Hope2SleepGuide

Sleep Apnoea Forum Bringing Help + Support to the Patient

Welcome to our Forum - Feel Free to Introduce Yourself Here.

Welcome to the Hope2SleepGuide Forum, which is a service run by the Hope2Sleep Charity founded by Kath Hope with a marvellous team of trustees and volunteers. 

Kath herself has severe sleep apnoea and hypoventilation/hypercapnia, and has used CPAP for several years and is now on non-invasive ventilation.  Our trustees and volunteers are all either sufferers of sleep disordered breathing or clinicians/medics working in this field, and most importantly, we are all passionate in supporting (with empathy) others and raising awareness to help people live healthier and more energised lives.

 

Whilst we do not give medical advice, more often than not, with support, tips and knowledge, people can overcome any problems experienced with our therapy, and there is a whole page dedicated to this on the website http://www.hope2sleep.co.uk/tips-for-problems-sleeping-with-cpap-or...

 

Please come and join us, and don’t feel obligated to use your ‘real’ name if you prefer to remain anonymous as this is a public forum.  Don’t be shy in posting and sharing, as we’re all in this together and to help each other.

Best Wishes for good sleep!

Kath

Views: 10705

Reply to This

Replies to This Discussion

Thanks Kath. I am going to start adapting to the mask by wearing it in the day at first. Once I get one or two nights on it I reckon I will be OK.

other forums have said there is no point in tweaking my pressure because of the high leak rate and I need to change my mask (which I do, as the Comfort Gel is of course discontinued). 

Kath Hope said:

Hi Crabbleite

I can't speak for the Resmed Mirage FX, but we've sold the Wisp for years at the charity and our site has all 5 star reviews.  The DreamWisp is the newest version with the difference being the hose comes out of the top of the mask and to be honest I prefer masks with the hose at the top like the DreamWear range (I use the DreamWear full face as I'm a mouth breather).

Well done on tapering off the Clonazepam if it wasn't helping you.

Regarding your higher AHI, there can be lots of reasons for this, but it's also worth considering if you definitely ONLY breathe through your nose during sleep as that could cause a higher AHI.  Also though the fact you say you may need ASV could also be part of the reason.

Crabbleite said:

Hi

I have been using xPAP fo around 15 years and have never really for it to work for me. I am joining this forum with eh aim of getting my AHI below 5.

I have been using a Respirinicas Comfort Gel nasal mask for a long time now and it is well overdue to switch to another mask.

So my first task is to do that and the two main candidates are either the wisp or the ResMed Mirage FX.

Other than that I have been told elsewhere that I probably need an ASV machine but at the moment I'm using BiPAP.

Co-morbidity makes my case extra complex and hard to treat. I have also been diagnosed with Periodic Limb Movement Disorder, and in the closing year (hopefully) of a five-year long taper from Clonazepam, a med that was prescribed to treat my PLMD, with disastrous results.

As I say, as far as CPAP goes if I can get my AHI below 5 (and preferably as close to 0 as possible) then that will be as much as CPAP can do for me.

 

Sorry posted in wrong place

Hi Everyone,

I’m 50 and was diagnosed last month with moderate sleep apnea with a score of 28. Last night was my first night with my cpap machine and mask. I slept a whole 8 hours without waking! I also feel quite a bit brighter and less foggy this morning.
There were a few minor issues with it. I have the resmed auto machine from the sleep clinic and it is automatic but the air flow is set between 4 and 15. When I put the mask on initially and did the mask test I had a good fit.
When I switched on the machine and started for my first night it made me feel a bit panicked as if there was not enough air for me to breath. I persevered and noticed that within the first 45 minutes the level was up to 9.6 which seemed more comfortable and then I fell asleep. I was wondering is this feeling quite normal or is it just because the cpap is new for me?

The other issue is that this morning when I took the mask off there seems to be several red patches/spots on my nose where the mask touched, does this mean I fitted it wrong?

Any suggestions on this would be great

Thank you 

Sara

Either they have not set your minimum pressure and the machine is slowly finding the level you require, or they have not set up a minimum pressure.

I don't know how or if they set your machine up, but my mate got one and under Covid rules they were not allowed to set it up, it had to be left as it came out the factory.  He was told it would take a while to build up pressure, but it would get there.

However, he like you panicked.  I had to tell him how to set it up after that he said it was far better than the old machine he had.

Either that or the RAMP is turned on, this delays the machine reaching its minimum pressure.

This can be turned off in the settings, that was the machine will only take 30 seconds to reach it minimum pressure, provided it is set.



Booksy said:

Hi Everyone,

I’m 50 and was diagnosed last month with moderate sleep apnea with a score of 28. Last night was my first night with my cpap machine and mask. I slept a whole 8 hours without waking! I also feel quite a bit brighter and less foggy this morning.
There were a few minor issues with it. I have the resmed auto machine from the sleep clinic and it is automatic but the air flow is set between 4 and 15. When I put the mask on initially and did the mask test I had a good fit.
When I switched on the machine and started for my first night it made me feel a bit panicked as if there was not enough air for me to breath. I persevered and noticed that within the first 45 minutes the level was up to 9.6 which seemed more comfortable and then I fell asleep. I was wondering is this feeling quite normal or is it just because the cpap is new for me?

The other issue is that this morning when I took the mask off there seems to be several red patches/spots on my nose where the mask touched, does this mean I fitted it wrong?

Any suggestions on this would be great

Thank you 

Sara

If you have an automatic machine it is called an APAP not a CPAP, it is all new!

Please quote the make and model of you machine, this helps us when we reply.

Hi Booksy

This is a great 1st night's result regarding already feeling the benefits of CPAP.   It's absolutely normal to get a few teething problems at first but if you feel the air pressure is still too low contact your sleep clinic who will be already monitoring how you get on and if they feel the settings need changing they can usually do this remotely or will instruct you over the telephone.  

It's unlikely you fitted the mask wrong, but your skin isn't used to wearing the mask yet.  If the skin problems persist or get worse there are things like mask liners or cream that's safe to use.  In fact if you have a look at our charity's website you'll see there's a whole page covering the little hiccups we can come across - most of which there's a solution for https://www.hope2sleep.co.uk/tips-for-problems-sleeping-with-cpap-o...

Hope Night 2 goes well :)
Booksy said:

Hi Everyone,

I’m 50 and was diagnosed last month with moderate sleep apnea with a score of 28. Last night was my first night with my cpap machine and mask. I slept a whole 8 hours without waking! I also feel quite a bit brighter and less foggy this morning.
There were a few minor issues with it. I have the resmed auto machine from the sleep clinic and it is automatic but the air flow is set between 4 and 15. When I put the mask on initially and did the mask test I had a good fit.
When I switched on the machine and started for my first night it made me feel a bit panicked as if there was not enough air for me to breath. I persevered and noticed that within the first 45 minutes the level was up to 9.6 which seemed more comfortable and then I fell asleep. I was wondering is this feeling quite normal or is it just because the cpap is new for me?

The other issue is that this morning when I took the mask off there seems to be several red patches/spots on my nose where the mask touched, does this mean I fitted it wrong?

Any suggestions on this would be great

Thank you 

Sara

Reply to Discussion

RSS

Sleep Apnoea Forum

New to the Sleep Apnoea Forum? 

1. Stop by our Sleep Apnoea Welcome Center to introduce yourself to the SleepGuide community.
2. Start a New Topic of Conversation.
3. Post your photos - of yourself, your old CPAP machine, your new CPAP machine, your pet, something about you!

Interested in advertising, have a problem or need to contact us? Click the Report an Issue page.

 

Latest Activity

Kath Hope replied to Ian's discussion Activated Oxygen
"That's great to hear Ian and we suspect those cheap copies are the issue here or even if people are using the SoClean without following the proper instructions.  We'll see what the FDA say....."
Jun 2
Jon Read is now a member of Hope2SleepGuide
May 29
Dan Walter is now a member of Hope2SleepGuide
May 28
Kath Hope commented on Kath Hope's event 'Hope2Sleep Charity's Free Online Webinar - No 3'
"Looks like I'm attending on my own, except I happen to know there are lots already registered for our webinar lol."
May 27
Profile IconGraham Angus and David Phillips joined Hope2SleepGuide
May 26
Ian replied to Ian's discussion Activated Oxygen
"Thanks Kath.  I've never used my CPAP without having the SoClean. I think it's a great piece of equipment and makes the cleaning regime a doddle and as mentioned I've never suffered any ill effects, indeed since using my CPAP I…"
May 26
Kath Hope posted discussions
May 25
Kath Hope posted an event
Thumbnail

Hope2Sleep Charity's Free Online Webinar - No 3 at Zoom Webinar

May 27, 2021 from 8pm to 9:30pm
Hope you can join our free webinar this Thursday at 8 pm and our guest speaker is our charity's patron, Dom Joly, comedian and travel writer who is sharing his own story of his…See More
May 25
Kath Hope replied to Judith-Ann Wardlaw's discussion Noisy mask problem
"Sorry Judith I or others either didn't see this or didn't have an answer, but as per our conversation in the Facebook Group and for the sake of anyone wondering who sees this post, I'll confirm that you found out it was your bacterial…"
May 25
Kath Hope replied to Ian's discussion Activated Oxygen
"Hi Ian Yes this has been an ongoing investigation for over a year, without many updates from the FDA, that we've been watching closely and they're also investigating the UV light cleaning system (Lumin).  I doubt the UK will be…"
May 25
Ian posted a discussion

Activated Oxygen

I have come across a press release from the U.S. Food and Drug Administration published in the US in 2020 stating that no devices that use activated oxygen to sterilize CPAP equipment are licenced for sale in the U.S. The release goes onto say that…See More
May 25
Hereandnow is now a member of Hope2SleepGuide
May 23
Judith-Ann Wardlaw posted a discussion

Noisy mask problem

I have had my Fisher and Paykel Simplus mask for about five years and have been very happy with it, until about two weeks ago. I did my usually weekly clean of mask, tube etc. That night I noticed that the mask was noisy when I breathe out. Since…See More
May 23
Ian is now a member of Hope2SleepGuide
May 20
Natalie Gray replied to Natalie Gray's discussion Been declined Nhs treatment
"So I’ve been turned down again. I asked about a different Trust and was told that they would turn me down too as I’m not tired during the day. He’s right, I’m not tired during the day however I don’t fancy the…"
May 19
Michael Jones posted a discussion

Why does AHI increase with more mask leak?

My AHI increases with nights with increased mask leak. I am using an Auto CPAP. Is this a detection/flow phenomena?ThanksSee More
May 19
Michael Jones replied to Michael Jones's discussion Dry Mouth - best humidifier settings advice
"Hi Thanks for the feed back. I’m using a heated wire circuit so I don’t seem to be able to turn off the adaptive setting. The video suggests the same. I’ll try the gum gels once in stock. Thanks, Mike"
May 19
Kath Hope replied to Michael Jones's discussion Dry Mouth - best humidifier settings advice
"Hi Michael Good to hear your AHI is coming down and I'd highly suggest changing the humidifier to fixed from adaptive so that you can control the amount of humidification as adaptive rarely works well in the UK. You can control your heated…"
May 18
Kath Hope replied to Natalie Gray's discussion Been declined Nhs treatment
"Philips don't have a service at the moment Michael but hoping to set it up again soon."
May 18
Michael Jones replied to Natalie Gray's discussion Been declined Nhs treatment
"If no other hospital, I am sure the Philips service is CQC and NHS registered. Your GP could refer if the local CCG approves funding. Hope you get sorted."
May 16

© 2021   Created by The SleepGuide Crew.   Powered by

Badges  |  Report an Issue  |  Terms of Service