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  • Manda Liversage

DeeNJai's Discussions

Is there a connection between Sleep Apnoea and Spina Bifida

HiI was wondering if there is any connection between SA & Spina Bifida (SB) as I finally been told that I do have the mildest for of SB called Spina Bifida Occulta which I was told 5 years ago…Continue

Started May 30, 2014

Fisher & Paykel Simplus Mask
16 Replies

HiI was wondering if anyone has used this mask as I am thinking about asking for this mask when I am due a new mask in October as I have the Quarta Air which I not getting on it that well so…Continue

Started this discussion. Last reply by Edam Jul 16, 2014.

Good Numbers but serve tireness
27 Replies

Over the last month I have been having good numbers below three but I am very tired.   I have noticed that on sleepihead that it I am having areas on the graph there is a totally flat line.  On…Continue

Started this discussion. Last reply by Manda Liversage May 11, 2014.

Smell of mould in boiler cupboard after bad leak
1 Reply

HiLast week I had a bad leak from my boiler which soaked the wooden floor board now all I can smell is mould.  This is the room I sleep in what can I do to help get rid of the smell.  I am concerned…Continue

Started this discussion. Last reply by Kath Hope Mar 5, 2014.


DeeNJai's Page

Profile Information

My Interest in Sleep Apnoea
I have Sleep Apnoea
Treatment Being Used, If Any
Auto-Adjusting CPAP
If Machine Being Used, What Make? (e.g., Respironics M Series with A-Flex Auto-Adjusting CPAP)
Respirionics Auto
If Mask Being Used, What Type? (e.g., ResMed Activa Nasal Mask)
Quattro Air

Comment Wall (4 comments)

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At 22:05 on May 12, 2014, Manda Liversage said…

Hi Dee - how are you today?  

At 22:56 on May 11, 2014, Manda Liversage said…

Hi Dee I'm wondering what doses you were on (I recall you mentioned them in a post once, but fibro fog makes me forget) and how they are actioning your reduction.

I am now on Pregabalin as the Gabapentin was no longer having an effect, and plus once on Pregab I have been able to come off the anti-depressants for first time in 12 years - been off them since August last year.

My reason for asking about the dose levels they are using is that you have to come off these in real tiny steps - nothing like as easy to get off them as when you start!  I'm trying to reduce at the moment and of Pregab I was on 300mg twice a day.  That's the max dose for fibro.  (Gaba I was on 900mg am, 900 lunchtime and 1200mg inevening)

Anyway - I tried to get off at a reduction to 200 in day and 300 at night, but was way to big a drop so they tried 250 in day still to hard so at the moment I'm taking 275 and 300.  I'm tired and rather emotional (husband decided 2 weeks ago he wants a divorce) so I know I'm not making a lot of sense, but I'm trying rather inarticulately to say try to get the smallest reduction possible and make sure that you're stable before going down again.  Because there isn't a 275mg pregab I'm taking 2 x 100 and a 50 and a 25 and you may end up doing the same until it sorts itself out.

Don't be rushed into a) deciding to reduce your dosage, and b) into doing it faster than your pain levels can cope with.  Cos it's not about anything other than how your pain levels are.  Fibro really is a shite of a thing, but we have to take control of our condition cos if we don't, then the NHS accountants do.

Are you with a pain clinic?  And also how much support do you get from your GP?  Mine are both fab - but I'm really lucky to have that now and it took 12 years to get recognition so I've seen some shit ones.  I'd suggest if you can, talk to them about how YOU want to control your pain meds.  I get multiples of all the doses of tablet strength but still totally up to 300 mg twice a day.  My GP acknowledges that I could happily off myself any time I wanted with all the stuff I have, so the fact that I'm trying to take less not more is a good thing.

I'm always here for you if you need to chat.  

Gentle hugs

Manda xxx

At 19:53 on May 11, 2014, Manda Liversage said…
How are you doing today?
At 19:53 on May 11, 2014, Manda Liversage said…
Hi Dee



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Latest Activity

ROBERT O'BRIEN is now a member of Hope2SleepGuide
John Wilkinson posted a discussion

Dreamstation humidifier heated hose and simplus 'mask type' settings

Hi Everyone,I have recently purchased and started to use a heated hose with my dream station humidifier as my unheated hose used to 'bubble and gurgle' with condensation and also wet my face, even on a 2 or 3 setting and even when I used a hose…See More
ianmcnamara replied to David Vinnicombe's discussion Mask Leaks
"Hi David, i'm also on the Airsense' 10Elite bout 3 week's and i do feel better being on it, I'm on the Full face Mask Airfit F20,  My data for mask off is nil but i must say it is a comfortable for what iv'e been…"
ianmcnamara replied to ianmcnamara's discussion ResMed AirSense 10 & F20 Face mask
"Hi thank's for reply sorry i'm late, Yeah i feel a lot better thank's by just changing from Nasal to Full face What a pleasure it is getting your head down once again Iv'e even Started to Dream Again Lol ,    …"
George replied to George's discussion Sleep Apnea and DVLA
"Hi all, I thought to update you on my progress. I have been using CPAP for a while and it is going well. I had my second visit to sleep clinic and they said I am doing really well and adjusted my pressure to bring down the AHI below 5. I sent my SL1…"
John Wilkinson replied to John Wilkinson's discussion My first review
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Timothy Watts is now a member of Hope2SleepGuide
Sleep2snore replied to John Wilkinson's discussion My first review
"Hi John, Good to see you are getting to grips with your CPAP machine.  It take a while for your body to get back to a normal function after struggling against Sleep Apnoea.  You have still a bit to go to get down to where you should be,…"
Sleep2snore replied to ianmcnamara's discussion ResMed AirSense 10 & F20 Face mask
"How is the new machine going, sounds as if you are a bit happier with it and the new mask?"
Sleep2snore replied to David Vinnicombe's discussion Mask Leaks
"Mask leaks are a problem for most of us. The amount MyAir says leaks depends on the type of mask you have, there is an expected leak rate due to the vents on the mask itself.  This has to be expected as the machine can't tell which mask…"
Profile IconLara and Heidi Allen joined Hope2SleepGuide
Jan 11
David Vinnicombe posted a discussion

Mask Leaks

Hi,My CPAP machine is the Resmed Autosense 10. I recently started to visit the Resmed MyAir site to check the data that my machine was sending. When I wake in the night I often notice that my mask is leaking so I have to re-adjust. On checking the…See More
Jan 6
Sleep2snore replied to ianmcnamara's discussion ResMed AirSense 10 & F20 Face mask
"If you are now on an Airsense10 Autoset you are onto a good machine, if it is the CPAP it is quite basic but from there up they are very good.  Very quiet machines in any case."
Jan 1
Sleep2snore replied to Hazel Hall's discussion Heartburn
"Some people get this and also air getting into the stomach. It may be air is getting into your stomach and you are burping it up along with some acid re-flux."
Jan 1
John Wilkinson replied to John Wilkinson's discussion My first review
"Hi Kath, Thanks for your reply. I am not sure if the clinic have adjusted the pressures on my cpap machine. I will ask when I go for my next review at the end of January. Also I have bought an insulated sleeve for my breathing tube. Hopefully…"
Jan 1
Hazel Hall posted a discussion


Since using my CPAP I have been getting constant heartburn during the day. I thoughf heartburn was a sypmtom of sleep apnoea, but is it also a side effect of using a CPAP machine?See More
Jan 1
ianmcnamara posted a discussion

ResMed AirSense 10 & F20 Face mask

Hi iv'e had a ResMed S8 for year's Wednesday night it burst into flames next day i'm on the phone the Lady said can i be there for 11am i was there anyway i came home with Above Machine, For Year's iv'e put up with Nasal Cones up my Nose Tape my…See More
Jan 1
Kath Hope replied to Linda's discussion Cleaning tubing
"It sounds like your house is on the cooler side Linda.  If it's just a few droplets you can put the hose onto your machine and blow the air which will probably dry it off, but a spare hose is a good idea anyway so you don't have to…"
Dec 29, 2017
Katie Ward replied to Katie Ward's discussion Excess water in mask - no humidifier
"Hi, Thanks for your replies. I have a resmed s9 escape machine, which is the one the clinic provides as standard.  I often find myself waking up with nasal drip and only really suffer dryness if I've been ill. In terms of cold room, I…"
Dec 29, 2017
Kath Hope replied to John Wilkinson's discussion My first review
"Hi John Good to hear you're feeling some benefits after just 15 days, but with you saying you've come down to an AHI of 20, as you say, that's still moderate sleep apnoea, so hopefully the clinic have adjusted the pressures and when…"
Dec 29, 2017

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