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Welcome to our Forum - Feel Free to Introduce Yourself Here.

Welcome to the Hope2SleepGuide Forum, which is a service run by the Hope2Sleep Charity founded by Kath Hope with a marvellous team of trust…

Started by The SleepGuide Crew in Sleep ApnoeaLatest Reply

Discussions Replies Latest Activity

I've 'hit a wall' can any body help me?

I was diagnosed with severe OSA in November and I have been using a Philips Respironics CPAP machine and full face mask from early December…

Started by John Wilkinson in Sleep Apnoea

4 on Thursday
Reply by John Wilkinson

Double inhaling

I have had problems with my Resmed S9 APAP staying at 20 cm for 2-3 hours at a time which wrecks me the next day. This problem has been ong…

Started by Edam in Sleep Apnoea

15 on Thursday
Reply by Edam

Medistron batteries

Hi, I bought a pilot and co pilot set up a few months ago and have recently been trying them out. I have found by trial and error the follo…

Started by Chris Vesey in Sleep Apnoea

7 on Thursday
Reply by Kath Hope

Another newbie with a gazillion questions

Hi, I live near Leeds and saw the consultant in sleep clinic today at st James who has diagnosed osa. He wants me to try Cpap because I hav…

Started by Helen Page in Sleep Apnoea

3 May 12
Reply by Chris Vesey

New to cpap

Hi I'm new to cpap nearly 2 weeks into therapy and feel really tired has anybody felt like this? Or is it normal to feel like this when new…

Started by Ruth Furniss in Sleep Apnoea

3 May 1
Reply by billysleep

Changing hospital

I am considering asking my GP to refer me to another hospital for the supply and monitoring of CPAP . Would I just be supplied another CPAP…

Started by Edam in Sleep Apnoea

4 Apr 29
Reply by Edam

Pressure difference between Resmed S8 Vs Breas Z1

I have been using RESMED in auto mode. The pressure used to settle around 11cmWG with AHI between 2 and 4. I have recently switched over BR…

Started by Mathura Dutt Kalauny in Sleep Apnoea

5 Apr 18
Reply by Mathura Dutt Kalauny

New diagnosis!

Hi Everyone, I need a bit of advice from some more experienced people. I had a sleep study through the NHS last week & have been diagno…

Started by Dave Cheeseman in Sleep Apnoea

2 Apr 17
Reply by Sleep2snore

Sleep Centre in UK that measures UARS

Hi there, I have a connective tissue disorder that is associated with UARS (Upper Airway Resistance Syndrome). I was wondering whether ther…

Started by Savannah A. in Sleep Apnoea

5 Apr 13
Reply by Kath Hope

Philips Respironics New Sleep Apnoea Diagnostic Service

If you snore and are tired, you could be suffering from sleep apnoea (see signs + symptoms on our website) http://www.hope2sleep.co.uk/slee

Started by Kath Hope in Sleep Apnoea

0 Apr 8

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Latest Activity

John Wilkinson replied to John Wilkinson's discussion I've 'hit a wall' can any body help me?
"Thanks for your advice. I really appreciate your help. I wasn't aware that there different types of apnoeas. I will be seeing the sleep nurse next week. I will keep you informed. John "
Thursday
John Wilkinson replied to John Wilkinson's discussion I've 'hit a wall' can any body help me?
"Thanks for that Kath. I am due to see the sleep clinic next week. Hopefully they will re-adjust the pressure. I will keep you informed. John"
Thursday
Edam replied to Edam's discussion Double inhaling
"I have read that APAP machines are not suitable for people with Asthma and give the same problems that I have been having. I am now having to use twice the dose of steriods just to keep the APAP happy If I can ever get in touch with my hospital I…"
Thursday
Kath Hope replied to Chris Vesey's discussion Medistron batteries
"Thanks Chris and we certainly are doing our homework Sleep2Snore.  Our charity work hard to get the right products at the right price for our fellow sufferers, and we have lots of loyal customers who purchase from us both to support the charity…"
Thursday
Kath Hope replied to John Wilkinson's discussion I've 'hit a wall' can any body help me?
"Sorry to hear after a good start you've taken a step backwards, and it could well be due to the reduction in pressure.  We don't recommend adjusting pressures but you're right to contact your hospital who will probably re-adjust…"
Thursday
Sleep2snore replied to John Wilkinson's discussion I've 'hit a wall' can any body help me?
"They have reduced it to far.  The max was 16, they should have left the machine at 18 if it is an APAP (automatic pressure) if it is a CPAP you have now same applies.  However, it might not be quite that straight forward as that as the…"
Wednesday
John Wilkinson posted a discussion

I've 'hit a wall' can any body help me?

I was diagnosed with severe OSA in November and I have been using a Philips Respironics CPAP machine and full face mask from early December up to now (about 5 months). My HPI's went down from 44 to about  14 in about 10 weeks and I was feeling much…See More
Wednesday
Sleep2snore replied to Chris Vesey's discussion Medistron batteries
"They are very costly things to have sitting around to go wrong or if you forget to charge them by their date. You could try to see if they will do it on a sale or return basis, them you could keep one or two.  However, I think most are ordering…"
Tuesday
Chris Vesey replied to Chris Vesey's discussion Medistron batteries
"Hi, I see from medistrom website they are looking for dealers, is it worth considering Kath"
Tuesday
Sleep2snore replied to Chris Vesey's discussion Medistron batteries
"I wish the ResMed was 12Vdc, it would make life a lot easier. I wonder why they need 24Vdc anyway? My APAP is not mine to and see why it has to be 24Vdc! I don't think the clinic might be to impressed if I opened it for a look. "
Monday
Sleep2snore replied to Edam's discussion Double inhaling
"I would like to see how the hospital is going to explain that your Apnoea is getting worse with an AHU of 0. That is almost incompetent. It might also be that it is not straight forward Sleep Apnoea you have and might benefit from an advanced…"
Monday
Chris Vesey replied to Chris Vesey's discussion Medistron batteries
"hi, just looked on internet, it seems that medistrom may not have a dealer in the uk but a company called sleep tight advertise the pilot 24 for £345, don't know about the co pilot. The very expensive one on amazon comes from Israel, good…"
May 13
Chris Vesey replied to Chris Vesey's discussion Medistron batteries
"hi, at the time amazon were selling the pilot for £285 and the co pilot for £137, gone up a lot since then chris"
May 13
Edam replied to Edam's discussion Double inhaling
"I have read that if you have Asthma a CPAP is better than a APAP  When the APAP increases the pressure it makes the asthma worse and then the APAP increases the pressure again which makes the asthma even worse ..... This is exactly whats…"
May 13
Kath Hope replied to Chris Vesey's discussion Medistron batteries
"Chris why did you purchase Medistrom as opposed to the Resmed battery?  Don't get me wrong as I've heard great things about the Medistrom and recommended it myself to people, but looking at the prices it seems just as or even more…"
May 13
Chris Vesey posted a discussion

Medistron batteries

Hi,I bought a pilot and co pilot set up a few months ago and have recently been trying them out. I have found by trial and error the following,First switch off all humidifiers etc.Switch to airplane mode, this reduces the amount of battery power…See More
May 13
Emma Bennett is now a member of Hope2SleepGuide
May 13
Chris Vesey replied to Helen Page's discussion Another newbie with a gazillion questions
"Hi, I informed the dvla by post using the relevant form they sent me. When the form arrived i was warned that i needed to return it within 14 days! As it takes a week for any dvla letter to arrive i was not amused. Even though i had started…"
May 12
Edam replied to Edam's discussion Double inhaling
"You are right about needing the extra humidity. Its been very dry lately , I measured it at 39%RH,  so I will start to us the "Warm Up" on the H5i to get the humidity up straight away On my last visit to the hospital I was told that…"
May 11
Sleep2snore replied to Edam's discussion Double inhaling
"It is a machine and if you have COPD and suffer from hay fever and asthma it will cause problems that you will have to find a work around for.  Looks like you have already found one that helps. It is very much a case of experiment and see. "
May 11

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