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Kath Hope
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Kath Hope's Groups

Kath Hope's Discussions

Philips Respironics New Sleep Apnoea Diagnostic Service

If you snore and are tired, you could be suffering from sleep apnoea (see signs + symptoms on our website)…Continue

Started Apr 8, 2018

RAFFLE for out UK Supporters - ends Saturday 21st October 2017

We're extending our raffle to our United Kingdom Supporters *(sorry rules mean we can't share this out of…Continue

Started Oct 19, 2017

Driving with Sleep Apnoea costs unnecessary lives. Please share to raise awareness.
1 Reply

The father of Toby (the young man killed in a traffic accident) meets up with the driver responsible for his death, due to undiagnosed sleep apnoea.  Both these men live with their own horrific scars…Continue

Tags: tired, sleep-apnoea, DVLA, driving

Started this discussion. Last reply by Sleep2snore Feb 24, 2017.

Research into Snoring Children and those with Down's Syndrome

This is a fantastic opportunity for parents and carers of Children ages 3 to 4 years old (they have enough 2 year olds now) who Snore and those beautiful children with Down's Syndrome to take part in…Continue

Started Apr 1, 2016

 

Kath Hope's Page

Latest Activity

Kath Hope replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"A belated welcome Andrew and you're definitely not alone.  It won't be long before some of your friends and family get diagnosed due to how common sleep apnoea is, and it's you who'll be helping them :)  As Jonathan has…"
Aug 13
Kath Hope replied to Eric Swindon's discussion Repeated air blowing out of mouth
"Eric, just in case, check the mask's exhale valve hasn't got stuck in an either closed or open position.  Also check your hose at both ends to see if when it twists there's a blockage.  Check there's no holes in it too.…"
Aug 4
Kath Hope replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"You could try that Maxine, but just a piece of material under the straps would at least let you know if it's the straps themselves causing the issue.  The softcap I mentioned is for using without the mask's headgear.  Good luck!…"
Jul 16
Kath Hope replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Welcome Maxine and good you got diagnosed with such a severe case.  I wonder if the itchy scalp is due to the nights being hotter at the moment or if you've washed the straps with something that's causing an allergy.  If you…"
Jul 15
Kath Hope replied to Judy Y's discussion Sleep apnoea and TMJ
"Sorry to head this Judy, and it could well be the fact that you're having to tighten the mask a little too much that's causing the jaw problems.  It could also simply be that the mask isn't suitable for you, so worth asking your…"
Apr 29
Kath Hope replied to Lee's discussion DreamWear full face
"Sorry for the delay as I managed to get myself locked out of the forum lol.  Please don't be messing with the pressures and contact your hospital if your wife has noticed you looking gray.  Perhaps go back to a different mask until…"
Mar 15
Kath Hope replied to Lee's discussion DreamWear full face
"Hi Lee.  Sorry to hear you're still having problems with masks.  It's not normal to feel there's not enough air with the DreamWear as that mask usually give people the opposite sensation of feeling more pressure than…"
Mar 13
Kath Hope replied to Lee's discussion SoClean 2
"I use both the SoClean at the DreamWear mask.  Remember the SoClean is a sanitiser rather than a cleaner, so the mask still needs cleaning of our facial oils.  I use the CPAP Mask Wipes before putting the mask, including headgear, into the…"
Feb 22
Kath Hope replied to Lee's discussion SoClean 2
"I use both the SoClean at the DreamWear mask.  Remember the SoClean is a sanitiser rather than a cleaner, so the mask still needs cleaning of our facial oils.  I use the CPAP Mask Wipes before putting the mask, including headgear, into the…"
Feb 21
Kath Hope replied to Ruth Furniss's discussion Blocked nose
"Definitely nothing inside the humidifier chamber except plain water.  Olbas Oil on a tissue or Vicks as Eric states, and there's a more detailed article on the website here https://www.hope2sleep.co.uk/blog/cpap-masks-with-a-cold.html"
Dec 18, 2018
Kath Hope replied to Andy Falconer's discussion First night with CPAP
"Hi Andy. That's a good first night and sounding positive already. You may find your AHI comes down over the next few nights. Ideally we're looking for it to be up to 5 which is classed as 'normal.'  Your other goods will be…"
Dec 11, 2018
Kath Hope replied to Linda's discussion Do charities take new surplus CPAP masks?
"Hi Linda I just wanted to say thanks for sending us your surplus cushions and headgear.  We've already given out one of the cushions to someone who was struggling with a split cushion.  We really do appreciate this and so did the…"
Dec 3, 2018
Kath Hope replied to Judy Y's discussion Could I have developed Central Sleep Apnoea ?
"I don't think those symptoms are specific to central sleep apnoea.  Your app should tell you if those apnoeas are obstructive or  centrals.  It sometimes says 'CA.'  Sometimes when people first wake it takes a…"
Nov 27, 2018
Kath Hope replied to Linda's discussion Do charities take new surplus CPAP masks?
"Hi Linda.  Due to the way some of the manufacturer package their masks, eg multiple sizes of cushions, some clinics just hand the whole pack out to the patients, and then there are others that are more resourceful in that they take out the…"
Nov 22, 2018
Kath Hope replied to Linda's discussion Do charities take new surplus CAPD masks?
"I know exactly what you mean Linda. It's good when people purchase them when unsure of their size, but wasteful otherwise.  You can send them to our Hope2Sleep Charity who run this forum and address is on the contact…"
Nov 17, 2018
Kath Hope replied to Ruth Furniss's discussion Cold air
"Like you say yourself Ruth, warming up the bedroom will help, but also if you don't have a heated humidifier then that would help - as will covering the tube with a Hose Cover."
Oct 28, 2018

Profile Information

My Interest in Sleep Apnoea
I have Sleep Apnoea, Other
Treatment Being Used, If Any
BiPAP
If Machine Being Used, What Make? (e.g., Respironics M Series with A-Flex Auto-Adjusting CPAP)
Respironics PR One APAP
Devilbiss Sleep cube APAP (Known as Intellipap in the USA)
Respironics ASV
Resmed VPAP
If Mask Being Used, What Type? (e.g., ResMed Activa Nasal Mask)
Respironics Fit Life
Respironics Amara View
Sleepnet Hybrid
Amara Gel
Devilbiss D100
Fisher Paykel 432

(just need 2 more, than I'll have one for everyday of the week lol)

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Kath Hope's Blog

Medications Affecting Sleep

A number of drugs disrupt sleep, while others can cause daytime drowsiness. Your clinician may be able to suggest alternatives.

Medication

Used to treat

Examples

Possible effects on sleep/daytime…

Continue

Posted on October 16, 2014 at 22:27

CPAP TIPS

The following are my own tips in helping with my own treatment, and are not meant as a substitute for medical advice. However, I hope they prove useful. 



CPAP/APAP/BIPAP TOLERANCE PROBLEMS

A lot of people find it hard to tolerate their equipment at first, so it's a good idea to set it up during the day whilst relaxing, such as watching tv,…

Continue

Posted on October 25, 2011 at 20:00

Comment Wall (95 comments)

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At 15:32 on November 2, 2017, YasminVaughan said…
Hi Kath I've being using a cpap machine for over 3 years the res meds one and full mask the last few weeks I have been getting bad headaches and dried sinuses making me feel horrid . I've got pressure on 7 a wooly cover for hose humidifier, I'm running out of ideas I did use a nasal spray at nite but was told to stop this I've joined today many thanks
At 15:22 on August 23, 2014, Bernadette Plunkett said…

Hi Kath, thanks for the welcome. Having just started therapy after a 2 year struggle to get diagnosed I have a bunch of questions but I'll try to see if they've been asked and answered on the forum first before raining them down on everyone. 

At 10:26 on March 12, 2014, Amelia Kennedy said…

Thanks Kath, I'll wait until Marion's able to reply. I don't want to disturb while she's poorly - it can wait for now.  Thanks once again for your help x

At 14:01 on March 10, 2014, Amelia Kennedy said…

Hi Kath, thanks for the comment about Marion and sorry to hear she's not well.  I've added her as a friend and am waiting for her to accept.  I'm not sure where I should copy/paste my comment to her though as it already appears to be there?  I'm not familiar with the forum set-up yet - that's my excuse anyway! x

At 0:12 on March 8, 2014, Sandra Gibbens said…

Thank you for adding me, already I've received so much support and information, and it's very much appreciated!

At 15:51 on March 6, 2014, Amelia Kennedy said…

Thanks Kath!

At 15:12 on March 6, 2014, Amelia Kennedy said…

Interesting ... thanks Kath, I'll take a look.  I've also been using mine for years - 15 in fact and get along with it fine now (after a load of teething problems!).  What I do hate is the weight and bulk of it.  I'm worrying about how me and my husband can get away for a few days in the summer as he's just had his driving licence revoked due to ill-health and I can't drive.  I guess I'll be pleading with Papworth again when I go in a couple of months to test me on other (smaller) machines - usually to no avail!

At 19:57 on February 6, 2014, June Ostiadel said…

Hi Kath, thanks again for the useful info. Firstly I did wonder if it's some natural oils coming out of my skin; I always wash before bed and use no creams. You mentioned the change in temperature during the night, well, my face often gets hot and I wondered if that could cause the mask to slip as well as a drop in temp.

I clean my mask every day, wiping with a little washing up liquid then wipe/rinse with clean wet cloth.

The hospital tried me on APAP but when the pressure rose it caused leaking so they change it for me.

I have a medium size mask (the hospital fitted it) and although I have a small face I have quite a big nose lol.

I visited the sleep clinic last June/July at St James Hospital in Leeds, when I was given the CPAP machine. I haven't been asked to go back yet; they only gave me one spare filter. How long would you expect a mask to last and how often should I change the filter?

NB I have just order some items from your website which may help me too; the cleansing wipes, the cream to help sore skin etc and the card (in case of emergency).

 

Thank you so much for your help, glad I found you

At 6:23 on February 6, 2014, June Ostiadel said…

I almost always get off get off to sleep with no problem at all; my mask appears to fit quite well, however, after maybe two or three hours I wake up; mask leaking usually from around top of nose. Trouble is when I awake I then want the loo, anyway, I have realised that if I wipe my face and mask with a damp cloth (I have this at the side of bed) after I've done faffing, I can sometimes go back to sleep for another hour or so, but, sometimes at this time I just cannot get the mask to fit without it leaking; then I give up.

At 17:48 on February 5, 2014, June Ostiadel said…

Thank you Kath it's nice to be here.  I was diagnosed with Sleep Apnea about 5 months and have just about mastered the equipment, however, on some occasions I struggle and unfortunately ,I have to sleep without using the machine all night. I found this site when someone on Health Unlocked recommended it

June

 

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Latest Activity

Mike Fieldhouse added a discussion to the group Buy-Sell-Swap
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CPAP Machine - ResMed AirSense 10 Autoset. Like new.

CPAP Machine - ResMed AirSense 10 Autoset. I bought this while waiting for the NHS to issue me one, it's about a 6 month wait where I live. This is the same machine that the NHS use except it automatically sets the air pressure. Everything here to…See More
Wednesday
Mike Fieldhouse joined The SleepGuide Crew's group
Wednesday
Mike Fieldhouse is now a member of Hope2SleepGuide
Wednesday
Pat Atkins is now a member of Hope2SleepGuide
Aug 14
Kath Hope replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"A belated welcome Andrew and you're definitely not alone.  It won't be long before some of your friends and family get diagnosed due to how common sleep apnoea is, and it's you who'll be helping them :)  As Jonathan has…"
Aug 13
Jonathan replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Hi Thankfully I do not suffer from claustrophobia, but I did start off (over 10 years ago) with a big bulky mask.  I soon purchased my own mask which was much more minimal.  Currently I am using a Dreamwear…"
Aug 10
mark peters replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Hi Andrew, I got my CPAP, Christmas Eve 2012 and the first time I wore my mask, my claustrophobia kicked in big time, so you have my sympathy. I ended up on sleeping tablets and I’m still on them now . It’s been the only way I’ve…"
Aug 10
Andrew Mitchell replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Hi All, Thanks for allowing me to join it is very much appreciated. I was diagnosed with sleep apnoea about 8 months ago and I received my ResMed machine about 6 weeks ago, so everything is still a bit new. I am also claustrophobic which has made…"
Aug 10
Edam replied to Edam's discussion Double inhaling
"After over 2 years of visiting the hospital and Resmed and with many posts on various forums I have found the answer. Use my inhaler 4 hours later Simple !!!"
Aug 10
Sleep2snore replied to Hazel Hall's discussion Mask
"I forgot to say that my last mask is showing signs of fatigue after a year and a half, so I got a replacement to use right away if it fails,.  I like to have a back-up."
Aug 10
Sleep2snore replied to Hazel Hall's discussion Mask
"Some manufacturers recommend replacing a mask every 6 months, but then they would wouldn't they? More money in it for them. I have had a mask for several years and as long as it is kept clean or does not go off colour it is fine. If you feel…"
Aug 10
Sleep2snore replied to Eric Swindon's discussion O.S.A. & B.H.P
"It may have affected him this way, but it may have no effect on others. Did he get medical advice before he posted this statement? If you are taking this drug and it is affecting you, go back to your doctor and get something else or get the doctors…"
Aug 10
Sleep2snore replied to Eric Swindon's discussion Repeated air blowing out of mouth
"Any improvement?"
Aug 10
Sleep2snore replied to Edam's discussion Double inhaling
"I would go for an S10 if you get offered it, it is a more compact machine."
Aug 10
Sleep2snore replied to Edam's discussion Double inhaling
"EDAM SAID:  "I have had problems with my Resmed S9 APAP staying at 20 cm for 2-3 hours at a time which wrecks me the next day." This is not the first time I have seen someone reporting a ResMed S9/S10 going to 20 and staying there! I…"
Aug 10
Profile IconPaul Bolton and Andrew Mitchell joined Hope2SleepGuide
Aug 9
Edam replied to Edam's discussion Double inhaling
"You are pretty close to say its a asthma attack"
Aug 8
Edam replied to Edam's discussion Double inhaling
"You are pretty close to say its a asthma attack"
Aug 8
Annette Pentney posted discussions
Aug 8
Eric Swindon replied to Eric Swindon's discussion Repeated air blowing out of mouth
"Thank you Kath, only just home and will do all the things you suggested well before bedtime. What you mentioned is so simple and easy, I have plenty of supplies so can replace if checks don't reveal anything and see if there is a difference.…"
Aug 4

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