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Sleep Apnoea Forum Bringing Help + Support to the Patient

Kath Hope's Comments

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At 20:18 on March 18, 2011, Tigers Fan said…

Sussed!!

 

Is that photo actually you? Grrrrr!

At 22:15 on March 13, 2011, Jackie said…

thank you :)

our boy Sam on Christmas day with his present lol.

You are so like the picture I had of you  in my head but the hair was longer.

I won't put my own picture up as you need to encourage members not keep burglars out !

This forum is just what people need and I will be keeping my good eye on it lol !

xxxx

At 21:51 on March 13, 2011, Jackie said…

thank you Kath, you are such a star lighting the dark path of osa

I am not used to forums so please excuse me fumbling around till I find my feet ... mmm might need to lose a lot of weight then :)

ah that's better if I lean forward I can see them lol !

ooops no, was just a mirage ...

hugs xxxx

and hello to everyone

 

At 8:49 on March 13, 2011, Niel Fordon said…
I'll try doing my profile picture on the laptop if I can manage to get my partners daughter off it lol. 
At 3:06 on March 12, 2011, RockRpsgt said…

Awe shucks mamme you gonna make me blush. No truly Kath it is people like you that are heros to me. I just lucked into a job that I am good at. The passion is apart of my nature.

 

Besides I always wanted to go to the UK!

At 9:50 on March 10, 2011, Andy Thomas said…

Mornin Kath,

Just about to set about typin the new discussions , just a thought have you considered a twitter and facebook page for the forum to spread the word if you think its a good idea I would be happy to sort thes out as I not got much else to do thanks to dvla (long story)

Andy

At 23:00 on March 9, 2011, Andy Thomas said…

hi kath,

will do it in the morning or maybe over night depending on how I sleep???

Will also do one on rainout too if you would like.

 

Sleep well

Andy

At 14:35 on March 9, 2011, Andy Thomas said…

was thinkin of doin a thread on dvla and their policies for all to read as there are a few things worth mentioning and would not want fellow users going through the stresses that i went through with them.

does that sound like something you would like to see on here??

If so let me know and i will type away lol

At 12:31 on March 9, 2011, Andy Thomas said…

Hi kath,

found the forum after making a purchase from the store .

I have been battling with the condition for some 15 years and only diagnosed last year.

I have done some considerable research and am quite happy to share my experiences some good some bad !!!!

I think there is not enough support re our condition especially from the clinics although I am quite fortunate to be under a very good clinic in wales and the tech who looks after me is very pro active and helpful, but other people such as DVLA are not as understanding( i am a HGV driver) .

I wish you all the success with the forum and look forward to playing an active role in supporting it and getting to know the members as it develops.

At 12:26 on March 9, 2011, Niel Fordon said…
Never thought of that Kath thanks. I'll give it a try tonight. 
At 11:13 on March 9, 2011, Andy Thomas said…

Hi guys just joined the forum and was browsing posts and thought i would pick up on this one as thought i could help.

Neil the problem you have is common with a humidifier and is affectionately known as Rainout.

Basically it is condensation in the tubing caused by the temperature in the room you sleep in against the heated water in the tube.

It will take a while for you to get the humidifier setting right but a couple of tipe might help.

A hose huggie will help to stop the condensation also try changing the settings on your humid.

One thing i will stress is that it not a good idea to have the machine higher than ur sleeping height as the condensed water will flow down hill causing obvious problems.

lower than you is always the best place.

 

I am no expert but hope these tips help its all about trial and error as most sleep clinics are not that forthcoming with helpful info.

 

Regards

Andy

At 7:25 on March 9, 2011, Niel Fordon said…
Hi, 
Yes the guys at Castle Hill seem to be very good. The nurse who I saw was very helpful. I started CPAP beginning of December and I've found it's made a great difference in life.
I got a dehumidifier with my machine but I'm strugglingto get onwith that as I seem to be getting water settling in the pipe to my mask and it makes a rattling noise which can be quite loud. Any ideas? I've tried the machine on the floor so it's lower than me and I've raised it so it's higher than me but it still happens.
I get on fine without the dehumidifier but get the dry mouth side effects. I was thinking of returning the dehumidifier to Castle Hill.   
At 19:43 on March 8, 2011, Niel Fordon said…
Hello Kath,
I've sorted my profile now. I ended up with all the boxes ticked when I'd unticked them. Sorted now :-)))
At 15:20 on March 8, 2011, Niel Fordon said…
Hi all how do I edit my profile as I seem to have gone wrong somewhere. 
At 13:38 on March 8, 2011, Edward Grandi said…
Kath, thank you for the kind words. The association is preparing to
launch an updated and expanded web site next week. The content will be
useful to those looking for information on sleep apnea, no matter where
they are.

Please let me know if I can be a help.

Ed
At 23:49 on March 7, 2011, Rosemary Kemp said…
It's nice to see you there. I have high hopes for this site! Rosemary

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Jonathan replied to Frances Knight's discussion Air Sense 10 - changing pressure settings
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Sue Reeves posted a discussion

A few questions..

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John posted a discussion

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David Hudson posted a discussion

Decline in hearing

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Feb 13
Jenny Wren replied to Jenny Wren's discussion Feeling Abandoned by the Sleep Clinic
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Feb 8
Ejog1 replied to Jenny Wren's discussion Feeling Abandoned by the Sleep Clinic
"Thanks. Good news for me today, my clinic did finally reply to me and they’re giving me a new machine. The person I spoke to was super helpful. The NHS clinics are great when you’re able to speak to them, but they seem to be…"
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Jenny Wren replied to Jenny Wren's discussion Feeling Abandoned by the Sleep Clinic
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Feb 7
Jenny Wren replied to Jenny Wren's discussion Feeling Abandoned by the Sleep Clinic
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