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Alex Lalvani
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NHS waiting time for CPAP machine - can anyone beat this?
4 Replies

Diagnosed on 18th December 2023 with severe sleep apnoea.Received letter a few days later advising that earliest I could get a CPAP is 23rd December 2024 - over a year! This is in Oxford.I'm prepared…Continue

Started this discussion. Last reply by Kath Hope Jan 25, 2024.

 

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Latest Activity

Tom Wilkins and Alex Lalvani are now friends
Jan 28, 2024
Kath Hope replied to Alex Lalvani's discussion NHS waiting time for CPAP machine - can anyone beat this?
"Good to hear Alex, and tell them you're willing to take a cancellation at short notice and it might be less 🙏"
Jan 25, 2024
Alex Lalvani replied to Alex Lalvani's discussion NHS waiting time for CPAP machine - can anyone beat this?
"Thanks for the replies. Today I got a referral to a new hospital in London which is quoting a 6 month wait time. My oxygen was at 89% during the sleep study, I'm not sure what the other figures are."
Jan 25, 2024
Stuart Wood replied to Alex Lalvani's discussion NHS waiting time for CPAP machine - can anyone beat this?
"Hi Alex. That's really too long to wait! I was diagnosed in August 2023 also with severe sleep apnoea.  It took 6 months from seeing the Dr > sleep study > getting a CPAP machine.  I was given a CPAP machine on the same day…"
Jan 25, 2024
Kath Hope replied to Alex Lalvani's discussion NHS waiting time for CPAP machine - can anyone beat this?
"Sorry to hear this Alex, and that does sound like a long wait for severe sleep apnoea. The problem has been due to a worldwide CPAP shortage so this is happening at a lot of clinics. Take a look at nearby clinics on this link but you'd need to…"
Jan 25, 2024
Alex Lalvani replied to Dave Austin's discussion My Apnoea / CPAP journey
"Hi Dave, Just read your story, sorry to hear your woes. I've been diagnosed with severe sleep apnoea but been told it's 11 months before I can get a CPAP machine. I'm considering buying one privately as I wake up several times a night…"
Jan 25, 2024
Alex Lalvani posted a discussion

NHS waiting time for CPAP machine - can anyone beat this?

Diagnosed on 18th December 2023 with severe sleep apnoea.Received letter a few days later advising that earliest I could get a CPAP is 23rd December 2024 - over a year! This is in Oxford.I'm prepared to go anywhere in the country to get a machine although South East/London would be easiest. Does anyone have any experience of better/worse waiting times?ThanksSee More
Jan 25, 2024
Alex Lalvani is now a member of Hope2SleepGuide
Jan 10, 2024

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Latest Activity

Jonathan replied to Richard Smith's discussion air bubbles after weight loss
"Hi My sleep clinic discharged me, saying they were happy I was self-managing.  Roll on a decade and the cardiologists taking care of me were very unimpressed and I was re-enrolled.  I expect remote monitoring with current generation Resmed…"
Sep 1
Richard Smith replied to Richard Smith's discussion air bubbles after weight loss
"Hi Jonathan, Thanks again for the info.  My cpap *should* be monitored by the NHS though I haven’t had any contact from them since pre-covid.  I checked out the link you gave to access extra data and I think that’s going to be…"
Aug 31
Jonathan replied to Richard Smith's discussion air bubbles after weight loss
"Hi I have the ResMed Airsense 10 Autoset (APAP).  It's monitored remotely by my NHS sleep clinic and I believe they can make changes to the settings.  I don't know whether they are notified if I make changes, nor whether they…"
Aug 31
Richard Smith replied to Richard Smith's discussion air bubbles after weight loss
"Hi Jonathan, Thanks for the reply.  I'd say that I'm fairly technical.  I have the ResMed Airsense 10 Elite machine.  I've discovered that I can upload data wirelessly from my machine and having lowered the pressure by…"
Aug 30
Jonathan replied to Richard Smith's discussion air bubbles after weight loss
"Hi You don't say how technical you are, or what sort of machine you use.  However https://www.sleephq.com/ has software which allows you to upload data from compatible machines, and analyse your sleep "score", including a…"
Aug 29
Richard Smith posted a discussion

air bubbles after weight loss

Hi,I've been on Mounjaro for about 3 months now, not primarily for weight loss, but I have lost weight around my face and neck.  I've noticed that I am increasingly getting air bubbles in my mouth which of course is disturbing my sleep (and my…See More
Aug 28
Sally Gray posted a discussion

Micro plastics risks

I was reading an article in the I newspaper today written by a journalist who had her blood tested for micro plastics and was shocked by the results.…See More
Aug 3
Alison Mitchell is now a member of Hope2SleepGuide
Jul 2
John posted a discussion

job with the charity

Was wondering if there might be a job for me with Hope2Sleep?(I also just asked this of a group by mistake)See More
Jun 27
Tracey Tilley updated their profile
May 22
Sharon Sullivan posted a discussion

For Sale - Ventura Full Total Face CPAP Mask

I’m selling an Ventura Full Total Face CPAP Mask Large and two spare liners.  I bought it new from the Hope2Sleep shop, but it is not suitable for me.  Only used for about two weeks so I have washed it thoroughly.   Because of this, it is very much…See More
May 17
Tracey Tilley replied to Jim Scullion's discussion UK Attendance Allowance
"I put in a claim for PIP which was denied and now I am over 66 and on pension I tried for AA. Denied again.I have other health conditions ( Diverticular disease and Bile Acid Malabsorbtion ) which I consider hard to live with and they refused all of…"
May 14
Jonathan replied to Sally Gray's discussion ResMed AirMini for travel
"No personal experience, but CPAP.com review of AirMini The AirMini runs at about 30 decibels, which is about the same sound level as a whispered conversation. For comparison, full-sized CPAPs tend to run around 26-28 decibels. Due to their…"
May 5
Sally Gray posted a discussion

ResMed AirMini for travel

I am considering either buying or renting an AirMini for a forthcoming holiday this month where I will be sharing a twin room. I have read that they’re quite noisy and I don’t want to waste my money on either rental or purchase if the noise level…See More
May 3
Sally Gray replied to Nick Daniel's discussion CPAP Total Face Mask
"Hi, I use a ResMed F20 and had the same issue with the silicone full face mask causing red marks and soreness on my nose bridge. I switched over to the Airtouch memory foam full face masks which are expensive and not supplied by the NHS, but the…"
May 3
Kath Hope replied to Glassdaisy's discussion Soft Cap
"It's very much still relevant and we're getting closer to have them manufactured and has been no easy challenge. In fact we were speaking with the company working with us on this only yesterday. If you're not on our newsletter list…"
Mar 27
Glassdaisy posted a discussion

Soft Cap

some time ago I was told that Hope2Sleep was researching a replacement for the discontinued Soft Cap.. as I have seen nothing to indicate moving forward on this, would I be right in assuming you decided it is no longer relevant?See More
Mar 27
Glassdaisy replied to Nick Daniel's discussion CPAP Total Face Mask
"I expect others may have responded by now, but I use the Fitlife full face mask. I kept getting a hard lump on my nose when first starting out & it got so bad that I ended up buying my own masks as my clinic would only give the Fitlife to new…"
Mar 27
Wendy Anthony is now a member of Hope2SleepGuide
Mar 25
David McDade is now a member of Hope2SleepGuide
Jan 3

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