Hope2SleepGuide

Sleep Apnoea Forum Bringing Help + Support to the Patient

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Welcome to our Forum - Feel Free to Introduce Yourself Here.

Welcome to the Hope2SleepGuide Forum, which is a service run by the Hope2Sleep Charity founded by Kath Hope with a marvellous team of trust…

Started by The SleepGuide Crew in Sleep ApnoeaLatest Reply

Discussions Replies Latest Activity

Sleeping with CPAP on the sleeper (train)

As part of my work I travel between Scotland and London fairly regularly, in the past mainly by air. Sadly, since the DVLA has taken away m…

Started by Iwan Davies in Sleep Apnoea

4 yesterday
Reply by Kath Hope

Symptoms: Feeling tired with missing air.

Hello everyone, it is my first post here.  I'm living in london. I have been diagnosed with severe sleep apnoea and severe lack of oxygen.…

Started by SleepyGuy in Sleep Apnoea

3 yesterday
Reply by Kath Hope

Getting refered

Hi all, I'm new to the forums. I'm trying to get treated for years of suffering. Thus far, no doctor has referred me for a sleep study.  B…

Started by Zackary Allnutt in Sleep Apnoea

11 Jul 17
Reply by Zackary Allnutt

Problems with CPAP machine

Hi Everybody, Yesterday I was diagnosed with Severe Obstructive Sleep Apnoea and I was given a F&P ICON CPAP device + full face mask.…

Started by Milen Tenev in Sleep Apnoea

11 Jul 14
Reply by Milen Tenev

Welcome to our Forum - Feel Free to Introduce Yourself Here.

Welcome to the Hope2SleepGuide Forum, which is a service run by the Hope2Sleep Charity founded by Kath Hope with a marvellous team of trust…

Started by The SleepGuide Crew in Sleep Apnoea

598 Jul 12
Reply by Kath Hope

Sleep Apnea and DVLA

Dear all, Sorry if I am posting this in wrong place.. I am a new member to this forum. I am 35 years old and I have been recently diagnosed…

Started by George in Sleep Apnoea

15 Jul 12
Reply by Kath Hope

Apnea and muscle weakness?

I hired a sleep apnea test from hope 2 sleep in January this year, and it showed I had severe sleep apnea. My GP finally believed me and re…

Started by Judy Y in Sleep Apnoea

3 Jun 24
Reply by Kath Hope

Swollen eyes

I have had my CPAP mask about 6 weeks now and getting on ok with it. But in that time I have had 2 eye infections (1 in each eye) where my…

Started by Helen McIntyre in Sleep Apnoea

1 Jun 15
Reply by Kath Hope

Newbie

Hi Everyone, recently diagnosed that I stopped breathing during the night, a little background info, I m 56 and 2 stone overweight, have al…

Started by Dinah Davies in Sleep Apnoea

5 Jun 7
Reply by Sleep2snore

DC power leads

Hi, wonder if anyone can help me, I am looking for a DC power lead without the car lighter attachment for my Philips REMstar Auto A-Flex. I…

Started by Adam Humphreys in Sleep Apnoea

5 Jun 2
Reply by Adam Humphreys

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Latest Activity

Kath Hope replied to Iwan Davies's discussion Sleeping with CPAP on the sleeper (train)
"Wow that's some delayed update Did you get your driving licence back by the way Iwan?  I know what you mean about power on the trains, so perhaps a portable battery would be a better option."
yesterday
Kath Hope replied to SleepyGuy's discussion Symptoms: Feeling tired with missing air.
"Good luck with your appointment SleepyGuy.  There are occasions when some people are better an auto pressures, but bearing in mind your AHI is below 5 and you're getting a good 7-8 hours of sleep on CPAP, it may be worth you asking your GP…"
yesterday
SleepyGuy replied to SleepyGuy's discussion Symptoms: Feeling tired with missing air.
"I have started the cpap therapy in jan and the symptoms was back in march. I do sleep between 7 to 8 h every nights. So I got it for the body to get used to the air flow. However that's still a huge difference that I have from the first 3…"
Friday
Anthony Wood is now a member of Hope2SleepGuide
Jul 18
Iwan Davies replied to Iwan Davies's discussion Sleeping with CPAP on the sleeper (train)
"Coming back to this some four years later... The power on the trains is unreliable, and the ResMed power supply cuts out when the voltage drops so as to protect itself/the CPAP. Consequently when I tried it out I found my machine cutting out every…"
Jul 17
Zackary Allnutt replied to Zackary Allnutt's discussion Getting refered
"Update. The doctor I saw was very good and referred me immediately, no questions asked. So if anyone else is in the same boat, get a sleep screener. In fact any one reading this who has any suspicion of sleep apnea or suffers from fatigue even when…"
Jul 17
Kath Hope replied to Zackary Allnutt's discussion Getting refered
"I agree Zackary, and it would be good for GP's to have them then they would know who needs referring to a sleep clinic."
Jul 15
Laurie May is now a member of Hope2SleepGuide
Jul 15
Zackary Allnutt replied to Zackary Allnutt's discussion Getting refered
"It seems to me it would be much cheaper for heath centres to have a home screener - in the long run..."
Jul 14
Milen Tenev replied to Zackary Allnutt's discussion Getting refered
"I hope that you are OK but still better to check it in advance as sleep apnoea is very nasty, the symptoms could be hard to discover and even after discovering them it could be hard to relate. To tell you the truth I think that NHS must include…"
Jul 14
Zackary Allnutt replied to Zackary Allnutt's discussion Getting refered
"I appreciate the word of warning - I will definitely make sure I get a sleep study soon. Really, I should have pushed harder for a sleep study a long time ago. It's not so easy to do when you don't feel up to battling the doctor or even…"
Jul 14
Milen Tenev replied to Zackary Allnutt's discussion Getting refered
"Zackary, my sleep apnoea is caused by side effect of sinus surgery - my soft tissue in the throat got more swollen after the surgery. I lived for a year without realizing this because I didn't experience any sleep desire during the day. Even…"
Jul 14
Zackary Allnutt replied to Zackary Allnutt's discussion Getting refered
"I saw on a thread, I think on here, the recommendation to score in terms of how much you want to sleep rather then your likelihood of actually doing it."
Jul 14
Zackary Allnutt replied to Zackary Allnutt's discussion Getting refered
"Hi Milen, I never learnt to drive. Every time I went out to practice I felt like I wasn't alert enough to be safe. Particularly after two mistakes that could have caused a crash if I was unlucky."
Jul 14
Milen Tenev replied to Zackary Allnutt's discussion Getting refered
"Hi Zackary, you can say to the doctor that you feel sleepy when driving during the day. This will guaranty you the sleep study. I highly doubt that you don't feel some desire for taking a nap while driving if you really have sleep apnoea."
Jul 14
Zackary Allnutt replied to Zackary Allnutt's discussion Getting refered
"Thank you Kath. Now I'm more confident that I sleep study is warranted, I'm going to push a lot harder. I'll give a update after Monday."
Jul 14
Milen Tenev replied to Milen Tenev's discussion Problems with CPAP machine
"Hi Kath, I think that I will be able to add a few things to the webpage with the tips, but lets see, I will create a new discussion rather than using this one."
Jul 14
Kath Hope replied to Milen Tenev's discussion Problems with CPAP machine
"That's good to hear Milen, and yes you writing of your experience will hopefully  help others.  We also have a webpage full of tips for people struggling and believe me I too struggled in the beginning - many years ago when there was…"
Jul 14
Kath Hope replied to Zackary Allnutt's discussion Getting refered
"Hi Zachery and welcome (I did send you an email a few minutes ago). I'm sorry to hear you're struggling to get a diagnosis and you shouldn't have to prove that many of us are not overweight yet still have sleep apnoea (I'm not…"
Jul 14
Zackary Allnutt posted a discussion

Getting refered

Hi all, I'm new to the forums. I'm trying to get treated for years of suffering. Thus far, no doctor has referred me for a sleep study. Basically because I don't fit the stereotypical apnea sufferer, I'm slim, I'm not older, I don't fall asleep…See More
Jul 14

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