Hope2SleepGuide

Sleep Apnoea Forum Bringing Help + Support to the Patient

All Blog Posts (7)

Backpacking With a CPAP Machine

I thought I would write this blog post to hopefully inspire others.  Using a CPAP isn't the end of the world if you are an outdoors person.  If you like a bit of car camping there are many options, cheap lead acid/sealed batteries are available and together with a converter make it all possible, however backpacking and multi day hikes require a bit more effort. 

For the 18 months or so I have been doing a lot of backpacking in the UK and around the world.  With some planning and…

Continue

Added by Richard Brown on October 4, 2016 at 21:30 — 1 Comment

Medications Affecting Sleep

A number of drugs disrupt sleep, while others can cause daytime drowsiness. Your clinician may be able to suggest alternatives.

Medication

Used to treat

Examples

Possible effects on sleep/daytime…

Continue

Added by Kath Hope on October 16, 2014 at 22:27 — No Comments

CPAP TIPS

The following are my own tips in helping with my own treatment, and are not meant as a substitute for medical advice. However, I hope they prove useful. 



CPAP/APAP/BIPAP TOLERANCE PROBLEMS

A lot of people find it hard to tolerate their equipment at first, so it's a good idea to set it up during the day whilst relaxing, such as watching tv,…

Continue

Added by Kath Hope on October 25, 2011 at 20:00 — No Comments

A 4 year olds journey to sleep apnea

So, I am new to this group and would like to intruduce myself: my name is katie and I have 3 wonderful, active boys ages 9,7, & 4, & we live in Mobile,Al which is in the United States. The whole reason I came to this site is about my 4 year old named Andrew. He is living with Obstructive and Central sleep apnea and even though he has been diagnosed with it no doctor can tell me the one answer I want the most. WHY? I will say that they believe he will grow out of the older he gets,…

Continue

Added by katie on May 5, 2011 at 2:29 — 5 Comments

A to Zzz's of Sleep Definitions and Abbreviations

A to Zzz of SLEEP DEFINITIONS AND ABBREVIATIONS



APNOEA:  Without Breath (also spelt Apnea in some countries).  Therefore, Sleep Apnoea means pauses in breathing whilst sleeping.



APNOEA/HYPOPNOEA INDEX (AHI):  The number of apnoea/hypopnoea incidents per hour.



APNOEA INDEX (AI):  The number of apnoea events per hour.



AROUSAL:  Going from sleep to wakefulness, or…

Continue

Added by The SleepGuide Crew on April 7, 2011 at 14:46 — No Comments

Magnetic Reading Glasses

Hi,

My name is Steve. Just been diagnosed with Sleep Apnea. I  have been having probbies  reading with the mask on. I have found some magnetic reading glasses that split on the bridge of the glasses then click together under the mask. You do not have to take the mask off when you are ready to sleep just pull each lens and that's it no hassle. Just send them details of your reading lens required.



 Hope this helps with your reading…

Continue

Added by Steve McGill on March 19, 2011 at 19:30 — 2 Comments

Sleep Apnoea Myths Exposed !!!

SLEEP APNOEA MYTHS EXPOSED!!



I WAS TOLD I WON’T BE ABLE TO DRIVE IF I HAVE SLEEP APNOEA

Not True!  Once your treatment is proving to be successful your sleep clinician can fill in a form to be sent to the DVLA, who should give you permission to drive.

 

SLEEP APNOEA ONLY AFFECTS OBESE PEOPLE

Not True!  Yes, of course obese people are affected, just like obesity can cause other…

Continue

Added by The SleepGuide Crew on March 7, 2011 at 18:10 — 9 Comments

Sleep Apnoea Forum

New to the Sleep Apnoea Forum? 

1. Stop by our Sleep Apnoea Welcome Center to introduce yourself to the SleepGuide community.
2. Start a New Topic of Conversation.
3. Post your photos - of yourself, your old CPAP machine, your new CPAP machine, your pet, something about you!

Interested in advertising, have a problem or need to contact us? Click the Report an Issue page.

 

Latest Activity

Damien replied to Damien's discussion Newly diagnosed via Phillips at home test and needing advice
"Hi Kathy, i bit the bullet the other day and just ordered the apap. What is the usual waiting time for order and delivery completion in mainland UK? thanks  damien "
yesterday
Kath Hope replied to Damien's discussion Newly diagnosed via Phillips at home test and needing advice
"Bless you and do understand, now you've got a diagnosis with 'hope' in sight for an end, or at least vast improvements, to your symptoms.  We got some more machines ordered today, although only one APAP without a humifidier...the…"
Tuesday
Damien replied to Damien's discussion Newly diagnosed via Phillips at home test and needing advice
"Hi Kath, I’m just holding off to see final sight of my insurance docs and to speak to them (on the very unlikely chance they can do anything) but it does look like it will be excluded so will likely buy the apap this week and then see ENT…"
Tuesday
Kath Hope replied to Raza silveira's discussion Sleep disorder following mini stroke
"You definitely will be in good hands Raza and we look forward to helping you soon :)  Meanwhile, if you've not registered you might want to join us this Thursday on our support webinar…"
Monday
Kath Hope replied to Damien's discussion Newly diagnosed via Phillips at home test and needing advice
"Agree Damien, that although 14.6 is classed as mild (on the border of moderate though) I'd want that AHI and spo2 treating asap and especially if symptomatic. I'm not sure why you'd wait for recommendation from ENT though re CPAP when…"
Monday
Damien replied to Damien's discussion Newly diagnosed via Phillips at home test and needing advice
"Hi Kath, Many thanks for your reply. My diagnosis was mild at 14.6 AHI but that included a sp02 nadir of 82% and some events lasting up to 90 seconds so i certainly don't feel its mild! I managed to get through to the clinic today who said it…"
Monday
Raza silveira replied to Raza silveira's discussion Sleep disorder following mini stroke
"Yes it is and I am reassured that I am in very good hands. raza"
Monday
Kath Hope replied to Raza silveira's discussion Sleep disorder following mini stroke
"You're welcome Raza and if it's us at the charity you've booked the sleep study with then it will be me who gives you the results, and the sleep consultant we use is very thorough indeed and will take all your medical history and any…"
Sunday
Kath Hope replied to Damien's discussion Newly diagnosed via Phillips at home test and needing advice
"Hi and welcome Damien What were the results of your sleep study....mild, moderate or severe sleep apnoea?  You're right that most private insurance doesn't cover sleep apnoea, although will sometimes pay for an initial…"
Sunday
Profile IconMaths Professor, Bob Gilchrist and Damien joined Hope2SleepGuide
Sunday
Damien posted a discussion

Newly diagnosed via Phillips at home test and needing advice

Hi all,I have recently been diagnosed with OSA via home test i paid for privately with Phillips and looking at some advice to get treated in the UK via NHS, private, or by sorting myself. I have never felt rested in the morning and people have…See More
Feb 28
Raza silveira replied to Raza silveira's discussion Sleep disorder following mini stroke
"Hi Kath Thank you very much for the detailed response and additional links. It is quite a relief to have problems shared and acknowledged. I am requesting the sleep test over two nights for good measure and will let you know how I get on. Raza"
Feb 27
Kath Hope replied to Raza silveira's discussion Sleep disorder following mini stroke
"Hi Raza and glad you found us. Firstly to say, there are many of us who aren't overweight, smokers or regular drinkers (mine's severe), as the main reason for sleep apnoea is due to craniofacial issues that we inherit, but of course being…"
Feb 26
Raza silveira posted a discussion

Sleep disorder following mini stroke

Hi Kath and everybody. My name is Raza and am new to this forum. It feels really good to sound out people who have first hand experience of sleep apnoea. I am 72 not overweight and do not drink or smoke. I had a mini stroke,cerebellum, just before…See More
Feb 26
Raza silveira replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Hi Kath and everybody. My name is Raza and am new to this forum. It feels really good to sound out people who have first hand experience of sleep apnoea. I am 72 not overweight and do not drink or smoke. I had a mini stroke,cerebellum, just before…"
Feb 26
Tricia Dickson updated their profile
Feb 26
An event by Kath Hope was featured
Thumbnail

Hope2Sleep Charity's Free Online Webinar at Online

March 4, 2021 from 8pm to 9:30pm
All Welcome to our Hope2Sleep Charity's 2nd Online Webinar.  Please note you do not need a Zoom account to join our webinar and you won't be on camera so no need to be shy!You can also ask questions during the webinar to be answered by the…See More
Feb 25
Kath Hope posted an event
Thumbnail

Hope2Sleep Charity's Free Online Webinar at Online

March 4, 2021 from 8pm to 9:30pm
All Welcome to our Hope2Sleep Charity's 2nd Online Webinar.  Please note you do not need a Zoom account to join our webinar and you won't be on camera so no need to be shy!You can also ask questions during the webinar to be answered by the…See More
Feb 25
Profile IconLinda and Raza silveira joined Hope2SleepGuide
Feb 25
Doug Baguley is now a member of Hope2SleepGuide
Feb 23

© 2021   Created by The SleepGuide Crew.   Powered by

Badges  |  Report an Issue  |  Terms of Service