Hope2SleepGuide

Sleep Apnoea Forum Bringing Help + Support to the Patient

Welcome to our Forum - Feel Free to Introduce Yourself Here.

Welcome to the Hope2SleepGuide Forum, which is a service run by the Hope2Sleep Charity founded by Kath Hope with a marvellous team of trustees and volunteers. 

Kath herself has severe sleep apnoea and hypoventilation/hypercapnia, and has used CPAP for several years and is now on non-invasive ventilation.  Our trustees and volunteers are all either sufferers of sleep disordered breathing or clinicians/medics working in this field, and most importantly, we are all passionate in supporting (with empathy) others and raising awareness to help people live healthier and more energised lives.

 

Whilst we do not give medical advice, more often than not, with support, tips and knowledge, people can overcome any problems experienced with our therapy, and there is a whole page dedicated to this on the website http://www.hope2sleep.co.uk/tips-for-problems-sleeping-with-cpap-or...

 

Please come and join us, and don’t feel obligated to use your ‘real’ name if you prefer to remain anonymous as this is a public forum.  Don’t be shy in posting and sharing, as we’re all in this together and to help each other.

Best Wishes for good sleep!

Kath

Views: 8737

Reply to This

Replies to This Discussion

I've learnt a lot in a short space of time through Hope2Sleep. Look forward to joining discussions on the forum.

Thanks for the warm welcome.

Started CPAP therapy early December having been diagnosed with severe Sleep Apnea. Over the past 10 weeks or so I have slowly adapted to using CPAP, really struggleing at times with mask fit, the having the flu which seemed to set me back somewhat. Things seem to be on the up again at the moment with a change of mask, and mask liners reducing mask leaks at last.

I am however finding my scalp tender where the mask head gear sits and wondered if anyone else had this problem and how they over came this. Or is it something that eventually goes away as you become accustomed to wearing the mask?

any help very much appreciated.

Frankie

Hi Frankie,

I have been a hosehead now for about 14 months and I too had severe sleep apnea. I too struggled with my mask and head sores but my persistence has paid off. My apneas are now down to 9 from 44. My mind and memory is much sharper and I hardly ever fall asleep during the day or early evening.

I have quite a big head and a chubby face. Also as I am predominantly a mouth breather so I was given a large full face simplex mask with neoprene straps. I struggled with comfort and leaks. However, after about 3 months my apneas went down below 15. I bought myself a medium full face simplex mask and this gave me greater comfort and less leaks.I went to my GP with head sores and she gave a steroid scalp treatment called betacap. This worked very well and cured my symptoms but not the cause. On my next visit to my sleep clinic, who have been amazing, I mentioned this and they gave me a fabric cap to clip onto my my mask. This is much more comfortable to wear and significantly reduced the pressure sores on my scalp. Also the straps are elasticated fabric and not neoprene, so I sweat much less and the velcro fasteners are more effective.

I am also on diet to lose a bit of weight although I would say I am only slightly overweight. This has helped with my apneas and has given me more energy.

I hope this helps you Frances. Stick at it and don't give up.I was told 12 to 18 months to get well again that is about right. 14 months in and I am nearly their and getting my health back.

Hi everyone! I'm new to this forum and new to Sleep Apnoea. I was diagnosed a few weeks ago having 50+ events per hour. I'm doing well with my Resmed machine and mask, however I wonder if anyone else suffers from an itchy scalp where the straps have been. It's not the worst thing in the world but it's really annoying and isn't likely to get any better. Wish I had thicker hair, maybe! 

Welcome Maxine and good you got diagnosed with such a severe case.  I wonder if the itchy scalp is due to the nights being hotter at the moment or if you've washed the straps with something that's causing an allergy.  If you place a piece of cotton material underneath the straps you would know if it's an allergy.  We do sell the softcaps at the charity, but they're not compatible with all the masks - depends which one you're using https://www.hope2sleep.co.uk/softcap-alternative-headgear.html

Maxine Chaplain said:

Hi everyone! I'm new to this forum and new to Sleep Apnoea. I was diagnosed a few weeks ago having 50+ events per hour. I'm doing well with my Resmed machine and mask, however I wonder if anyone else suffers from an itchy scalp where the straps have been. It's not the worst thing in the world but it's really annoying and isn't likely to get any better. Wish I had thicker hair, maybe! 

Thank you for the reply, Kath. I had thought about making myself a cotton cap but have been putting it off thinking that I just don't need something else on my head during the night! I will give it a go and let you know. 

You could try that Maxine, but just a piece of material under the straps would at least let you know if it's the straps themselves causing the issue.  The softcap I mentioned is for using without the mask's headgear.  Good luck!

Maxine Chaplain said:

Thank you for the reply, Kath. I had thought about making myself a cotton cap but have been putting it off thinking that I just don't need something else on my head during the night! I will give it a go and let you know. 

Reply to Discussion

RSS

Sleep Apnoea Forum

New to the Sleep Apnoea Forum? 

1. Stop by our Sleep Apnoea Welcome Center to introduce yourself to the SleepGuide community.
2. Start a New Topic of Conversation.
3. Post your photos - of yourself, your old CPAP machine, your new CPAP machine, your pet, something about you!

Interested in advertising, have a problem or need to contact us? Click the Report an Issue page.

 

Latest Activity

Isobel Brown updated their profile
4 hours ago
Isobel Brown joined The SleepGuide Crew's group
5 hours ago
Profile IconIsobel Brown and Louise joined Hope2SleepGuide
yesterday
Maxine Chaplain left a comment for Karen Hamer
"Thank you Karen. Your suggestions are good and I will certainly give them a go. To be honest, I feel so good about life after years of fatigue that this just a minor problem. I'm sure I will crack it! I'm definitely going to try a silk…"
yesterday
Kath Hope replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"You could try that Maxine, but just a piece of material under the straps would at least let you know if it's the straps themselves causing the issue.  The softcap I mentioned is for using without the mask's headgear.  Good luck!…"
Tuesday
Karen Hamer left a comment for Maxine Chaplain
"Hi Maxine - I also suffered similar problems,  and early on started to use a hair net. Not the sexiest of looks but it helps! You can buy sleep hair nets from High St chemists.. I also have a silk hair cap and a light jersey cap which I got off…"
Tuesday
Maxine Chaplain replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Thank you for the reply, Kath. I had thought about making myself a cotton cap but have been putting it off thinking that I just don't need something else on my head during the night! I will give it a go and let you know. "
Tuesday
Kath Hope replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Welcome Maxine and good you got diagnosed with such a severe case.  I wonder if the itchy scalp is due to the nights being hotter at the moment or if you've washed the straps with something that's causing an allergy.  If you…"
Monday
Maxine Chaplain replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Hi everyone! I'm new to this forum and new to Sleep Apnoea. I was diagnosed a few weeks ago having 50+ events per night. I'm doing well with my Resmed machine and mask, however I wonder if anyone else suffers from an itchy scalp where the…"
Monday
Eric Swindon posted a discussion

O.S.A. & B.H.P

Obviously I am an elderly male with enlarged prostate and have been on cpap for the last 13 years. My urologist has prescribed TAMUREX (Tamsulosin Hydrochloride) so I researched it and found this review "I'm a 58 years old. I used to get up 4 or 5…See More
Sunday
James Kilby replied to James Kilby's discussion Resmed airsence 10 - carry case - full face mask
"Could take £300 as of on holiday next week"
Jul 7
simon howlett posted a discussion

For Sale - Brand new S9 autoset heated H5i humidifier

brand new un-opened and surplus to requirements this is a brand new H5i humidifier water tank and heated attachment compartment, with a climate air tube, also not usedwould be ideal to replace older parts or keep as spares for your machine selling…See More
Jul 6
James Kilby replied to James Kilby's discussion Resmed airsence 10 - carry case - full face mask
"Located leicester"
Jul 5
Graham Carr replied to James Kilby's discussion Resmed airsence 10 - carry case - full face mask
"Hi, thanks for replying. I'm still interested in the Resmed unit. Where are you located?"
Jul 5
James Kilby replied to James Kilby's discussion Resmed airsence 10 - carry case - full face mask
"Still available Having trouble loading images this is the model and same face mask http://store.mainclinicsupply.com/resmed-cpap-airsense-10-p/airsense-10.htm#&panel1-6"
Jul 5
Maxine Chaplain is now a member of Hope2SleepGuide
Jul 1
Chris Vesey replied to Hazel Hall's discussion Mask
"Hi, My machine and mask is made by resumed, they recommend replacing the mask at 12 months. My stuff was supplied by queen's hospital, Burton upon trent but when I need anything replacing I just phone resumed and they send it and bill the…"
Jul 1
Hazel Hall posted discussions
Jun 30
Nigel Scott is now a member of Hope2SleepGuide
Jun 20
Graham Carr replied to James Kilby's discussion Resmed airsence 10 - carry case - full face mask
"Hi James, I'm interested in getting a CPAP to see if it helps my sleep apnea. How much use has the CPAP had? Do you have any photos? Thanks"
Jun 19

© 2019   Created by The SleepGuide Crew.   Powered by

Badges  |  Report an Issue  |  Terms of Service