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Alex Lalvani
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NHS waiting time for CPAP machine - can anyone beat this?
4 Replies

Diagnosed on 18th December 2023 with severe sleep apnoea.Received letter a few days later advising that earliest I could get a CPAP is 23rd December 2024 - over a year! This is in Oxford.I'm prepared…Continue

Started this discussion. Last reply by Kath Hope Jan 25.

 

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Latest Activity

Tom Wilkins and Alex Lalvani are now friends
Jan 28
Kath Hope replied to Alex Lalvani's discussion NHS waiting time for CPAP machine - can anyone beat this?
"Good to hear Alex, and tell them you're willing to take a cancellation at short notice and it might be less 🙏"
Jan 25
Alex Lalvani replied to Alex Lalvani's discussion NHS waiting time for CPAP machine - can anyone beat this?
"Thanks for the replies. Today I got a referral to a new hospital in London which is quoting a 6 month wait time. My oxygen was at 89% during the sleep study, I'm not sure what the other figures are."
Jan 25
Stuart Wood replied to Alex Lalvani's discussion NHS waiting time for CPAP machine - can anyone beat this?
"Hi Alex. That's really too long to wait! I was diagnosed in August 2023 also with severe sleep apnoea.  It took 6 months from seeing the Dr > sleep study > getting a CPAP machine.  I was given a CPAP machine on the same day…"
Jan 25
Kath Hope replied to Alex Lalvani's discussion NHS waiting time for CPAP machine - can anyone beat this?
"Sorry to hear this Alex, and that does sound like a long wait for severe sleep apnoea. The problem has been due to a worldwide CPAP shortage so this is happening at a lot of clinics. Take a look at nearby clinics on this link but you'd need to…"
Jan 25
Alex Lalvani replied to Dave Austin's discussion My Apnoea / CPAP journey
"Hi Dave, Just read your story, sorry to hear your woes. I've been diagnosed with severe sleep apnoea but been told it's 11 months before I can get a CPAP machine. I'm considering buying one privately as I wake up several times a night…"
Jan 25
Alex Lalvani posted a discussion

NHS waiting time for CPAP machine - can anyone beat this?

Diagnosed on 18th December 2023 with severe sleep apnoea.Received letter a few days later advising that earliest I could get a CPAP is 23rd December 2024 - over a year! This is in Oxford.I'm prepared to go anywhere in the country to get a machine although South East/London would be easiest. Does anyone have any experience of better/worse waiting times?ThanksSee More
Jan 25
Alex Lalvani is now a member of Hope2SleepGuide
Jan 10

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No treatment
If Machine Being Used, What Make or Model?
N/A
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Latest Activity

Nick Daniel replied to John's discussion Are every small CPAP machines any good?
"Yes, it does the job. I use a Powapacs Atom for portable power "
Wednesday
John replied to John's discussion Are every small CPAP machines any good?
"Hi Nick thanks. Does it do the job and could you camp with it?"
Wednesday
Nick Daniel posted a discussion

CPAP Total Face Mask

I was curious whether anyone has used the CPAP Total Face Masks and could pass on their observations? I've been using an Airfit F20 for years which is fine apart from the permanent red mark on the bridge of my nose, and have recently tried the…See More
Tuesday
Nick Daniel replied to John's discussion Are every small CPAP machines any good?
"I've been using the Resmed Airmini for about 5 years when travelling - overall lightweight and small and can be controlled by an App, but it does produce a loud whistling/wind sound for me which hasn't been reduced by an inline filter or…"
Tuesday
Greg Lloyd is now a member of Hope2SleepGuide
Dec 6
Jonathan replied to David Hudson's discussion Pressure waking me up. Belching and wind
"Hi It sounds like you need to have more conversations with your sleep clinic.  There's little point in having a high pressure if it means you cannot tolerate the machine.  There's an interesting video here…"
Dec 1
David Hudson posted a discussion

Pressure waking me up. Belching and wind

HiI'm using the prisma smart max machine. Initially I was just on a nasal mask, this changed as I was sleeping with my mouth open. I then went to face and nose mask and complained of bad wind and belching. Sometimes the pressure in the night was…See More
Nov 28
Jonathan replied to Jonathan's discussion ResMed AirSense 10 getting noisy
"Just to tidy this up, I finally had an in-person review by my sleep clinic yesterday, who agreed the ResMed AirSense 10 was "wheezy" and replaced the machine."
Nov 9
Collette rose replied to Collette rose's discussion 1st time and I’ve failed the mask leak test
"thank you jonathan,i did get the it pack so tried the small and still struggled but i was sat up in bed so will try lying down great suggestion "
Nov 3
Jonathan replied to Collette rose's discussion 1st time and I’ve failed the mask leak test
"Hi My first thought is "don't panic"!  We're all a bit different, and there are many things that can be tweaked.  I took to CPAP therapy like a duck to water, but I've had friends who say they can't cope, but…"
Nov 2
Collette rose posted a discussion

1st time and I’ve failed the mask leak test

Hi everyone, today I received my rental kit - prisma smart max, plus a Philips dreamwear mask which I’ve been wearing unconnected to try and get used to it. I just did a mask fit test using a medium mask and got a constant red/orange leak warning…See More
Nov 2
Collette rose is now a member of Hope2SleepGuide
Oct 31
John posted a discussion
Oct 30
Profile IconBill Wright, Nicole Watson, TJ Bennett and 2 more joined Hope2SleepGuide
Oct 29
John replied to John's discussion evil mask noise
"Ha well it lasted a couple of days but started howling again. But it's a step in the right direction, just needs a bit more work."
Oct 24
Jonathan replied to John's discussion Has anyone been told root cause of their OSA?
"Nope, I just accept that some people's throats tend to close when they sleep, due to a loss of muscle tone during deeper sleep.  Back when I was diagnosed, the sleep lab just filmed you whilst you slept, stuck an O2 meter on your finger,…"
Oct 24
Jonathan replied to John's discussion evil mask noise
"Good to know you found a solution!"
Oct 24
John replied to John's discussion Has anyone been told root cause of their OSA?
"Did anyone tell you exactly what the anatomical issue is, Jonathan?"
Oct 21
John replied to Jonathan's discussion ResMed AirSense 10 getting noisy
"Can't say I know about this."
Oct 20
John replied to John's discussion evil mask noise
"So I tore some fabric from one of the filters and glued it over the holes - and it worked!It was dead quiet, and the air was still flowing freely.It was quiet all night then after a few hours a bit of whistling until I gave it a wipe.Vast…"
Oct 19

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