Hope2SleepGuide

Sleep Apnoea Forum Bringing Help + Support to the Patient

After only 15 days on my cpap machine I have recently had my first review. I was diagnosed with severe OSA, I had an AHI of 42. My partner timed some of my apnoeas at 28. seconds.

My AHI is now down to 20 which puts me in the moderate OSA category. I have adapted quite well to wearing a nose and mouth mask but I have been waking up 2 or 3 times a night for a drink of water to lubricate my mouth and throat, despite using a mouth lubricating spay. As I am up, I go to the toilet but I am passing nowhere near as much urine as I did before treatment and I am no longer being woken by a full bladder.

My sleep clinic have very kindly provided me a humidifier. Unfortunately I have not got it to work - though the preheater works, strange. I have been back and they have changed the settings on my machine and hopefully if will now work.

It is very early days for me and I do not expect any overnight 'cure' . However, I have seen early 'green shoots of recovery'. I have stopped falling asleep in the chair within minutes of getting home from work . It feels great to be able to sit through early evening TV without falling asleep. I feel more alert at work and now last till mid afternoon before I start to feel tired. I also no longer suffer from acid reflux - I was going through a bottle of gaviscon a month. 

One thing that does remain is my 'mental fog' - not in terms of memory loss or confusion but in terms of mental sharpness. However, I think this symptom will take the most time to overcome. I believe I have been suffering from OSA for many years before my recent diagnosis. Reading this and other forums I believe my brain is so used to waking my body up at night that it is going to take time to change things - anyway I live in hope. The way I feel in a morning is mixed - some days still I feel fatigued but other days I wake up feeling more refreshed.

On odd occasions at week ends, after 7-8 hours sleep, I have taken off my mask and dosed again for 1 to 2 hours and woken up feeling terrible, so now I only sleep with my mask on.

Hopefully, I will get some unbroken nights soon, if my humidifier to starts to work. I will keep you posted.

John Wilkinson

Views: 87

Reply to This

Replies to This Discussion

Hi John

Good to hear you're feeling some benefits after just 15 days, but with you saying you've come down to an AHI of 20, as you say, that's still moderate sleep apnoea, so hopefully the clinic have adjusted the pressures and when your AHI comes down to 5 or below you should feel more benefits and hopefully to your 'mental fog.'

I'm the same as you, in that when I used to fall back to sleep without my mask on for an hour or so I would wake up feeling terrible so I never do it now.

Hope all continues to go well for you......

Hi Kath,

Thanks for your reply. I am not sure if the clinic have adjusted the pressures on my cpap machine. I will ask when I go for my next review at the end of January.

Also I have bought an insulated sleeve for my breathing tube. Hopefully this will stop the condensation and resultant bubbling I am getting in my tube from my humidifier.

As far as I know the DVLA are going to contact my consultant re my fitness to drive. I have been lead to believe that as long as I am responding to treatment I will not have my license suspended. Have you any views on this situation?

Regards.

John Wilkinson

Hi John,

Good to see you are getting to grips with your CPAP machine.  It take a while for your body to get back to a normal function after struggling against Sleep Apnoea.  You have still a bit to go to get down to where you should be, however, you will get there I hope in the near future.

Try not to even dose without your CPAP machine on, if you must have a quick dose do it in a chair where you are sitting bolt upright.  If you fall asleep lying down your airways will become restricted, your oxygen levels will drop and then you end up with a foggy brain.  Hope you are now getting there and getting better low numbers.

Hi Sleep2snore,

Thanks for that. It really helps when I receive empathetic replies and advice from fellow OSA sufferers who are further down the road than me. Your support and encouragement is very welcome and helps me to 'stick at it' even when I have  bad nights with my cpap machine. A big sincere thank you.


 
Sleep2snore said:

Hi John,

Good to see you are getting to grips with your CPAP machine.  It take a while for your body to get back to a normal function after struggling against Sleep Apnoea.  You have still a bit to go to get down to where you should be, however, you will get there I hope in the near future.

Try not to even dose without your CPAP machine on, if you must have a quick dose do it in a chair where you are sitting bolt upright.  If you fall asleep lying down your airways will become restricted, your oxygen levels will drop and then you end up with a foggy brain.  Hope you are now getting there and getting better low numbers.

Hi John, I have had over 20 yrs of it so far, it just takes a while for your brain to accept that it needs to use a machine.

We are not used to air at pressure being blown into us, so stick with it and in no time you will not be able to sleep without it, or at least you will not want to.

It just takes the right mask and the right humidity and pressures.

You will get there, trust me.  If you have problems as of contact your sleep center, most try their best to help you.

Reply to Discussion

RSS

Sleep Apnoea Forum

New to the Sleep Apnoea Forum? 

1. Stop by our Sleep Apnoea Welcome Center to introduce yourself to the SleepGuide community.
2. Start a New Topic of Conversation.
3. Post your photos - of yourself, your old CPAP machine, your new CPAP machine, your pet, something about you!

Interested in advertising, have a problem or need to contact us? Click the Report an Issue page.

 

Latest Activity

Edam replied to Edam's discussion Double inhaling
"I have been using   Remstar and S9 APAP,s for about 9 years now and my COPD was diagnosed at the same time. A consultant wanted to stop my Steroid inhaler completely as my COPD was not bad enough to require it but the nurse just…"
yesterday
Sleep2snore replied to Chris Vesey's discussion Medistron batteries
"It is always good to have a dealer that you can trust and will sort out problems when they arise. It is always nice to have someone that has the time to sort things out with a customer and take time to do it rather than some salesman that don't…"
yesterday
Sleep2snore replied to Edam's discussion Double inhaling
"Well the inhaler makes the lungs open up and if anything the dryness from a CPAP will dry them up and shut them down again. I am no doctor, but if you needed an inhaler before CPAP you would certainly need one after you start. Why did they cut you…"
yesterday
Sleep2snore replied to Edam's discussion Twisted strap ouchhh!!
"What kind of strap is it, is it a cloth one or a silicone one? If it is a cloth one you could sew a strip along it to give it a bit more rigidity/stiffness. If it is a plastic one or a silicone one you could sew a bit of fabric round it to make it…"
yesterday
Edam replied to Edam's discussion Twisted strap ouchhh!!
"I twisted the forehead strap again last night and OUCH!! Can anybody suggest a full face mask without the forehead strap. I cant use the Resmed Airfit masks as I seem to be exactly between sizes "
yesterday
Edam replied to Edam's discussion Double inhaling
"Using the  increased steroid dosage inhaler, 200 /6 rather than 100/6, has reduced my 95% pressures by about 5 cm. Doing some detective work I have found that I was put onto a lower dosage inhaler in May last year. I think that is when the…"
yesterday
John Wilkinson replied to John Wilkinson's discussion I've 'hit a wall' can any body help me?
"Thanks for your advice. I really appreciate your help. I wasn't aware that there different types of apnoeas. I will be seeing the sleep nurse next week. I will keep you informed. John "
May 17
John Wilkinson replied to John Wilkinson's discussion I've 'hit a wall' can any body help me?
"Thanks for that Kath. I am due to see the sleep clinic next week. Hopefully they will re-adjust the pressure. I will keep you informed. John"
May 17
Edam replied to Edam's discussion Double inhaling
"I have read that APAP machines are not suitable for people with Asthma and give the same problems that I have been having. I am now having to use twice the dose of steriods just to keep the APAP happy If I can ever get in touch with my hospital I…"
May 17
Kath Hope replied to Chris Vesey's discussion Medistron batteries
"Thanks Chris and we certainly are doing our homework Sleep2Snore.  Our charity work hard to get the right products at the right price for our fellow sufferers, and we have lots of loyal customers who purchase from us both to support the charity…"
May 17
Kath Hope replied to John Wilkinson's discussion I've 'hit a wall' can any body help me?
"Sorry to hear after a good start you've taken a step backwards, and it could well be due to the reduction in pressure.  We don't recommend adjusting pressures but you're right to contact your hospital who will probably re-adjust…"
May 17
Sleep2snore replied to John Wilkinson's discussion I've 'hit a wall' can any body help me?
"They have reduced it to far.  The max was 16, they should have left the machine at 18 if it is an APAP (automatic pressure) if it is a CPAP you have now same applies.  However, it might not be quite that straight forward as that as the…"
May 16
John Wilkinson posted a discussion

I've 'hit a wall' can any body help me?

I was diagnosed with severe OSA in November and I have been using a Philips Respironics CPAP machine and full face mask from early December up to now (about 5 months). My HPI's went down from 44 to about  14 in about 10 weeks and I was feeling much…See More
May 16
Sleep2snore replied to Chris Vesey's discussion Medistron batteries
"They are very costly things to have sitting around to go wrong or if you forget to charge them by their date. You could try to see if they will do it on a sale or return basis, them you could keep one or two.  However, I think most are ordering…"
May 15
Chris Vesey replied to Chris Vesey's discussion Medistron batteries
"Hi, I see from medistrom website they are looking for dealers, is it worth considering Kath"
May 15
Sleep2snore replied to Chris Vesey's discussion Medistron batteries
"I wish the ResMed was 12Vdc, it would make life a lot easier. I wonder why they need 24Vdc anyway? My APAP is not mine to and see why it has to be 24Vdc! I don't think the clinic might be to impressed if I opened it for a look. "
May 14
Sleep2snore replied to Edam's discussion Double inhaling
"I would like to see how the hospital is going to explain that your Apnoea is getting worse with an AHU of 0. That is almost incompetent. It might also be that it is not straight forward Sleep Apnoea you have and might benefit from an advanced…"
May 14
Chris Vesey replied to Chris Vesey's discussion Medistron batteries
"hi, just looked on internet, it seems that medistrom may not have a dealer in the uk but a company called sleep tight advertise the pilot 24 for £345, don't know about the co pilot. The very expensive one on amazon comes from Israel, good…"
May 13
Chris Vesey replied to Chris Vesey's discussion Medistron batteries
"hi, at the time amazon were selling the pilot for £285 and the co pilot for £137, gone up a lot since then chris"
May 13
Edam replied to Edam's discussion Double inhaling
"I have read that if you have Asthma a CPAP is better than a APAP  When the APAP increases the pressure it makes the asthma worse and then the APAP increases the pressure again which makes the asthma even worse ..... This is exactly whats…"
May 13

© 2018   Created by The SleepGuide Crew.   Powered by

Badges  |  Report an Issue  |  Terms of Service