Hope2SleepGuide

Sleep Apnoea Forum Bringing Help + Support to the Patient

**IMPORTANT REQUEST**

ng the comparatively low awareness of OSA there is, both among the general public as well as healthcare professionals. It also asks them to take appropriate action to draw attention to OSA in governments and parliaments across the UK.

Even if you don't have Sleep Apnoea, please fill it in and share this important action.

Thank you!
Here's the link to the form www.blf.org.uk/osa-action

 

Views: 520

Reply to This

Replies to This Discussion

Job done!

Great work Gary. Have been busy sending the link to all my social media sites.  Please everyone consider hitting the Facebook, Twitter + other Share Buttons to get this viral.

Just filled it in, only takes a minute!

Sent it yesterday, got a reply from David Liddington MP's office a couple of hours later saying he had written to the Dept of Health.

 

Wow, that's brilliant news Bill and the first I've heard of a response.  This is very encouraging, and I would urge everyone to pass the link to all their family and friends.

Bill Thomson said:

Sent it yesterday, got a reply from David Liddington MP's office a couple of hours later saying he had written to the Dept of Health.

 

Just heard of another person who has received an email back from her local MSP, Mr Mike MacKenzie who is pleased to support this. 

Hi,

I wrote a paragraph about my experiences of OSA to my MP, and appended the British Lung Foundation's form letter. I received a prompt reply through the post (attached).

Jonathan.

Attachments:

Great news Jonathan and thanks for letting us know.  Can others let us know too if they get any feedback?  Still waiting for mine here in Hull

Hi Kath

I recieved a letter from Karl Turner the MP for Hull East Costituency to inform me has written a letter to the Secretary of State For Health in support. Letter came end of last week so I  am sure yours will follow soon as we  have the same MP. 

Hmm.... how come you got a letter before me?  He'd better send me one as well

Ian Adamson said:

Hi Kath

I recieved a letter from Karl Turner the MP for Hull East Costituency to inform me has written a letter to the Secretary of State For Health in support. Letter came end of last week so I  am sure yours will follow soon as we  have the same MP. 

Just heard Norman Baker MP - East Sussex is taking action

I just received a letter from Angela Eagle MP, with a copy of the letter she sent to "The Secretary of State for Health" Jeremy Hunt. 

Kath, I have emailed you a copy of them. 

Reply to Discussion

RSS

Sleep Apnoea Forum

New to the Sleep Apnoea Forum? 

1. Stop by our Sleep Apnoea Welcome Center to introduce yourself to the SleepGuide community.
2. Start a New Topic of Conversation.
3. Post your photos - of yourself, your old CPAP machine, your new CPAP machine, your pet, something about you!

Interested in advertising, have a problem or need to contact us? Click the Report an Issue page.

 

Latest Activity

jjimjam updated their profile
Wednesday
Kath Hope replied to Becky Murkin's discussion noisy humidifier normal?
"It sounds like you're getting rainout issues (condensation) so here's an article to help with this. www.hope2sleep.co.uk/water-in-the-mask-hose-known-as-rainout"
Tuesday
Becky Murkin posted a discussion

noisy humidifier normal?

Hello,I have an air sense 10 auto.When I have the humidifier and the heated tube plugged in it makes a sort of drumming noise. Like that at the gallows in films.Is this normal? It wakes me up  and I have to give up and switch off  for the night.See More
Tuesday
John posted a discussion

Dentists in Hull that know about Mewing ?

I was wondering if there are any dentists in Hull who know about John & Mike Mew, and changing jaw shape over time?I could add that I saw an ENT consultant recently and she said jaw shape, malocclusion, is genetic, which has become a debatable…See More
Apr 9
Profile IconKaren Mcleod, Fiona Watson, Teresa Hobbs and 5 more joined Hope2SleepGuide
Apr 3
Jonathan replied to John's discussion Airsense 10 -humidifier runs dry
"I did replace the tank in my SleepCube, and had to regularly take the silicone sealing gasket out and give it a goof clean, but not infrequently found it standing in a pool of water in the morning.  The machine sat on a tray because of…"
Mar 26
John posted a discussion

Nasal valve collapse

Does anyone have any experience of nasal valve collapse?Wondering if I have this but I don't know what the norm is.Been trying widgets that hold the nose open and it's like night and day.See More
Mar 24
John replied to John's discussion Airsense 10 -humidifier runs dry
"Wow it's the other way round for me.I found with the Sleepcube I'd often have a good bit of water still there in the morning. Today I woke up with a dry tank on the Resmed again and it's not on full heat or flow. I got it on 6…"
Mar 24
Becky Murkin posted a discussion

F20 AirFit small marking bridge of nose

Please help or give advice all wise people on here.I have had the Resmed F20 AirFit small mask for over a month. Seals yet…See More
Mar 19
Frances Knight replied to Frances Knight's discussion Air Sense 10 - changing pressure settings
"A very helpful reply Jonathan. I found the pressure setting for the full face mask to be too high when I changed to a nasal mask, but perhaps I should have persisted? I'll try again and I'll also discuss with the clinic whether an APAP…"
Mar 13
Jonathan replied to Frances Knight's discussion Air Sense 10 - changing pressure settings
"Ramble alert!  My history is that I spent part of each week at a different location, so bought a second machine identical to my fixed pressure NHS machine and set it up to match using the clinician menu.  This was a very long time…"
Mar 12
Frances Knight replied to Frances Knight's discussion Air Sense 10 - changing pressure settings
"Thanks Jonathan - I had seen the YouTube video. My question is really about the experience of people who have control of their pressure settings, for example those people who have bought their machines directly and not obtained them through an NHS…"
Mar 12
Jonathan replied to Frances Knight's discussion Air Sense 10 - changing pressure settings
"This is NOT a recommendation http://www.youtube.com/watch?v=VNUWhd2UgQM"
Mar 11
Frances Knight posted a discussion

Air Sense 10 - changing pressure settings

I have been successfully using my air sense 10 since OSA diagnosis, and my AHI is now under 2. I had an appointment with my clinic this week and have been told there is no need for further appointments and just to contact them if I need supplies or…See More
Mar 11
Swen Greve is now a member of Hope2SleepGuide
Mar 4
Jonathan replied to Sue Reeves's discussion A few questions..
"If you have a helpful GP, I would ask them to re-refer you to the sleep clinic."
Mar 3
Sue Reeves posted a discussion

A few questions..

A quick bit of backgroundDiagnosed with OSA about 7/8 years ago by my local sleep clinic and given a F &P Icon CPAP.  After a couple of follow-up appts to sort out any issues, I was sent on my merry way. I have had no further face to face…See More
Mar 3
Jonathan replied to John's discussion Airsense 10 -humidifier runs dry
"I previously had a DeVilbiss Sleepcube and the dehumidifier did sometimes run dry.  On the other hand I now have an AirSense 10 and it never runs dry, and I've had the humidity turned up high."
Feb 26
John posted a discussion

Airsense 10 -humidifier runs dry

Hi. I'm finding the Airsense 10 the hospital gave me, the humidifier chamber runs dry. It's not even on max settings, which I'm guessing would empty it a lot quicker. Seems like a big design oversight to me. Does anyone else have this trouble? The…See More
Feb 26
David Hudson posted a discussion

Decline in hearing

HiI have regular, well yearly check ups at work. One being a hearing test. Since having my cpap machine my hearing has declined rapidly in 1 ear.....could this be as a result of pressure? I believe I'm on 15cm p max h2o. I just use a nasal…See More
Feb 26

© 2024   Created by The SleepGuide Crew.   Powered by

Badges  |  Report an Issue  |  Terms of Service