"I put in a claim for PIP which was denied and now I am over 66 and on pension I tried for AA. Denied again.I have other health conditions ( Diverticular disease and Bile Acid Malabsorbtion ) which I consider hard to live with and they refused all of…"
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Jim Scullion
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Jim Scullion's Discussions
UK Attendance Allowance
2 Replies
Does anyone know if Obstructive Sleep Apnoea can be the basis for a claim for attendance allowance in the UK?Continue
Started this discussion. Last reply by Tracey Tilley May 14.
Resmed Airsense 10 Humidifier
7 Replies
The NHS sleep clinic has provided me with a Resmed Airsense 10 Cpap machine with no humidifier tank. I'm having problems with a very dry mouth and throat. Should I ask the clinic to provide a tank? Continue
Started this discussion. Last reply by John Jan 12, 2024.
Jim Scullion's Page
Latest Activity
"My sleep apnoea just requires me to pop a mask on before I go to bed. But your circumstances may be different."
UK Attendance Allowance
Does anyone know if Obstructive Sleep Apnoea can be the basis for a claim for attendance allowance in the UK?See More
"A hose lift - I will have to look into that because I get the gurgling too.Another thing I get is whistling mask which drives me mad. On high humidity condensation builds up on the small vent holes on the front of the mask.One trick I used is to…"
"You're very welcome Jim and I can honestly say I'd struggle without the hose lift and have one permanently in my suitcase as it comes everywhere with me. It has other uses too (less mask leaks from the hose dragging)."
"Thank you so much once again Kath. That's extremely helpful. I've ordered a hose lift."
"This in-depth article should help you on our website https://www.hope2sleep.co.uk/water-in-the-mask-hose-known-as-rainout.html"
"An update on this. I got a humidifier tank from the clinic, and I bought a heated hose to suit the ResMed Airsense 10. On the default humidity setting of 4 I still get a dry mouth and throat. If I set it above 4 I don't get the dryness, but I…"
"Thank you. I'll do that."
"Yes, definitely ask for a humidifier Jim. In the meantime the XyliMelts work really well for most of us with a dry mouth and some of us use both https://www.hope2sleep.co.uk/xylimelts-dry-mouth-discs.html"
Resmed Airsense 10 Humidifier
The NHS sleep clinic has provided me with a Resmed Airsense 10 Cpap machine with no humidifier tank. I'm having problems with a very dry mouth and throat. Should I ask the clinic to provide a tank? See More
Profile Information
- Treatment Being Used, if any?
- CPAP, Auto-Adjusting CPAP
- If Machine Being Used, What Make or Model?
- Resmed Airsense 10
- If Mask Being Used, What Type or Name?
- Full face
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Latest Activity
"Hi
The SleepCube was a private purchase, as way back then my local sleep clinic assessed patients by filming them overnight, whilst wearing an oximeter, and only issued CPAP machines without humidifiers. There was no remote monitoring and…"
"Yeah I was wondering about email address. I thought probably if they wanted me to mail them they would have given out an address. I can imagine heart data is considered more acute than sleep data, so it would make more sense to have that…"
"Hi.
I didn't use PatientsKnowBest (ironic name), but I have an email address for my heart department for sending in ECGs. I was just saying that they may be able to review a PDF when then cannot review a data file from your O2 ring.
I am…"
"Hi Jonathan, did you do that through PatientKnowsBest?"
"On an unrelated topic, I've been able to send ECGs by PDF to my heart clinic.
On the subject of Resmed and apnoeas, take a look at https://youtu.be/ufOOAfyzZso?si=Tpdl4EEiCQBZR4iD&t=276
Your machine may be under-reporting.
Good…"
Wellu O2 Ring - is it accurate enough for the medics?
Moving some furniture my long lost O2 ring continuous oxygen saturation monitor turned up. So I've been wearing it and it tells me I have loads of saturation drops during the night even though my Airsense 10 says I have very few apneas.So I get two…See More
"Hi,
Just thought I'd give an update. So, I had my appointment with the NHS sleep clinic which was much quicker than I anticipated and I've now had the overnight sleep study. My AHI is now 6, down from over 30, so I'm…"
"Hi Sally from what I read the airsense doesn't suffer the same foam degredation issues as the infamous Phillips machine.I can conceive it's possible that microplastics may be shed from the flexible main tube.What worries me more about the…"
"Hi
My sleep clinic discharged me, saying they were happy I was self-managing. Roll on a decade and the cardiologists taking care of me were very unimpressed and I was re-enrolled. I expect remote monitoring with current generation Resmed…"
"Hi Jonathan,
Thanks again for the info. My cpap *should* be monitored by the NHS though I haven’t had any contact from them since pre-covid. I checked out the link you gave to access extra data and I think that’s going to be…"
"Hi
I have the ResMed Airsense 10 Autoset (APAP). It's monitored remotely by my NHS sleep clinic and I believe they can make changes to the settings. I don't know whether they are notified if I make changes, nor whether they…"
"Hi Jonathan,
Thanks for the reply. I'd say that I'm fairly technical. I have the ResMed Airsense 10 Elite machine. I've discovered that I can upload data wirelessly from my machine and having lowered the pressure by…"
"Hi
You don't say how technical you are, or what sort of machine you use. However https://www.sleephq.com/ has software which allows you to upload data from compatible machines, and analyse your sleep "score", including a…"
air bubbles after weight loss
Hi,I've been on Mounjaro for about 3 months now, not primarily for weight loss, but I have lost weight around my face and neck. I've noticed that I am increasingly getting air bubbles in my mouth which of course is disturbing my sleep (and my…See More
Micro plastics risks
I was reading an article in the I newspaper today written by a journalist who had her blood tested for micro plastics and was shocked by the results.…See More
job with the charity
Was wondering if there might be a job for me with Hope2Sleep?(I also just asked this of a group by mistake)See More
For Sale - Ventura Full Total Face CPAP Mask
I’m selling an Ventura Full Total Face CPAP Mask Large and two spare liners. I bought it new from the Hope2Sleep shop, but it is not suitable for me. Only used for about two weeks so I have washed it thoroughly. Because of this, it is very much…See More
"I put in a claim for PIP which was denied and now I am over 66 and on pension I tried for AA. Denied again.I have other health conditions ( Diverticular disease and Bile Acid Malabsorbtion ) which I consider hard to live with and they refused all of…"
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