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Amelia Kennedy
  • Female
  • Burton on Trent
  • United Kingdom
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Amelia Kennedy's Friends

  • June Ostiadel
  • Marion@As I Live and Breathe

Amelia Kennedy's Page

Latest Activity

Amelia Kennedy replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Hi Kath, thanks for the reply! I've tried every size of (possibly) every available mask and they all leak.  Thanks for the link ... I'll take a look. I may well try one of the pad-a-cheeks as the reviews are pretty good and…"
Mar 3
Amelia Kennedy replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Hi all, just saying "hello" to fellow sleep apnoea sufferers.  I'm 59 and have been using Nippy ventilators for the last 20 years for my combination apnoea caused by a brain haemorrhage.  I'm treated at Papworth and…"
Mar 3

Profile Information

My Interest in Sleep Apnoea
I have Sleep Apnoea
Treatment Being Used, If Any
I don't know
If Machine Being Used, What Make? (e.g., Respironics M Series with A-Flex Auto-Adjusting CPAP)
If Mask Being Used, What Type? (e.g., ResMed Activa Nasal Mask)
Nasal Mask

Comment Wall (8 comments)

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At 0:47 on March 12, 2014, Kath Hope said…

Sorry Amelia - I almost missed your comment.  I know she'll be back here when she can or you can email her if it's easier at marion@asiliveandbreathe.co.uk

The forum can be confusing sometimes even for me

At 23:57 on March 9, 2014, Kath Hope said…

Hi Amelia

I've had a quick chat with Marion today - she's been rather poorly lately and has been in hospital twice.  Anyway, she saw the comment you'd left her, but in her tired state couldn't work out how to leave you one back, so can you add her as a friend and copy/paste it in there so she can reply easily?

Best Wishes


At 13:12 on March 7, 2014, Kath Hope said…

You're very welcome Amelia

At 15:19 on March 6, 2014, Kath Hope said…

Marion's been on hers too for around 15-20 years due to scoliosis. She's also with Papworth and this is her profile on here if you want to connect http://hope2sleepguide.co.uk/profile/MarionWhiting?xg_source=profiles_memberList  She's recently changed to a new machine and no sure if it's less bulky.

At 11:54 on March 6, 2014, Kath Hope said…

Good to hear you got the machine you needed Amelia, and we do have several people on the Nippy's - in fact one of our members, Marion from As I Live I + Breathe,  has used one for years + is the author of the book we sell 'CPAP + Ventilator Secrets.'

At 11:01 on March 6, 2014, gwatuk said…

Thanks for that - I was just curious!

At 9:06 on March 6, 2014, gwatuk said…

Hi Amelia, your profile say you use a NIPP|-2 machine - what is that?

At 17:39 on February 23, 2014, June Ostiadel said…

Hi Amelia, Welcome to Hope2Sleep. I am relatively new on here and I've already had lots of help from Kath and useful discussions with her and other members too. I'm not using the same equipment as you, however, I suppose we may still encounter similar problems (although I hope you have none)! See you around. June



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Latest Activity

Edam replied to Edam's discussion Changing hospital
"I want to change because the other hospital, which is in a different trust, supplies a different make of mask. My present hospital only supplies one make of mask which is unsuitable for my nasal problems. Over the years I have spent hundreds of…"
Adam Cartwright replied to David thompson's discussion SELLING cpap airsense10 elite machine with travel bag and accessories in the group Buy-Sell-Swap
"Hi David I thought I'd check but I assume you have sold your Airsense 10 Elite?"
Adam Cartwright joined The SleepGuide Crew's group
Profile IconAdam Cartwright and Linda Cook joined Hope2SleepGuide
Sleep2snore replied to Savannah A.'s discussion Sleep Centre in UK that measures UARS
"That is a difficult one, but if you have a Polysomnography done a good Sleep Doctor should spot the signs, however, it is often missed unless the patient mentions it or ENT (if you attended there first before referral) suspects you might have…"
Sleep2snore replied to ROBERT O'BRIEN's discussion c pap mask
"Yes, masks for one person do not mean they are for everyone, getting a supplier to give ou a refund if it is not suitable is good, but trying it on and lying down with your machine on for an hour or so is the only real way of trying a mask. …"
Sleep2snore replied to Edam's discussion Changing hospital
"It will depend on the Sleep Clinic or hospital, however, if you AHI is 1 why do you want to change? You might be allowed just to keep what you have already and the equipment transferred to the new Sleep Clinic. As your AHI is so low I very much…"
Edam posted a discussion

Changing hospital

I am considering asking my GP to refer me to another hospital for the supply and monitoring of CPAP .Would I just be supplied another CPAP and mask by the new hospital or would a new sleep test have to be done. As my original diagnosis was made…See More
Kath Hope replied to ROBERT O'BRIEN's discussion c pap mask
"I agree with giving it your best shot at getting the 'right' mask for you Bob, but even with all the best reviews in the world it's not possible to guarantee if it will be the 'right' mask for you.  It's why when…"
Mar 13
ROBERT O'BRIEN posted a discussion

c pap mask

hi everyone I am considering buying a more comfortable nasal mask, I am looking at the JOYCE SILK GEL NASAL MASK.  I have looked for reviews but cannot find any , has anyone on this forum used this mask and is it worth a hundred pounds.my current…See More
Mar 13
Kath Hope replied to Savannah A.'s discussion Sleep Centre in UK that measures UARS
"Unfortunately, there aren't as many as we'd like there to be.  The only way of truly diagnosing UARS is via Esophageal Manometry (Pes) which is rarer still here in the UK.  Take a look at our charity's webpage on this…"
Mar 12
Savannah A. posted a discussion

Sleep Centre in UK that measures UARS

Hi there,I have a connective tissue disorder that is associated with UARS (Upper Airway Resistance Syndrome).I was wondering whether there was a sleep centre in the UK that measures UARS in patients.I would be very grateful to hear from others.Many…See More
Mar 12
Savannah A. updated their profile
Mar 12
Boyertown replied to Julie Straiton's discussion Severe hair loss with mask straps ?
"Has there been any more news on this subject?  I am experiencing hair loss too. Thank you."
Mar 12
Boyertown updated their profile
Mar 12
Boyertown is now a member of Hope2SleepGuide
Mar 12
Kath Hope replied to Dave Cheeseman's discussion New diagnosis!
"Hi Dave, and sorry to hear you've been diagnosed with severe sleep apnoea, but when you get on CPAP you should start to feel so much better. To purchase a CPAP machine you need a prescription from the consultant, and if you really want to…"
Mar 11
Dave Cheeseman posted a discussion

New diagnosis!

Hi Everyone,I need a bit of advice from some more experienced people. I had a sleep study through the NHS last week & have been diagnosed with extreme Sleep Apnea (60-70 instances an hour). However I have now been told that I have to be referred…See More
Mar 11
Dave Cheeseman is now a member of Hope2SleepGuide
Mar 11
Kath Hope replied to Bernadette Plunkett's discussion Advice on ordering a CPAP machine from overseas
"Ha Ha, I just replied to this post then realised I'd replied to Bernadette and her post was from 2016. Have deleted it as it was irrelevant Good to hear you've got your DreamStation Go on the app now though."
Mar 10

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