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Kath Hope
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  • United Kingdom
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Kath Hope's Discussions

Survey for UK CPAP Users
1 Reply

UK Members on CPAP for Sleep Apnoea Therapy Please consider spending a few minutes completing this survey for research led by the Imperial College, London who are working with some NHS Sleep…Continue

Tags: Imperial-College, Research, CPAP, Survey

Started this discussion. Last reply by Angel Eyes Feb 18, 2023.

'Rainout' - Water in the Hose and/or Mask from the CPAP Humidifier

We're having lots more queries this winter than normal at the Charity about…Continue

Started Jan 15, 2023

Hope2Sleep Charity Raffle

Only 24 hours to purchase Raffle Tickets as the draw is tomorrow (Monday 4th April), and we're looking forward to giving good news to 20 lucky winners!Tickets can be bought at…Continue

Tags: Charity, Raffle

Started Apr 3, 2022

Hope2Sleep Charity Helps with India's COVID-19 Crisis

Sorry the forum hasn't been as active as normal as all of us at the Hope2Sleep Charity have hardly had chance to breathe (except in sleep with our masks on thankfully) as we've been so busy.  We've…Continue

Tags: Ventilators, Oxygen-Concentrators, COVID-19, India

Started May 25, 2021

 

Kath Hope's Page

Latest Activity

Kath Hope replied to Becky Murkin's discussion noisy humidifier normal?
"It sounds like you're getting rainout issues (condensation) so here's an article to help with this. www.hope2sleep.co.uk/water-in-the-mask-hose-known-as-rainout"
Tuesday
Kath Hope replied to John's discussion Are resmed airsense reports really accurate?
"The o2 ring is good if you can retrieve it 😂 Yes I've seen Nick's videos and he has a lot of great content, but it doesn't mean everything is 100% correct (same for us all as we just try our best with the knowledge we have).…"
Feb 1
Kath Hope replied to John's discussion Are resmed airsense reports really accurate?
"The hospitals see far more than we see on the app in their clinical software, and do bear in mind that it's the opinion of a Youtuber you must have seen, as sleep professionals worldwide have used their software for many years, and…"
Feb 1
Kath Hope replied to Alex Lalvani's discussion NHS waiting time for CPAP machine - can anyone beat this?
"Good to hear Alex, and tell them you're willing to take a cancellation at short notice and it might be less 🙏"
Jan 25
Kath Hope replied to Alex Lalvani's discussion NHS waiting time for CPAP machine - can anyone beat this?
"Sorry to hear this Alex, and that does sound like a long wait for severe sleep apnoea. The problem has been due to a worldwide CPAP shortage so this is happening at a lot of clinics. Take a look at nearby clinics on this link but you'd need to…"
Jan 25
Kath Hope replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"We hear you Dave and empathise, as it's not 'normal' tiredness that comes with untreated sleep apnoea. Once you're on good CPAP treatment every night and for 7-9 hours of continuous sleep you'll start to feel better though.…"
Jan 8
Kath Hope replied to Leoni Atkins's discussion Using CPAP during and after COVID and a chest infection
"You're welcome Leoni and hope you're better soon x"
Jan 2
Kath Hope replied to Leoni Atkins's discussion Using CPAP during and after COVID and a chest infection
"Hi Leoni Although it's challenging, it's always advisable to use CPAP with a cold or chest infection as sleep apnoea is usually worse at these times, and also having good oxygen levels helps with a quicker recovery. The only thing, along…"
Jan 2
Kath Hope replied to James Bryson's discussion Amara View Compatibility with NHS provided Dreamstation 2
"There's just one more thought I had if my previous suggestion doesn't solve it.......If by chance your clinic supplied you with a slimmer 12mm hose then a mask adapter is needed. However, you should already have one that you've been…"
Dec 22, 2023
Kath Hope replied to James Bryson's discussion Amara View Compatibility with NHS provided Dreamstation 2
"Hi David Please always contact us at the charity direct for any problem with orders as we can help you much quicker. The Amara View definitely works with your DreamStation 2 and what has probably happened, is that the adapter from the end of your…"
Dec 22, 2023
Kath Hope replied to Jim Scullion's discussion Resmed Airsense 10 Humidifier
"You're very welcome Jim and I can honestly say I'd struggle without the hose lift and have one permanently in my suitcase as it comes everywhere with me. It has other uses too (less mask leaks from the hose dragging)."
Sep 19, 2023
Kath Hope replied to Jim Scullion's discussion Resmed Airsense 10 Humidifier
"This in-depth article should help you on our website https://www.hope2sleep.co.uk/water-in-the-mask-hose-known-as-rainout.html"
Sep 19, 2023
Kath Hope replied to Jim Scullion's discussion Resmed Airsense 10 Humidifier
"Yes, definitely ask for a humidifier Jim. In the meantime the XyliMelts work really well for most of us with a dry mouth and some of us use both https://www.hope2sleep.co.uk/xylimelts-dry-mouth-discs.html"
Sep 3, 2023
Kath Hope replied to Paula Brocklesby's discussion What Fantastic Service
"Aw thanks Paula, and I too am very relieved you'll soon be on the CPAP therapy your poor body desperately needs - especially due to the severity of your sleep apnoea and very low oxygen desaturations. I will look forward to hearing how you get…"
Jul 7, 2023
Kath Hope replied to Alexander Fryatt's discussion Sell CPAP machine
"You can advertise it in our Buy/Sell/Swap Group here on the forum Alexander http://hope2sleepguide.co.uk/group/buy-sell We've had to make the group private as we were getting bombarded with dodgy dealers trying to sell machines."
Jun 2, 2023
Kath Hope replied to John Kemp's discussion Pillows that might help - not CPAP
"Sorry your post was overlooked. No advice regarding a pillow, except to make sure it's not too high or firm to cause your neck to drop which can block your airways more. Was the sleep study one with breathing cannulas, or just a pulse oximeter…"
May 2, 2023

Profile Information

Treatment Being Used, if any?
BiPAP
If Machine Being Used, What Make or Model?
Respironics PR One APAP
Devilbiss Sleep cube APAP (Known as Intellipap in the USA)
Respironics ASV
Resmed VPAP
If Mask Being Used, What Type or Name?
Respironics Fit Life
Respironics Amara View
Sleepnet Hybrid
Amara Gel
Devilbiss D100
Fisher Paykel 432

(just need 2 more, than I'll have one for everyday of the week lol)

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Kath Hope's Blog

Medications Affecting Sleep

A number of drugs disrupt sleep, while others can cause daytime drowsiness. Your clinician may be able to suggest alternatives.

Medication

Used to treat

Examples

Possible effects on sleep/daytime…

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Posted on October 16, 2014 at 22:27

CPAP TIPS

The following are my own tips in helping with my own treatment, and are not meant as a substitute for medical advice. However, I hope they prove useful. 



CPAP/APAP/BIPAP TOLERANCE PROBLEMS

A lot of people find it hard to tolerate their equipment at first, so it's a good idea to set it up during the day whilst relaxing, such as watching tv,…

Continue

Posted on October 25, 2011 at 20:00

Comment Wall (96 comments)

You need to be a member of Hope2SleepGuide to add comments!

Join Hope2SleepGuide

At 15:28 on February 12, 2021, Sue Abson said…

Hi Kath - I've made my profile private to friends only, so that Sarah's number shouldn't now be public.  But how do you delete a comment?  I can't see a way of deleting my own? 

At 15:32 on November 2, 2017, YasminVaughan said…
Hi Kath I've being using a cpap machine for over 3 years the res meds one and full mask the last few weeks I have been getting bad headaches and dried sinuses making me feel horrid . I've got pressure on 7 a wooly cover for hose humidifier, I'm running out of ideas I did use a nasal spray at nite but was told to stop this I've joined today many thanks
At 15:22 on August 23, 2014, Bernadette Plunkett said…

Hi Kath, thanks for the welcome. Having just started therapy after a 2 year struggle to get diagnosed I have a bunch of questions but I'll try to see if they've been asked and answered on the forum first before raining them down on everyone. 

At 10:26 on March 12, 2014, Amelia Kennedy said…

Thanks Kath, I'll wait until Marion's able to reply. I don't want to disturb while she's poorly - it can wait for now.  Thanks once again for your help x

At 14:01 on March 10, 2014, Amelia Kennedy said…

Hi Kath, thanks for the comment about Marion and sorry to hear she's not well.  I've added her as a friend and am waiting for her to accept.  I'm not sure where I should copy/paste my comment to her though as it already appears to be there?  I'm not familiar with the forum set-up yet - that's my excuse anyway! x

At 0:12 on March 8, 2014, Sandra Gibbens said…

Thank you for adding me, already I've received so much support and information, and it's very much appreciated!

At 15:51 on March 6, 2014, Amelia Kennedy said…

Thanks Kath!

At 15:12 on March 6, 2014, Amelia Kennedy said…

Interesting ... thanks Kath, I'll take a look.  I've also been using mine for years - 15 in fact and get along with it fine now (after a load of teething problems!).  What I do hate is the weight and bulk of it.  I'm worrying about how me and my husband can get away for a few days in the summer as he's just had his driving licence revoked due to ill-health and I can't drive.  I guess I'll be pleading with Papworth again when I go in a couple of months to test me on other (smaller) machines - usually to no avail!

At 19:57 on February 6, 2014, June Ostiadel said…

Hi Kath, thanks again for the useful info. Firstly I did wonder if it's some natural oils coming out of my skin; I always wash before bed and use no creams. You mentioned the change in temperature during the night, well, my face often gets hot and I wondered if that could cause the mask to slip as well as a drop in temp.

I clean my mask every day, wiping with a little washing up liquid then wipe/rinse with clean wet cloth.

The hospital tried me on APAP but when the pressure rose it caused leaking so they change it for me.

I have a medium size mask (the hospital fitted it) and although I have a small face I have quite a big nose lol.

I visited the sleep clinic last June/July at St James Hospital in Leeds, when I was given the CPAP machine. I haven't been asked to go back yet; they only gave me one spare filter. How long would you expect a mask to last and how often should I change the filter?

NB I have just order some items from your website which may help me too; the cleansing wipes, the cream to help sore skin etc and the card (in case of emergency).

 

Thank you so much for your help, glad I found you

At 6:23 on February 6, 2014, June Ostiadel said…

I almost always get off get off to sleep with no problem at all; my mask appears to fit quite well, however, after maybe two or three hours I wake up; mask leaking usually from around top of nose. Trouble is when I awake I then want the loo, anyway, I have realised that if I wipe my face and mask with a damp cloth (I have this at the side of bed) after I've done faffing, I can sometimes go back to sleep for another hour or so, but, sometimes at this time I just cannot get the mask to fit without it leaking; then I give up.

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Latest Activity

jjimjam updated their profile
Wednesday
Kath Hope replied to Becky Murkin's discussion noisy humidifier normal?
"It sounds like you're getting rainout issues (condensation) so here's an article to help with this. www.hope2sleep.co.uk/water-in-the-mask-hose-known-as-rainout"
Tuesday
Becky Murkin posted a discussion

noisy humidifier normal?

Hello,I have an air sense 10 auto.When I have the humidifier and the heated tube plugged in it makes a sort of drumming noise. Like that at the gallows in films.Is this normal? It wakes me up  and I have to give up and switch off  for the night.See More
Tuesday
John posted a discussion

Dentists in Hull that know about Mewing ?

I was wondering if there are any dentists in Hull who know about John & Mike Mew, and changing jaw shape over time?I could add that I saw an ENT consultant recently and she said jaw shape, malocclusion, is genetic, which has become a debatable…See More
Apr 9
Profile IconKaren Mcleod, Fiona Watson, Teresa Hobbs and 5 more joined Hope2SleepGuide
Apr 3
Jonathan replied to John's discussion Airsense 10 -humidifier runs dry
"I did replace the tank in my SleepCube, and had to regularly take the silicone sealing gasket out and give it a goof clean, but not infrequently found it standing in a pool of water in the morning.  The machine sat on a tray because of…"
Mar 26
John posted a discussion

Nasal valve collapse

Does anyone have any experience of nasal valve collapse?Wondering if I have this but I don't know what the norm is.Been trying widgets that hold the nose open and it's like night and day.See More
Mar 24
John replied to John's discussion Airsense 10 -humidifier runs dry
"Wow it's the other way round for me.I found with the Sleepcube I'd often have a good bit of water still there in the morning. Today I woke up with a dry tank on the Resmed again and it's not on full heat or flow. I got it on 6…"
Mar 24
Becky Murkin posted a discussion

F20 AirFit small marking bridge of nose

Please help or give advice all wise people on here.I have had the Resmed F20 AirFit small mask for over a month. Seals yet…See More
Mar 19
Frances Knight replied to Frances Knight's discussion Air Sense 10 - changing pressure settings
"A very helpful reply Jonathan. I found the pressure setting for the full face mask to be too high when I changed to a nasal mask, but perhaps I should have persisted? I'll try again and I'll also discuss with the clinic whether an APAP…"
Mar 13
Jonathan replied to Frances Knight's discussion Air Sense 10 - changing pressure settings
"Ramble alert!  My history is that I spent part of each week at a different location, so bought a second machine identical to my fixed pressure NHS machine and set it up to match using the clinician menu.  This was a very long time…"
Mar 12
Frances Knight replied to Frances Knight's discussion Air Sense 10 - changing pressure settings
"Thanks Jonathan - I had seen the YouTube video. My question is really about the experience of people who have control of their pressure settings, for example those people who have bought their machines directly and not obtained them through an NHS…"
Mar 12
Jonathan replied to Frances Knight's discussion Air Sense 10 - changing pressure settings
"This is NOT a recommendation http://www.youtube.com/watch?v=VNUWhd2UgQM"
Mar 11
Frances Knight posted a discussion

Air Sense 10 - changing pressure settings

I have been successfully using my air sense 10 since OSA diagnosis, and my AHI is now under 2. I had an appointment with my clinic this week and have been told there is no need for further appointments and just to contact them if I need supplies or…See More
Mar 11
Swen Greve is now a member of Hope2SleepGuide
Mar 4
Jonathan replied to Sue Reeves's discussion A few questions..
"If you have a helpful GP, I would ask them to re-refer you to the sleep clinic."
Mar 3
Sue Reeves posted a discussion

A few questions..

A quick bit of backgroundDiagnosed with OSA about 7/8 years ago by my local sleep clinic and given a F &P Icon CPAP.  After a couple of follow-up appts to sort out any issues, I was sent on my merry way. I have had no further face to face…See More
Mar 3
Jonathan replied to John's discussion Airsense 10 -humidifier runs dry
"I previously had a DeVilbiss Sleepcube and the dehumidifier did sometimes run dry.  On the other hand I now have an AirSense 10 and it never runs dry, and I've had the humidity turned up high."
Feb 26
John posted a discussion

Airsense 10 -humidifier runs dry

Hi. I'm finding the Airsense 10 the hospital gave me, the humidifier chamber runs dry. It's not even on max settings, which I'm guessing would empty it a lot quicker. Seems like a big design oversight to me. Does anyone else have this trouble? The…See More
Feb 26
David Hudson posted a discussion

Decline in hearing

HiI have regular, well yearly check ups at work. One being a hearing test. Since having my cpap machine my hearing has declined rapidly in 1 ear.....could this be as a result of pressure? I believe I'm on 15cm p max h2o. I just use a nasal…See More
Feb 26

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