Gday Terry , congratulations for your award !!!yeah , that's right , not using one at all until , I hear back from Centrelink . I know its not very healthy . !. when I hear back , I ll go ands get it . I have enough money in the bank , but only just k
Hi Terry , how you going . I had to bring the trial machine back last week . I went to centrelink ( they reckon they can help by a couple hundred dollars towards the new machine ). I made an appt to see the Dr. to help fill it out , its in a couple of weeks.. is that your machine in the photo., how much was that.the Fisher & paykel will be $2500 ! cheers Kath
Ba Humbug - fancy someone daring to do fireworks on New Year's Eve I saw the lovely display in Sydney on the tv. London looked nice tonight at midnight too. Fireworks wouldn't have bothered me, as I'm a night owl, but my New Year's resolution is to get to bed by midnight. I made the same one last year and it never worked, so watch this space...Absolutely hated it when I fell asleep without the mask though... I used to do it in the early days when I read my book in bed before putting the mask on. Now I read on my Kindle with big fonts with the mask safely in place. Happy New Year!
Had a great Christmas thank and just preparing for our New Year Celebrations now with 6 hours to go....... Happy 2013 Terry and thank for all your imput on here during 2012
Social Media marketing is another ball game really. You really need someone that knows all the platforms in depth and the key is a good sound strategy. We use Facebook,Pinterest,You Tube,Twitter and Google Plus is another we are just starting with. Annie Infinite is an absolute gem. Any hoozle it sounds like you have an amazing job......you know i have just realised you are a man! I thought i had been chatting to a lady! LOL! As for medications and other stuff would rather not chat about that openly on a forum. Happy to share by email though.
This discussion is reminding me of a funny post I put on Pinterest (yes, yet another place people like to be Terry Here's the link http://pinterest.com/pin/87398048990369118/
I wasn't a lover of Facebook myself, but I've realised just how valuable it is to communicate with people. I use all the different social media sites so I can help people in the place they feel more comfortable. There are lots of people who are uncomfortable in forums too. We have hundreds of visitors every day, but not everyone joins. At least they're getting help though
How very interesting, well if you need anyone to help you with strategy i know an amazing lady up here in Queensland , she runs Saucy Social Media http://saucysocialmedia.com/ she really is an absolute guru and could do amazing things for your brands without charging ridiculous prices! take a look at her website and see what you think. My role is far more humble.....i look after Social Media and PR for Maleny Dairies. We are a fourth generation dairy farm and have taken on the big guys by building our own processing plant so that we can support other farming familiies and pay them a decent price for their milk. We also run tours of the farm and factory which is quite unique for a dairy farm. Works well for me as i work from home mostly so no-one knows i am still in my P.J's!!! Have not been able to have a full time role now for years, you know why!
Fair enough but just for your information if you don't follow or friend pages and celebs you won't receive their newsfeeds. but sure,some people can't be bothered with Facebook, its how you use it. I am a Social Media Manager so i use it a lot for my job to inform customers and connect with them. It does have its good side i promise! I have started following the Hope2sleep page, if it wasn't for Facebook i would never have found you guys!! Keep up the good work Terry, its appreciated.
Thanks Terry :) I don't know why you have a problem with messaging on here, as I've not heard of anyone having that problem. I've checked and you are a Friend on here of mine. Just double-check that you have me as a Friend (you can only message Friends). If ever you want to email me, use this account hope2sleep1@gmail.com
If you have a way to do it, can you please Terry? It won't let me sign out so that I can create a new account. I'm wondering if it's blocked my IP address - strange!! There's no rush as I don't get much time to go on, but hubby's at work so I was having a play around on various sites LOL.
That's fantastic progress Terry, and you're nearly there, which I'm sure hasn't been easy. Well Done! It doesn't bear thinking about how different your life might have been had you not come across OSA yourself, as still so many GPs don't consider the likelihood of depression being caused by it :( It's not surprising you're a really advocate for it.
The UK is now back to work as normal today after the Jubilee celebrations.
Thanks again Terry for your advice much appreciated. Did you purchase your machine in Australia or buy online [USA]? Likewise is there anyone in this forum who has had experience purchasing their machine online? I imagine any warranty would only be applicable to the country from which it was purchased so I would anticipate any problems experienced whilst under warranty would mean I would bear the shipping costs. I am hopeful of eventually being able to titrate machine for my specific needs as per results downloaded from SD card. Is this what the majority of users eventually do? Is this what the aim of managing the condition is?Or do you need to have the ongoing support of an Australian distributor to adjust it? I not quite sure of what the role of the respiratory physician is apart from diagnosis and monitoring results ?from the SD card when you have 3mthly visits. Anyway I am also wondering what other drawbacks there might be in purchasing overseas. Thankyou for any comments/advice Marg.
Thanks Terry I much appreciate your comments. The machine has been set with ramp turned off. I don't have any idea about how I can find out the EPR setting so cannot see what it is. It's a trial resmed S9 autoset which I am actually trialling on a set pressure so that I might be able to compare auto with cpap. After reading on various forums I still have no idea what would be adequate for me. I don't really want to go to expense of APAP if CPAP would be just as effective. However my trial finishes next week and I am feeling a bit panicky as I will need to decide pretty quickly about what to purchase. Mixed messages really my resp physician said that he felt that according to my sleep study results that CPAP would be fine and he would advise on pressures etc. his personal preference was for the Resmed machines however I quite liked the Phillips I trialled last week though it was an auto. The trial co. recommend auto and an independent co rep has said that CPAP is good and not worth spending extra on Auto. So in summary as a newbie [diagnosed 3 weeks ago] I am totally overwhelmed & perplexed.
Hello,I have an air sense 10 auto.When I have the humidifier and the heated tube plugged in it makes a sort of drumming noise. Like that at the gallows in films.Is this normal? It wakes me up and I have to give up and switch off for the night.See More
I was wondering if there are any dentists in Hull who know about John & Mike Mew, and changing jaw shape over time?I could add that I saw an ENT consultant recently and she said jaw shape, malocclusion, is genetic, which has become a debatable…See More
"I did replace the tank in my SleepCube, and had to regularly take the silicone sealing gasket out and give it a goof clean, but not infrequently found it standing in a pool of water in the morning. The machine sat on a tray because of…"
Does anyone have any experience of nasal valve collapse?Wondering if I have this but I don't know what the norm is.Been trying widgets that hold the nose open and it's like night and day.See More
"Wow it's the other way round for me.I found with the Sleepcube I'd often have a good bit of water still there in the morning. Today I woke up with a dry tank on the Resmed again and it's not on full heat or flow. I got it on 6…"
"A very helpful reply Jonathan. I found the pressure setting for the full face mask to be too high when I changed to a nasal mask, but perhaps I should have persisted?
I'll try again and I'll also discuss with the clinic whether an APAP…"
"Ramble alert! My history is that I spent part of each week at a different location, so bought a second machine identical to my fixed pressure NHS machine and set it up to match using the clinician menu. This was a very long time…"
"Thanks Jonathan - I had seen the YouTube video. My question is really about the experience of people who have control of their pressure settings, for example those people who have bought their machines directly and not obtained them through an NHS…"
I have been successfully using my air sense 10 since OSA diagnosis, and my AHI is now under 2. I had an appointment with my clinic this week and have been told there is no need for further appointments and just to contact them if I need supplies or…See More
A quick bit of backgroundDiagnosed with OSA about 7/8 years ago by my local sleep clinic and given a F &P Icon CPAP. After a couple of follow-up appts to sort out any issues, I was sent on my merry way. I have had no further face to face…See More
"I previously had a DeVilbiss Sleepcube and the dehumidifier did sometimes run dry. On the other hand I now have an AirSense 10 and it never runs dry, and I've had the humidity turned up high."
Hi. I'm finding the Airsense 10 the hospital gave me, the humidifier chamber runs dry. It's not even on max settings, which I'm guessing would empty it a lot quicker. Seems like a big design oversight to me. Does anyone else have this trouble? The…See More
HiI have regular, well yearly check ups at work. One being a hearing test. Since having my cpap machine my hearing has declined rapidly in 1 ear.....could this be as a result of pressure? I believe I'm on 15cm p max h2o. I just use a nasal…See More
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Gday Terry , congratulations for your award !!!yeah , that's right , not using one at all until , I hear back from Centrelink . I know its not very healthy . !. when I hear back , I ll go ands get it . I have enough money in the bank , but only just k
Hi Terry , how you going . I had to bring the trial machine back last week . I went to centrelink ( they reckon they can help by a couple hundred dollars towards the new machine ). I made an appt to see the Dr. to help fill it out , its in a couple of weeks.. is that your machine in the photo., how much was that.the Fisher & paykel will be $2500 ! cheers Kath
Yes I do Terry, but thanks for thinking of me
Ba Humbug - fancy someone daring to do fireworks on New Year's Eve I saw the lovely display in Sydney on the tv. London looked nice tonight at midnight too. Fireworks wouldn't have bothered me, as I'm a night owl, but my New Year's resolution is to get to bed by midnight. I made the same one last year and it never worked, so watch this space...Absolutely hated it when I fell asleep without the mask though... I used to do it in the early days when I read my book in bed before putting the mask on. Now I read on my Kindle with big fonts with the mask safely in place. Happy New Year!
Had a great Christmas thank and just preparing for our New Year Celebrations now with 6 hours to go....... Happy 2013 Terry and thank for all your imput on here during 2012
Social Media marketing is another ball game really. You really need someone that knows all the platforms in depth and the key is a good sound strategy. We use Facebook,Pinterest,You Tube,Twitter and Google Plus is another we are just starting with. Annie Infinite is an absolute gem. Any hoozle it sounds like you have an amazing job......you know i have just realised you are a man! I thought i had been chatting to a lady! LOL! As for medications and other stuff would rather not chat about that openly on a forum. Happy to share by email though.
This discussion is reminding me of a funny post I put on Pinterest (yes, yet another place people like to be Terry Here's the link http://pinterest.com/pin/87398048990369118/
I wasn't a lover of Facebook myself, but I've realised just how valuable it is to communicate with people. I use all the different social media sites so I can help people in the place they feel more comfortable. There are lots of people who are uncomfortable in forums too. We have hundreds of visitors every day, but not everyone joins. At least they're getting help though
How very interesting, well if you need anyone to help you with strategy i know an amazing lady up here in Queensland , she runs Saucy Social Media http://saucysocialmedia.com/ she really is an absolute guru and could do amazing things for your brands without charging ridiculous prices! take a look at her website and see what you think. My role is far more humble.....i look after Social Media and PR for Maleny Dairies. We are a fourth generation dairy farm and have taken on the big guys by building our own processing plant so that we can support other farming familiies and pay them a decent price for their milk. We also run tours of the farm and factory which is quite unique for a dairy farm. Works well for me as i work from home mostly so no-one knows i am still in my P.J's!!! Have not been able to have a full time role now for years, you know why!
Fair enough but just for your information if you don't follow or friend pages and celebs you won't receive their newsfeeds. but sure,some people can't be bothered with Facebook, its how you use it. I am a Social Media Manager so i use it a lot for my job to inform customers and connect with them. It does have its good side i promise! I have started following the Hope2sleep page, if it wasn't for Facebook i would never have found you guys!! Keep up the good work Terry, its appreciated.
thanks for the add Terry, does this bit work in a similiar way to Facebook?
That's no problem at all Terry and I shall look forward to helping Brownie34 too :)
Thanks Terry :) I don't know why you have a problem with messaging on here, as I've not heard of anyone having that problem. I've checked and you are a Friend on here of mine. Just double-check that you have me as a Friend (you can only message Friends). If ever you want to email me, use this account hope2sleep1@gmail.com
If you have a way to do it, can you please Terry? It won't let me sign out so that I can create a new account. I'm wondering if it's blocked my IP address - strange!! There's no rush as I don't get much time to go on, but hubby's at work so I was having a play around on various sites LOL.
Thanks, Tez (Terry). I'll do that when I get a chance. Been very busy lately...trying not to spend so much on forums.
That's fantastic progress Terry, and you're nearly there, which I'm sure hasn't been easy. Well Done! It doesn't bear thinking about how different your life might have been had you not come across OSA yourself, as still so many GPs don't consider the likelihood of depression being caused by it :( It's not surprising you're a really advocate for it.
The UK is now back to work as normal today after the Jubilee celebrations.
Good luck with the final hurdle :)
Best Wishes
Kath
Thankyou again Terry you're marvellous, more food for thought & advice so very appreciative of you & Kath.
Thanks again Terry for your advice much appreciated. Did you purchase your machine in Australia or buy online [USA]? Likewise is there anyone in this forum who has had experience purchasing their machine online? I imagine any warranty would only be applicable to the country from which it was purchased so I would anticipate any problems experienced whilst under warranty would mean I would bear the shipping costs. I am hopeful of eventually being able to titrate machine for my specific needs as per results downloaded from SD card. Is this what the majority of users eventually do? Is this what the aim of managing the condition is?Or do you need to have the ongoing support of an Australian distributor to adjust it? I not quite sure of what the role of the respiratory physician is apart from diagnosis and monitoring results ?from the SD card when you have 3mthly visits. Anyway I am also wondering what other drawbacks there might be in purchasing overseas. Thankyou for any comments/advice Marg.
Thanks Terry I much appreciate your comments. The machine has been set with ramp turned off. I don't have any idea about how I can find out the EPR setting so cannot see what it is. It's a trial resmed S9 autoset which I am actually trialling on a set pressure so that I might be able to compare auto with cpap. After reading on various forums I still have no idea what would be adequate for me. I don't really want to go to expense of APAP if CPAP would be just as effective. However my trial finishes next week and I am feeling a bit panicky as I will need to decide pretty quickly about what to purchase. Mixed messages really my resp physician said that he felt that according to my sleep study results that CPAP would be fine and he would advise on pressures etc. his personal preference was for the Resmed machines however I quite liked the Phillips I trialled last week though it was an auto. The trial co. recommend auto and an independent co rep has said that CPAP is good and not worth spending extra on Auto. So in summary as a newbie [diagnosed 3 weeks ago] I am totally overwhelmed & perplexed.
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