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Kath Hope
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Kath Hope's Groups

Kath Hope's Discussions

Hope2Sleep Charity Raffle

Only 24 hours to purchase Raffle Tickets as the draw is tomorrow (Monday 4th April), and we're looking forward to giving good news to 20 lucky winners!Tickets can be bought at…Continue

Tags: Charity, Raffle

Started Apr 3

Hope2Sleep Charity Helps with India's COVID-19 Crisis

Sorry the forum hasn't been as active as normal as all of us at the Hope2Sleep Charity have hardly had chance to breathe (except in sleep with our masks on thankfully) as we've been so busy.  We've…Continue

Tags: Ventilators, Oxygen-Concentrators, COVID-19, India

Started May 25, 2021

Help for NHS Research when New to CPAP

We've been asked to help a team of researchers from the NHS (including Professor Joerg Steier from Guy's & St Thomas' who is our charity's medical advisor) if we will help them develop a package…Continue

Started May 25, 2021

Philips Respironics New Sleep Apnoea Diagnostic Service

If you snore and are tired, you could be suffering from sleep apnoea (see signs + symptoms on our website)…Continue

Started Apr 8, 2018

 

Kath Hope's Page

Latest Activity

Kath Hope replied to halfluke's discussion Medistrom Pilot and Devilbiss SleepCube
"Ha, well I'd better take the other one off stock then quick for our rental service which should be live tomorrow. Good job we found out about this though Halfluke, thanks to you. I went onto cpap . com in USA to see if we could buy some…"
Thursday
Kath Hope replied to halfluke's discussion Medistrom Pilot and Devilbiss SleepCube
"Hi again Halfluke I heard back from Choice One yesterday like I knew I would as their support is fantastic, and we've heard back from them today with further help. However, I wanted us to physically test everything out before confirming to…"
Thursday
Kath Hope replied to halfluke's discussion Medistrom Pilot and Devilbiss SleepCube
"I've sent an email Halfluke so we should hear back soon to solve this issue. I can't see the product code on the back of your image, but is it DV63D-613 which is for the DeVilbiss Blue (IntelliPAP 2). To my knowledge all…"
Tuesday
Kath Hope replied to halfluke's discussion Medistrom Pilot and Devilbiss SleepCube
"Ah that's interesting Halfluke. I was only at the charity when it was being charged, and for that we used the power supply that I posted an image of a day or so ago from the DeVilbiss Blue (IntelliPAP 2), but I'd left when it was time to…"
Tuesday
Kath Hope replied to halfluke's discussion Medistrom Pilot and Devilbiss SleepCube
"Hi again Halfluke This is indeed a challenge, but I'm glad this issue came up even if you don't end up purchasing the Pilot-12 as it's important that we get to the bottom of this as there are a lot of UK sleep clinics that have…"
Tuesday
Kath Hope replied to halfluke's discussion Medistrom Pilot and Devilbiss SleepCube
"Sorry for the delay Halfluke, but I've been trying to find an image of the full SleepCube cable (the bit that goes into the back of the machine) as I can see the other end of yours isn't a UK 3-pin plug. The only image I have (which we…"
Jun 20
Kath Hope replied to halfluke's discussion Medistrom Pilot and Devilbiss SleepCube
"Hi Halfluke. These Pilot-12 and Pilot-24 Lites are brilliant, but believe me I've got confused myself with all the different leads. I'll try to explain here, but if I haven't done a good job and you're still struggling then call…"
Jun 18
Kath Hope replied to Alison's discussion Knightsbridge Chin Strap. Medium in the group Buy-Sell-Swap
"That's a shame to hear as a lot of people (including my own husband) have found it to be great. I've posted you an image and a link to it on our website so that members can look at it properly and also see how to measure to check that they…"
Jun 4
Kath Hope posted a discussion

Hope2Sleep Charity Raffle

Only 24 hours to purchase Raffle Tickets as the draw is tomorrow (Monday 4th April), and we're looking forward to giving good news to 20 lucky winners!Tickets can be bought at https://www.peoplesfundraising.com/raffle/hope2sleep-charitySleep Awareness Month ends on a high…See More
Apr 3
Kath Hope replied to Glenys Everest's discussion Spare unused nasal pillows
"Glenys, if you move this post to our Buy, Sell and Swap section people are more likely to see it. You should see a tab to it on the top bar or click this link to take you there http://hope2sleepguide.co.uk/group/buy-sell The reason the clinics give…"
Mar 23
Kath Hope replied to David's discussion Where do you got your distilled water for humidifier
"Sorry David as missed your question. To be fair all the manufacturers say to use distilled water in the manual, but as you've discovered it's hard to get it here. I live in a very hard water area so I do purchase it but it's not…"
Mar 22
Kath Hope replied to Sewing1's discussion First night with Lowenstein Prisma Smart Max and ResMed Airfit F 20. Talk to me- please!
"Linda, try not to over-think things and you did very well on your first night. It's rare to feel a big positive difference after the first night as you're trying to adjust to sleeping with a mask on with pressure blowing and and the…"
Feb 5
Fran Hiam replied to Kath Hope's discussion Choosing The Right CPAP or BiPAP Mask For You
"Hi Kath  Thanks for the message. I’m very interested in the chin cushion & keep looking to see if there is any stock. I will keep looking in on that item. The other strap looks interesting as well so will look into that further. …"
Dec 31, 2021
Kath Hope replied to Kath Hope's discussion Choosing The Right CPAP or BiPAP Mask For You
"Hi Fran. It can be hard finding the 'right' mask for us and as a sleep consultant quotes "you have to kiss several frogs until you find your prince" which is so true. I too struggled for a long time when first on CPAP and in…"
Dec 30, 2021
Fran Hiam replied to Kath Hope's discussion Choosing The Right CPAP or BiPAP Mask For You
"Hi Kath  Thanks got your reply. I’ve tried the the F20 which is a full face mask but I found it quite harsh on the nose & face. I’ve tried mask covers & nasal nasal pads but they seemed cause mask leaks & gave me more…"
Dec 29, 2021
Kath Hope replied to Kath Hope's discussion Choosing The Right CPAP or BiPAP Mask For You
"Sorry for the delay over the Christmas holidays Fran, but there's no company we're aware of that makes bespoke masks. I'm sure the day will come, but not soon. Which masks have you tried already and what are the problems?"
Dec 29, 2021

Profile Information

Treatment Being Used, if any?
BiPAP
If Machine Being Used, What Make or Model?
Respironics PR One APAP
Devilbiss Sleep cube APAP (Known as Intellipap in the USA)
Respironics ASV
Resmed VPAP
If Mask Being Used, What Type or Name?
Respironics Fit Life
Respironics Amara View
Sleepnet Hybrid
Amara Gel
Devilbiss D100
Fisher Paykel 432

(just need 2 more, than I'll have one for everyday of the week lol)

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Kath Hope's Blog

Medications Affecting Sleep

A number of drugs disrupt sleep, while others can cause daytime drowsiness. Your clinician may be able to suggest alternatives.

Medication

Used to treat

Examples

Possible effects on sleep/daytime…

Continue

Posted on October 16, 2014 at 22:27

CPAP TIPS

The following are my own tips in helping with my own treatment, and are not meant as a substitute for medical advice. However, I hope they prove useful. 



CPAP/APAP/BIPAP TOLERANCE PROBLEMS

A lot of people find it hard to tolerate their equipment at first, so it's a good idea to set it up during the day whilst relaxing, such as watching tv,…

Continue

Posted on October 25, 2011 at 20:00

Comment Wall (96 comments)

You need to be a member of Hope2SleepGuide to add comments!

Join Hope2SleepGuide

At 15:28 on February 12, 2021, Sue Abson said…

Hi Kath - I've made my profile private to friends only, so that Sarah's number shouldn't now be public.  But how do you delete a comment?  I can't see a way of deleting my own? 

At 15:32 on November 2, 2017, YasminVaughan said…
Hi Kath I've being using a cpap machine for over 3 years the res meds one and full mask the last few weeks I have been getting bad headaches and dried sinuses making me feel horrid . I've got pressure on 7 a wooly cover for hose humidifier, I'm running out of ideas I did use a nasal spray at nite but was told to stop this I've joined today many thanks
At 15:22 on August 23, 2014, Bernadette Plunkett said…

Hi Kath, thanks for the welcome. Having just started therapy after a 2 year struggle to get diagnosed I have a bunch of questions but I'll try to see if they've been asked and answered on the forum first before raining them down on everyone. 

At 10:26 on March 12, 2014, Amelia Kennedy said…

Thanks Kath, I'll wait until Marion's able to reply. I don't want to disturb while she's poorly - it can wait for now.  Thanks once again for your help x

At 14:01 on March 10, 2014, Amelia Kennedy said…

Hi Kath, thanks for the comment about Marion and sorry to hear she's not well.  I've added her as a friend and am waiting for her to accept.  I'm not sure where I should copy/paste my comment to her though as it already appears to be there?  I'm not familiar with the forum set-up yet - that's my excuse anyway! x

At 0:12 on March 8, 2014, Sandra Gibbens said…

Thank you for adding me, already I've received so much support and information, and it's very much appreciated!

At 15:51 on March 6, 2014, Amelia Kennedy said…

Thanks Kath!

At 15:12 on March 6, 2014, Amelia Kennedy said…

Interesting ... thanks Kath, I'll take a look.  I've also been using mine for years - 15 in fact and get along with it fine now (after a load of teething problems!).  What I do hate is the weight and bulk of it.  I'm worrying about how me and my husband can get away for a few days in the summer as he's just had his driving licence revoked due to ill-health and I can't drive.  I guess I'll be pleading with Papworth again when I go in a couple of months to test me on other (smaller) machines - usually to no avail!

At 19:57 on February 6, 2014, June Ostiadel said…

Hi Kath, thanks again for the useful info. Firstly I did wonder if it's some natural oils coming out of my skin; I always wash before bed and use no creams. You mentioned the change in temperature during the night, well, my face often gets hot and I wondered if that could cause the mask to slip as well as a drop in temp.

I clean my mask every day, wiping with a little washing up liquid then wipe/rinse with clean wet cloth.

The hospital tried me on APAP but when the pressure rose it caused leaking so they change it for me.

I have a medium size mask (the hospital fitted it) and although I have a small face I have quite a big nose lol.

I visited the sleep clinic last June/July at St James Hospital in Leeds, when I was given the CPAP machine. I haven't been asked to go back yet; they only gave me one spare filter. How long would you expect a mask to last and how often should I change the filter?

NB I have just order some items from your website which may help me too; the cleansing wipes, the cream to help sore skin etc and the card (in case of emergency).

 

Thank you so much for your help, glad I found you

At 6:23 on February 6, 2014, June Ostiadel said…

I almost always get off get off to sleep with no problem at all; my mask appears to fit quite well, however, after maybe two or three hours I wake up; mask leaking usually from around top of nose. Trouble is when I awake I then want the loo, anyway, I have realised that if I wipe my face and mask with a damp cloth (I have this at the side of bed) after I've done faffing, I can sometimes go back to sleep for another hour or so, but, sometimes at this time I just cannot get the mask to fit without it leaking; then I give up.

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Latest Activity

Sydney Bach is now a member of Hope2SleepGuide
10 hours ago
Alison replied to Alison's discussion Knightsbridge Chin Strap. Medium in the group Buy-Sell-Swap
"Hello All, I would still like to sell my Knightsbridge chin strap (see above for description) so reducing the price to £18 P&P included. Let me know."
18 hours ago
Mark Hunt joined The SleepGuide Crew's group
yesterday
Mark Hunt replied to JODY CROSS's discussion Selling The AirSense™ 10 AutoSet is a premium, auto-adjusting device. A host of breakthrough features, including the smart AutoSet algorithm. Designed to be intuitive and easy to use, you can simply p in the group Buy-Sell-Swap
"Hi Jody us this still available? Could you tell me exactly what it comes with an if it is My air compatible thanks."
yesterday
Catherine MacLean posted a discussion

USED Resmed F20 Medium headgear and mask

Free to someone who wants to try or has to pay for themselves.It has been used but no longer needed as I now use F30.…See More
yesterday
Profile IconCatherine MacLean and Mark Hunt joined Hope2SleepGuide
yesterday
Bev Chumbley added a discussion to the group Buy-Sell-Swap
Thumbnail

SWAP.... EVORA FULLFACE MASK CUSHIONS SIZE XS AND LARGE

Hi, I have the Evora full-face  minimal contact mask and I brought the fit pack from H2S. The are still sealed in original wrappers as the medium fits me great. So I have an XS and a Large cushions to swap for a medium if anyone is interested. See More
Friday
Bev Chumbley joined The SleepGuide Crew's group
Friday
Kath Hope replied to halfluke's discussion Medistrom Pilot and Devilbiss SleepCube
"Ha, well I'd better take the other one off stock then quick for our rental service which should be live tomorrow. Good job we found out about this though Halfluke, thanks to you. I went onto cpap . com in USA to see if we could buy some…"
Thursday
halfluke replied to halfluke's discussion Medistrom Pilot and Devilbiss SleepCube
"Wow, thank you for the thorough explanation. I didn't know that DeVilbiss stopped making CPAP machines... I recently bought a spare refurbished SleepCube (1) as the simplest and cheapest option considering I already own a Tracer battery... just…"
Thursday
Kath Hope replied to halfluke's discussion Medistrom Pilot and Devilbiss SleepCube
"Hi again Halfluke I heard back from Choice One yesterday like I knew I would as their support is fantastic, and we've heard back from them today with further help. However, I wanted us to physically test everything out before confirming to…"
Thursday
halfluke replied to halfluke's discussion Medistrom Pilot and Devilbiss SleepCube
"yes, it is a picture I found for the  DV63D-613 which is for the DeVilbiss Blue (IntelliPAP 2). What I'm thinking is that perhaps owners of the IntelliPAP 1 should use the IntelliPAP1 cable + the DV63D-613 for the IntelliPAP 2…"
Wednesday
Kath Hope replied to halfluke's discussion Medistrom Pilot and Devilbiss SleepCube
"I've sent an email Halfluke so we should hear back soon to solve this issue. I can't see the product code on the back of your image, but is it DV63D-613 which is for the DeVilbiss Blue (IntelliPAP 2). To my knowledge all…"
Tuesday
halfluke replied to halfluke's discussion Medistrom Pilot and Devilbiss SleepCube
"Thank you. I have a feeling that the answer will be that the owners of the first model of the SleepCube will have to buy the power supply of the Blue (newer model). I found the following picture that makes me think that the cable provided with the…"
Tuesday
Kath Hope replied to halfluke's discussion Medistrom Pilot and Devilbiss SleepCube
"Ah that's interesting Halfluke. I was only at the charity when it was being charged, and for that we used the power supply that I posted an image of a day or so ago from the DeVilbiss Blue (IntelliPAP 2), but I'd left when it was time to…"
Tuesday
halfluke replied to halfluke's discussion Medistrom Pilot and Devilbiss SleepCube
"Thank you Kath. Well, I don't think the problem is between the Pilot12 and the SleepCube, you should be able to connect it with one of the Output adapters of the P12MXDPLK to the 12vDC entry of the old SleepCube (see my pic: the round…"
Tuesday
Kath Hope replied to halfluke's discussion Medistrom Pilot and Devilbiss SleepCube
"Hi again Halfluke This is indeed a challenge, but I'm glad this issue came up even if you don't end up purchasing the Pilot-12 as it's important that we get to the bottom of this as there are a lot of UK sleep clinics that have…"
Tuesday
FIONA MCGRORY added 3 discussions to the group Buy-Sell-Swap
Tuesday
halfluke replied to halfluke's discussion Medistrom Pilot and Devilbiss SleepCube
"That's the problem Kath. The original SleepCube (IntelliPap 1) does not come with a power supply at all. The cable I showed goes directly into the back of the machine. My machine was bought in Italy but I simply use a socket adapter for the…"
Jun 21
Kath Hope replied to halfluke's discussion Medistrom Pilot and Devilbiss SleepCube
"Sorry for the delay Halfluke, but I've been trying to find an image of the full SleepCube cable (the bit that goes into the back of the machine) as I can see the other end of yours isn't a UK 3-pin plug. The only image I have (which we…"
Jun 20

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