Hope2SleepGuide

Sleep Apnoea Forum Bringing Help + Support to the Patient

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Welcome to our Forum - Feel Free to Introduce Yourself Here.

Welcome to the Hope2SleepGuide Forum, which is a service run by the Hope2Sleep Charity founded by Kath Hope with a marvellous team of trust…

Started by The SleepGuide Crew in Sleep ApnoeaLatest Reply

Discussions Replies Latest Activity

Night shift sleep positioner for sale

Hello everyone. For sale is my night shift sleep positioner. For those of you that have not heard of it, it is a small device produced by A…

Started by Alison in Sleep Apnoea

0 on Sunday

Mandibular Mouthguards

I have been diagnosed with Severe Obstructive Sleep Apnoea and the consultant and his team supplied me with a CPAP machine.  I had no probl…

Started by Christine NICHOLS in Sleep Apnoea

1 Jul 5
Reply by Kath Hope

Activated Oxygen

I have come across a press release from the U.S. Food and Drug Administration published in the US in 2020 stating that no devices that use…

Started by Ian in Sleep Apnoea

3 Jun 2
Reply by Kath Hope

Hope2Sleep Charity Helps with India's COVID-19 Crisis

Sorry the forum hasn't been as active as normal as all of us at the Hope2Sleep Charity have hardly had chance to breathe (except in sleep w…

Started by Kath Hope in Sleep Apnoea

0 May 25

Help for NHS Research when New to CPAP

We've been asked to help a team of researchers from the NHS (including Professor Joerg Steier from Guy's & St Thomas' who is our charit…

Started by Kath Hope in Sleep Apnoea

0 May 25

Noisy mask problem

I have had my Fisher and Paykel Simplus mask for about five years and have been very happy with it, until about two weeks ago. I did my usu…

Started by Judith-Ann Wardlaw in Sleep Apnoea

1 May 25
Reply by Kath Hope

Been declined Nhs treatment

Hi.  I did a home sleep study privately which showed I have moderate sleep apnoea. That wasn’t really a surprise as I snore terribly and my…

Started by Natalie Gray in Sleep Apnoea

7 May 19
Reply by Natalie Gray

Why does AHI increase with more mask leak?

My AHI increases with nights with increased mask leak.  I am using an Auto CPAP. Is this a detection/flow phenomena? Thanks

Started by Michael Jones in Sleep Apnoea

0 May 19

Dry Mouth - best humidifier settings advice

Hi I have a PR Dreamstation Auto with integrated humidifier connected to a Amara Viewfull face mask via a heated wire tube. My average pres…

Started by Michael Jones in Sleep Apnoea

2 May 19
Reply by Michael Jones

Dry Mouth - best humidifier settings advice

Hi I have a PR Dreamstation Auto with integrated humidifier connected to a Amara Viewfull face mask via a heated wire tube. My average pres…

Started by Michael Jones in Sleep Apnoea

0 May 16

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Latest Activity

Alison updated their profile
Sunday
Alison posted a discussion

Night shift sleep positioner for sale

Hello everyone. For sale is my night shift sleep positioner. For those of you that have not heard of it, it is a small device produced by American company, Advanced Brain Monitoring, which is worn around the neck whilst sleeping. The device senses…See More
Sunday
Linda Lyon is now a member of Hope2SleepGuide
Saturday
Alison is now a member of Hope2SleepGuide
Jul 22
Richard Paul Minard is now a member of Hope2SleepGuide
Jul 8
Kath Hope replied to Christine NICHOLS's discussion Mandibular Mouthguards
"Sorry to hear this as it's quite a worry that you no longer have CPAP with your sleep apnoea being severe Christine, as you'll no doubt know the health risks of living with untreated sleep apnoea…"
Jul 5
Christine NICHOLS posted a discussion

Mandibular Mouthguards

I have been diagnosed with Severe Obstructive Sleep Apnoea and the consultant and his team supplied me with a CPAP machine.  I had no problems with the physical presence of the mask but was frequently woken with a horrendous dry mouth or "surges" of…See More
Jul 5
Christine NICHOLS is now a member of Hope2SleepGuide
Jul 4
Frank Cairney is now a member of Hope2SleepGuide
Jun 26
Kath Hope replied to Ian's discussion Activated Oxygen
"That's great to hear Ian and we suspect those cheap copies are the issue here or even if people are using the SoClean without following the proper instructions.  We'll see what the FDA say....."
Jun 2
Jon Read is now a member of Hope2SleepGuide
May 29
Dan Walter is now a member of Hope2SleepGuide
May 28
Kath Hope commented on Kath Hope's event 'Hope2Sleep Charity's Free Online Webinar - No 3'
"Looks like I'm attending on my own, except I happen to know there are lots already registered for our webinar lol."
May 27
Profile IconGraham Angus and David Phillips joined Hope2SleepGuide
May 26
Ian replied to Ian's discussion Activated Oxygen
"Thanks Kath.  I've never used my CPAP without having the SoClean. I think it's a great piece of equipment and makes the cleaning regime a doddle and as mentioned I've never suffered any ill effects, indeed since using my CPAP I…"
May 26
Kath Hope posted discussions
May 25
Kath Hope posted an event
Thumbnail

Hope2Sleep Charity's Free Online Webinar - No 3 at Zoom Webinar

May 27, 2021 from 8pm to 9:30pm
Hope you can join our free webinar this Thursday at 8 pm and our guest speaker is our charity's patron, Dom Joly, comedian and travel writer who is sharing his own story of his…See More
May 25
Kath Hope replied to Judith-Ann Wardlaw's discussion Noisy mask problem
"Sorry Judith I or others either didn't see this or didn't have an answer, but as per our conversation in the Facebook Group and for the sake of anyone wondering who sees this post, I'll confirm that you found out it was your bacterial…"
May 25
Kath Hope replied to Ian's discussion Activated Oxygen
"Hi Ian Yes this has been an ongoing investigation for over a year, without many updates from the FDA, that we've been watching closely and they're also investigating the UV light cleaning system (Lumin).  I doubt the UK will be…"
May 25
Ian posted a discussion

Activated Oxygen

I have come across a press release from the U.S. Food and Drug Administration published in the US in 2020 stating that no devices that use activated oxygen to sterilize CPAP equipment are licenced for sale in the U.S. The release goes onto say that…See More
May 25

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