Hope2SleepGuide

Sleep Apnoea Forum Bringing Help + Support to the Patient

Welcome to our Forum - Feel Free to Introduce Yourself Here.

Welcome to the Hope2SleepGuide Forum, which is a service run by the Hope2Sleep Charity founded by Kath Hope with a marvellous team of trustees and volunteers. 

Kath herself has severe sleep apnoea and hypoventilation/hypercapnia, and has used CPAP for several years and is now on non-invasive ventilation.  Our trustees and volunteers are all either sufferers of sleep disordered breathing or clinicians/medics working in this field, and most importantly, we are all passionate in supporting (with empathy) others and raising awareness to help people live healthier and more energised lives.

 

Whilst we do not give medical advice, more often than not, with support, tips and knowledge, people can overcome any problems experienced with our therapy, and there is a whole page dedicated to this on the website http://www.hope2sleep.co.uk/tips-for-problems-sleeping-with-cpap-or...

 

Please come and join us, and don’t feel obligated to use your ‘real’ name if you prefer to remain anonymous as this is a public forum.  Don’t be shy in posting and sharing, as we’re all in this together and to help each other.

Best Wishes for good sleep!

Kath

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Thanks Kath. I am going to start adapting to the mask by wearing it in the day at first. Once I get one or two nights on it I reckon I will be OK.

other forums have said there is no point in tweaking my pressure because of the high leak rate and I need to change my mask (which I do, as the Comfort Gel is of course discontinued). 

Kath Hope said:

Hi Crabbleite

I can't speak for the Resmed Mirage FX, but we've sold the Wisp for years at the charity and our site has all 5 star reviews.  The DreamWisp is the newest version with the difference being the hose comes out of the top of the mask and to be honest I prefer masks with the hose at the top like the DreamWear range (I use the DreamWear full face as I'm a mouth breather).

Well done on tapering off the Clonazepam if it wasn't helping you.

Regarding your higher AHI, there can be lots of reasons for this, but it's also worth considering if you definitely ONLY breathe through your nose during sleep as that could cause a higher AHI.  Also though the fact you say you may need ASV could also be part of the reason.

Crabbleite said:

Hi

I have been using xPAP fo around 15 years and have never really for it to work for me. I am joining this forum with eh aim of getting my AHI below 5.

I have been using a Respirinicas Comfort Gel nasal mask for a long time now and it is well overdue to switch to another mask.

So my first task is to do that and the two main candidates are either the wisp or the ResMed Mirage FX.

Other than that I have been told elsewhere that I probably need an ASV machine but at the moment I'm using BiPAP.

Co-morbidity makes my case extra complex and hard to treat. I have also been diagnosed with Periodic Limb Movement Disorder, and in the closing year (hopefully) of a five-year long taper from Clonazepam, a med that was prescribed to treat my PLMD, with disastrous results.

As I say, as far as CPAP goes if I can get my AHI below 5 (and preferably as close to 0 as possible) then that will be as much as CPAP can do for me.

 

Sorry posted in wrong place

Hi Everyone,

I’m 50 and was diagnosed last month with moderate sleep apnea with a score of 28. Last night was my first night with my cpap machine and mask. I slept a whole 8 hours without waking! I also feel quite a bit brighter and less foggy this morning.
There were a few minor issues with it. I have the resmed auto machine from the sleep clinic and it is automatic but the air flow is set between 4 and 15. When I put the mask on initially and did the mask test I had a good fit.
When I switched on the machine and started for my first night it made me feel a bit panicked as if there was not enough air for me to breath. I persevered and noticed that within the first 45 minutes the level was up to 9.6 which seemed more comfortable and then I fell asleep. I was wondering is this feeling quite normal or is it just because the cpap is new for me?

The other issue is that this morning when I took the mask off there seems to be several red patches/spots on my nose where the mask touched, does this mean I fitted it wrong?

Any suggestions on this would be great

Thank you 

Sara

Either they have not set your minimum pressure and the machine is slowly finding the level you require, or they have not set up a minimum pressure.

I don't know how or if they set your machine up, but my mate got one and under Covid rules they were not allowed to set it up, it had to be left as it came out the factory.  He was told it would take a while to build up pressure, but it would get there.

However, he like you panicked.  I had to tell him how to set it up after that he said it was far better than the old machine he had.

Either that or the RAMP is turned on, this delays the machine reaching its minimum pressure.

This can be turned off in the settings, that was the machine will only take 30 seconds to reach it minimum pressure, provided it is set.



Booksy said:

Hi Everyone,

I’m 50 and was diagnosed last month with moderate sleep apnea with a score of 28. Last night was my first night with my cpap machine and mask. I slept a whole 8 hours without waking! I also feel quite a bit brighter and less foggy this morning.
There were a few minor issues with it. I have the resmed auto machine from the sleep clinic and it is automatic but the air flow is set between 4 and 15. When I put the mask on initially and did the mask test I had a good fit.
When I switched on the machine and started for my first night it made me feel a bit panicked as if there was not enough air for me to breath. I persevered and noticed that within the first 45 minutes the level was up to 9.6 which seemed more comfortable and then I fell asleep. I was wondering is this feeling quite normal or is it just because the cpap is new for me?

The other issue is that this morning when I took the mask off there seems to be several red patches/spots on my nose where the mask touched, does this mean I fitted it wrong?

Any suggestions on this would be great

Thank you 

Sara

If you have an automatic machine it is called an APAP not a CPAP, it is all new!

Please quote the make and model of you machine, this helps us when we reply.

Hi Booksy

This is a great 1st night's result regarding already feeling the benefits of CPAP.   It's absolutely normal to get a few teething problems at first but if you feel the air pressure is still too low contact your sleep clinic who will be already monitoring how you get on and if they feel the settings need changing they can usually do this remotely or will instruct you over the telephone.  

It's unlikely you fitted the mask wrong, but your skin isn't used to wearing the mask yet.  If the skin problems persist or get worse there are things like mask liners or cream that's safe to use.  In fact if you have a look at our charity's website you'll see there's a whole page covering the little hiccups we can come across - most of which there's a solution for https://www.hope2sleep.co.uk/tips-for-problems-sleeping-with-cpap-o...

Hope Night 2 goes well :)
Booksy said:

Hi Everyone,

I’m 50 and was diagnosed last month with moderate sleep apnea with a score of 28. Last night was my first night with my cpap machine and mask. I slept a whole 8 hours without waking! I also feel quite a bit brighter and less foggy this morning.
There were a few minor issues with it. I have the resmed auto machine from the sleep clinic and it is automatic but the air flow is set between 4 and 15. When I put the mask on initially and did the mask test I had a good fit.
When I switched on the machine and started for my first night it made me feel a bit panicked as if there was not enough air for me to breath. I persevered and noticed that within the first 45 minutes the level was up to 9.6 which seemed more comfortable and then I fell asleep. I was wondering is this feeling quite normal or is it just because the cpap is new for me?

The other issue is that this morning when I took the mask off there seems to be several red patches/spots on my nose where the mask touched, does this mean I fitted it wrong?

Any suggestions on this would be great

Thank you 

Sara

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Marta zurawska is now a member of Hope2SleepGuide
6 hours ago
Kath Hope replied to Amanda Farley's discussion Split mask and hospital not helping.
"So pleased to hear this Amanda and you're right to always have a spare.  I take 2 away with me just in case + 2 hoses lol.  I knew exactly how you felt which is why we would have helped."
yesterday
Amanda Farley replied to Amanda Farley's discussion Split mask and hospital not helping.
"Thank you Kath, they've phoned and have posted one out. Tbh I'd have been happier just collecting it!  Definitely going to buy myself a spare. "
Tuesday
Kath Hope replied to Amanda Farley's discussion Split mask and hospital not helping.
"Hi Amanda Can you give us a call at the charity so we can try to help you.  Charity line is 0300 102 9711"
Tuesday
Amanda Farley posted a discussion

Split mask and hospital not helping.

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For sale Philips dream station auto cpap machine with Resmed F20 mask

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Kath Hope replied to Maxine Chaplain's discussion Using humidifier
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Apr 28
Maxine Chaplain replied to Maxine Chaplain's discussion Using humidifier
"Thanks so much for the advice. I now have my new one and will try the water/vinegar regime. Yes, we do live in a very hard water area which doesn't help so I'll give the distilled water a go too. Many thanks "
Apr 28
Kath Hope replied to Maxine Chaplain's discussion Using humidifier
"Hi Maxine That advice is correct, except you really want to be giving a deeper clean once a week with a more natural disinfecting regime.  The manufacturers recommend doing this with 1 part of white vinegar to 5 parts water and leaving to…"
Apr 26
Maxine Chaplain posted a discussion

Using humidifier

All the tips I've read regarding cleaning the humidifier state regularly washing with a gentle soap and water and only using distilled water. I've been using boiled, cooled water and assumed this was OK. My humidifier has gone white and crazed and…See More
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