"Hi Kath, thanks for the reply!
I've tried every size of (possibly) every available mask and they all leak. Thanks for the link ... I'll take a look.
I may well try one of the pad-a-cheeks as the reviews are pretty good and…"
"Hi all, just saying "hello" to fellow sleep apnoea sufferers. I'm 59 and have been using Nippy ventilators for the last 20 years for my combination apnoea caused by a brain haemorrhage. I'm treated at Papworth and…"
I've had a quick chat with Marion today - she's been rather poorly lately and has been in hospital twice. Anyway, she saw the comment you'd left her, but in her tired state couldn't work out how to leave you one back, so can you add her as a friend and copy/paste it in there so she can reply easily?
Good to hear you got the machine you needed Amelia, and we do have several people on the Nippy's - in fact one of our members, Marion from As I Live I + Breathe, has used one for years + is the author of the book we sell 'CPAP + Ventilator Secrets.'
Hi Amelia, Welcome to Hope2Sleep. I am relatively new on here and I've already had lots of help from Kath and useful discussions with her and other members too. I'm not using the same equipment as you, however, I suppose we may still encounter similar problems (although I hope you have none)! See you around. June
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"I have read that APAP machines are not suitable for people with Asthma and give the same problems that I have been having.
I am now having to use twice the dose of steriods just to keep the APAP happy
If I can ever get in touch with my hospital I…"
"Thanks Chris and we certainly are doing our homework Sleep2Snore. Our charity work hard to get the right products at the right price for our fellow sufferers, and we have lots of loyal customers who purchase from us both to support the charity…"
"Sorry to hear after a good start you've taken a step backwards, and it could well be due to the reduction in pressure. We don't recommend adjusting pressures but you're right to contact your hospital who will probably re-adjust…"
"They have reduced it to far. The max was 16, they should have left the machine at 18 if it is an APAP (automatic pressure) if it is a CPAP you have now same applies. However, it might not be quite that straight forward as that as the…"
I was diagnosed with severe OSA in November and I have been using a Philips Respironics CPAP machine and full face mask from early December up to now (about 5 months). My HPI's went down from 44 to about 14 in about 10 weeks and I was feeling much…See More
"They are very costly things to have sitting around to go wrong or if you forget to charge them by their date.
You could try to see if they will do it on a sale or return basis, them you could keep one or two. However, I think most are ordering…"
"I wish the ResMed was 12Vdc, it would make life a lot easier.
I wonder why they need 24Vdc anyway?
My APAP is not mine to and see why it has to be 24Vdc!
I don't think the clinic might be to impressed if I opened it for a look. "
"I would like to see how the hospital is going to explain that your Apnoea is getting worse with an AHU of 0.
That is almost incompetent.
It might also be that it is not straight forward Sleep Apnoea you have and might benefit from an advanced…"
just looked on internet, it seems that medistrom may not have a dealer in the uk but a company called sleep tight advertise the pilot 24 for £345, don't know about the co pilot. The very expensive one on amazon comes from Israel, good…"
"I have read that if you have Asthma a CPAP is better than a APAP
When the APAP increases the pressure it makes the asthma worse and then the APAP increases the pressure again which makes the asthma even worse .....
This is exactly whats…"
"Chris why did you purchase Medistrom as opposed to the Resmed battery? Don't get me wrong as I've heard great things about the Medistrom and recommended it myself to people, but looking at the prices it seems just as or even more…"
Hi,I bought a pilot and co pilot set up a few months ago and have recently been trying them out. I have found by trial and error the following,First switch off all humidifiers etc.Switch to airplane mode, this reduces the amount of battery power…See More
I informed the dvla by post using the relevant form they sent me. When the form arrived i was warned that i needed to return it within 14 days! As it takes a week for any dvla letter to arrive i was not amused. Even though i had started…"
"You are right about needing the extra humidity.
Its been very dry lately , I measured it at 39%RH, so I will start to us the "Warm Up" on the H5i to get the humidity up straight away
On my last visit to the hospital I was told that…"
"It is a machine and if you have COPD and suffer from hay fever and asthma it will cause problems that you will have to find a work around for. Looks like you have already found one that helps.
It is very much a case of experiment and see. "