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Damien
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  • United Kingdom
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Damien's Discussions

Newly diagnosed via Phillips at home test and needing advice
12 Replies

Hi all,I have recently been diagnosed with OSA via home test i paid for privately with Phillips and looking at some advice to get treated in the UK via NHS, private, or by sorting myself. I have…Continue

Started this discussion. Last reply by Judith Wilson Mar 13.

 

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Latest Activity

Judith Wilson replied to Damien's discussion Newly diagnosed via Phillips at home test and needing advice
"Glad to hear you are settling into APAP machine Damien...it did sound preferable to CPAP ones.The more I use my oximeter as I wake up during sleep I think I’m discovering my problem with low oxygen seems to be only in the morning as I snooze,…"
Mar 13
Damien replied to Damien's discussion Newly diagnosed via Phillips at home test and needing advice
"Hi Judith, sorry to hear you are struggling. I’ve been using my apap since Tuesday and noticed some small improvements but i think i’ll need to up the pressure to get AHI lower as although its much lower than my test result i’m…"
Mar 13
Judith Wilson replied to Damien's discussion Newly diagnosed via Phillips at home test and needing advice
"Thank you Kath, yes I suspected Lung/Sleep folks had been commandeered’ to covid, but this seems to include appointment staff too! Although I’d love a remedy ( no matter how partial) to my existing conditions I am a bit fearful of the…"
Mar 10
Kath Hope replied to Damien's discussion Newly diagnosed via Phillips at home test and needing advice
"Hi Judith Sorry to hear there's such a long waiting list in your area.  It's been made worse because a lot of staff from the sleep clinics are respiratory specialists and these are the very professionals who were needed in ICU and on…"
Mar 10
Kath Hope replied to Damien's discussion Newly diagnosed via Phillips at home test and needing advice
"Sorry I missed this question Damien but I've spoken to you since at the charity and know you should have the machine by now.  Hope things are going well."
Mar 10
Judith Wilson replied to Damien's discussion Newly diagnosed via Phillips at home test and needing advice
"I am rather like Damien. Got a referral to Lung/Sleep consultant but no appointments in nhs for at least 10 months. Ordered the charities two night monitoring kit to test for sleep apnoea, but will this count as diagnosis to get prescription if I…"
Mar 10
Damien replied to Damien's discussion Newly diagnosed via Phillips at home test and needing advice
"Hi Kathy, i bit the bullet the other day and just ordered the apap. What is the usual waiting time for order and delivery completion in mainland UK? thanks  damien "
Mar 4
Kath Hope replied to Damien's discussion Newly diagnosed via Phillips at home test and needing advice
"Bless you and do understand, now you've got a diagnosis with 'hope' in sight for an end, or at least vast improvements, to your symptoms.  We got some more machines ordered today, although only one APAP without a humifidier...the…"
Mar 2
Damien replied to Damien's discussion Newly diagnosed via Phillips at home test and needing advice
"Hi Kath, I’m just holding off to see final sight of my insurance docs and to speak to them (on the very unlikely chance they can do anything) but it does look like it will be excluded so will likely buy the apap this week and then see ENT…"
Mar 2
Kath Hope replied to Damien's discussion Newly diagnosed via Phillips at home test and needing advice
"Agree Damien, that although 14.6 is classed as mild (on the border of moderate though) I'd want that AHI and spo2 treating asap and especially if symptomatic. I'm not sure why you'd wait for recommendation from ENT though re CPAP when…"
Mar 1
Damien replied to Damien's discussion Newly diagnosed via Phillips at home test and needing advice
"Hi Kath, Many thanks for your reply. My diagnosis was mild at 14.6 AHI but that included a sp02 nadir of 82% and some events lasting up to 90 seconds so i certainly don't feel its mild! I managed to get through to the clinic today who said it…"
Mar 1
Kath Hope replied to Damien's discussion Newly diagnosed via Phillips at home test and needing advice
"Hi and welcome Damien What were the results of your sleep study....mild, moderate or severe sleep apnoea?  You're right that most private insurance doesn't cover sleep apnoea, although will sometimes pay for an initial…"
Feb 28
Damien posted a discussion

Newly diagnosed via Phillips at home test and needing advice

Hi all,I have recently been diagnosed with OSA via home test i paid for privately with Phillips and looking at some advice to get treated in the UK via NHS, private, or by sorting myself. I have never felt rested in the morning and people have always commented i’d toss and turn and hold breathe in night (even during the day too). I have nasal issues which are to investigated which are likely to be nasal polyps and deviated septum which are known to exasperate any issues with OSA. About 3 years…See More
Feb 28
Damien is now a member of Hope2SleepGuide
Feb 27

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Marta zurawska is now a member of Hope2SleepGuide
7 hours ago
Kath Hope replied to Amanda Farley's discussion Split mask and hospital not helping.
"So pleased to hear this Amanda and you're right to always have a spare.  I take 2 away with me just in case + 2 hoses lol.  I knew exactly how you felt which is why we would have helped."
yesterday
Amanda Farley replied to Amanda Farley's discussion Split mask and hospital not helping.
"Thank you Kath, they've phoned and have posted one out. Tbh I'd have been happier just collecting it!  Definitely going to buy myself a spare. "
Tuesday
Kath Hope replied to Amanda Farley's discussion Split mask and hospital not helping.
"Hi Amanda Can you give us a call at the charity so we can try to help you.  Charity line is 0300 102 9711"
Tuesday
Amanda Farley posted a discussion

Split mask and hospital not helping.

Any ideas about emergency repair to a split mask?It split on Friday night so I've been with9ut my CPAP since then .Called the hospital twice this morning and got either an answer machine or a non answered phone. Went up there on the off chance they…See More
Tuesday
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Tuesday
Paul cronogue added a discussion to the group Buy-Sell-Swap
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For sale Philips dream station auto cpap machine with Resmed F20 mask

I have a Philips dream station Cpap machine with resmed F20 mask size M FOR SALE, more or less brand new under 10 hours use, spare filter and head strap, comes with carry case excellent condition, new resmed machine forces sale. £400See More
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Apr 28
Kath Hope replied to Maxine Chaplain's discussion Using humidifier
"You're welcome Maxine.  I have to say that although it's more expensive using distilled, I now never get any build-up of minerals/limescale in my humidifier and don't even need to clean it with vinegar.  I just spray the…"
Apr 28
Maxine Chaplain replied to Maxine Chaplain's discussion Using humidifier
"Thanks so much for the advice. I now have my new one and will try the water/vinegar regime. Yes, we do live in a very hard water area which doesn't help so I'll give the distilled water a go too. Many thanks "
Apr 28
Kath Hope replied to Maxine Chaplain's discussion Using humidifier
"Hi Maxine That advice is correct, except you really want to be giving a deeper clean once a week with a more natural disinfecting regime.  The manufacturers recommend doing this with 1 part of white vinegar to 5 parts water and leaving to…"
Apr 26
Maxine Chaplain posted a discussion

Using humidifier

All the tips I've read regarding cleaning the humidifier state regularly washing with a gentle soap and water and only using distilled water. I've been using boiled, cooled water and assumed this was OK. My humidifier has gone white and crazed and…See More
Apr 26
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