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Sleep Apnoea Forum Bringing Help + Support to the Patient

Kath Hope
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  • United Kingdom
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Kath Hope's Groups

Kath Hope's Discussions

Philips Respironics New Sleep Apnoea Diagnostic Service

If you snore and are tired, you could be suffering from sleep apnoea (see signs + symptoms on our website)…Continue

Started Apr 8, 2018

RAFFLE for out UK Supporters - ends Saturday 21st October 2017

We're extending our raffle to our United Kingdom Supporters *(sorry rules mean we can't share this out of…Continue

Started Oct 19, 2017

Driving with Sleep Apnoea costs unnecessary lives. Please share to raise awareness.
1 Reply

The father of Toby (the young man killed in a traffic accident) meets up with the driver responsible for his death, due to undiagnosed sleep apnoea.  Both these men live with their own horrific scars…Continue

Tags: tired, sleep-apnoea, DVLA, driving

Started this discussion. Last reply by Sleep2snore Feb 24, 2017.

Research into Snoring Children and those with Down's Syndrome

This is a fantastic opportunity for parents and carers of Children ages 3 to 4 years old (they have enough 2 year olds now) who Snore and those beautiful children with Down's Syndrome to take part in…Continue

Started Apr 1, 2016

 

Kath Hope's Page

Latest Activity

Kath Hope replied to Carys's discussion Dental Pain
"I had this same conversation with my own dentist after a tooth extraction.  My dentist also has sleep apnoea himself and said that CPAP isn't likely to cause dry socket and advised me to continue using my CPAP as good oxygen is needed for…"
10 hours ago
Profile IconLily Mae, David Anthony Burnley, Zackary Allnutt and 2 other members are attending Kath Hope's event

Hope2Sleep Charity's Free Online Webinar at Online

November 26, 2020 from 8pm to 9:30pm
All Welcome to our Hope2Sleep Charity's 1st Online WebinarClick to Register…See More
yesterday
Profile IconSteve Bacall and Rev Phil Denyer might attend Kath Hope's event

Hope2Sleep Charity's Free Online Webinar at Online

November 26, 2020 from 8pm to 9:30pm
All Welcome to our Hope2Sleep Charity's 1st Online WebinarClick to Register…See More
yesterday
Kath Hope commented on Kath Hope's event 'Hope2Sleep Charity's Free Online Webinar'
"Glad you're joining us Ken and looking forward to it, except I won't be allowed to have my hair done lol x"
Sunday
Ken1064 commented on Kath Hope's event 'Hope2Sleep Charity's Free Online Webinar'
"Looking forward to it Kath x"
Sunday
Profile IconFrank Steele and andydis are attending Kath Hope's event

Hope2Sleep Charity's Free Online Webinar at Online

November 26, 2020 from 8pm to 9:30pm
All Welcome to our Hope2Sleep Charity's 1st Online WebinarClick to Register…See More
Sunday
Kath Hope posted an event

Hope2Sleep Charity's Free Online Webinar at Online

November 26, 2020 from 8pm to 9:30pm
All Welcome to our Hope2Sleep Charity's 1st Online WebinarClick to Register…See More
Sunday
Kath Hope replied to Cazack's discussion Upper Airways Resistance Syndrome
"Sorry Cazack but only just seen you post.  The sleep study we do at the charity is very similar to the one you've already had done and in fact it's not a sleep study that can 100% diagnose UARS, but the consultant who does the studies…"
Friday
Kath Hope replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Only just seen your post Hugh, so a belated welcome to our forum, and sorry to hear it was a car accident needing you to go back onto CPAP.  On the plus side it's good you feel you can contribute to others as we're all in this…"
Nov 2
Kath Hope replied to Amanda S's discussion Which is the best sleep apnoea test?
"Yes, that would be find Amanda and I know Joseph who runs the clinic and am sure he'll be very helpful too."
Sep 2
Kath Hope replied to Amanda S's discussion Which is the best sleep apnoea test?
"Hi Amanda You don't need to start a new discussion as we're following this one fine :)  It would be worth getting your GP to refer you to Oxford as the waiting list will no doubt be long due to this pandemic so at least he'll be…"
Aug 18
Kath Hope replied to Amanda S's discussion Which is the best sleep apnoea test?
"You're welcome Amanda and ask the sleep clinic what your husband's AHI was on the sleep study.  If people are symptomatic for sleep apnoea, even in the mild criteria which is an AHI of 5-15 then they should be given a CPAP…"
Aug 15
Kath Hope replied to Holly's discussion Hot weather
"You're welcome Holly and will notice the article mentions the Silent Night Liners which helps with sweat.  I realise you probably haven't got any at the moment, but you can try making a liner from an old t-shirt (stretchy…"
Aug 8
Kath Hope replied to Stuart Adrian Gillespie's discussion I'm so worried about my Health condition and putting on weight.
"So sorry that this post got missed Stuart and was flagged up thanks to Holly's reply.  Do let us know which machine you have so we can help."
Aug 8
Kath Hope replied to Holly's discussion Hot weather
Aug 8
Kath Hope replied to Mark's discussion Help! I'm not sure where to turn anymore.
"Hi Mark Just to let you know we've replied to your email, so can you check you've received the message in case it's gone to your junk or spam by mistake. Thanks."
Aug 5

Profile Information

Treatment Being Used, if any?
BiPAP
If Machine Being Used, What Make or Model?
Respironics PR One APAP
Devilbiss Sleep cube APAP (Known as Intellipap in the USA)
Respironics ASV
Resmed VPAP
If Mask Being Used, What Type or Name?
Respironics Fit Life
Respironics Amara View
Sleepnet Hybrid
Amara Gel
Devilbiss D100
Fisher Paykel 432

(just need 2 more, than I'll have one for everyday of the week lol)

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Kath Hope's Blog

Medications Affecting Sleep

A number of drugs disrupt sleep, while others can cause daytime drowsiness. Your clinician may be able to suggest alternatives.

Medication

Used to treat

Examples

Possible effects on sleep/daytime…

Continue

Posted on October 16, 2014 at 22:27

CPAP TIPS

The following are my own tips in helping with my own treatment, and are not meant as a substitute for medical advice. However, I hope they prove useful. 



CPAP/APAP/BIPAP TOLERANCE PROBLEMS

A lot of people find it hard to tolerate their equipment at first, so it's a good idea to set it up during the day whilst relaxing, such as watching tv,…

Continue

Posted on October 25, 2011 at 20:00

Comment Wall (95 comments)

You need to be a member of Hope2SleepGuide to add comments!

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At 15:32 on November 2, 2017, YasminVaughan said…
Hi Kath I've being using a cpap machine for over 3 years the res meds one and full mask the last few weeks I have been getting bad headaches and dried sinuses making me feel horrid . I've got pressure on 7 a wooly cover for hose humidifier, I'm running out of ideas I did use a nasal spray at nite but was told to stop this I've joined today many thanks
At 15:22 on August 23, 2014, Bernadette Plunkett said…

Hi Kath, thanks for the welcome. Having just started therapy after a 2 year struggle to get diagnosed I have a bunch of questions but I'll try to see if they've been asked and answered on the forum first before raining them down on everyone. 

At 10:26 on March 12, 2014, Amelia Kennedy said…

Thanks Kath, I'll wait until Marion's able to reply. I don't want to disturb while she's poorly - it can wait for now.  Thanks once again for your help x

At 14:01 on March 10, 2014, Amelia Kennedy said…

Hi Kath, thanks for the comment about Marion and sorry to hear she's not well.  I've added her as a friend and am waiting for her to accept.  I'm not sure where I should copy/paste my comment to her though as it already appears to be there?  I'm not familiar with the forum set-up yet - that's my excuse anyway! x

At 0:12 on March 8, 2014, Sandra Gibbens said…

Thank you for adding me, already I've received so much support and information, and it's very much appreciated!

At 15:51 on March 6, 2014, Amelia Kennedy said…

Thanks Kath!

At 15:12 on March 6, 2014, Amelia Kennedy said…

Interesting ... thanks Kath, I'll take a look.  I've also been using mine for years - 15 in fact and get along with it fine now (after a load of teething problems!).  What I do hate is the weight and bulk of it.  I'm worrying about how me and my husband can get away for a few days in the summer as he's just had his driving licence revoked due to ill-health and I can't drive.  I guess I'll be pleading with Papworth again when I go in a couple of months to test me on other (smaller) machines - usually to no avail!

At 19:57 on February 6, 2014, June Ostiadel said…

Hi Kath, thanks again for the useful info. Firstly I did wonder if it's some natural oils coming out of my skin; I always wash before bed and use no creams. You mentioned the change in temperature during the night, well, my face often gets hot and I wondered if that could cause the mask to slip as well as a drop in temp.

I clean my mask every day, wiping with a little washing up liquid then wipe/rinse with clean wet cloth.

The hospital tried me on APAP but when the pressure rose it caused leaking so they change it for me.

I have a medium size mask (the hospital fitted it) and although I have a small face I have quite a big nose lol.

I visited the sleep clinic last June/July at St James Hospital in Leeds, when I was given the CPAP machine. I haven't been asked to go back yet; they only gave me one spare filter. How long would you expect a mask to last and how often should I change the filter?

NB I have just order some items from your website which may help me too; the cleansing wipes, the cream to help sore skin etc and the card (in case of emergency).

 

Thank you so much for your help, glad I found you

At 6:23 on February 6, 2014, June Ostiadel said…

I almost always get off get off to sleep with no problem at all; my mask appears to fit quite well, however, after maybe two or three hours I wake up; mask leaking usually from around top of nose. Trouble is when I awake I then want the loo, anyway, I have realised that if I wipe my face and mask with a damp cloth (I have this at the side of bed) after I've done faffing, I can sometimes go back to sleep for another hour or so, but, sometimes at this time I just cannot get the mask to fit without it leaking; then I give up.

At 17:48 on February 5, 2014, June Ostiadel said…

Thank you Kath it's nice to be here.  I was diagnosed with Sleep Apnea about 5 months and have just about mastered the equipment, however, on some occasions I struggle and unfortunately ,I have to sleep without using the machine all night. I found this site when someone on Health Unlocked recommended it

June

 

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Latest Activity

Kath Hope replied to Carys's discussion Dental Pain
"I had this same conversation with my own dentist after a tooth extraction.  My dentist also has sleep apnoea himself and said that CPAP isn't likely to cause dry socket and advised me to continue using my CPAP as good oxygen is needed for…"
10 hours ago
ianmcnamara updated their profile
21 hours ago
Profile IconLily Mae, David Anthony Burnley, Zackary Allnutt and 2 other members are attending Kath Hope's event

Hope2Sleep Charity's Free Online Webinar at Online

November 26, 2020 from 8pm to 9:30pm
All Welcome to our Hope2Sleep Charity's 1st Online WebinarClick to Register…See More
yesterday
Profile IconSteve Bacall and Rev Phil Denyer might attend Kath Hope's event

Hope2Sleep Charity's Free Online Webinar at Online

November 26, 2020 from 8pm to 9:30pm
All Welcome to our Hope2Sleep Charity's 1st Online WebinarClick to Register…See More
yesterday
Carys posted a discussion

Dental Pain

I would be grateful for any body else who has suffered from 'dry socket' after tooth extraction.  I wear a full face mask as I am a mouth breather.  I use my  CPAP every night but have had to use it for short periods or not at all for the past 10…See More
yesterday
Kath Hope commented on Kath Hope's event 'Hope2Sleep Charity's Free Online Webinar'
"Glad you're joining us Ken and looking forward to it, except I won't be allowed to have my hair done lol x"
Sunday
Ken1064 commented on Kath Hope's event 'Hope2Sleep Charity's Free Online Webinar'
"Looking forward to it Kath x"
Sunday
Profile IconFrank Steele and andydis are attending Kath Hope's event

Hope2Sleep Charity's Free Online Webinar at Online

November 26, 2020 from 8pm to 9:30pm
All Welcome to our Hope2Sleep Charity's 1st Online WebinarClick to Register…See More
Sunday
Kath Hope posted an event

Hope2Sleep Charity's Free Online Webinar at Online

November 26, 2020 from 8pm to 9:30pm
All Welcome to our Hope2Sleep Charity's 1st Online WebinarClick to Register…See More
Sunday
Kath Hope replied to Cazack's discussion Upper Airways Resistance Syndrome
"Sorry Cazack but only just seen you post.  The sleep study we do at the charity is very similar to the one you've already had done and in fact it's not a sleep study that can 100% diagnose UARS, but the consultant who does the studies…"
Friday
Sue Abson replied to Sue Abson's discussion ResMed AirSense 10 Elite CPAP machine - almost new! in the group Buy-Sell-Swap
"Hi Chris - it comes with a brand new, unopened (sealed in packaging) standard hose.  There's also a standard very slightly used hose if the buyer wants it.  "
Thursday
Chris M replied to Sue Abson's discussion ResMed AirSense 10 Elite CPAP machine - almost new! in the group Buy-Sell-Swap
"Hi, does this come with a standard or heated hose? Regards"
Thursday
Chris M joined The SleepGuide Crew's group
Thursday
Chris M is now a member of Hope2SleepGuide
Nov 18
Cazack posted a discussion

Upper Airways Resistance Syndrome

Hi, I am new to the group!I just wanted to ask for some advice if possible please.I have recently done a Philips home sleep apnoea test (as I have daytime fatigue/sleepiness and poor sleep/lots of waking/snoring. I also have a night time cough which…See More
Nov 15
Profile IconCazack and Gary Basley joined Hope2SleepGuide
Nov 11
Kath Hope replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Only just seen your post Hugh, so a belated welcome to our forum, and sorry to hear it was a car accident needing you to go back onto CPAP.  On the plus side it's good you feel you can contribute to others as we're all in this…"
Nov 2
Neil Alan Robson is now a member of Hope2SleepGuide
Nov 2
Brian Nickson is now a member of Hope2SleepGuide
Oct 25
Roger Kris joined The SleepGuide Crew's group
Oct 14

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