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Sleep Apnoea Forum Bringing Help + Support to the Patient

Kath Hope
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Kath Hope's Groups

Kath Hope's Discussions

Philips Respironics New Sleep Apnoea Diagnostic Service

If you snore and are tired, you could be suffering from sleep apnoea (see signs + symptoms on our website)…Continue

Started Apr 8, 2018

RAFFLE for out UK Supporters - ends Saturday 21st October 2017

We're extending our raffle to our United Kingdom Supporters *(sorry rules mean we can't share this out of…Continue

Started Oct 19, 2017

Driving with Sleep Apnoea costs unnecessary lives. Please share to raise awareness.
1 Reply

The father of Toby (the young man killed in a traffic accident) meets up with the driver responsible for his death, due to undiagnosed sleep apnoea.  Both these men live with their own horrific scars…Continue

Tags: tired, sleep-apnoea, DVLA, driving

Started this discussion. Last reply by Sleep2snore Feb 24, 2017.

Research into Snoring Children and those with Down's Syndrome

This is a fantastic opportunity for parents and carers of Children ages 3 to 4 years old (they have enough 2 year olds now) who Snore and those beautiful children with Down's Syndrome to take part in…Continue

Started Apr 1, 2016

 

Kath Hope's Page

Latest Activity

Kath Hope replied to Mags's discussion Daytime Tiredness on CPAP
"Happy New Year Mags and hope things are going better now."
Jan 11
Kath Hope replied to Mags's discussion Daytime Tiredness on CPAP
"Just a thought Mags, but if the tiredness has come on you since you came off the iron/folic tablets, maybe that could be the cause?  Also a lot of people do need large doses of Vitamin D3 and I wonder if that could be affecting things now that…"
Dec 30, 2019
Kath Hope replied to Mags's discussion Daytime Tiredness on CPAP
"Are your AHI results on the CPAP 5 or below? If so, check your hose hasn't developed any little holes. Occasional mask leaks shouldn't cause this.  If all is well with your CPAP therapy and you're getting 7-9 hours sleep every…"
Dec 30, 2019
Kath Hope replied to Lee's discussion Philips Dreamstation autoset
"Sorry Lee as missed your replies, but hope things are going better for you now."
Dec 19, 2019
Kath Hope replied to Eric Swindon's discussion Extreme Dry Mouth
"Eric, do you have a humidifier for your CPAP because thi is what helps most people?  If not, then ask the sleep clinic to supply you with one. Also take a look at the Xylimelts for dry mouth which we sell at the charity as these too help a lot…"
Dec 19, 2019
Kath Hope replied to Lee's discussion Philips Dreamstation autoset
"The DreamStation should definitely not be noisy and they've particularly done some tests on this aspect and state it's quieter than Resmed.  You can see how your doing, re AHI, leaks etc on the CPAP Pro and Auto versions, but not on…"
Dec 1, 2019
Kath Hope replied to Lee's discussion Philips Dreamstation autoset
"Well I sleep next to my husband who uses the DreamStation and there's no noise at all unless he gets a mask leak.  We also don't hear of people complaining about the Resmed S9, although people who have been moved to the Airsense 10 do…"
Nov 29, 2019
Kath Hope replied to Lee's discussion Philips Dreamstation autoset
"Hi Lee I'm just trying to understand.....do you mean you're using the Resmed S9 machine now and asking whether the Philips DreamStation is less noisy?  Neither of the machines should be noisy though."
Nov 29, 2019
Kath Hope replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"A belated welcome Andrew and you're definitely not alone.  It won't be long before some of your friends and family get diagnosed due to how common sleep apnoea is, and it's you who'll be helping them :)  As Jonathan has…"
Aug 13, 2019
Kath Hope replied to Eric Swindon's discussion Repeated air blowing out of mouth
"Eric, just in case, check the mask's exhale valve hasn't got stuck in an either closed or open position.  Also check your hose at both ends to see if when it twists there's a blockage.  Check there's no holes in it too.…"
Aug 4, 2019
Kath Hope replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"You could try that Maxine, but just a piece of material under the straps would at least let you know if it's the straps themselves causing the issue.  The softcap I mentioned is for using without the mask's headgear.  Good luck!…"
Jul 16, 2019
Kath Hope replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Welcome Maxine and good you got diagnosed with such a severe case.  I wonder if the itchy scalp is due to the nights being hotter at the moment or if you've washed the straps with something that's causing an allergy.  If you…"
Jul 15, 2019
Kath Hope replied to Judy Y's discussion Sleep apnoea and TMJ
"Sorry to head this Judy, and it could well be the fact that you're having to tighten the mask a little too much that's causing the jaw problems.  It could also simply be that the mask isn't suitable for you, so worth asking your…"
Apr 29, 2019

Profile Information

Please note that if you are joining this forum just to sell CPAP equipment you have obtained you will be removed along with your posts. However, we welcome people who need support or just wish to join to chat with others so please answer the required questions before approval. It is advisable not to use you full real name on this publlic forum.
I have Sleep Apnoea, Other
Treatment Being Used, if any?
BiPAP
If Machine Being Used, What Make or Model?
Respironics PR One APAP
Devilbiss Sleep cube APAP (Known as Intellipap in the USA)
Respironics ASV
Resmed VPAP
If Mask Being Used, What Type or Name?
Respironics Fit Life
Respironics Amara View
Sleepnet Hybrid
Amara Gel
Devilbiss D100
Fisher Paykel 432

(just need 2 more, than I'll have one for everyday of the week lol)

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Medications Affecting Sleep

A number of drugs disrupt sleep, while others can cause daytime drowsiness. Your clinician may be able to suggest alternatives.

Medication

Used to treat

Examples

Possible effects on sleep/daytime…

Continue

Posted on October 16, 2014 at 22:27

CPAP TIPS

The following are my own tips in helping with my own treatment, and are not meant as a substitute for medical advice. However, I hope they prove useful. 



CPAP/APAP/BIPAP TOLERANCE PROBLEMS

A lot of people find it hard to tolerate their equipment at first, so it's a good idea to set it up during the day whilst relaxing, such as watching tv,…

Continue

Posted on October 25, 2011 at 20:00

Comment Wall (95 comments)

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At 15:32 on November 2, 2017, YasminVaughan said…
Hi Kath I've being using a cpap machine for over 3 years the res meds one and full mask the last few weeks I have been getting bad headaches and dried sinuses making me feel horrid . I've got pressure on 7 a wooly cover for hose humidifier, I'm running out of ideas I did use a nasal spray at nite but was told to stop this I've joined today many thanks
At 15:22 on August 23, 2014, Bernadette Plunkett said…

Hi Kath, thanks for the welcome. Having just started therapy after a 2 year struggle to get diagnosed I have a bunch of questions but I'll try to see if they've been asked and answered on the forum first before raining them down on everyone. 

At 10:26 on March 12, 2014, Amelia Kennedy said…

Thanks Kath, I'll wait until Marion's able to reply. I don't want to disturb while she's poorly - it can wait for now.  Thanks once again for your help x

At 14:01 on March 10, 2014, Amelia Kennedy said…

Hi Kath, thanks for the comment about Marion and sorry to hear she's not well.  I've added her as a friend and am waiting for her to accept.  I'm not sure where I should copy/paste my comment to her though as it already appears to be there?  I'm not familiar with the forum set-up yet - that's my excuse anyway! x

At 0:12 on March 8, 2014, Sandra Gibbens said…

Thank you for adding me, already I've received so much support and information, and it's very much appreciated!

At 15:51 on March 6, 2014, Amelia Kennedy said…

Thanks Kath!

At 15:12 on March 6, 2014, Amelia Kennedy said…

Interesting ... thanks Kath, I'll take a look.  I've also been using mine for years - 15 in fact and get along with it fine now (after a load of teething problems!).  What I do hate is the weight and bulk of it.  I'm worrying about how me and my husband can get away for a few days in the summer as he's just had his driving licence revoked due to ill-health and I can't drive.  I guess I'll be pleading with Papworth again when I go in a couple of months to test me on other (smaller) machines - usually to no avail!

At 19:57 on February 6, 2014, June Ostiadel said…

Hi Kath, thanks again for the useful info. Firstly I did wonder if it's some natural oils coming out of my skin; I always wash before bed and use no creams. You mentioned the change in temperature during the night, well, my face often gets hot and I wondered if that could cause the mask to slip as well as a drop in temp.

I clean my mask every day, wiping with a little washing up liquid then wipe/rinse with clean wet cloth.

The hospital tried me on APAP but when the pressure rose it caused leaking so they change it for me.

I have a medium size mask (the hospital fitted it) and although I have a small face I have quite a big nose lol.

I visited the sleep clinic last June/July at St James Hospital in Leeds, when I was given the CPAP machine. I haven't been asked to go back yet; they only gave me one spare filter. How long would you expect a mask to last and how often should I change the filter?

NB I have just order some items from your website which may help me too; the cleansing wipes, the cream to help sore skin etc and the card (in case of emergency).

 

Thank you so much for your help, glad I found you

At 6:23 on February 6, 2014, June Ostiadel said…

I almost always get off get off to sleep with no problem at all; my mask appears to fit quite well, however, after maybe two or three hours I wake up; mask leaking usually from around top of nose. Trouble is when I awake I then want the loo, anyway, I have realised that if I wipe my face and mask with a damp cloth (I have this at the side of bed) after I've done faffing, I can sometimes go back to sleep for another hour or so, but, sometimes at this time I just cannot get the mask to fit without it leaking; then I give up.

At 17:48 on February 5, 2014, June Ostiadel said…

Thank you Kath it's nice to be here.  I was diagnosed with Sleep Apnea about 5 months and have just about mastered the equipment, however, on some occasions I struggle and unfortunately ,I have to sleep without using the machine all night. I found this site when someone on Health Unlocked recommended it

June

 

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Latest Activity

Andy Newby replied to Thomas hatrick's discussion Selling Dreamstation auto CPAP machine with heated humidifier in the group Buy-Sell-Swap
"I also have one for sale if you are still looking Stella: http://hope2sleepguide.co.uk/group/buy-sell/forum/topics/dreamstation-auto-cpap-machine"
5 hours ago
Holly posted a discussion

NEWBIE STUFF

Hi guys. started CPAP 1 month ago. My AHI was 44. I have been given a dream station. Mask is ok, pressure ok. My AHI is now around 0.5 to 1. No leak.  Sleeping long periods of time and waking up 1-2 times a night ( I think this is habit). However I…See More
Thursday
Kevin Pigott posted a discussion

Dishwasher Cleaning CPAP Mask

I have just started using an Amara Gel mask. The handbook states that the mask can be washed in a dishwasher once a week using mild dishwasher detergent.Does anyone do this? What detergent do you use?Kevin.See More
Tuesday
Andy Newby added a discussion to the group Buy-Sell-Swap
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Dreamstation auto CPAP machine

Hi all,I purchased this on the 2nd of November 2019. So it's less than 3 months old. It's had maybe 20-30 sessions on it. I now have been provided with another machine, so this is surplus to requirement.Full email receipts can be provided, along…See More
Jan 12
Andy Newby joined The SleepGuide Crew's group
Jan 12
Kath Hope replied to Mags's discussion Daytime Tiredness on CPAP
"Happy New Year Mags and hope things are going better now."
Jan 11
Profile IconAndy Newby and Holly joined Hope2SleepGuide
Jan 11
Nick Wray replied to Nick Wray's discussion Philips SystemOne FOR SALE UK
Dec 31, 2019
Nick Wray posted a discussion

Philips SystemOne FOR SALE UK

Phillips Resmed S9 without the humidifier for sale UK.I cleaned it myself extensively, dissasembled it and cleaned the interior, comes with the carry case, an existing clean filter and a new sealed unused filter, a spare tube I don't need anymore…See More
Dec 31, 2019
Mags replied to Mags's discussion Daytime Tiredness on CPAP
"Thanks Kath, will see the GP in the New Year I wondered myself if it was Iron.  I find that the GP doesn't seem to know very much about OSA, and never do any checks on it."
Dec 30, 2019
Kath Hope replied to Mags's discussion Daytime Tiredness on CPAP
"Just a thought Mags, but if the tiredness has come on you since you came off the iron/folic tablets, maybe that could be the cause?  Also a lot of people do need large doses of Vitamin D3 and I wonder if that could be affecting things now that…"
Dec 30, 2019
Profile IconMargaret Taylor and Reggie15 joined Hope2SleepGuide
Dec 30, 2019
Mags replied to Mags's discussion Daytime Tiredness on CPAP
"Hi Kath thanks for your response, I have been given vitamin D tablets for a year and also a few months ago was on Iron and folic acid tablets.  I had a Overactive Thyroid in my 30s and have no thyroid so I am on Thyrioxine dailly which is…"
Dec 30, 2019
Kath Hope replied to Mags's discussion Daytime Tiredness on CPAP
"Are your AHI results on the CPAP 5 or below? If so, check your hose hasn't developed any little holes. Occasional mask leaks shouldn't cause this.  If all is well with your CPAP therapy and you're getting 7-9 hours sleep every…"
Dec 30, 2019
Mags posted a discussion

Daytime Tiredness on CPAP

I have been on CPAP therapy for 3 years, recently I am feeling very tired in the daytime.  This morning my machine showed 8 hours 28 minutes and no leaks.  Use a ResMed automatic machine and a full face mask.  An odd time if I turn in my sleep my…See More
Dec 29, 2019
Eric Swindon posted a discussion

DeVilbiss Intellipap AutoAdjust Model DV54D for sale in original travel bag

I bought this in America a few years ago and only used it for travel, it is very compact with a small footprint. It comes complete with a heated humidifier and has only 815 recorded hours. It can be used in AutoAjust or fixed pressure cpap mode, it…See More
Dec 19, 2019
Kath Hope replied to Lee's discussion Philips Dreamstation autoset
"Sorry Lee as missed your replies, but hope things are going better for you now."
Dec 19, 2019
Kath Hope replied to Eric Swindon's discussion Extreme Dry Mouth
"Eric, do you have a humidifier for your CPAP because thi is what helps most people?  If not, then ask the sleep clinic to supply you with one. Also take a look at the Xylimelts for dry mouth which we sell at the charity as these too help a lot…"
Dec 19, 2019
Jason Moore added a discussion to the group Buy-Sell-Swap
Thumbnail

Resmed S9 Autoset EPR CPAP Machine

Hi, I have a Resmed S9 Autoset EPR CPAP Machine for Sale. The unit has been cleaned inside and out, this includes the foam filters inside and has not been used since. The unit is in full working order and is ready to go. Ideal as a spare or a travel…See More
Dec 19, 2019
Profile IconGraham Smith, Mike Kent-Francis, andydis and 3 more joined Hope2SleepGuide
Dec 19, 2019

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