machine etc to ask about a different mask. They showed me the Mirage Liberty and let me try it on. It did feel a bit strange but decided to give it a go. Last night was my second night and I slept very well, though today I woke with a dry mouth. Interestingly, the clinician who gave me the new mask noted that she thought I had the wrong size of my regular mask. But as I could only leave with 1 mask, I decided to go with the Liberty. If I can't get on with it, I'll go back and get a larger size of my original one. I was given that size when I was originally diagnosed, and I go back every february for my annual checkup as my driving licence is dependent on my compliance with therapy, and yet only now has it been suggested I have the wrong size!</p> I don't think any manufacture…tag:hope2sleepguide.co.uk,2017-08-16:6381638:Comment:543372017-08-16T19:50:50.072ZKath Hopehttp://hope2sleepguide.co.uk/profile/KathHope
<p>I don't think any manufacturers to a refund system here in the UK Sleep2snore like some DME's do in the USA for an extra insurance charge. We do free mask fittings at our charity's shop, but of course it's too far for some to travel, although surprising just how far people do travel to us (Hull, East Yorkshire).</p>
<p>David, there's a good chance you have the wrong mask cushion with the Amara View mask, as it's crucial you have the right size. We had one customer convinced he'd need a…</p>
<p>I don't think any manufacturers to a refund system here in the UK Sleep2snore like some DME's do in the USA for an extra insurance charge. We do free mask fittings at our charity's shop, but of course it's too far for some to travel, although surprising just how far people do travel to us (Hull, East Yorkshire).</p>
<p>David, there's a good chance you have the wrong mask cushion with the Amara View mask, as it's crucial you have the right size. We had one customer convinced he'd need a large.....I suggested he tried small. He then bought the medium cushion and still strugged. Finally, in desperation he got the small cushion and it works well for him now! Ask your clinic if they can let you try a smaller cushion.</p> Try putting the mask on when…tag:hope2sleepguide.co.uk,2017-08-14:6381638:Comment:540292017-08-14T16:06:07.856ZSleep2snorehttp://hope2sleepguide.co.uk/profile/Sleep2snore
<p>Try putting the mask on when you lay down, the shape of the face changes when you lay down quite a bit.</p>
<p>Failing that, try another mask, it sometimes takes a few before you get one that fits.</p>
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<p><strong>There is a great need for a mask fitting service, one where you can try a mask for a night. Then buy when you are happy with a model.</strong></p>
<p><strong>Some manufacturers will let you try and refund your money, so if you are private I would go down that…</strong></p>
<p>Try putting the mask on when you lay down, the shape of the face changes when you lay down quite a bit.</p>
<p>Failing that, try another mask, it sometimes takes a few before you get one that fits.</p>
<p></p>
<p><strong>There is a great need for a mask fitting service, one where you can try a mask for a night. Then buy when you are happy with a model.</strong></p>
<p><strong>Some manufacturers will let you try and refund your money, so if you are private I would go down that route.</strong></p> I tried again last night with…tag:hope2sleepguide.co.uk,2017-08-13:6381638:Comment:543172017-08-13T10:44:49.426ZDavid Vinnicombehttp://hope2sleepguide.co.uk/profile/DavidVinnicombe
<p>I tried again last night with the Amara View mask, but I could not get it to seal. I thought I had it at one point, but when I lay down it started leaking again, so I went back to my full face mask. However, this morning the bridge of my nose is really sore again! I get my machine etc through the NHS hospital at Rugby so I'll contact them and see if they supply any hybrid masks, failing which I'll order the Mirage Liberty.</p>
<p>But all of this reminds me why some people give up with…</p>
<p>I tried again last night with the Amara View mask, but I could not get it to seal. I thought I had it at one point, but when I lay down it started leaking again, so I went back to my full face mask. However, this morning the bridge of my nose is really sore again! I get my machine etc through the NHS hospital at Rugby so I'll contact them and see if they supply any hybrid masks, failing which I'll order the Mirage Liberty.</p>
<p>But all of this reminds me why some people give up with therapy. It's a dramatic change to have to sleep with a mask strapped to your face each night, even worse the problems that mask fitment brings. Thank you Kath for providing a place for SA sufferers to get help, advice and not letting us feel alone in this new CPAP world.</p> I have plastic bit at the end…tag:hope2sleepguide.co.uk,2017-08-12:6381638:Comment:542192017-08-12T23:15:56.703ZSleep2snorehttp://hope2sleepguide.co.uk/profile/Sleep2snore
<p>I have plastic bit at the end of my hose, I didn't get then for a while, then they came with a new hose or something, Then I had a make of mask with a small hose and it plugged directly into the large one. Funny feeling you should have had a smaller bit of hose with the mask or an adaptor or something?</p>
<p>Mind you the mask I got the small hose with was rubbish! <img src="http://www.bkserv.net/images/Frown.gif"/> Broke the second night.</p>
<p>I have plastic bit at the end of my hose, I didn't get then for a while, then they came with a new hose or something, Then I had a make of mask with a small hose and it plugged directly into the large one. Funny feeling you should have had a smaller bit of hose with the mask or an adaptor or something?</p>
<p>Mind you the mask I got the small hose with was rubbish! <img src="http://www.bkserv.net/images/Frown.gif"/> Broke the second night.</p>