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All Blog Posts (7)

Backpacking With a CPAP Machine

I thought I would write this blog post to hopefully inspire others.  Using a CPAP isn't the end of the world if you are an outdoors person.  If you like a bit of car camping there are many options, cheap lead acid/sealed batteries are available and together with a converter make it all possible, however backpacking and multi day hikes require a bit more effort. 

For the 18 months or so I have been doing a lot of backpacking in the UK and around the world.  With some planning and…

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Added by Richard Brown on October 4, 2016 at 21:30 — 1 Comment

Medications Affecting Sleep

A number of drugs disrupt sleep, while others can cause daytime drowsiness. Your clinician may be able to suggest alternatives.

Medication

Used to treat

Examples

Possible effects on sleep/daytime…

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Added by Kath Hope on October 16, 2014 at 22:27 — No Comments

CPAP TIPS

The following are my own tips in helping with my own treatment, and are not meant as a substitute for medical advice. However, I hope they prove useful. 



CPAP/APAP/BIPAP TOLERANCE PROBLEMS

A lot of people find it hard to tolerate their equipment at first, so it's a good idea to set it up during the day whilst relaxing, such as watching tv,…

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Added by Kath Hope on October 25, 2011 at 20:00 — No Comments

A 4 year olds journey to sleep apnea

So, I am new to this group and would like to intruduce myself: my name is katie and I have 3 wonderful, active boys ages 9,7, & 4, & we live in Mobile,Al which is in the United States. The whole reason I came to this site is about my 4 year old named Andrew. He is living with Obstructive and Central sleep apnea and even though he has been diagnosed with it no doctor can tell me the one answer I want the most. WHY? I will say that they believe he will grow out of the older he gets,…

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Added by katie on May 5, 2011 at 2:29 — 5 Comments

A to Zzz's of Sleep Definitions and Abbreviations

A to Zzz of SLEEP DEFINITIONS AND ABBREVIATIONS



APNOEA:  Without Breath (also spelt Apnea in some countries).  Therefore, Sleep Apnoea means pauses in breathing whilst sleeping.



APNOEA/HYPOPNOEA INDEX (AHI):  The number of apnoea/hypopnoea incidents per hour.



APNOEA INDEX (AI):  The number of apnoea events per hour.



AROUSAL:  Going from sleep to wakefulness, or…

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Added by The SleepGuide Crew on April 7, 2011 at 14:46 — No Comments

Magnetic Reading Glasses

Hi,

My name is Steve. Just been diagnosed with Sleep Apnea. I  have been having probbies  reading with the mask on. I have found some magnetic reading glasses that split on the bridge of the glasses then click together under the mask. You do not have to take the mask off when you are ready to sleep just pull each lens and that's it no hassle. Just send them details of your reading lens required.



 Hope this helps with your reading…

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Added by Steve McGill on March 19, 2011 at 19:30 — 2 Comments

Sleep Apnoea Myths Exposed !!!

SLEEP APNOEA MYTHS EXPOSED!!



I WAS TOLD I WON’T BE ABLE TO DRIVE IF I HAVE SLEEP APNOEA

Not True!  Once your treatment is proving to be successful your sleep clinician can fill in a form to be sent to the DVLA, who should give you permission to drive.

 

SLEEP APNOEA ONLY AFFECTS OBESE PEOPLE

Not True!  Yes, of course obese people are affected, just like obesity can cause other…

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Added by The SleepGuide Crew on March 7, 2011 at 18:10 — 9 Comments

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Latest Activity

Edam replied to Edam's discussion Double inhaling
"I trialled the Sleepweaver before it came out, I believe I still have it somewhere, but I could not get on with it then. I used a liner on the Dreamwear last night but still was too painful to use and had to change masks during the early hours..…"
3 hours ago
Edam replied to Edam's discussion Double inhaling
3 hours ago
Kath Hope replied to Chris Vesey's discussion Cure for wind
"This is a common problem Sally, and especially when new to CPAP, irrespective of whatever machines people use.  It's definitely not just an Airsense 10 problem. If you've not clicked on the link I posted above in my reply to Chris…"
yesterday
Sally Gray replied to Chris Vesey's discussion Cure for wind
"Hi, it’s interesting to read Chris’s comment that the AirSense 10 has given him flatulence whereas his previous CPAP wasn’t a problem.  I’m new to using a CPAP and have been provided with an AirSense 10 which I’m…"
Monday
Kath Hope replied to Bob Blair's discussion So Clean sanitiser
"I'm not aware of finance, and we at the Hope2Sleep Charity certainly couldn't offer this unfortunately.  However, if you have a Paypal account then you can apply for Paypal Credit which is offered for products over £150 I…"
Sunday
Kyla Davies replied to Bob Blair's discussion So Clean sanitiser
"Hi Kath In relation to the Soclean do you know if any finance is available to purchase one of these machines? I do not mind spending that amount on one but would be very helpful especially this time of year to purchase one on a finance…"
Sunday
Kath Hope replied to Bob Blair's discussion So Clean sanitiser
"Great to hear this Andy Just as importantly they will help prevent gum disease from dry mouth (plus less dental bills)."
Friday
Andy Dykes replied to Bob Blair's discussion So Clean sanitiser
"Tried one Xylimelts last night. Best sleep in ages. No waking up with a terrible dry mouth. Very pleased thank you"
Friday
Kath Hope replied to Bob Blair's discussion So Clean sanitiser
"Thanks for supporting our charity with your order Andy, and they'll be sent out tomorrow.  I love the Beaumont Citrus Wipes and have tried all the others, and these are definitely the best.  I use them everyday. Hope you find the…"
Sep 11
Andy Dykes replied to Bob Blair's discussion So Clean sanitiser
"Have just placed an order for some mask wipes and the mouth discs. Thanks for the recommendation of the discs, fingers crossed."
Sep 11
Kath Hope replied to Bob Blair's discussion So Clean sanitiser
"The SoClean will never be supplied by the NHS as they can't afford to give out products like this.  We have the SoClean at the charity at the price we've been told it has to be sold for…"
Sep 11
Andy Dykes replied to Bob Blair's discussion So Clean sanitiser
"Thank you for quick reply. The advert was on TV again this afternoon with a web address that links to an Amazon site. After a bit of research I have found a UK seller for £245 with 30 day return. Still not convinced so called my Respiratory…"
Sep 11
Sleep2snore replied to Edam's discussion Double inhaling
"I am sure they are not, but a lt of people tend to tighten their masks up to tightly. A lot more than they need to to stop leaks, I was no exception at the start, if it leaked, tighten it more, but this was not the answer.  New mask the correct…"
Sep 11
Kath Hope replied to Bob Blair's discussion So Clean sanitiser
"I still haven't seen the advert Andy, but lots of people are contacting us about purchasing.  First and foremost, whether with the SoClean or not, it is important to keep our equipment cleaned.  You're doing the right thing…"
Sep 10
Andy Dykes updated their profile
Sep 10
Andy Dykes replied to Bob Blair's discussion So Clean sanitiser
"Oh dear. Looks like I'm in trouble! I have used a CPAP machine for more than 10 years (not the same one) and currently have a Remstar System One SE. Have just seen an advert on TV for the SoClean which got me wondering how often are you…"
Sep 10
Andy Dykes is now a member of Hope2SleepGuide
Sep 10
Edam replied to Edam's discussion Double inhaling
"The only trouble is that both the Amara View and the Dreamwear are too painful to wear. The part of the cushion separating the mouth area from the nose cuts in!! to the base of my nose and partly into my nostrils."
Sep 9
Sleep2snore replied to Edam's discussion Double inhaling
"Good detective work."
Sep 8
Sleep2snore replied to ged's discussion no EPR setting REsmed S8 spirit 2 autoset
Sep 8

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