"Glad to hear you are settling into APAP machine Damien...it did sound preferable to CPAP ones.The more I use my oximeter as I wake up during sleep I think I’m discovering my problem with low oxygen seems to be only in the morning as I snooze,…"
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Damien's Discussions
Newly diagnosed via Phillips at home test and needing advice
12 Replies
Hi all,I have recently been diagnosed with OSA via home test i paid for privately with Phillips and looking at some advice to get treated in the UK via NHS, private, or by sorting myself. I have…Continue
Started this discussion. Last reply by Judith Wilson Mar 13, 2021.
Damien's Page
Latest Activity
"Hi Judith,
sorry to hear you are struggling. I’ve been using my apap since Tuesday and noticed some small improvements but i think i’ll need to up the pressure to get AHI lower as although its much lower than my test result i’m…"
"Thank you Kath, yes I suspected Lung/Sleep folks had been commandeered’ to covid, but this seems to include appointment staff too! Although I’d love a remedy ( no matter how partial) to my existing conditions I am a bit fearful of the…"
"Hi Judith
Sorry to hear there's such a long waiting list in your area. It's been made worse because a lot of staff from the sleep clinics are respiratory specialists and these are the very professionals who were needed in ICU and on…"
"Sorry I missed this question Damien but I've spoken to you since at the charity and know you should have the machine by now. Hope things are going well."
"I am rather like Damien. Got a referral to Lung/Sleep consultant but no appointments in nhs for at least 10 months. Ordered the charities two night monitoring kit to test for sleep apnoea, but will this count as diagnosis to get prescription if I…"
"Hi Kathy,
i bit the bullet the other day and just ordered the apap.
What is the usual waiting time for order and delivery completion in mainland UK? thanks
damien "
"Bless you and do understand, now you've got a diagnosis with 'hope' in sight for an end, or at least vast improvements, to your symptoms. We got some more machines ordered today, although only one APAP without a humifidier...the…"
"Hi Kath,
I’m just holding off to see final sight of my insurance docs and to speak to them (on the very unlikely chance they can do anything) but it does look like it will be excluded so will likely buy the apap this week and then see ENT…"
"Agree Damien, that although 14.6 is classed as mild (on the border of moderate though) I'd want that AHI and spo2 treating asap and especially if symptomatic.
I'm not sure why you'd wait for recommendation from ENT though re CPAP when…"
"Hi Kath,
Many thanks for your reply.
My diagnosis was mild at 14.6 AHI but that included a sp02 nadir of 82% and some events lasting up to 90 seconds so i certainly don't feel its mild!
I managed to get through to the clinic today who said it…"
"Hi and welcome Damien
What were the results of your sleep study....mild, moderate or severe sleep apnoea? You're right that most private insurance doesn't cover sleep apnoea, although will sometimes pay for an initial…"
Newly diagnosed via Phillips at home test and needing advice
Hi all,I have recently been diagnosed with OSA via home test i paid for privately with Phillips and looking at some advice to get treated in the UK via NHS, private, or by sorting myself. I have never felt rested in the morning and people have always commented i’d toss and turn and hold breathe in night (even during the day too). I have nasal issues which are to investigated which are likely to be nasal polyps and deviated septum which are known to exasperate any issues with OSA. About 3 years…See More
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Latest Activity
"It's very much still relevant and we're getting closer to have them manufactured and has been no easy challenge. In fact we were speaking with the company working with us on this only yesterday. If you're not on our newsletter list…"
"I expect others may have responded by now, but I use the Fitlife full face mask. I kept getting a hard lump on my nose when first starting out & it got so bad that I ended up buying my own masks as my clinic would only give the Fitlife to new…"
"Yes, it does the job. I use a Powapacs Atom for portable power "
"Hi Nick thanks. Does it do the job and could you camp with it?"
CPAP Total Face Mask
I was curious whether anyone has used the CPAP Total Face Masks and could pass on their observations? I've been using an Airfit F20 for years which is fine apart from the permanent red mark on the bridge of my nose, and have recently tried the…See More
"I've been using the Resmed Airmini for about 5 years when travelling - overall lightweight and small and can be controlled by an App, but it does produce a loud whistling/wind sound for me which hasn't been reduced by an inline filter or…"
"Hi
It sounds like you need to have more conversations with your sleep clinic. There's little point in having a high pressure if it means you cannot tolerate the machine. There's an interesting video here…"
Pressure waking me up. Belching and wind
HiI'm using the prisma smart max machine. Initially I was just on a nasal mask, this changed as I was sleeping with my mouth open. I then went to face and nose mask and complained of bad wind and belching. Sometimes the pressure in the night was…See More
"Just to tidy this up, I finally had an in-person review by my sleep clinic yesterday, who agreed the ResMed AirSense 10 was "wheezy" and replaced the machine."
"thank you jonathan,i did get the it pack so tried the small and still struggled but i was sat up in bed so will try lying down great suggestion "
"Hi
My first thought is "don't panic"! We're all a bit different, and there are many things that can be tweaked. I took to CPAP therapy like a duck to water, but I've had friends who say they can't cope, but…"
1st time and I’ve failed the mask leak test
Hi everyone, today I received my rental kit - prisma smart max, plus a Philips dreamwear mask which I’ve been wearing unconnected to try and get used to it. I just did a mask fit test using a medium mask and got a constant red/orange leak warning…See More
Are every small CPAP machines any good?
Travel sized, micro - any good?See More
"Ha well it lasted a couple of days but started howling again. But it's a step in the right direction, just needs a bit more work."
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