Hope2SleepGuide

Sleep Apnoea Forum Bringing Help + Support to the Patient

Welcome to our Forum - Feel Free to Introduce Yourself Here.

Welcome to the Hope2SleepGuide Forum, which is a service run by the Hope2Sleep Charity founded by Kath Hope with a marvellous team of trustees and volunteers. 

Kath herself has severe sleep apnoea and hypoventilation/hypercapnia, and has used CPAP for several years and is now on non-invasive ventilation.  Our trustees and volunteers are all either sufferers of sleep disordered breathing or clinicians/medics working in this field, and most importantly, we are all passionate in supporting (with empathy) others and raising awareness to help people live healthier and more energised lives.

 

Whilst we do not give medical advice, more often than not, with support, tips and knowledge, people can overcome any problems experienced with our therapy, and there is a whole page dedicated to this on the website http://www.hope2sleep.co.uk/tips-for-problems-sleeping-with-cpap-or...

 

Please come and join us, and don’t feel obligated to use your ‘real’ name if you prefer to remain anonymous as this is a public forum.  Don’t be shy in posting and sharing, as we’re all in this together and to help each other.

Best Wishes for good sleep!

Kath

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Hi

I was a mouth breather.  I also slept flat on my stomach.  I now sleep on my side, and with a nose-only mask rapidly learned to keep my trap shut at night :)  The airway through my nose has significantly improved, which makes dental work much easier.  (I also have a great dentist who sits me up much more upright than his other patients, which helps too!)  When wearing the mask, I can kinda talk, enough to communicate with my better half, at least.  I would guess that if you remain a mouth breather, you are less likely to need a humidifier, but that's speculation.

Andy Falconer said:

I'm a mouth breather, so I'm hoping the hospital will provide a full mask when I tell them, finger crossed!!

I've learnt a lot in a short space of time through Hope2Sleep. Look forward to joining discussions on the forum.

Thanks for the warm welcome.

Started CPAP therapy early December having been diagnosed with severe Sleep Apnea. Over the past 10 weeks or so I have slowly adapted to using CPAP, really struggleing at times with mask fit, the having the flu which seemed to set me back somewhat. Things seem to be on the up again at the moment with a change of mask, and mask liners reducing mask leaks at last.

I am however finding my scalp tender where the mask head gear sits and wondered if anyone else had this problem and how they over came this. Or is it something that eventually goes away as you become accustomed to wearing the mask?

any help very much appreciated.

Frankie

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Latest Activity

Frances Coiwn updated their profile
Wednesday
Frances Coiwn replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Thanks for the warm welcome. Started CPAP therapy early December having been diagnosed with severe Sleep Apnea. Over the past 10 weeks or so I have slowly adapted to using CPAP, really struggleing at times with mask fit, the having the flu which…"
Tuesday
Frances Coiwn is now a member of Hope2SleepGuide
Tuesday
Edam replied to Edam's discussion APAP or BIPAP
"I checked with my hospital but they dont supply Bipap,s to outpatients so looks like Im stuck with the S9"
Feb 9
SleepyHead posted a discussion

NHS or Private to get diagnosis to determine treatment

Hi,  With the help of a hope2sleep screening test indicating I may have moderate sleep apnea, I am hopefully going to get my GP to finally agree to refer me to a sleep specialist (I have been trying for 6 months).  I have some concerns over how long…See More
Feb 9
SleepyHead replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"I've learnt a lot in a short space of time through Hope2Sleep. Look forward to joining discussions on the forum."
Feb 9
SleepyHead updated their profile
Feb 8
Bill Thomson replied to Bill Thomson's discussion ResMed DC-DC converter for S9 in the group Buy-Sell-Swap
"Item now sold"
Feb 7
Glen Vaal replied to Bill Thomson's discussion ResMed DC-DC converter for S9 in the group Buy-Sell-Swap
"I look forward to your text with payment account details. Either is Ok. I will reply with my address. Regards, Glen"
Feb 7
Bill Thomson replied to Bill Thomson's discussion ResMed DC-DC converter for S9 in the group Buy-Sell-Swap
"Glen - apologies for not replying sooner, but my phone died. I now have a temporary fix (the replacement should arrive today anyway) so I will text you. I have also sent a message via the forum, but they are limited to 200 characters."
Feb 7
SleepyHead is now a member of Hope2SleepGuide
Feb 7
Sleep2snore replied to May's discussion Alternatives to cpap
"You can buy smaller machines for travel, but they are not so adaptable. There are also MAD devices to hold your jaw forward (these tend to only work with MILD cases) and there are also tongue holding devices that hold the tongue forward, these have…"
Feb 6
Sleep2snore and Edam are now friends
Feb 6
Sleep2snore replied to Edam's discussion APAP or BIPAP
"An APAP with EPR is almost Bipap. The Sleep Centre would know from their readings if you would be better with another type of machine, if you had a home study you need to take it up with your GP and raise it with your Sleep Centre."
Feb 6
Sleep2snore replied to Edam's discussion Double inhaling
"EPR just reduces the pressure when you breathe out, this makes it easier to breathe out when on higher pressure. Current thought is that the higher setting the EPR is the higher pressure is required, however I have not found this, but it does affect…"
Feb 6
Glen Vaal replied to Bill Thomson's discussion ResMed DC-DC converter for S9 in the group Buy-Sell-Swap
"Thanks for the fast reply. On the basis that its all 100% Ok and no physical damage then I would like to proceed with the postage option at £30, please*. How would you like to proceed, presumably off the forum given we'll get…"
Feb 6
Bill Thomson replied to Bill Thomson's discussion ResMed DC-DC converter for S9 in the group Buy-Sell-Swap
"Glen, yes I still have the converter. i am in Storrington, which is roughly between Worthing and Horsham. bill"
Feb 5
Glen Vaal replied to Bill Thomson's discussion ResMed DC-DC converter for S9 in the group Buy-Sell-Swap
"Hi Bill, is the Resmed S9 DC converter still available? I'm not sure how public this reply message is - however I'll "risk" using my phone number 07487706664. I'm nr Woking, Surrey. Where are you in West…"
Feb 5
Glen Vaal joined The SleepGuide Crew's group
Feb 5
Glen Vaal is now a member of Hope2SleepGuide
Feb 5

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