Hope2SleepGuide

Sleep Apnoea Forum Bringing Help + Support to the Patient

Welcome to our Forum - Feel Free to Introduce Yourself Here.

Welcome to the Hope2SleepGuide Forum, which is a service run by the Hope2Sleep Charity founded by Kath Hope with a marvellous team of trustees and volunteers. 

Kath herself has severe sleep apnoea and hypoventilation/hypercapnia, and has used CPAP for several years and is now on non-invasive ventilation.  Our trustees and volunteers are all either sufferers of sleep disordered breathing or clinicians/medics working in this field, and most importantly, we are all passionate in supporting (with empathy) others and raising awareness to help people live healthier and more energised lives.

 

Whilst we do not give medical advice, more often than not, with support, tips and knowledge, people can overcome any problems experienced with our therapy, and there is a whole page dedicated to this on the website http://www.hope2sleep.co.uk/tips-for-problems-sleeping-with-cpap-or...

 

Please come and join us, and don’t feel obligated to use your ‘real’ name if you prefer to remain anonymous as this is a public forum.  Don’t be shy in posting and sharing, as we’re all in this together and to help each other.

Best Wishes for good sleep!

Kath

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Hi

I was a mouth breather.  I also slept flat on my stomach.  I now sleep on my side, and with a nose-only mask rapidly learned to keep my trap shut at night :)  The airway through my nose has significantly improved, which makes dental work much easier.  (I also have a great dentist who sits me up much more upright than his other patients, which helps too!)  When wearing the mask, I can kinda talk, enough to communicate with my better half, at least.  I would guess that if you remain a mouth breather, you are less likely to need a humidifier, but that's speculation.

Andy Falconer said:

I'm a mouth breather, so I'm hoping the hospital will provide a full mask when I tell them, finger crossed!!

I've learnt a lot in a short space of time through Hope2Sleep. Look forward to joining discussions on the forum.

Thanks for the warm welcome.

Started CPAP therapy early December having been diagnosed with severe Sleep Apnea. Over the past 10 weeks or so I have slowly adapted to using CPAP, really struggleing at times with mask fit, the having the flu which seemed to set me back somewhat. Things seem to be on the up again at the moment with a change of mask, and mask liners reducing mask leaks at last.

I am however finding my scalp tender where the mask head gear sits and wondered if anyone else had this problem and how they over came this. Or is it something that eventually goes away as you become accustomed to wearing the mask?

any help very much appreciated.

Frankie

Hi Frankie,

I have been a hosehead now for about 14 months and I too had severe sleep apnea. I too struggled with my mask and head sores but my persistence has paid off. My apneas are now down to 9 from 44. My mind and memory is much sharper and I hardly ever fall asleep during the day or early evening.

I have quite a big head and a chubby face. Also as I am predominantly a mouth breather so I was given a large full face simplex mask with neoprene straps. I struggled with comfort and leaks. However, after about 3 months my apneas went down below 15. I bought myself a medium full face simplex mask and this gave me greater comfort and less leaks.I went to my GP with head sores and she gave a steroid scalp treatment called betacap. This worked very well and cured my symptoms but not the cause. On my next visit to my sleep clinic, who have been amazing, I mentioned this and they gave me a fabric cap to clip onto my my mask. This is much more comfortable to wear and significantly reduced the pressure sores on my scalp. Also the straps are elasticated fabric and not neoprene, so I sweat much less and the velcro fasteners are more effective.

I am also on diet to lose a bit of weight although I would say I am only slightly overweight. This has helped with my apneas and has given me more energy.

I hope this helps you Frances. Stick at it and don't give up.I was told 12 to 18 months to get well again that is about right. 14 months in and I am nearly their and getting my health back.

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