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Kath Hope
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RAFFLE for out UK Supporters - ends Saturday 21st October 2017

We're extending our raffle to our United Kingdom Supporters *(sorry rules mean we can't share this out of…Continue

Started Oct 19, 2017

Driving with Sleep Apnoea costs unnecessary lives. Please share to raise awareness.
1 Reply

The father of Toby (the young man killed in a traffic accident) meets up with the driver responsible for his death, due to undiagnosed sleep apnoea.  Both these men live with their own horrific scars…Continue

Tags: tired, sleep-apnoea, DVLA, driving

Started this discussion. Last reply by Sleep2snore Feb 24, 2017.

Research into Snoring Children and those with Down's Syndrome

This is a fantastic opportunity for parents and carers of Children ages 3 to 4 years old (they have enough 2 year olds now) who Snore and those beautiful children with Down's Syndrome to take part in…Continue

Started Apr 1, 2016

Daily Mail Highlights Snoring in Women
4 Replies

I was pleased to be part of this article in the Daily Mail about snoring in women, as it was a good opportunity to raise awareness of Sleep Apnoea, which as we know affects women and children too!…Continue

Started this discussion. Last reply by Kath Hope Mar 18, 2016.

 

Kath Hope's Page

Latest Activity

Kath Hope replied to Linda's discussion Cleaning tubing
"It sounds like your house is on the cooler side Linda.  If it's just a few droplets you can put the hose onto your machine and blow the air which will probably dry it off, but a spare hose is a good idea anyway so you don't have to…"
Dec 29, 2017
Kath Hope replied to John Wilkinson's discussion My first review
"Hi John Good to hear you're feeling some benefits after just 15 days, but with you saying you've come down to an AHI of 20, as you say, that's still moderate sleep apnoea, so hopefully the clinic have adjusted the pressures and when…"
Dec 29, 2017
Kath Hope replied to Linda's discussion Cleaning tubing
"We sometimes hear of people who have difficulty getting their tubes dry.  I actually haven't noticed as I have a spare hose, so when I wash mine once a week I just put the spare one on it."
Dec 23, 2017
Kath Hope replied to Katie Ward's discussion Excess water in mask - no humidifier
"No, it's not you Katie, as we really do hear of this.  It's worth trying a hose cover as it seems to help others with the same problem.  If it doesn't cure it I would ask for a humidifier."
Dec 23, 2017
Kath Hope replied to Katie Ward's discussion Excess water in mask - no humidifier
"Hi Katie. I'm surpised the clinic haven't come across it before as we hear of it quite a bit, although it is more common when people use humidifiers. The culprit will be down to your bedroom temperature and happens when you exhale into the…"
Dec 22, 2017
Kath Hope replied to Sean Baker's discussion Sore nose bridge.
"You're welcome Sean and good luck....."
Dec 22, 2017
Kath Hope replied to Sean Baker's discussion CPAP air pressure.
"Hi Sean 12 is just an average pressure, so don't worry if it needs more to treat you well.  There doesn't appear to be a tick box for determining the correct pressure.  Some people think it depends on weight, but it…"
Dec 22, 2017
Kath Hope replied to Sean Baker's discussion Sore nose bridge.
"I have exactly the same problems as you Sean with the 'traditional' style of full face masks which is why I avoid them like the plague, except when I'm testing new ones.  People like us tend to struggle more if we have both a…"
Dec 19, 2017
Kath Hope replied to Kev Behr's discussion !2v to 24v adaptor for caravan use
"I'm no expert or power solutions, but do have a motorhome and we had a socket installed next to the bed and just use the hook up.  If you want to go off-course which we haven't done yet as still new to the motorhome, check out the…"
Dec 15, 2017
Kath Hope replied to Kev Behr's discussion Hi, newbie here
"Yes see how it goes Kev, as if you can nasal breathe at night with a nasal mask it's certainly healthier for us.  Unfortunately, I can't and need a full face mask.  If you've got the humidifier on and you're not opening…"
Dec 7, 2017
Kath Hope replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Hi Neil and welcome.  I 'hope' you finding us by accident will be the start of better health and a cease of snoring for you.  The CPAP machines are a prescription item, and you first need a referral from your GP to your local…"
Dec 6, 2017
Kath Hope replied to Kev Behr's discussion Hi, newbie here
"Welcome Kev.  It's no unusual to get different advice which can cause more confusion. Firstly, I'd comment about the fact you've had both a full face mask and a nasal one.  If you're a mouth breather and you're…"
Dec 4, 2017
Kath Hope replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Hi John and Karen. Welcome to our forum to you both. Both your stories are similar to mine.....not overweight, yet diagnosed with severe sleep apnoea, although we now know it's no way linked to weight in many of us.  I too can trace my…"
Dec 3, 2017
Kath Hope replied to Judith-Ann Wardlaw's discussion My Philips respironics is mibehaving and I am on holiday. Hoping someone can help.
"Judith, in a case like this, when you need to assess if it's actually damage or just a re-set you need, I would recommend you make a call to Philips Respironics. Tel 0800 1300 840 which is reception and  then ask to speak to the Technical…"
Nov 30, 2017
Kath Hope left a comment for YasminVaughan
"Have you remembered to turn up your humidifier now the season has changed? Another thing to try is Breathe Right Strips and perhaps a natural nasal spray like Sterimar."
Nov 2, 2017
YasminVaughan left a comment for Kath Hope
"Hi Kath I've being using a cpap machine for over 3 years the res meds one and full mask the last few weeks I have been getting bad headaches and dried sinuses making me feel horrid . I've got pressure on 7 a wooly cover for hose…"
Nov 2, 2017

Profile Information

My Interest in Sleep Apnoea
I have Sleep Apnoea, Other
Treatment Being Used, If Any
BiPAP
If Machine Being Used, What Make? (e.g., Respironics M Series with A-Flex Auto-Adjusting CPAP)
Respironics PR One APAP
Devilbiss Sleep cube APAP (Known as Intellipap in the USA)
Respironics ASV
Resmed VPAP
If Mask Being Used, What Type? (e.g., ResMed Activa Nasal Mask)
Respironics Fit Life
Respironics Amara View
Sleepnet Hybrid
Amara Gel
Devilbiss D100
Fisher Paykel 432

(just need 2 more, than I'll have one for everyday of the week lol)

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Kath Hope's Blog

Medications Affecting Sleep

A number of drugs disrupt sleep, while others can cause daytime drowsiness. Your clinician may be able to suggest alternatives.

Medication

Used to treat

Examples

Possible effects on sleep/daytime…

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Posted on October 16, 2014 at 22:27

CPAP TIPS

The following are my own tips in helping with my own treatment, and are not meant as a substitute for medical advice. However, I hope they prove useful. 



CPAP/APAP/BIPAP TOLERANCE PROBLEMS

A lot of people find it hard to tolerate their equipment at first, so it's a good idea to set it up during the day whilst relaxing, such as watching tv,…

Continue

Posted on October 25, 2011 at 20:00

Comment Wall (97 comments)

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At 15:32 on November 2, 2017, YasminVaughan said…
Hi Kath I've being using a cpap machine for over 3 years the res meds one and full mask the last few weeks I have been getting bad headaches and dried sinuses making me feel horrid . I've got pressure on 7 a wooly cover for hose humidifier, I'm running out of ideas I did use a nasal spray at nite but was told to stop this I've joined today many thanks
At 15:22 on August 23, 2014, Bernadette Plunkett said…

Hi Kath, thanks for the welcome. Having just started therapy after a 2 year struggle to get diagnosed I have a bunch of questions but I'll try to see if they've been asked and answered on the forum first before raining them down on everyone. 

At 10:26 on March 12, 2014, Amelia Kennedy said…

Thanks Kath, I'll wait until Marion's able to reply. I don't want to disturb while she's poorly - it can wait for now.  Thanks once again for your help x

At 14:01 on March 10, 2014, Amelia Kennedy said…

Hi Kath, thanks for the comment about Marion and sorry to hear she's not well.  I've added her as a friend and am waiting for her to accept.  I'm not sure where I should copy/paste my comment to her though as it already appears to be there?  I'm not familiar with the forum set-up yet - that's my excuse anyway! x

At 0:12 on March 8, 2014, Sandra Gibbens said…

Thank you for adding me, already I've received so much support and information, and it's very much appreciated!

At 15:51 on March 6, 2014, Amelia Kennedy said…

Thanks Kath!

At 15:12 on March 6, 2014, Amelia Kennedy said…

Interesting ... thanks Kath, I'll take a look.  I've also been using mine for years - 15 in fact and get along with it fine now (after a load of teething problems!).  What I do hate is the weight and bulk of it.  I'm worrying about how me and my husband can get away for a few days in the summer as he's just had his driving licence revoked due to ill-health and I can't drive.  I guess I'll be pleading with Papworth again when I go in a couple of months to test me on other (smaller) machines - usually to no avail!

At 19:57 on February 6, 2014, June Ostiadel said…

Hi Kath, thanks again for the useful info. Firstly I did wonder if it's some natural oils coming out of my skin; I always wash before bed and use no creams. You mentioned the change in temperature during the night, well, my face often gets hot and I wondered if that could cause the mask to slip as well as a drop in temp.

I clean my mask every day, wiping with a little washing up liquid then wipe/rinse with clean wet cloth.

The hospital tried me on APAP but when the pressure rose it caused leaking so they change it for me.

I have a medium size mask (the hospital fitted it) and although I have a small face I have quite a big nose lol.

I visited the sleep clinic last June/July at St James Hospital in Leeds, when I was given the CPAP machine. I haven't been asked to go back yet; they only gave me one spare filter. How long would you expect a mask to last and how often should I change the filter?

NB I have just order some items from your website which may help me too; the cleansing wipes, the cream to help sore skin etc and the card (in case of emergency).

 

Thank you so much for your help, glad I found you

At 6:23 on February 6, 2014, June Ostiadel said…

I almost always get off get off to sleep with no problem at all; my mask appears to fit quite well, however, after maybe two or three hours I wake up; mask leaking usually from around top of nose. Trouble is when I awake I then want the loo, anyway, I have realised that if I wipe my face and mask with a damp cloth (I have this at the side of bed) after I've done faffing, I can sometimes go back to sleep for another hour or so, but, sometimes at this time I just cannot get the mask to fit without it leaking; then I give up.

At 17:48 on February 5, 2014, June Ostiadel said…

Thank you Kath it's nice to be here.  I was diagnosed with Sleep Apnea about 5 months and have just about mastered the equipment, however, on some occasions I struggle and unfortunately ,I have to sleep without using the machine all night. I found this site when someone on Health Unlocked recommended it

June

 

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Latest Activity

ROBERT O'BRIEN is now a member of Hope2SleepGuide
yesterday
John Wilkinson posted a discussion

Dreamstation humidifier heated hose and simplus 'mask type' settings

Hi Everyone,I have recently purchased and started to use a heated hose with my dream station humidifier as my unheated hose used to 'bubble and gurgle' with condensation and also wet my face, even on a 2 or 3 setting and even when I used a hose…See More
yesterday
ianmcnamara replied to David Vinnicombe's discussion Mask Leaks
"Hi David, i'm also on the Airsense' 10Elite bout 3 week's and i do feel better being on it, I'm on the Full face Mask Airfit F20,  My data for mask off is nil but i must say it is a comfortable for what iv'e been…"
Monday
ianmcnamara replied to ianmcnamara's discussion ResMed AirSense 10 & F20 Face mask
"Hi thank's for reply sorry i'm late, Yeah i feel a lot better thank's by just changing from Nasal to Full face What a pleasure it is getting your head down once again Iv'e even Started to Dream Again Lol ,    …"
Monday
George replied to George's discussion Sleep Apnea and DVLA
"Hi all, I thought to update you on my progress. I have been using CPAP for a while and it is going well. I had my second visit to sleep clinic and they said I am doing really well and adjusted my pressure to bring down the AHI below 5. I sent my SL1…"
Monday
John Wilkinson replied to John Wilkinson's discussion My first review
" "
Monday
Timothy Watts is now a member of Hope2SleepGuide
Saturday
Sleep2snore replied to John Wilkinson's discussion My first review
"Hi John, Good to see you are getting to grips with your CPAP machine.  It take a while for your body to get back to a normal function after struggling against Sleep Apnoea.  You have still a bit to go to get down to where you should be,…"
Saturday
Sleep2snore replied to ianmcnamara's discussion ResMed AirSense 10 & F20 Face mask
"How is the new machine going, sounds as if you are a bit happier with it and the new mask?"
Saturday
Sleep2snore replied to David Vinnicombe's discussion Mask Leaks
"Mask leaks are a problem for most of us. The amount MyAir says leaks depends on the type of mask you have, there is an expected leak rate due to the vents on the mask itself.  This has to be expected as the machine can't tell which mask…"
Saturday
Profile IconLara and Heidi Allen joined Hope2SleepGuide
Jan 11
David Vinnicombe posted a discussion

Mask Leaks

Hi,My CPAP machine is the Resmed Autosense 10. I recently started to visit the Resmed MyAir site to check the data that my machine was sending. When I wake in the night I often notice that my mask is leaking so I have to re-adjust. On checking the…See More
Jan 6
Sleep2snore replied to ianmcnamara's discussion ResMed AirSense 10 & F20 Face mask
"If you are now on an Airsense10 Autoset you are onto a good machine, if it is the CPAP it is quite basic but from there up they are very good.  Very quiet machines in any case."
Jan 1
Sleep2snore replied to Hazel Hall's discussion Heartburn
"Some people get this and also air getting into the stomach. It may be air is getting into your stomach and you are burping it up along with some acid re-flux."
Jan 1
John Wilkinson replied to John Wilkinson's discussion My first review
"Hi Kath, Thanks for your reply. I am not sure if the clinic have adjusted the pressures on my cpap machine. I will ask when I go for my next review at the end of January. Also I have bought an insulated sleeve for my breathing tube. Hopefully…"
Jan 1
Hazel Hall posted a discussion

Heartburn

Since using my CPAP I have been getting constant heartburn during the day. I thoughf heartburn was a sypmtom of sleep apnoea, but is it also a side effect of using a CPAP machine?See More
Jan 1
ianmcnamara posted a discussion

ResMed AirSense 10 & F20 Face mask

Hi iv'e had a ResMed S8 for year's Wednesday night it burst into flames next day i'm on the phone the Lady said can i be there for 11am i was there anyway i came home with Above Machine, For Year's iv'e put up with Nasal Cones up my Nose Tape my…See More
Jan 1
Kath Hope replied to Linda's discussion Cleaning tubing
"It sounds like your house is on the cooler side Linda.  If it's just a few droplets you can put the hose onto your machine and blow the air which will probably dry it off, but a spare hose is a good idea anyway so you don't have to…"
Dec 29, 2017
Katie Ward replied to Katie Ward's discussion Excess water in mask - no humidifier
"Hi, Thanks for your replies. I have a resmed s9 escape machine, which is the one the clinic provides as standard.  I often find myself waking up with nasal drip and only really suffer dryness if I've been ill. In terms of cold room, I…"
Dec 29, 2017
Kath Hope replied to John Wilkinson's discussion My first review
"Hi John Good to hear you're feeling some benefits after just 15 days, but with you saying you've come down to an AHI of 20, as you say, that's still moderate sleep apnoea, so hopefully the clinic have adjusted the pressures and when…"
Dec 29, 2017

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