"Dab hand with a sewing machine :) The "stethoscope" pipes were detachable with a bit of careful persuasion."
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Jonathan's Discussions
Dreamwear mask
2 Replies
HiLongtime readers of this forum may remember I've lamented the discontinuation of the Respironics Comfort Curve mask. It was like no other, with a nasal pillow without prongs that sat under the…Continue
Tags: Review, Mask, Dreamwear, Respironics
Started this discussion. Last reply by Jonathan Aug 1, 2016.
3D printing
2 Replies
Here's an interesting article which hints at what the future may hold…Continue
Started this discussion. Last reply by Kath Hope Sep 2, 2014.
Finding a new mask
7 Replies
HiI started out a few years ago, with my NHS-issued Respironics ComfortGel mask. On my search for a better mask, I found an on-line guide (no longer available, alas) which asked for various detailed…Continue
Started this discussion. Last reply by Kath Hope Sep 2, 2014.
APAP versus CPAP
6 Replies
Hi I have just switched from a Respironics CPAP machine to a DeVilbiss APAP machine. What a difference! I have had a lactose intolerance for longer than I have been on CPAP therapy. The intolerance…Continue
Started this discussion. Last reply by Kath Hope Jan 6, 2014.
Jonathan's Page
Latest Activity
"Neat clip for your hose!
I used to use the Respironics Comfort Curve one of the best masks ever, now discontinued of course. With its stethoscope-style tubing, I had to make my own fleecy cover."
"Yes, I bought some fleecy material and made my own "snuggle hose" 10+ years ago. "
"Hi. No first hand experience, but you can see reviews here, which are mixed: https://www.cpap.com/productpage/resmed-airfit-f40-full-face-cpap-mask
I notice cpap.com still appear to be selling the Quattro FX. I have imported stuff from…"
"I did replace the tank in my SleepCube, and had to regularly take the silicone sealing gasket out and give it a goof clean, but not infrequently found it standing in a pool of water in the morning. The machine sat on a tray because of…"
"Ramble alert! My history is that I spent part of each week at a different location, so bought a second machine identical to my fixed pressure NHS machine and set it up to match using the clinician menu. This was a very long time…"
"This is NOT a recommendation
http://www.youtube.com/watch?v=VNUWhd2UgQM"
"If you have a helpful GP, I would ask them to re-refer you to the sleep clinic."
"I previously had a DeVilbiss Sleepcube and the dehumidifier did sometimes run dry. On the other hand I now have an AirSense 10 and it never runs dry, and I've had the humidity turned up high."
"Hello
It seems you can check with Philips Respironics whether your machine is affected by the recall
https://www.philipssrcupdate.expertinquiry.com/?ulang=en
Hopefully it's not one of the problem machines, and at least you will know that your…"
"Hello,
I was diagnosed about the same time as you, and also found CPAP therapy live-changing. My original machine was an NHS issue Respironics, with no reporting or logging of data. After a throat infection which wouldn't go away, I…"
"I was a mouth breather, but was given a nasal mask, and had to keep my mouth shut!(*) I did try a chin strap to keep my mouth shut but I couldn't tolerate it. I would say I got used to the nasal mask very quickly. I was…"
"Hi
I was falling asleep in the barber's chair, and even the dentist's chair. That's not "a bit tired". But the good news is that CPAP has totally fixed my sleep apnoea. It'd be nice to speak to people who…"
"Amazon.com will deliver to the UK, but I understand this isn't ideal."
"Would something like this work? https://www.amazon.com/dp/B098N8TJS6"
"Welcome. I was diagnosed in 2009 at 80+ events per hour, but was discharged by the sleep clinic many years ago, on the basis that I was "self managing". I bought an APAP machine, which allows me to see how well I am doing, and…"
Profile Information
- Treatment Being Used, if any?
- Auto-Adjusting CPAP
- If Machine Being Used, What Make or Model?
- DeVilBiss Intellipap (SleepCube)
- If Mask Being Used, What Type or Name?
- DreamWear
Comment Wall (1 comment)
- At 0:12 on September 15, 2012,
Kath Hope said…
Great to see you've joined us on here Jonathan. Hope you find the forum beneficial to you and look forward to your posts. If you'd like to introduce yourself to the others, this post is a good place to start... http://hope2sleepguide.co.uk/forum/topics/welcome-from-kath-mike
Best Wishes and Good Sleep!
Kath
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Latest Activity
"I would always be guided by Dr Vik Veer, who is the UK's leading ENT surgeon specialising in snoring, sleep apnoea and UARS. He doesn't say the exercises will cure moderate to severe sleep apnoea, but can help by strengthening the airway…"
"Good info thanks. I personally prefer nasal strips though."
A tale of two nasal dilators
Trying to get my nose to stay open, I've been experimenting with nasal dilators.So far I tried two types.- Generic tubes from ebay, 50p each- Fancy Airmax £10Both are moulded silicon rubber.I would say the packaging for the Airmax, which is really…See More
"Dab hand with a sewing machine :) The "stethoscope" pipes were detachable with a bit of careful persuasion."
"How did you fasten it?I suppose you could do it with tape or elastic bands. Cut up an old fleece jacket, wrap it round the tube, strap it up, bit of velcro. That sort of thing. I hadn't really thought of that."
"Come to think of it you could likely double up a hose cozy, one over another.This is a piece of N95 face mask I used for high grade filtration. I just put it where the filter usually goes.This is around 6 months dirt I would say, thereabouts. I used…"
"Neat clip for your hose!
I used to use the Respironics Comfort Curve one of the best masks ever, now discontinued of course. With its stethoscope-style tubing, I had to make my own fleecy cover."
"Oh cool. Did you do any other DIY mods?I made a clamped strap to go on the headboard and lift the tube. Just a spare c-clamp with a bit of nylon strap and a clip but works well."
"Yes, I bought some fleecy material and made my own "snuggle hose" 10+ years ago. "
"Did you try a sleeve for the tube, Jonathan? For rain out? I got one off ebay for a few quid and I think it helps. It's a fleece sleeve you zip over the main tube."
Oropharyngeal exercises
I asked medics at the Castle Hill CPAP clinic about tongue and throat exercises. They said no evidence, and it can't work anyway because the muscles fully relax during sleep.Yet I'm watching Vik Veer, head of ENT at a London hospital, offer evidence…See More
"Well I found out what the norm was by asking my doctor to do the Cottle maneuver on herself, and she said there was no difference with and without.Whereas for me it's massively different.The Cottle maneuver is where you pull the skin by the…"
"It's a suspiciously round number I wonder how they arrived at it?I asked the People at Castle Hill and they didn't really enlighten me on it, but I was told that it's normal for people to have apnoeas, which I didn't know.I…"
"An apnoea or hypopnoea of less than 10 seconds won't be reported as an event, in the same way they're not reported on a sleep study, as that's the cut-off point."
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