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All Blog Posts (7)

Backpacking With a CPAP Machine

I thought I would write this blog post to hopefully inspire others.  Using a CPAP isn't the end of the world if you are an outdoors person.  If you like a bit of car camping there are many options, cheap lead acid/sealed batteries are available and together with a converter make it all possible, however backpacking and multi day hikes require a bit more effort. 

For the 18 months or so I have been doing a lot of backpacking in the UK and around the world.  With some planning and…

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Added by Richard Brown on October 4, 2016 at 21:30 — 1 Comment

Medications Affecting Sleep

A number of drugs disrupt sleep, while others can cause daytime drowsiness. Your clinician may be able to suggest alternatives.

Medication

Used to treat

Examples

Possible effects on sleep/daytime…

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Added by Kath Hope on October 16, 2014 at 22:27 — No Comments

CPAP TIPS

The following are my own tips in helping with my own treatment, and are not meant as a substitute for medical advice. However, I hope they prove useful. 



CPAP/APAP/BIPAP TOLERANCE PROBLEMS

A lot of people find it hard to tolerate their equipment at first, so it's a good idea to set it up during the day whilst relaxing, such as watching tv,…

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Added by Kath Hope on October 25, 2011 at 20:00 — No Comments

A 4 year olds journey to sleep apnea

So, I am new to this group and would like to intruduce myself: my name is katie and I have 3 wonderful, active boys ages 9,7, & 4, & we live in Mobile,Al which is in the United States. The whole reason I came to this site is about my 4 year old named Andrew. He is living with Obstructive and Central sleep apnea and even though he has been diagnosed with it no doctor can tell me the one answer I want the most. WHY? I will say that they believe he will grow out of the older he gets,…

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Added by katie on May 5, 2011 at 2:29 — 5 Comments

A to Zzz's of Sleep Definitions and Abbreviations

A to Zzz of SLEEP DEFINITIONS AND ABBREVIATIONS



APNOEA:  Without Breath (also spelt Apnea in some countries).  Therefore, Sleep Apnoea means pauses in breathing whilst sleeping.



APNOEA/HYPOPNOEA INDEX (AHI):  The number of apnoea/hypopnoea incidents per hour.



APNOEA INDEX (AI):  The number of apnoea events per hour.



AROUSAL:  Going from sleep to wakefulness, or…

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Added by The SleepGuide Crew on April 7, 2011 at 14:46 — No Comments

Magnetic Reading Glasses

Hi,

My name is Steve. Just been diagnosed with Sleep Apnea. I  have been having probbies  reading with the mask on. I have found some magnetic reading glasses that split on the bridge of the glasses then click together under the mask. You do not have to take the mask off when you are ready to sleep just pull each lens and that's it no hassle. Just send them details of your reading lens required.



 Hope this helps with your reading…

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Added by Steve McGill on March 19, 2011 at 19:30 — 2 Comments

Sleep Apnoea Myths Exposed !!!

SLEEP APNOEA MYTHS EXPOSED!!



I WAS TOLD I WON’T BE ABLE TO DRIVE IF I HAVE SLEEP APNOEA

Not True!  Once your treatment is proving to be successful your sleep clinician can fill in a form to be sent to the DVLA, who should give you permission to drive.

 

SLEEP APNOEA ONLY AFFECTS OBESE PEOPLE

Not True!  Yes, of course obese people are affected, just like obesity can cause other…

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Added by The SleepGuide Crew on March 7, 2011 at 18:10 — 9 Comments

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Latest Activity

Ben updated their profile
yesterday
Profile IconBen, Jason Nel and paul cownley joined Hope2SleepGuide
yesterday
John posted a discussion

Do tongue exercises work ?

Hi,I saw a study on the internet in which OSA was alleviated with tongue exercises, and some UK medics recommend exercises - thinking of Mike Dilkes, but I spoke to a local consultant and he said there was no evidence that exercises work. Is there…See More
Oct 6
John replied to John's discussion Getting a precise diagnosis - scans ?
"Thank you for your thoughtful reply Kath. I still think the incisor filing sounds credible because moving my jaw forward a little, makes everything feel better in my throat and face, so it would be interesting to read about some cases. But as you…"
Oct 5
Kath Hope replied to John's discussion Getting a precise diagnosis - scans ?
"Ha, that's typical John, as your GP would have been able to give you a good examination. Regarding the conflicting advice you've been given regarding jaw surgery, that's very difficult. We've come across several people who have…"
Oct 1
Kath Hope replied to Sally Gray's discussion Cleaning products advice please!
"Hi Sally You're right that we do have to keep a good cleaning regime with our CPAP and daily mask cleaning will help prevent leakage, as a lot of this is caused due to facial oils left behind on the mask cushion. Resmed have recently published…"
Oct 1
Sally Gray posted a discussion

Cleaning products advice please!

I’m looking for some cleaning advice but the existing threads here are quite old so I am starting a new one. I realise that I have been appallingly lax with cleaning my ResMed AirSense CPAP which I’ve had for over 3 years. I’ve only been doing it…See More
Oct 1
John replied to John's discussion Getting a precise diagnosis - scans ?
"Thank you for your reply Kath. Well, I sort of lucked out because my GP was an ENT specialist who started getting into my case but he went elsewhere after Covid came so that was that.Year ago my dentist wanted to fiddle with my teeth to allow my jaw…"
Sep 30
Kath Hope replied to John's discussion Getting a precise diagnosis - scans ?
"Sorry for such a long delay to your question John, as we're inundated at the Hope2Sleep Charity (who run this group) at the moment. The reasons are not always given as a lot of sleep clinics are run by respiratory departments, yet with…"
Sep 30
David W replied to Dee Dee's discussion Free Resmed CPAP masks, postage costs only to pay in the group Buy-Sell-Swap
"Hi Dee Dee.  I'm probably a bit late to this, but would be interested in the Airfit F20 Large if it's still available. Happy to make a donation to charity too.  Thank you. "
Sep 27
David W joined The SleepGuide Crew's group
Sep 27
David W is now a member of Hope2SleepGuide
Sep 27
Darthgal replied to Sophie's discussion ResMed AirSense 10 AutoSet For Her - for sale in the group Buy-Sell-Swap
"Hi i haven't heard back from you in a while  - are you still selling your things? i had replied to your email with further questions regarding  postal insurance and packing . Did you receive that? "
Sep 26
Daniel James added a discussion to the group Buy-Sell-Swap
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For Sale: Resmed Airsense 10 Autoset

Resmed Airsense 10 AutosetI have a Resmed Airsense 10 Autoset that is surplus to my requirements. When I was diagnosed with moderate sleep apnoea I received from the NHS a Resmed Escape S9 fixed pressure machine. With use I found my pressure…See More
Sep 24
Profile IconDaniel James and John joined The SleepGuide Crew's group
Sep 24
John posted a discussion

Getting a precise diagnosis - scans ?

Hi all, so, OK I got a diagnosis of OSA and was given a CPAP machine.Finding out exactly what the problem is has not proven so easy. By exact problem I mean what the structural problem in my throat is - small jaw, blocked nose, big tongue, fat neck…See More
Sep 24
John replied to Dee Dee's discussion Free Resmed CPAP masks, postage costs only to pay in the group Buy-Sell-Swap
"Aha, hi Dee Dee I'd be interested in that Mirage FX if you still have it... ?"
Sep 23
John is now a member of Hope2SleepGuide
Sep 23
Kath Hope replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Hi Karen Sorry but pleased as well to hear you've just been diagnosed, because once you're on CPAP you should start to feel so much better and should be protected from the many other conditions untreated sleep apnoea causes or exacerbates…"
Sep 21
Kath Hope replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"You're welcome Mark. I think we currently have about a 10 day waiting list, and as soon as you're at the top you'll be sent a link to complete the required COVID and health questions, and look forward to helping you again soon."
Sep 21

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