"Hi
The SleepCube was a private purchase, as way back then my local sleep clinic assessed patients by filming them overnight, whilst wearing an oximeter, and only issued CPAP machines without humidifiers. There was no remote monitoring and…"
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Wellu O2 Ring - is it accurate enough for the medics?
Moving some furniture my long lost O2 ring continuous oxygen saturation monitor turned up.
So I've been wearing it and it tells me I have loads of saturation drops during the night even though my Airsense 10 says I have very few apneas.
So I get two charts - one from the Airsense 10, and one from the O2 Ring - I can see them both using OSCAR
It shows stretches of yo-yoing between around 98 and 80 in cycles of about half a minute, with accompanying heart rate rises. But these don't align with the apneas and hypopneas showing on the Airsense 10 data
I want to know a few things -
1. if this sounds normal.
2. is the ring accurate
3. is it accurate enough for medics to take seriously
4. can I get the people at Castle Hill to read my O2 chart through their online PatientKnowsBest system? That's got a load of options for file sharing and giving medics permission to see them, although when I rang the CPAP clinic yesterday they didn't seem to know anything about it. It would be great if I could just upload my O2 ring data for them to see.
The medics at Castle Hill basically think my issue is solved, and I believe the CPAP does solve most apneas, but I still feel knackered and wonder if I have UARS, and the ring is showing this.
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Replies to This Discussion
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Permalink Reply by Jonathan
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On an unrelated topic, I've been able to send ECGs by PDF to my heart clinic.
On the subject of Resmed and apnoeas, take a look at https://youtu.be/ufOOAfyzZso?si=Tpdl4EEiCQBZR4iD&t=276
Your machine may be under-reporting.
Good luck!
Jonathan.
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Hi Jonathan, did you do that through PatientKnowsBest?
I did see that video, and I tried to raise this with the people at Castle Hill but they pooh-poohed it, but it's just why I got the O2 ring.
I think they're a bit fed up with me because I keep pushing at them about things.
But yeah like the guy on the vid says I worry that my results look good on paper but I'm still foggy - which I sure am.
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Hi.
I didn't use PatientsKnowBest (ironic name), but I have an email address for my heart department for sending in ECGs. I was just saying that they may be able to review a PDF when then cannot review a data file from your O2 ring.
I am also suspicious, particularly about Resmed, as my previous machine (a SleepCube) operated in APAP mode at lower pressures, with equally good apnoea results.
I need to get around to uploading my data to SleepHQ (as featured on the YouTube video) and get more insight. MyAir reports 0.6 - 0.9 events per hour. I want to see what SleepHQ says. I think they have more insight than Oscar.
Jonathan.
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Yeah I was wondering about email address. I thought probably if they wanted me to mail them they would have given out an address. I can imagine heart data is considered more acute than sleep data, so it would make more sense to have that communication channel open.
Also wondering how they operate procurement. I thought they probably update their equipment in one huge go - out go the Sleep Cubes and in come the Resmeds for their telemetry. I get the impression they only ever have one type. Maybe they are tied in to Resmed by contract?
They seem to have a lot of masks, I have loads and they gave them away easily, but not so liberal with the heated tubes. Be nice to have a little catalogue of what they can offer because it takes years to ask for new stuff and things I didn't know existed.
So sleep HQ better than OSCAR? OK I'll check it out.
thanks,
John
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Hi
The SleepCube was a private purchase, as way back then my local sleep clinic assessed patients by filming them overnight, whilst wearing an oximeter, and only issued CPAP machines without humidifiers. There was no remote monitoring and indeed the Respironics machine the NHS supplied didn't even have data capture. The SleepCube was a great improvement.
Yes, I am pretty confident that NHS hospitals just have contracts with a single supplier (possibly two). The Resmed is good because they can remotely monitor me, but I'm not convinced it's a particularly good machine (though my pre-treatment AHI of 86 is down to a reported "under 1").
I'm pretty sure the clinic mentioned they would be introducing Lowenstein machines, when I had to take my Resmed back because the machine itself was whistling with an internal leak. I guess they will wind down the Resmeds, and crank up the Lowensteins, or possibly run both in parallel.
Sleep HQ is a pay-for service, which operates with their O2 ring. But there's a free tier, and I get the impression that they do a more detailed analysis of the machine data. So I'd say give it a try, and see if you are getting these events that are to all intents and purposes an apnoea, but not classified as such by the Resmed reporting.
I'm going to do that, but haven't got around to it yet (silly, I know). I don't know what happens if I "tweak" the Resmed machine. Will the sleep clinic notice. Will they call me, or reset the configuration? Or do they only get alerted if my AHI goes out of whack?
Hope you get some satisfaction
Jonathan.
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"Yeah I was wondering about email address. I thought probably if they wanted me to mail them they would have given out an address. I can imagine heart data is considered more acute than sleep data, so it would make more sense to have that…"
"Hi.
I didn't use PatientsKnowBest (ironic name), but I have an email address for my heart department for sending in ECGs. I was just saying that they may be able to review a PDF when then cannot review a data file from your O2 ring.
I am…"
"Hi Jonathan, did you do that through PatientKnowsBest?"
"On an unrelated topic, I've been able to send ECGs by PDF to my heart clinic.
On the subject of Resmed and apnoeas, take a look at https://youtu.be/ufOOAfyzZso?si=Tpdl4EEiCQBZR4iD&t=276
Your machine may be under-reporting.
Good…"
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