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Linda
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  • Kent
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Linda's Discussions

Do charities take new surplus CPAP masks?
4 Replies

when I request a replacement medium Phillips Respironics mask from my NHS provider I am given a pack that includes all size masks and new headgear.  I have queried this and have been advised this is…Continue

Started this discussion. Last reply by Kath Hope Dec 3, 2018.

Cleaning tubing
6 Replies

hi all, this is my first post.   I clean my mask daily. I feel I don't clean my tubing often enough as I find it difficult to get it dry and there are always droplets of water left inside which I…Continue

Started this discussion. Last reply by Kath Hope Dec 29, 2017.

 

Linda's Page

Latest Activity

Kath Hope replied to Linda's discussion Do charities take new surplus CPAP masks?
"Hi Linda I just wanted to say thanks for sending us your surplus cushions and headgear.  We've already given out one of the cushions to someone who was struggling with a split cushion.  We really do appreciate this and so did the…"
Dec 3, 2018
Kath Hope replied to Linda's discussion Do charities take new surplus CPAP masks?
"Hi Linda.  Due to the way some of the manufacturer package their masks, eg multiple sizes of cushions, some clinics just hand the whole pack out to the patients, and then there are others that are more resourceful in that they take out the…"
Nov 22, 2018
Linda replied to Linda's discussion Do charities take new surplus CAPD masks?
"Thanks Kath and I will forward the spare masks on as you have suggested.  It seems very wasteful that my NHS provider gives me a pack which I believe costs well over £100 when I only require one mask.  Do you know if this is…"
Nov 21, 2018
Kath Hope replied to Linda's discussion Do charities take new surplus CAPD masks?
"I know exactly what you mean Linda. It's good when people purchase them when unsure of their size, but wasteful otherwise.  You can send them to our Hope2Sleep Charity who run this forum and address is on the contact…"
Nov 17, 2018
Linda posted a discussion

Do charities take new surplus CAPD masks?

when I request a replacement medium Phillips Respironics mask from my NHS provider I am given a pack that includes all size masks and new headgear.  I have queried this and have been advised this is how they are supplied.  It seems a terrible waste.  Is there a Charity that accepts the spare new masks and headgear?See More
Nov 17, 2018
Kath Hope replied to Linda's discussion Cleaning tubing
"It sounds like your house is on the cooler side Linda.  If it's just a few droplets you can put the hose onto your machine and blow the air which will probably dry it off, but a spare hose is a good idea anyway so you don't have to…"
Dec 29, 2017
Linda replied to Linda's discussion Cleaning tubing
"Thank you for your replies.  I washed mine yesterday and hung it up over a radiator but when I took it down to use still had minute water droplets like condensation inside it.  I assume that is ok and my worry about bacteria breeding is…"
Dec 29, 2017
Sleep2snore replied to Linda's discussion Cleaning tubing
"Who has time to clean a tube daily?  Tubes and water tanks once a week, only masks get a wipe daily and washed every week with me anyway. Water tanks get a rinse every day, but a good wash every week."
Dec 28, 2017
Edam replied to Linda's discussion Cleaning tubing
"My spare tube just sits in the drawer all the time. Never thought to use it whilst my regular one is drying out. ."
Dec 28, 2017
Kath Hope replied to Linda's discussion Cleaning tubing
"We sometimes hear of people who have difficulty getting their tubes dry.  I actually haven't noticed as I have a spare hose, so when I wash mine once a week I just put the spare one on it."
Dec 23, 2017
Sleep2snore replied to Linda's discussion Cleaning tubing
"Hi Linda, I just wash it in soapy water (Dish type) and hang it up in the morning, it is always dry by night and ready for use. Hang it from one end or the middle, both work just as well, anything in the tube will find its way our due to gravity. I…"
Dec 23, 2017
Linda posted a discussion

Cleaning tubing

hi all, this is my first post.   I clean my mask daily. I feel I don't clean my tubing often enough as I find it difficult to get it dry and there are always droplets of water left inside which I feel may harbour bacteria.  Any thoughts please.regards LindaSee More
Dec 23, 2017
Linda updated their profile
Dec 23, 2017
Linda is now a member of Hope2SleepGuide
Dec 7, 2017

Profile Information

My Interest in Sleep Apnoea
I have Sleep Apnoea
Treatment Being Used, If Any
Auto-Adjusting CPAP
If Machine Being Used, What Make? (e.g., Respironics M Series with A-Flex Auto-Adjusting CPAP)
Phillips Respironics
If Mask Being Used, What Type? (e.g., ResMed Activa Nasal Mask)
Nasal mask

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Latest Activity

Profile IconMatthew li and Stuart Wormleighton joined Hope2SleepGuide
yesterday
Marc Newman is now a member of Hope2SleepGuide
Wednesday
Profile IconJune Curtin and Frank Fartin joined Hope2SleepGuide
Mar 18
Lee replied to Lee's discussion DreamWear full face
"Well I turned EPR on and tried the mask again last night, but again I stopped breathing which woke me up gasping for air. It seems to happen just after or not long after I drop off, after the third time I changed mask back to original one and went…"
Mar 18
Kath Hope replied to Lee's discussion DreamWear full face
"Sorry for the delay as I managed to get myself locked out of the forum lol.  Please don't be messing with the pressures and contact your hospital if your wife has noticed you looking gray.  Perhaps go back to a different mask until…"
Mar 15
Edam replied to Edam's discussion APAP or BIPAP
"There is no link between the 95% pressure and the AHI. A few nights back my 95% pressure was 19.46 with AHI 0 Last night my 95% pressure was 17 with AHI 0 When the AHI does increase its normally hypopnoea,s So why does the APAP want to increase the…"
Mar 15
Lee replied to Lee's discussion DreamWear full face
"Hi thanks for the reply’s I will look at this as the wife said I was gray yesterday and after looking at the instructions again it says about the symptoms I had to not use and talk to my clinic so a bit worried. I used my other full face mask…"
Mar 15
Sleep2snore replied to Lee's discussion DreamWear full face
"I would say if you have the Ramp Start enabled to make it start at a higher pressure.  Check also if you are using a big enough cushion as this is a common mistake.  Same with Nasal Pillows, people tend too use a size to small. Check you…"
Mar 14
Sleep2snore replied to Edam's discussion APAP or BIPAP
"That is not impossible, even dust and mites can cause problems, even the mites that are so tiny you can't see them and they live on your body.  However, only you yourself can work out if certain food make things worse.  It could be…"
Mar 14
Edam replied to Edam's discussion APAP or BIPAP
"I am now finding that the pressure the APAP runs at during the night is dependent  on what I have eaten that evening. I have found that if I have bolied rice rather than chips with the evening meal then my 95% pressure can reduce by as much as…"
Mar 14
Kath Hope replied to Lee's discussion DreamWear full face
"Hi Lee.  Sorry to hear you're still having problems with masks.  It's not normal to feel there's not enough air with the DreamWear as that mask usually give people the opposite sensation of feeling more pressure than…"
Mar 13
Lee posted a discussion

DreamWear full face

Hi all I’m having trouble with my DreamWear full face mask,I’ve spent a long time getting the fit right but I have two problems 1. The bit between my nostrils somehow hurts it’s bearable but I would sooner not have the pain and 2. I have to breathe…See More
Mar 13
Sleep2snore replied to SleepyHead's discussion NHS or Private to get diagnosis to determine treatment
"How are you getting on, any progress?"
Mar 5
Sleep2snore replied to Edam's discussion APAP or BIPAP
"I was not off for a few days. The results were the same as when I started! Which I have to say was bad!"
Mar 5
Felicity Goodliffe is now a member of Hope2SleepGuide
Mar 5
Edam replied to Edam's discussion APAP or BIPAP
"It is my understanding that when a new sleep test is required you need to be off CPAP for a few days to get a accurate test. Is this correct The London hospital does not seem to be aware of this"
Mar 4
John Brown is now a member of Hope2SleepGuide
Mar 2
SleepyHead replied to SleepyHead's discussion NHS or Private to get diagnosis to determine treatment
"Thank you - that is very helpful"
Feb 26
Sleep2snore replied to SleepyHead's discussion NHS or Private to get diagnosis to determine treatment
"Private and will not be cheap!  London Sleep Clinic (PRIVATE) London Bridge Hospital  know nothing about this one. Sleep & Snoring Institute  Know nothing about this one either, If you are near London try getting to one of the…"
Feb 25
Sleep2snore replied to Edam's discussion APAP or BIPAP
"Sleepyhead YouTube.  Sleepyhead on YouTube"
Feb 25

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