"Glad to hear you are settling into APAP machine Damien...it did sound preferable to CPAP ones.The more I use my oximeter as I wake up during sleep I think I’m discovering my problem with low oxygen seems to be only in the morning as I snooze,…"
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Damien's Discussions
Newly diagnosed via Phillips at home test and needing advice
12 Replies
Hi all,I have recently been diagnosed with OSA via home test i paid for privately with Phillips and looking at some advice to get treated in the UK via NHS, private, or by sorting myself. I have…Continue
Started this discussion. Last reply by Judith Wilson Mar 13, 2021.
Damien's Page
Latest Activity
"Hi Judith,
sorry to hear you are struggling. I’ve been using my apap since Tuesday and noticed some small improvements but i think i’ll need to up the pressure to get AHI lower as although its much lower than my test result i’m…"
"Thank you Kath, yes I suspected Lung/Sleep folks had been commandeered’ to covid, but this seems to include appointment staff too! Although I’d love a remedy ( no matter how partial) to my existing conditions I am a bit fearful of the…"
"Hi Judith
Sorry to hear there's such a long waiting list in your area. It's been made worse because a lot of staff from the sleep clinics are respiratory specialists and these are the very professionals who were needed in ICU and on…"
"Sorry I missed this question Damien but I've spoken to you since at the charity and know you should have the machine by now. Hope things are going well."
"I am rather like Damien. Got a referral to Lung/Sleep consultant but no appointments in nhs for at least 10 months. Ordered the charities two night monitoring kit to test for sleep apnoea, but will this count as diagnosis to get prescription if I…"
"Hi Kathy,
i bit the bullet the other day and just ordered the apap.
What is the usual waiting time for order and delivery completion in mainland UK? thanks
damien "
"Bless you and do understand, now you've got a diagnosis with 'hope' in sight for an end, or at least vast improvements, to your symptoms. We got some more machines ordered today, although only one APAP without a humifidier...the…"
"Hi Kath,
I’m just holding off to see final sight of my insurance docs and to speak to them (on the very unlikely chance they can do anything) but it does look like it will be excluded so will likely buy the apap this week and then see ENT…"
"Agree Damien, that although 14.6 is classed as mild (on the border of moderate though) I'd want that AHI and spo2 treating asap and especially if symptomatic.
I'm not sure why you'd wait for recommendation from ENT though re CPAP when…"
"Hi Kath,
Many thanks for your reply.
My diagnosis was mild at 14.6 AHI but that included a sp02 nadir of 82% and some events lasting up to 90 seconds so i certainly don't feel its mild!
I managed to get through to the clinic today who said it…"
"Hi and welcome Damien
What were the results of your sleep study....mild, moderate or severe sleep apnoea? You're right that most private insurance doesn't cover sleep apnoea, although will sometimes pay for an initial…"
Newly diagnosed via Phillips at home test and needing advice
Hi all,I have recently been diagnosed with OSA via home test i paid for privately with Phillips and looking at some advice to get treated in the UK via NHS, private, or by sorting myself. I have never felt rested in the morning and people have always commented i’d toss and turn and hold breathe in night (even during the day too). I have nasal issues which are to investigated which are likely to be nasal polyps and deviated septum which are known to exasperate any issues with OSA. About 3 years…See More
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Latest Activity
"It sounds like you're getting rainout issues (condensation) so here's an article to help with this.
www.hope2sleep.co.uk/water-in-the-mask-hose-known-as-rainout"
noisy humidifier normal?
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Dentists in Hull that know about Mewing ?
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Nasal valve collapse
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F20 AirFit small marking bridge of nose
Please help or give advice all wise people on here.I have had the Resmed F20 AirFit small mask for over a month. Seals yet…See More
"A very helpful reply Jonathan. I found the pressure setting for the full face mask to be too high when I changed to a nasal mask, but perhaps I should have persisted?
I'll try again and I'll also discuss with the clinic whether an APAP…"
"Ramble alert! My history is that I spent part of each week at a different location, so bought a second machine identical to my fixed pressure NHS machine and set it up to match using the clinician menu. This was a very long time…"
"Thanks Jonathan - I had seen the YouTube video. My question is really about the experience of people who have control of their pressure settings, for example those people who have bought their machines directly and not obtained them through an NHS…"
"This is NOT a recommendation
http://www.youtube.com/watch?v=VNUWhd2UgQM"
Air Sense 10 - changing pressure settings
I have been successfully using my air sense 10 since OSA diagnosis, and my AHI is now under 2. I had an appointment with my clinic this week and have been told there is no need for further appointments and just to contact them if I need supplies or…See More
"If you have a helpful GP, I would ask them to re-refer you to the sleep clinic."
A few questions..
A quick bit of backgroundDiagnosed with OSA about 7/8 years ago by my local sleep clinic and given a F &P Icon CPAP. After a couple of follow-up appts to sort out any issues, I was sent on my merry way. I have had no further face to face…See More
"I previously had a DeVilbiss Sleepcube and the dehumidifier did sometimes run dry. On the other hand I now have an AirSense 10 and it never runs dry, and I've had the humidity turned up high."
Airsense 10 -humidifier runs dry
Hi. I'm finding the Airsense 10 the hospital gave me, the humidifier chamber runs dry. It's not even on max settings, which I'm guessing would empty it a lot quicker. Seems like a big design oversight to me. Does anyone else have this trouble? The…See More
Decline in hearing
HiI have regular, well yearly check ups at work. One being a hearing test. Since having my cpap machine my hearing has declined rapidly in 1 ear.....could this be as a result of pressure? I believe I'm on 15cm p max h2o. I just use a nasal…See More
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