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Bethany
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Bethany's Discussions

Help for the hubby
6 Replies

Hello everyone, I am hoping that maybe someone out there has been through what my husband is currently having to deal with. Three years ago my husband randomly collapsed at his place of work (hes an…Continue

Started this discussion. Last reply by Alison Jun 20, 2018.

 

Bethany's Page

Latest Activity

Alison replied to Bethany's discussion Help for the hubby
"Hi Bethany, Just a suggestion but has anyone mentioned narcolepsy?"
Jun 20, 2018
Sleep2snore replied to Bethany's discussion Help for the hubby
"The two things that come to mind is diabetes and low blood pressure.  Though I think they would have checked for diabetes, a sudden drop in blood pressure is more difficult to catch.  Has he had his heart checked?  Also there is a…"
Jun 12, 2018
Bethany replied to Bethany's discussion Help for the hubby
"Thank you for the welcome.  It can get very frustrating, especially when we hear stories like yours with a very long fight before getting any actual diagnosis. We have feeling that we are also going to be on a very long road before we find…"
Jun 8, 2018
Bethany replied to Bethany's discussion Help for the hubby
"His CPAP machine is currently set at 7.5cmph, it was originally a little lower but after his check up they advised to increase it. He has follow ups with a sleep doctor every 3 months for the first year (unless we are having problems then we can go…"
Jun 8, 2018
Sleep2snore replied to Bethany's discussion Help for the hubby
"Is it a CPAP machine with a fixed pressure he has? It might be that a fixed pressure machine is not the right one for him or he may have a complicated Sleep Apnoea, in other words there are other things going on other than just his throat…"
Jun 6, 2018
Kath Hope replied to Bethany's discussion Help for the hubby
"Welcome to our forum Bethany, but so sorry to read of what you're both going through.  Glad your husband's severe sleep apnoea got picked up finally and at least you know he's on good treatment for that.  However, it's…"
Jun 6, 2018
Bethany posted a discussion

Help for the hubby

Hello everyone, I am hoping that maybe someone out there has been through what my husband is currently having to deal with. Three years ago my husband randomly collapsed at his place of work (hes an engineer and works with machinery so naturally him loosing consciousness was worrying). At that point we were sent to a neurologist but they found nothing and ultimately it was written off as a one time "weird health issue". Then last year in March it happened again, again an ambulance was called,…See More
Jun 5, 2018
Bethany is now a member of Hope2SleepGuide
Jun 5, 2018

Profile Information

My Interest in Sleep Apnoea
Someone I care about has Sleep Apnoea
Treatment Being Used, If Any
CPAP
If Machine Being Used, What Make? (e.g., Respironics M Series with A-Flex Auto-Adjusting CPAP)
Philips Respironics REMstar Plus C-Flex
If Mask Being Used, What Type? (e.g., ResMed Activa Nasal Mask)
Nose mask

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Latest Activity

Profile IconJune Curtin and Frank Fartin joined Hope2SleepGuide
yesterday
Lee replied to Lee's discussion DreamWear full face
"Well I turned EPR on and tried the mask again last night, but again I stopped breathing which woke me up gasping for air. It seems to happen just after or not long after I drop off, after the third time I changed mask back to original one and went…"
Monday
Kath Hope replied to Lee's discussion DreamWear full face
"Sorry for the delay as I managed to get myself locked out of the forum lol.  Please don't be messing with the pressures and contact your hospital if your wife has noticed you looking gray.  Perhaps go back to a different mask until…"
Friday
Edam replied to Edam's discussion APAP or BIPAP
"There is no link between the 95% pressure and the AHI. A few nights back my 95% pressure was 19.46 with AHI 0 Last night my 95% pressure was 17 with AHI 0 When the AHI does increase its normally hypopnoea,s So why does the APAP want to increase the…"
Friday
Lee replied to Lee's discussion DreamWear full face
"Hi thanks for the reply’s I will look at this as the wife said I was gray yesterday and after looking at the instructions again it says about the symptoms I had to not use and talk to my clinic so a bit worried. I used my other full face mask…"
Friday
Sleep2snore replied to Lee's discussion DreamWear full face
"I would say if you have the Ramp Start enabled to make it start at a higher pressure.  Check also if you are using a big enough cushion as this is a common mistake.  Same with Nasal Pillows, people tend too use a size to small. Check you…"
Thursday
Sleep2snore replied to Edam's discussion APAP or BIPAP
"That is not impossible, even dust and mites can cause problems, even the mites that are so tiny you can't see them and they live on your body.  However, only you yourself can work out if certain food make things worse.  It could be…"
Thursday
Edam replied to Edam's discussion APAP or BIPAP
"I am now finding that the pressure the APAP runs at during the night is dependent  on what I have eaten that evening. I have found that if I have bolied rice rather than chips with the evening meal then my 95% pressure can reduce by as much as…"
Mar 14
Kath Hope replied to Lee's discussion DreamWear full face
"Hi Lee.  Sorry to hear you're still having problems with masks.  It's not normal to feel there's not enough air with the DreamWear as that mask usually give people the opposite sensation of feeling more pressure than…"
Mar 13
Lee posted a discussion

DreamWear full face

Hi all I’m having trouble with my DreamWear full face mask,I’ve spent a long time getting the fit right but I have two problems 1. The bit between my nostrils somehow hurts it’s bearable but I would sooner not have the pain and 2. I have to breathe…See More
Mar 13
Sleep2snore replied to SleepyHead's discussion NHS or Private to get diagnosis to determine treatment
"How are you getting on, any progress?"
Mar 5
Sleep2snore replied to Edam's discussion APAP or BIPAP
"I was not off for a few days. The results were the same as when I started! Which I have to say was bad!"
Mar 5
Felicity Goodliffe is now a member of Hope2SleepGuide
Mar 5
Edam replied to Edam's discussion APAP or BIPAP
"It is my understanding that when a new sleep test is required you need to be off CPAP for a few days to get a accurate test. Is this correct The London hospital does not seem to be aware of this"
Mar 4
John Brown is now a member of Hope2SleepGuide
Mar 2
SleepyHead replied to SleepyHead's discussion NHS or Private to get diagnosis to determine treatment
"Thank you - that is very helpful"
Feb 26
Sleep2snore replied to SleepyHead's discussion NHS or Private to get diagnosis to determine treatment
"Private and will not be cheap!  London Sleep Clinic (PRIVATE) London Bridge Hospital  know nothing about this one. Sleep & Snoring Institute  Know nothing about this one either, If you are near London try getting to one of the…"
Feb 25
Sleep2snore replied to Edam's discussion APAP or BIPAP
"Sleepyhead YouTube.  Sleepyhead on YouTube"
Feb 25
Sleep2snore replied to Edam's discussion APAP or BIPAP
"As you say that would be difficult.  I would keep it in APAP mode.  All you can do is to keep the high pressure open and start with the low at 10 and go up a step at a time and see where you do best, though if your needs change so much you…"
Feb 25
Lee replied to David thompson's discussion SELLING cpap airsense10 elite machine with travel bag and accessories in the group Buy-Sell-Swap
"Hi is this sold ?"
Feb 25

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