"Hello,
I was diagnosed about the same time as you, and also found CPAP therapy live-changing. My original machine was an NHS issue Respironics, with no reporting or logging of data. After a throat infection which wouldn't go away, I…"
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The SleepGuide Crew's Discussions
Philips Announces New Partnership
March 18, 2011 Philips and World Association of Sleep Medicine join efforts to expand people’s awareness of the impact of sleep on health and well-being Special sleep module launched as part of the…Continue
Started Mar 19, 2011
Welcome to our Forum - Feel Free to Introduce Yourself Here.
749 Replies
Welcome to the Hope2SleepGuide Forum, which is a service run by the Hope2Sleep Charity founded by Kath Hope…Continue
Started this discussion. Last reply by Jonathan Feb 5.
The SleepGuide Crew's Page
Latest Activity
"Hi,
thanks for approving my application to the forum.
I was first diagnosed in 2007 although for many years I had been suffering from extreme tiredness, and my snoring and stunted breathing at night was often joked about amongst friends and…"
"Hi
I was falling asleep in the barber's chair, and even the dentist's chair. That's not "a bit tired". But the good news is that CPAP has totally fixed my sleep apnoea. It'd be nice to speak to people who…"
"We hear you Dave and empathise, as it's not 'normal' tiredness that comes with untreated sleep apnoea. Once you're on good CPAP treatment every night and for 7-9 hours of continuous sleep you'll start to feel better though.…"
"Hello all,I was diagnosed with mild/moderate apnoea (15 per hour) back in the summer of '23, and have been using a full face mask CPAP machine for a few months now.Not getting on at all well with it, but will post another thread on this; for…"
Buy-Sell-Swap
This is a Private Buy/Sell/Swap Group which can only be viewed when signed in as a member of this group. It is not for commercial sellers and only for genuine patients helping each other.Members can list their privately bought products for sale or swaps. NHS accessories can be swapped as many masks are given out with spare cushions etc which are of no use, so it makes sense to swap with each other.Hope2Sleep Charity do not interact on behalf of sellers, but we do accept donations of barely used…See More
Buy-Sell-Swap
This is a Private Buy/Sell/Swap Group which can only be viewed when signed in as a member of this group. It is not for commercial sellers and only for genuine patients helping each other.Members can list their privately bought products for sale or swaps. NHS accessories can be swapped as many masks are given out with spare cushions etc which are of no use, so it makes sense to swap with each other.Hope2Sleep Charity do not interact on behalf of sellers, but we do accept donations of barely used…See More
Buy-Sell-Swap
This is a Private Buy/Sell/Swap Group which can only be viewed when signed in as a member of this group. It is not for commercial sellers and only for genuine patients helping each other.Members can list their privately bought products for sale or swaps. NHS accessories can be swapped as many masks are given out with spare cushions etc which are of no use, so it makes sense to swap with each other.Hope2Sleep Charity do not interact on behalf of sellers, but we do accept donations of barely used…See More
Buy-Sell-Swap
This is a Private Buy/Sell/Swap Group which can only be viewed when signed in as a member of this group. It is not for commercial sellers and only for genuine patients helping each other.Members can list their privately bought products for sale or swaps. NHS accessories can be swapped as many masks are given out with spare cushions etc which are of no use, so it makes sense to swap with each other.Hope2Sleep Charity do not interact on behalf of sellers, but we do accept donations of barely used…See More
Buy-Sell-Swap
This is a Private Buy/Sell/Swap Group which can only be viewed when signed in as a member of this group. It is not for commercial sellers and only for genuine patients helping each other.Members can list their privately bought products for sale or swaps. NHS accessories can be swapped as many masks are given out with spare cushions etc which are of no use, so it makes sense to swap with each other.Hope2Sleep Charity do not interact on behalf of sellers, but we do accept donations of barely used…See More
Buy-Sell-Swap
This is a Private Buy/Sell/Swap Group which can only be viewed when signed in as a member of this group. It is not for commercial sellers and only for genuine patients helping each other.Members can list their privately bought products for sale or swaps. NHS accessories can be swapped as many masks are given out with spare cushions etc which are of no use, so it makes sense to swap with each other.Hope2Sleep Charity do not interact on behalf of sellers, but we do accept donations of barely used…See More
Buy-Sell-Swap
This is a Private Buy/Sell/Swap Group which can only be viewed when signed in as a member of this group. It is not for commercial sellers and only for genuine patients helping each other.Members can list their privately bought products for sale or swaps. NHS accessories can be swapped as many masks are given out with spare cushions etc which are of no use, so it makes sense to swap with each other.Hope2Sleep Charity do not interact on behalf of sellers, but we do accept donations of barely used…See More
Buy-Sell-Swap
This is a Private Buy/Sell/Swap Group which can only be viewed when signed in as a member of this group. It is not for commercial sellers and only for genuine patients helping each other.Members can list their privately bought products for sale or swaps. NHS accessories can be swapped as many masks are given out with spare cushions etc which are of no use, so it makes sense to swap with each other.Hope2Sleep Charity do not interact on behalf of sellers, but we do accept donations of barely used…See More
Buy-Sell-Swap
This is a Private Buy/Sell/Swap Group which can only be viewed when signed in as a member of this group. It is not for commercial sellers and only for genuine patients helping each other.Members can list their privately bought products for sale or swaps. NHS accessories can be swapped as many masks are given out with spare cushions etc which are of no use, so it makes sense to swap with each other.Hope2Sleep Charity do not interact on behalf of sellers, but we do accept donations of barely used…See More
Buy-Sell-Swap
This is a Private Buy/Sell/Swap Group which can only be viewed when signed in as a member of this group. It is not for commercial sellers and only for genuine patients helping each other.Members can list their privately bought products for sale or swaps. NHS accessories can be swapped as many masks are given out with spare cushions etc which are of no use, so it makes sense to swap with each other.Hope2Sleep Charity do not interact on behalf of sellers, but we do accept donations of barely used…See More
"Welcome. I was diagnosed in 2009 at 80+ events per hour, but was discharged by the sleep clinic many years ago, on the basis that I was "self managing". I bought an APAP machine, which allows me to see how well I am doing, and…"
The SleepGuide Crew's Photos
The SleepGuide Crew's Blog
A to Zzz's of Sleep Definitions and Abbreviations
A to Zzz of SLEEP DEFINITIONS AND ABBREVIATIONS
APNOEA: Without Breath (also spelt Apnea in some countries). Therefore, Sleep Apnoea means pauses in breathing whilst sleeping.
APNOEA/HYPOPNOEA INDEX (AHI): The number of apnoea/hypopnoea incidents per hour.
APNOEA INDEX (AI): The number of apnoea events per hour.
AROUSAL: Going from sleep to wakefulness, or…
Posted on April 7, 2011 at 14:46
Sleep Apnoea Myths Exposed !!!
SLEEP APNOEA MYTHS EXPOSED!!
I WAS TOLD I WON’T BE ABLE TO DRIVE IF I HAVE SLEEP APNOEA
Not True! Once your treatment is proving to be successful your sleep clinician can fill in a form to be sent to the DVLA, who should give you permission to drive.
SLEEP APNOEA ONLY AFFECTS OBESE PEOPLE
Not True! Yes, of course obese people are affected, just like obesity can cause other…
ContinuePosted on March 7, 2011 at 18:10 — 9 Comments
Comment Wall (2 comments)
- At 16:58 on March 20, 2011,
Judy said…
- I like it and prefer this design. Plus it is more attractive than "our" sleepguide's new design.
- At 19:40 on March 8, 2011,
- Hi there thanks very much for the help I'm all sorted now :-))
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Latest Activity
"I would always be guided by Dr Vik Veer, who is the UK's leading ENT surgeon specialising in snoring, sleep apnoea and UARS. He doesn't say the exercises will cure moderate to severe sleep apnoea, but can help by strengthening the airway…"
"Good info thanks. I personally prefer nasal strips though."
A tale of two nasal dilators
Trying to get my nose to stay open, I've been experimenting with nasal dilators.So far I tried two types.- Generic tubes from ebay, 50p each- Fancy Airmax £10Both are moulded silicon rubber.I would say the packaging for the Airmax, which is really…See More
"Dab hand with a sewing machine :) The "stethoscope" pipes were detachable with a bit of careful persuasion."
"How did you fasten it?I suppose you could do it with tape or elastic bands. Cut up an old fleece jacket, wrap it round the tube, strap it up, bit of velcro. That sort of thing. I hadn't really thought of that."
"Come to think of it you could likely double up a hose cozy, one over another.This is a piece of N95 face mask I used for high grade filtration. I just put it where the filter usually goes.This is around 6 months dirt I would say, thereabouts. I used…"
"Neat clip for your hose!
I used to use the Respironics Comfort Curve one of the best masks ever, now discontinued of course. With its stethoscope-style tubing, I had to make my own fleecy cover."
"Oh cool. Did you do any other DIY mods?I made a clamped strap to go on the headboard and lift the tube. Just a spare c-clamp with a bit of nylon strap and a clip but works well."
"Yes, I bought some fleecy material and made my own "snuggle hose" 10+ years ago. "
"Did you try a sleeve for the tube, Jonathan? For rain out? I got one off ebay for a few quid and I think it helps. It's a fleece sleeve you zip over the main tube."
Oropharyngeal exercises
I asked medics at the Castle Hill CPAP clinic about tongue and throat exercises. They said no evidence, and it can't work anyway because the muscles fully relax during sleep.Yet I'm watching Vik Veer, head of ENT at a London hospital, offer evidence…See More
"Well I found out what the norm was by asking my doctor to do the Cottle maneuver on herself, and she said there was no difference with and without.Whereas for me it's massively different.The Cottle maneuver is where you pull the skin by the…"
"It's a suspiciously round number I wonder how they arrived at it?I asked the People at Castle Hill and they didn't really enlighten me on it, but I was told that it's normal for people to have apnoeas, which I didn't know.I…"
"An apnoea or hypopnoea of less than 10 seconds won't be reported as an event, in the same way they're not reported on a sleep study, as that's the cut-off point."
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