Hope2SleepGuide

Sleep Apnoea Forum Bringing Help + Support to the Patient

I have been using a BPAP Resmed S9 having been diagnosed with moderate level 4 years ago.   After an initial struggle for a couple of months everything was sorted with some help from Hope2Sleep.

For sometime before being diagnosed with sleep apnea I had had a triple bypass in 2009 (probably something to do with the undiagnosed sleep apnea) and suffered with breathlessness after a lung collapse during my op.

Anyway, I have just recently been diagnosed with Asbestosis and I have found that whilst on the machine the pressure and pain from the Asbestosis is totally relieved only to return within an hour of waking.

I reported the fact to my Respiratory Consultant who has now prescribed "Non invasive Ventilation" as part of my treatment - not that I needed persuading!   It then turned out that the consultant is on the panel at my Sleep Clinic and is arranging a further appointment to assess my BPAP settings.

Views: 165

Reply to This

Replies to This Discussion

Good stuff, I don;t think your By-pass surgery would have been due to Sleep Apnoea, though it wouldn't help when you were asleep not to be on treatment.

Did you work on building sites to get Asbestosis.

It scares me to think I used to walk past people cutting asbestos with a circular saw and the dust was terrible.

However, nothing has shown up in any scans, though they were not looking for that anyway.

I did have a shadow on my right lung, but it turned out to be pneumonia.

I was in hospital at the time, how do you get pneumonia when you are in a hospital.

Good to see the treatment is helping at night and you have a good consultant.

Glad to hear we've helped David, which is the primary purpose of our charity There has been lots of research with cardio issues and undiagnosed sleep apnoea, so I'm convinced the triple bypass will have been to do with your undiagnosed sleep apnoea.  Hindsight eh?  Many of the cardio consultants who are clued up with the link between sleep apnoea and cardio issues will automatically suggest people with heart problems have a sleep study, but sadly some aren't connecting the dots.  I have also had a pneumothorax (partly collapsed lung when undiagnosed with sleep apnoea).  Sorry to hear about your Asbestosis, and it makes sense that when you're on your BiPAP you'll be relieved of the symptoms.  You could also be retaining carbon dioxide, and the BiPAP will help with this.  Keep us posted re the Non-Invasive Ventilation.  I've been on ASV myself which did help with the co2 retention, but so does the VPAP.

Kath, thanks for the pointers on ASV will see what happens on the sleep study. Interesting point about CO2 retention, it was detected on my original sleep study that I was a CO2 retainer and a test was conducted which said it was mild, then again there was no symptoms of Asbestosis then. I was changed to BPAP and given the RESMED S9.

When I had the heart attack I was Insulin dependent type 2 Diabetic so another contributory factor? I have now been reclassified as a Late onset type 1 diabetic (LADA or Type 1.5 Diabetic) and obviously still Insulin dependent.

When I spoke to the Sleep clinic recently they told me they would look at other options and I needed to get my consultant to make a referral, that's been done and await an appointment.

Thanks for all that you do

I'm not knowledgeable on the link between diabetes and heart attacks, but both of them are definitely linked with sleep apnoea, and whilst type 2 is the main one, there has also been research into the link between sleep apnoea and type 1 diabetes.

They will need to check your blood gases to see if your co2 retention is worse now. Common symptoms are waking up sluggish or with headaches, despite CPAP.  They're unaware why I retain co2 and neuro are trying to fathom it out.  It's frustrating not knowing, but at least the VPAP is sorting it so I'm lucky in that way



Sleep2snore said:

Good stuff, I don;t think your By-pass surgery would have been due to Sleep Apnoea, though it wouldn't help when you were asleep not to be on treatment.

Did you work on building sites to get Asbestosis.

It scares me to think I used to walk past people cutting asbestos with a circular saw and the dust was terrible.

However, nothing has shown up in any scans, though they were not looking for that anyway.

I did have a shadow on my right lung, but it turned out to be pneumonia.

I was in hospital at the time, how do you get pneumonia when you are in a hospital.

Good to see the treatment is helping at night and you have a good consultant.

Thanks for your reply, as you will see from my response to Kaths reply I am also a Late Onset Type 1 Diabetic (LADA or type 1.5) and that may have well been a cause and I as 62 at the time so it all stacks up. Before the heart attack I also developed some breathing problems but did not do anything about it!

After the bypass (during which my left lung collapsed) I was diagnosed with COPD but this was a misdiagnosis I found out 7 years later.

As a result of the Heart Attack it was found that I had mild heart failure and this led to the investigations as to what was causing the breathing problems. A CT scan 4 years before had suggested Pulmonary Fibrosis and the latest in the middle of last year showed Asbestosis.

My exposure to asbestos is vague - 1. I was born in a Prefab (almost entirely made of Asbestos sheets) and 2. I was a regular soldier from age 15 until age 30 and a lot of barracks have lots of asbestos in them. There are many instance of people who have contracted Asbestosis with even mild exposure, teachers, some of them from the asbestos mats they used in science labs over bunsen burners! There is a recent petition by teachers demanding action to get asbestos out of schools today because they have an unusually high incidence of Asbestosis. You can see the relevance when you find that it can take anything between 40 and 70 years to develop.

I should have said I have never worked on a building site. I was a computer engineer and often visited sites where Asbestos was still obvious.

My consultant is setting up a sleep clinic appointment for me and hope that will be soon. My BPAP us doing a good job its just the daytime off the machine that's the problem!

Reply to Discussion

RSS

Sleep Apnoea Forum

New to the Sleep Apnoea Forum? 

1. Stop by our Sleep Apnoea Welcome Center to introduce yourself to the SleepGuide community.
2. Start a New Topic of Conversation.
3. Post your photos - of yourself, your old CPAP machine, your new CPAP machine, your pet, something about you!

Interested in advertising, have a problem or need to contact us? Click the Report an Issue page.

 

Latest Activity

Jonathan replied to John's discussion Airsense 10 -humidifier runs dry
"I did replace the tank in my SleepCube, and had to regularly take the silicone sealing gasket out and give it a goof clean, but not infrequently found it standing in a pool of water in the morning.  The machine sat on a tray because of…"
Tuesday
John posted a discussion

Nasal valve collapse

Does anyone have any experience of nasal valve collapse?Wondering if I have this but I don't know what the norm is.Been trying widgets that hold the nose open and it's like night and day.See More
Sunday
John replied to John's discussion Airsense 10 -humidifier runs dry
"Wow it's the other way round for me.I found with the Sleepcube I'd often have a good bit of water still there in the morning. Today I woke up with a dry tank on the Resmed again and it's not on full heat or flow. I got it on 6…"
Sunday
Becky Murkin posted a discussion

F20 AirFit small marking bridge of nose

Please help or give advice all wise people on here.I have had the Resmed F20 AirFit small mask for over a month. Seals yet…See More
Mar 19
Frances Knight replied to Frances Knight's discussion Air Sense 10 - changing pressure settings
"A very helpful reply Jonathan. I found the pressure setting for the full face mask to be too high when I changed to a nasal mask, but perhaps I should have persisted? I'll try again and I'll also discuss with the clinic whether an APAP…"
Mar 13
Jonathan replied to Frances Knight's discussion Air Sense 10 - changing pressure settings
"Ramble alert!  My history is that I spent part of each week at a different location, so bought a second machine identical to my fixed pressure NHS machine and set it up to match using the clinician menu.  This was a very long time…"
Mar 12
Frances Knight replied to Frances Knight's discussion Air Sense 10 - changing pressure settings
"Thanks Jonathan - I had seen the YouTube video. My question is really about the experience of people who have control of their pressure settings, for example those people who have bought their machines directly and not obtained them through an NHS…"
Mar 12
Jonathan replied to Frances Knight's discussion Air Sense 10 - changing pressure settings
"This is NOT a recommendation http://www.youtube.com/watch?v=VNUWhd2UgQM"
Mar 11
Frances Knight posted a discussion

Air Sense 10 - changing pressure settings

I have been successfully using my air sense 10 since OSA diagnosis, and my AHI is now under 2. I had an appointment with my clinic this week and have been told there is no need for further appointments and just to contact them if I need supplies or…See More
Mar 11
Swen Greve is now a member of Hope2SleepGuide
Mar 4
Jonathan replied to Sue Reeves's discussion A few questions..
"If you have a helpful GP, I would ask them to re-refer you to the sleep clinic."
Mar 3
Sue Reeves posted a discussion

A few questions..

A quick bit of backgroundDiagnosed with OSA about 7/8 years ago by my local sleep clinic and given a F &P Icon CPAP.  After a couple of follow-up appts to sort out any issues, I was sent on my merry way. I have had no further face to face…See More
Mar 3
Jonathan replied to John's discussion Airsense 10 -humidifier runs dry
"I previously had a DeVilbiss Sleepcube and the dehumidifier did sometimes run dry.  On the other hand I now have an AirSense 10 and it never runs dry, and I've had the humidity turned up high."
Feb 26
John posted a discussion

Airsense 10 -humidifier runs dry

Hi. I'm finding the Airsense 10 the hospital gave me, the humidifier chamber runs dry. It's not even on max settings, which I'm guessing would empty it a lot quicker. Seems like a big design oversight to me. Does anyone else have this trouble? The…See More
Feb 26
David Hudson posted a discussion

Decline in hearing

HiI have regular, well yearly check ups at work. One being a hearing test. Since having my cpap machine my hearing has declined rapidly in 1 ear.....could this be as a result of pressure? I believe I'm on 15cm p max h2o. I just use a nasal…See More
Feb 26
Profile Icontim richards, mark & les, Lesley Parks and 1 more joined Hope2SleepGuide
Feb 13
Jenny Wren replied to Jenny Wren's discussion Feeling Abandoned by the Sleep Clinic
"I've got lucky! I can collect a new machine next week. It's been really helpful to 'speak' to people here and to Kath. It alerted me to the fact that I'd slipped through the net. The clinic were very apologetic and now all…"
Feb 8
Ejog1 replied to Jenny Wren's discussion Feeling Abandoned by the Sleep Clinic
"Thanks. Good news for me today, my clinic did finally reply to me and they’re giving me a new machine. The person I spoke to was super helpful. The NHS clinics are great when you’re able to speak to them, but they seem to be…"
Feb 7
Jenny Wren replied to Jenny Wren's discussion Feeling Abandoned by the Sleep Clinic
"Yes, my machine is affected. Seems I slipped through the net. I'm now on the sleep clinic's radar again and am hopeful that this will be sorted soon. Thanks for your reply and stay well."
Feb 7
Jenny Wren replied to Jenny Wren's discussion Feeling Abandoned by the Sleep Clinic
"I'm sorry to hear that. I emailed Kath about this and she was very helpful. She advised me to get in touch with my sleep clinic and I have had a reply from them. I so hope that you get a response soon."
Feb 7

© 2024   Created by The SleepGuide Crew.   Powered by

Badges  |  Report an Issue  |  Terms of Service