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Kath Hope
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Kath Hope's Groups

Kath Hope's Discussions

Philips Respironics New Sleep Apnoea Diagnostic Service

If you snore and are tired, you could be suffering from sleep apnoea (see signs + symptoms on our website)…Continue

Started Apr 8, 2018

RAFFLE for out UK Supporters - ends Saturday 21st October 2017

We're extending our raffle to our United Kingdom Supporters *(sorry rules mean we can't share this out of…Continue

Started Oct 19, 2017

Driving with Sleep Apnoea costs unnecessary lives. Please share to raise awareness.
1 Reply

The father of Toby (the young man killed in a traffic accident) meets up with the driver responsible for his death, due to undiagnosed sleep apnoea.  Both these men live with their own horrific scars…Continue

Tags: tired, sleep-apnoea, DVLA, driving

Started this discussion. Last reply by Sleep2snore Feb 24, 2017.

Research into Snoring Children and those with Down's Syndrome

This is a fantastic opportunity for parents and carers of Children ages 3 to 4 years old (they have enough 2 year olds now) who Snore and those beautiful children with Down's Syndrome to take part in…Continue

Started Apr 1, 2016

 

Kath Hope's Page

Latest Activity

Kath Hope replied to Ruth Furniss's discussion Blocked nose
"Definitely nothing inside the humidifier chamber except plain water.  Olbas Oil on a tissue or Vicks as Eric states, and there's a more detailed article on the website here https://www.hope2sleep.co.uk/blog/cpap-masks-with-a-cold.html"
Dec 18, 2018
Kath Hope replied to Andy Falconer's discussion First night with CPAP
"Hi Andy. That's a good first night and sounding positive already. You may find your AHI comes down over the next few nights. Ideally we're looking for it to be up to 5 which is classed as 'normal.'  Your other goods will be…"
Dec 11, 2018
Kath Hope replied to Linda's discussion Do charities take new surplus CPAP masks?
"Hi Linda I just wanted to say thanks for sending us your surplus cushions and headgear.  We've already given out one of the cushions to someone who was struggling with a split cushion.  We really do appreciate this and so did the…"
Dec 3, 2018
Kath Hope replied to Judy Y's discussion Could I have developed Central Sleep Apnoea ?
"I don't think those symptoms are specific to central sleep apnoea.  Your app should tell you if those apnoeas are obstructive or  centrals.  It sometimes says 'CA.'  Sometimes when people first wake it takes a…"
Nov 27, 2018
Kath Hope replied to Linda's discussion Do charities take new surplus CPAP masks?
"Hi Linda.  Due to the way some of the manufacturer package their masks, eg multiple sizes of cushions, some clinics just hand the whole pack out to the patients, and then there are others that are more resourceful in that they take out the…"
Nov 22, 2018
Kath Hope replied to Linda's discussion Do charities take new surplus CAPD masks?
"I know exactly what you mean Linda. It's good when people purchase them when unsure of their size, but wasteful otherwise.  You can send them to our Hope2Sleep Charity who run this forum and address is on the contact…"
Nov 17, 2018
Kath Hope replied to Ruth Furniss's discussion Cold air
"Like you say yourself Ruth, warming up the bedroom will help, but also if you don't have a heated humidifier then that would help - as will covering the tube with a Hose Cover."
Oct 28, 2018
Kath Hope replied to Kyla Davies's discussion Soclean machine in the group Buy-Sell-Swap
"Oh what a shame Kyla.  We are all so different with our sensitivies to smells, as I love the clean smell after using mine.  I'd advise you edit this with the price you're looking for, to save lots of messages agreeing and…"
Oct 5, 2018
Kath Hope replied to Chris Vesey's discussion Cure for wind
"This is a common problem Sally, and especially when new to CPAP, irrespective of whatever machines people use.  It's definitely not just an Airsense 10 problem. If you've not clicked on the link I posted above in my reply to Chris…"
Sep 17, 2018
Kath Hope replied to Bob Blair's discussion So Clean sanitiser
"I'm not aware of finance, and we at the Hope2Sleep Charity certainly couldn't offer this unfortunately.  However, if you have a Paypal account then you can apply for Paypal Credit which is offered for products over £150 I…"
Sep 16, 2018
Kath Hope replied to Bob Blair's discussion So Clean sanitiser
"Great to hear this Andy Just as importantly they will help prevent gum disease from dry mouth (plus less dental bills)."
Sep 14, 2018
Kath Hope replied to Bob Blair's discussion So Clean sanitiser
"Thanks for supporting our charity with your order Andy, and they'll be sent out tomorrow.  I love the Beaumont Citrus Wipes and have tried all the others, and these are definitely the best.  I use them everyday. Hope you find the…"
Sep 11, 2018
Kath Hope replied to Bob Blair's discussion So Clean sanitiser
"The SoClean will never be supplied by the NHS as they can't afford to give out products like this.  We have the SoClean at the charity at the price we've been told it has to be sold for…"
Sep 11, 2018
Kath Hope replied to Bob Blair's discussion So Clean sanitiser
"I still haven't seen the advert Andy, but lots of people are contacting us about purchasing.  First and foremost, whether with the SoClean or not, it is important to keep our equipment cleaned.  You're doing the right thing…"
Sep 10, 2018
Kath Hope replied to ged's discussion no EPR setting REsmed S8 spirit 2 autoset
"It may be what I suspected, that it wasn't available on your international version, as I remember people complaining about it many years ago.  If it helps to know I never found EPR helpful when I was on CPAP (I'm on VPAP now). …"
Sep 5, 2018
Kath Hope replied to ged's discussion no EPR setting REsmed S8 spirit 2 autoset
"As you know Ged the S8 Spirit is an old machine, and I understand why you're loathe to give it up if your clinic supplies machines with no data.  I do recall from many years ago there was talk that the international version of the Auto…"
Sep 4, 2018

Profile Information

My Interest in Sleep Apnoea
I have Sleep Apnoea, Other
Treatment Being Used, If Any
BiPAP
If Machine Being Used, What Make? (e.g., Respironics M Series with A-Flex Auto-Adjusting CPAP)
Respironics PR One APAP
Devilbiss Sleep cube APAP (Known as Intellipap in the USA)
Respironics ASV
Resmed VPAP
If Mask Being Used, What Type? (e.g., ResMed Activa Nasal Mask)
Respironics Fit Life
Respironics Amara View
Sleepnet Hybrid
Amara Gel
Devilbiss D100
Fisher Paykel 432

(just need 2 more, than I'll have one for everyday of the week lol)

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Kath Hope's Blog

Medications Affecting Sleep

A number of drugs disrupt sleep, while others can cause daytime drowsiness. Your clinician may be able to suggest alternatives.

Medication

Used to treat

Examples

Possible effects on sleep/daytime…

Continue

Posted on October 16, 2014 at 22:27

CPAP TIPS

The following are my own tips in helping with my own treatment, and are not meant as a substitute for medical advice. However, I hope they prove useful. 



CPAP/APAP/BIPAP TOLERANCE PROBLEMS

A lot of people find it hard to tolerate their equipment at first, so it's a good idea to set it up during the day whilst relaxing, such as watching tv,…

Continue

Posted on October 25, 2011 at 20:00

Comment Wall (97 comments)

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At 15:32 on November 2, 2017, YasminVaughan said…
Hi Kath I've being using a cpap machine for over 3 years the res meds one and full mask the last few weeks I have been getting bad headaches and dried sinuses making me feel horrid . I've got pressure on 7 a wooly cover for hose humidifier, I'm running out of ideas I did use a nasal spray at nite but was told to stop this I've joined today many thanks
At 15:22 on August 23, 2014, Bernadette Plunkett said…

Hi Kath, thanks for the welcome. Having just started therapy after a 2 year struggle to get diagnosed I have a bunch of questions but I'll try to see if they've been asked and answered on the forum first before raining them down on everyone. 

At 10:26 on March 12, 2014, Amelia Kennedy said…

Thanks Kath, I'll wait until Marion's able to reply. I don't want to disturb while she's poorly - it can wait for now.  Thanks once again for your help x

At 14:01 on March 10, 2014, Amelia Kennedy said…

Hi Kath, thanks for the comment about Marion and sorry to hear she's not well.  I've added her as a friend and am waiting for her to accept.  I'm not sure where I should copy/paste my comment to her though as it already appears to be there?  I'm not familiar with the forum set-up yet - that's my excuse anyway! x

At 0:12 on March 8, 2014, Sandra Gibbens said…

Thank you for adding me, already I've received so much support and information, and it's very much appreciated!

At 15:51 on March 6, 2014, Amelia Kennedy said…

Thanks Kath!

At 15:12 on March 6, 2014, Amelia Kennedy said…

Interesting ... thanks Kath, I'll take a look.  I've also been using mine for years - 15 in fact and get along with it fine now (after a load of teething problems!).  What I do hate is the weight and bulk of it.  I'm worrying about how me and my husband can get away for a few days in the summer as he's just had his driving licence revoked due to ill-health and I can't drive.  I guess I'll be pleading with Papworth again when I go in a couple of months to test me on other (smaller) machines - usually to no avail!

At 19:57 on February 6, 2014, June Ostiadel said…

Hi Kath, thanks again for the useful info. Firstly I did wonder if it's some natural oils coming out of my skin; I always wash before bed and use no creams. You mentioned the change in temperature during the night, well, my face often gets hot and I wondered if that could cause the mask to slip as well as a drop in temp.

I clean my mask every day, wiping with a little washing up liquid then wipe/rinse with clean wet cloth.

The hospital tried me on APAP but when the pressure rose it caused leaking so they change it for me.

I have a medium size mask (the hospital fitted it) and although I have a small face I have quite a big nose lol.

I visited the sleep clinic last June/July at St James Hospital in Leeds, when I was given the CPAP machine. I haven't been asked to go back yet; they only gave me one spare filter. How long would you expect a mask to last and how often should I change the filter?

NB I have just order some items from your website which may help me too; the cleansing wipes, the cream to help sore skin etc and the card (in case of emergency).

 

Thank you so much for your help, glad I found you

At 6:23 on February 6, 2014, June Ostiadel said…

I almost always get off get off to sleep with no problem at all; my mask appears to fit quite well, however, after maybe two or three hours I wake up; mask leaking usually from around top of nose. Trouble is when I awake I then want the loo, anyway, I have realised that if I wipe my face and mask with a damp cloth (I have this at the side of bed) after I've done faffing, I can sometimes go back to sleep for another hour or so, but, sometimes at this time I just cannot get the mask to fit without it leaking; then I give up.

At 17:48 on February 5, 2014, June Ostiadel said…

Thank you Kath it's nice to be here.  I was diagnosed with Sleep Apnea about 5 months and have just about mastered the equipment, however, on some occasions I struggle and unfortunately ,I have to sleep without using the machine all night. I found this site when someone on Health Unlocked recommended it

June

 

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Latest Activity

Frances Coiwn updated their profile
Wednesday
Frances Coiwn replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Thanks for the warm welcome. Started CPAP therapy early December having been diagnosed with severe Sleep Apnea. Over the past 10 weeks or so I have slowly adapted to using CPAP, really struggleing at times with mask fit, the having the flu which…"
Tuesday
Frances Coiwn is now a member of Hope2SleepGuide
Tuesday
Edam replied to Edam's discussion APAP or BIPAP
"I checked with my hospital but they dont supply Bipap,s to outpatients so looks like Im stuck with the S9"
Feb 9
SleepyHead posted a discussion

NHS or Private to get diagnosis to determine treatment

Hi,  With the help of a hope2sleep screening test indicating I may have moderate sleep apnea, I am hopefully going to get my GP to finally agree to refer me to a sleep specialist (I have been trying for 6 months).  I have some concerns over how long…See More
Feb 9
SleepyHead replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"I've learnt a lot in a short space of time through Hope2Sleep. Look forward to joining discussions on the forum."
Feb 9
SleepyHead updated their profile
Feb 8
Bill Thomson replied to Bill Thomson's discussion ResMed DC-DC converter for S9 in the group Buy-Sell-Swap
"Item now sold"
Feb 7
Glen Vaal replied to Bill Thomson's discussion ResMed DC-DC converter for S9 in the group Buy-Sell-Swap
"I look forward to your text with payment account details. Either is Ok. I will reply with my address. Regards, Glen"
Feb 7
Bill Thomson replied to Bill Thomson's discussion ResMed DC-DC converter for S9 in the group Buy-Sell-Swap
"Glen - apologies for not replying sooner, but my phone died. I now have a temporary fix (the replacement should arrive today anyway) so I will text you. I have also sent a message via the forum, but they are limited to 200 characters."
Feb 7
SleepyHead is now a member of Hope2SleepGuide
Feb 7
Sleep2snore replied to May's discussion Alternatives to cpap
"You can buy smaller machines for travel, but they are not so adaptable. There are also MAD devices to hold your jaw forward (these tend to only work with MILD cases) and there are also tongue holding devices that hold the tongue forward, these have…"
Feb 6
Sleep2snore and Edam are now friends
Feb 6
Sleep2snore replied to Edam's discussion APAP or BIPAP
"An APAP with EPR is almost Bipap. The Sleep Centre would know from their readings if you would be better with another type of machine, if you had a home study you need to take it up with your GP and raise it with your Sleep Centre."
Feb 6
Sleep2snore replied to Edam's discussion Double inhaling
"EPR just reduces the pressure when you breathe out, this makes it easier to breathe out when on higher pressure. Current thought is that the higher setting the EPR is the higher pressure is required, however I have not found this, but it does affect…"
Feb 6
Glen Vaal replied to Bill Thomson's discussion ResMed DC-DC converter for S9 in the group Buy-Sell-Swap
"Thanks for the fast reply. On the basis that its all 100% Ok and no physical damage then I would like to proceed with the postage option at £30, please*. How would you like to proceed, presumably off the forum given we'll get…"
Feb 6
Bill Thomson replied to Bill Thomson's discussion ResMed DC-DC converter for S9 in the group Buy-Sell-Swap
"Glen, yes I still have the converter. i am in Storrington, which is roughly between Worthing and Horsham. bill"
Feb 5
Glen Vaal replied to Bill Thomson's discussion ResMed DC-DC converter for S9 in the group Buy-Sell-Swap
"Hi Bill, is the Resmed S9 DC converter still available? I'm not sure how public this reply message is - however I'll "risk" using my phone number 07487706664. I'm nr Woking, Surrey. Where are you in West…"
Feb 5
Glen Vaal joined The SleepGuide Crew's group
Feb 5
Glen Vaal is now a member of Hope2SleepGuide
Feb 5

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