Welcome to the Hope2SleepGuide Forum, which is a service run by the Hope2Sleep Charity founded by Kath Hope with a marvellous team of trustees and volunteers.
Kath herself has severe sleep apnoea and hypoventilation/hypercapnia, and has used CPAP for several years and is now on non-invasive ventilation. Our trustees and volunteers are all either sufferers of sleep disordered breathing or clinicians/medics working in this field, and most importantly, we are all passionate in supporting (with empathy) others and raising awareness to help people live healthier and more energised lives.
Whilst we do not give medical advice, more often than not, with support, tips and knowledge, people can overcome any problems experienced with our therapy, and there is a whole page dedicated to this on the website http://www.hope2sleep.co.uk/tips-for-problems-sleeping-with-cpap-or...
Please come and join us, and don’t feel obligated to use your ‘real’ name if you prefer to remain anonymous as this is a public forum. Don’t be shy in posting and sharing, as we’re all in this together and to help each other.
Best Wishes for good sleep!
Welcome Sven and you've been given a lovely machine. The Simplus mask is also a very good one, but unfortunately getting the 'right' mask is the harder part and many of us have to try several masks until we find the one that suits us. Numbness isn't something we hear of much.... it's usually discomfort or soreness people complain about. It could be that you're having to fasten it too tight to prevent leakage. Occasionally people do end up having to purchase an alternative mask to what their clinics supply, but it's early days yet for you so I would ask your clinic if you can try a different one. If you do need to purchase in the future and it's a mask that our charity sell, please call us on 0300 102 9711 so we can help advise you, as we hate it when people purchase unsuitable masks as they're not cheap! The DreamWear Jonathan mentioned in his reply is good for nasal breathers, but with you needing a full face mask perhaps ask if they stock the Amara View as a more minimalistic mask might suit you better (with you mentioning numbness) http://www.hope2sleep.co.uk/amara-view-full-face-minimal-contact-cp...
Sven Mischkies said:
thanks for adding me. I am in my mid 40s and have been diagnosed with light sleep apnea. I think I have had it since about 2010, with the usual symptoms - feel tired waking up, brain fog during the day and often feel too sleepy after work not to go to bed... The NHS gave me a Resmed Airsense 10 on an auto setting to go home and see how it goes. So far I am not using it as much as I should (go to bed with it, wake up after 2-4 hours, take it off). The reason is that the mask is not very comfortable (F&P Simplus size L - the nurse tried a smaller one earlier, but it barely covered my nose. :)) - it feels a bit small (if I move it up all the way to the top of my nose bridge it rests on my lower lip), but the main issue it that my face feels numb under it after wearing it a short time. I searched a bit to find others reporting numbness, but didn't find all that much.
Is numbness normal? Should I get a bigger mask? If so, which ones are bigger? Would a gel cushion help? Would the NHS provide what I ask for or should I buy it myself? Questions, questions - sorry about that. :D
thanks for the responses. I tried to loosen the straps to the point just before it starts leaking, but to no avail. I thought the Amara View would be the worst mask for me, because it sits right there where I get the numbness from the Simplus.
When I was at the RBH to pick up the Airsense very little time was spend on choosing the mask. The nurse originally gave me one sizes S or M, and L only after staring at me for a while and noticing that the little hing barely covered my nose. No other masks were tried.
So, this week I called them back and ask for an appointment to change the mask, and was told to just come in at a certain time because that was when mast swapping consultations were done.
I went there today, only to discover that they meant to replace an old mask with a new one, not trying to fit something altogether different for which you would need a proper appointment... Oops.
Thankfully I was taken care off anyway :) and we went through a plethora of masks (with repeated mentions of my 'long face' even after I commented that my mum is also still complaining about the size of my head...), including the Amara View (which was the least comfortable), but found no fitting full face mask. I mentioned the total face mask, but she said that that one would not be available. So, as I mostly breathe through the nose we tried on nasal masks - with the same result, everything was too small.
So, that didn't go well at all - until at the very end she came with a pillow mask, which seems to be quite comfortable, so I will try that one and a chin strap over the weekend. I'll report back next week. :)
Not all the clinics like supplying the FitLife (total face) mask as it's the most expensive one. It's been a favourite one of mine for a long time, and in the early days I had to purchase it myself, but my clinic does now. Hope things are going well with the pillows mask and chin strap.
Sven Mischkies said:
thanks for the responses. I tried to loosen the straps to the point just before it starts leaking, but to no avail. I thought the Amara View would be the worst mask for me, because it sits right there where I get the numbness from the Simplus..........................