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All Blog Posts (7)

Backpacking With a CPAP Machine

I thought I would write this blog post to hopefully inspire others.  Using a CPAP isn't the end of the world if you are an outdoors person.  If you like a bit of car camping there are many options, cheap lead acid/sealed batteries are available and together with a converter make it all possible, however backpacking and multi day hikes require a bit more effort. 

For the 18 months or so I have been doing a lot of backpacking in the UK and around the world.  With some planning and…

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Added by Richard Brown on October 4, 2016 at 21:30 — 1 Comment

Medications Affecting Sleep

A number of drugs disrupt sleep, while others can cause daytime drowsiness. Your clinician may be able to suggest alternatives.

Medication

Used to treat

Examples

Possible effects on sleep/daytime…

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Added by Kath Hope on October 16, 2014 at 22:27 — No Comments

CPAP TIPS

The following are my own tips in helping with my own treatment, and are not meant as a substitute for medical advice. However, I hope they prove useful. 



CPAP/APAP/BIPAP TOLERANCE PROBLEMS

A lot of people find it hard to tolerate their equipment at first, so it's a good idea to set it up during the day whilst relaxing, such as watching tv,…

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Added by Kath Hope on October 25, 2011 at 20:00 — No Comments

A 4 year olds journey to sleep apnea

So, I am new to this group and would like to intruduce myself: my name is katie and I have 3 wonderful, active boys ages 9,7, & 4, & we live in Mobile,Al which is in the United States. The whole reason I came to this site is about my 4 year old named Andrew. He is living with Obstructive and Central sleep apnea and even though he has been diagnosed with it no doctor can tell me the one answer I want the most. WHY? I will say that they believe he will grow out of the older he gets,…

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Added by katie on May 5, 2011 at 2:29 — 5 Comments

A to Zzz's of Sleep Definitions and Abbreviations

A to Zzz of SLEEP DEFINITIONS AND ABBREVIATIONS



APNOEA:  Without Breath (also spelt Apnea in some countries).  Therefore, Sleep Apnoea means pauses in breathing whilst sleeping.



APNOEA/HYPOPNOEA INDEX (AHI):  The number of apnoea/hypopnoea incidents per hour.



APNOEA INDEX (AI):  The number of apnoea events per hour.



AROUSAL:  Going from sleep to wakefulness, or…

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Added by The SleepGuide Crew on April 7, 2011 at 14:46 — No Comments

Magnetic Reading Glasses

Hi,

My name is Steve. Just been diagnosed with Sleep Apnea. I  have been having probbies  reading with the mask on. I have found some magnetic reading glasses that split on the bridge of the glasses then click together under the mask. You do not have to take the mask off when you are ready to sleep just pull each lens and that's it no hassle. Just send them details of your reading lens required.



 Hope this helps with your reading…

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Added by Steve McGill on March 19, 2011 at 19:30 — 2 Comments

Sleep Apnoea Myths Exposed !!!

SLEEP APNOEA MYTHS EXPOSED!!



I WAS TOLD I WON’T BE ABLE TO DRIVE IF I HAVE SLEEP APNOEA

Not True!  Once your treatment is proving to be successful your sleep clinician can fill in a form to be sent to the DVLA, who should give you permission to drive.

 

SLEEP APNOEA ONLY AFFECTS OBESE PEOPLE

Not True!  Yes, of course obese people are affected, just like obesity can cause other…

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Added by The SleepGuide Crew on March 7, 2011 at 18:10 — 9 Comments

Sleep Apnoea Forum

New to the Sleep Apnoea Forum? 

1. Stop by our Sleep Apnoea Welcome Center to introduce yourself to the SleepGuide community.
2. Start a New Topic of Conversation.
3. Post your photos - of yourself, your old CPAP machine, your new CPAP machine, your pet, something about you!

Interested in advertising, have a problem or need to contact us? Click the Report an Issue page.

 

Latest Activity

Maureen Carlisle replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"  Morning everyone, just a bit about my condition, my Daughter recognised that I stopped breathing when asleep over a year ago and I reported it to the Dr and after having what seems like every test a body can have, I finally got a machine over…"
Sunday
Maureen Carlisle replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
Sunday
Maureen Carlisle is now a member of Hope2SleepGuide
Apr 1
Jonathan replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Hi I live in London, so we have lots of limescale in the tap water.  Originally I used Purified Water BP from the pharmacy.  Then I switched to using supermarket bottled water - it's food-grade after all.  I got a bit of scale in…"
Mar 30
Jml replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Hi there - just saying hello - I’ve been using a cpap machine for about 4 years now after so many years of trying to convince an old GP something was wrong. Moved and new GP said - let’s test you for sleep apnoea! Have moved again so…"
Mar 30
Steve K-E is now a member of Hope2SleepGuide
Mar 26
Lynn Mattimoe posted a discussion

Cancelled out patient appointment.

HiI had an appnt due 5th May for results of NHS sleep study and to get the machine and mask. Since most appointments are being cancelled I've paid for a private sleep study despite having an NHS one several weeks ago.I'll get the results within 7 to…See More
Mar 24
Haneen Ghabra replied to Haneen Ghabra's discussion helpUARS
"Hi Kath Thanks so much for your reply - I attached some screen shots... Thanks so much !  wow I wonder how the laser surgery could have made things worse! "
Mar 22
Lynn Mattimoe replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Hi Sophie I'm new to OSA and haven't been supplied with a machine or mask yet but due to the virus my local hospital are canceling all appointments. I hope to experience the machine and mask and I've asked for a copy of my sleep…"
Mar 22
Jonathan replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Hi Lynn I bought my machine many (many!) years ago.  It's a DeVilbiss Intellipap (also sold as a SleepCube) APAP machine and I am very happy with it although no doubt the technology has moved on.  I am replying to mention that I…"
Mar 22
Lynn Mattimoe replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Hello everyone,I've recently  been diagnosed with OSA but not yet prided with the mask or machine. I have found several out patient appnts have been cancelled and hope that mine on the 5th May isn't but won't be surprised if it…"
Mar 22
Kath Hope replied to Haneen Ghabra's discussion helpUARS
"Hi Haneen It's very difficult to pinpoint what happens when symptoms return.  If you can post a daily screenshot from an average night we could take a look for you.  Without seeing that, a few other things to consider is that the…"
Mar 22
Profile IconLynn Mattimoe and Pauline Darcy joined Hope2SleepGuide
Mar 22
Haneen Ghabra posted a discussion

helpUARS

Hello All After years of TMJ and morning migraines (sine 2008) I was finally diagnosed with UARS in 2018. I did a few soft palate and easy procedures with radiotherapy and laser (first was using nasal dilator and a MAD device. Anyways in 2019…See More
Mar 21
Profile IconHaneen Ghabra and Adrian Dunn joined Hope2SleepGuide
Mar 15
John Garbutt posted a status
"I got my machine two days ago have now slept for two twelve hour times. Starting to feel human"
Mar 15
Kath Hope replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Sorry for the delayed welcome Sophie.  Great to hear things are going well with CPAP and some people do feel a little down at first.  If you use Facebook I'd highly recommend joining our Private Support Group which is far more active…"
Mar 14
Sophie replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Hi everyone,  I thought I'd introduce myself. I am Sophie and I was diagnosed with OSA a year ago. I am managing okay with the mask and think it is helping my health overall. I am, however, struggling more with feeling down in the past few…"
Mar 7
Kath Hope replied to Richard Smith's discussion Philips Trueblue
"Ah yes I clicked on your link Richard and seems that's an old link you found.  This is the latest link to their current sleep apnoea products https://www.philips.co.uk/healthcare/solutions/sleep-and-respiratory-care/dream-family …"
Mar 6
Richard Smith replied to Richard Smith's discussion Philips Trueblue
"Hi Kath, The Trueblue is still on the Philips website here https://www.philips.co.uk/healthcare/solutions/sleep-and-respiratory-care/masks which is why I thought it was still available.  Anyway, I’ve gone ahead and ordered the…"
Mar 5

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