"Hi
The SleepCube was a private purchase, as way back then my local sleep clinic assessed patients by filming them overnight, whilst wearing an oximeter, and only issued CPAP machines without humidifiers. There was no remote monitoring and…"
Sleep Apnoea Forum Bringing Help + Support to the Patient
Epworth Sleepiness Test
If you suspect you may have Sleep Apnoea, you can fill in the online Pictorial Epworth Sleepiness Scale directly on the British Lung Foundation's website and an immediate calculation will be made with results shown, suggesting if you need to take further action. The Epworth Test is usually one of the first steps your GP or other medic will ask you to complete before being referred for a full Sleep Study.The direct link is http://www.blf.org.uk/Page/Epworth-Sleepiness-Scale
An alternative link to the Epworth is also available - Click Here to go directly to the Epworth Sleepiness Scale, fill in the questionnaire, press 'Analyse Results' then Print
You can also take a simple overnight Home Screening Sleep Test to check if you do have Sleep Apnoea. These are particularly helpful for persuading your GP to send you to for a full sleep study at your nearest sleep clinic, or perhaps for convincing yourself that you need to take action!
IF YOUR EPWORTH SCORE SHOWS THAT YOU COULD POSSIBLY BE AN UNDIAGNOSED SUFFERER OF SLEEP APNOEA, PLEASE, FOR YOUR SAKE AND YOUR FAMILY'S, DO NOT IGNORE YOUR SYMPTOMS, AND SEEK MEDICAL HELP NOW!!
The Sleep Disorders Centre at Guy's & St Thomas' NHS Foundation Trust, as part of King`s Health Partners in collaboration with the British Lung Foundation (BLF), have been working on an important project to screen for excessive daytime sleepiness online, a symptom that is frequently associated with Obstructive Sleep Apnoea. Since 2011 more than 28,000 subjects have been screened using an online version of the Epworth Sleepiness Scale - a questionnaire validated for Sleep Apnoea.
The collaboration is designed to reach out nationwide to raise awareness of Sleep Apnoea and is constructed along the awareness campaign of the BLF for Sleep Apnoea. Since the beginning of 2012 age and gender information is collected to map out the symptom and understand the problems it causes on a public health scale.
First results of this project are accepted for presentation at the Winter Conference of the British Thoracic Society in early December in London.
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Latest Activity
"Yeah I was wondering about email address. I thought probably if they wanted me to mail them they would have given out an address. I can imagine heart data is considered more acute than sleep data, so it would make more sense to have that…"
"Hi.
I didn't use PatientsKnowBest (ironic name), but I have an email address for my heart department for sending in ECGs. I was just saying that they may be able to review a PDF when then cannot review a data file from your O2 ring.
I am…"
"Hi Jonathan, did you do that through PatientKnowsBest?"
"On an unrelated topic, I've been able to send ECGs by PDF to my heart clinic.
On the subject of Resmed and apnoeas, take a look at https://youtu.be/ufOOAfyzZso?si=Tpdl4EEiCQBZR4iD&t=276
Your machine may be under-reporting.
Good…"
Wellu O2 Ring - is it accurate enough for the medics?
Moving some furniture my long lost O2 ring continuous oxygen saturation monitor turned up. So I've been wearing it and it tells me I have loads of saturation drops during the night even though my Airsense 10 says I have very few apneas.So I get two…See More
"Hi,
Just thought I'd give an update. So, I had my appointment with the NHS sleep clinic which was much quicker than I anticipated and I've now had the overnight sleep study. My AHI is now 6, down from over 30, so I'm…"
"Hi Sally from what I read the airsense doesn't suffer the same foam degredation issues as the infamous Phillips machine.I can conceive it's possible that microplastics may be shed from the flexible main tube.What worries me more about the…"
"Hi
My sleep clinic discharged me, saying they were happy I was self-managing. Roll on a decade and the cardiologists taking care of me were very unimpressed and I was re-enrolled. I expect remote monitoring with current generation Resmed…"
"Hi Jonathan,
Thanks again for the info. My cpap *should* be monitored by the NHS though I haven’t had any contact from them since pre-covid. I checked out the link you gave to access extra data and I think that’s going to be…"
"Hi
I have the ResMed Airsense 10 Autoset (APAP). It's monitored remotely by my NHS sleep clinic and I believe they can make changes to the settings. I don't know whether they are notified if I make changes, nor whether they…"
"Hi Jonathan,
Thanks for the reply. I'd say that I'm fairly technical. I have the ResMed Airsense 10 Elite machine. I've discovered that I can upload data wirelessly from my machine and having lowered the pressure by…"
"Hi
You don't say how technical you are, or what sort of machine you use. However https://www.sleephq.com/ has software which allows you to upload data from compatible machines, and analyse your sleep "score", including a…"
air bubbles after weight loss
Hi,I've been on Mounjaro for about 3 months now, not primarily for weight loss, but I have lost weight around my face and neck. I've noticed that I am increasingly getting air bubbles in my mouth which of course is disturbing my sleep (and my…See More
Micro plastics risks
I was reading an article in the I newspaper today written by a journalist who had her blood tested for micro plastics and was shocked by the results.…See More
job with the charity
Was wondering if there might be a job for me with Hope2Sleep?(I also just asked this of a group by mistake)See More
For Sale - Ventura Full Total Face CPAP Mask
I’m selling an Ventura Full Total Face CPAP Mask Large and two spare liners. I bought it new from the Hope2Sleep shop, but it is not suitable for me. Only used for about two weeks so I have washed it thoroughly. Because of this, it is very much…See More
"I put in a claim for PIP which was denied and now I am over 66 and on pension I tried for AA. Denied again.I have other health conditions ( Diverticular disease and Bile Acid Malabsorbtion ) which I consider hard to live with and they refused all of…"
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