"i'm rather late to the conversation, but i was in almost the same situation.
I did manage to get an nhs sleep study, but my numbers were under their threshold. Hardly surprising as i didn't actually sleep during the night. So I got a…"
Sleep Apnoea Forum Bringing Help + Support to the Patient
-
Natalie Gray
- Female
- Mansfield
- United Kingdom
- Kath's Apnoea Blog
- Discussions (4)
- Events
- Groups
- Sleep Apnoea Photos
- Photo Albums
- Sleep Apnoea Videos
Natalie Gray's Discussions
Been declined Nhs treatment
9 Replies
Hi. I did a home sleep study privately which showed I have moderate sleep apnoea. That wasn’t really a surprise as I snore terribly and my partner tells me that I stop breathing. According to the…Continue
Started this discussion. Last reply by Richard King May 17, 2023.
Natalie Gray's Page
Latest Activity
"So I’ve been turned down again. I asked about a different Trust and was told that they would turn me down too as I’m not tired during the day. He’s right, I’m not tired during the day however I don’t fancy the…"
"Philips don't have a service at the moment Michael but hoping to set it up again soon."
"If no other hospital, I am sure the Philips service is CQC and NHS registered. Your GP could refer if the local CCG approves funding.
Hope you get sorted."
"I had a private assessment so I already know that I have a moderate AHI. I don’t need another assessment but I think the hospital will probably want me to. Ideally I’d just join a list for cpap as recommended on my report but I…"
"Hi,
I had the same problem in that I was not a priority to be screened because my Epworth Score was low but was an epic snorer! I waited 26 months before seeing a specialist.
You have an option to be preferred to another “provider” or…"
"Hi,
Thank you for your reply. That is so frustrating. My partner would certainly disagree that I’m asymptomatic! I will wait and hear what my gp says once he has heard back from them again.
Many thanks"
"Hi Natalie
This frustration is more common than you think as there are still some clinics that accept referrals based on the Epworth Sleepiness Score. The current NICE guidelines (due to be updated this August) state that patients with…"
Been declined Nhs treatment
Hi. I did a home sleep study privately which showed I have moderate sleep apnoea. That wasn’t really a surprise as I snore terribly and my partner tells me that I stop breathing. According to the results I stop breathing 21 times an hour. For background, my dad has sleep apnoea and a range of cardiac and blood pressure problems that he has been told are likely related. I don’t have any other issues and I am not tired during the day. My gp referred me but has rang today to say the referral is…See More
Profile Information
- Treatment Being Used, if any?
- No treatment
- If Machine Being Used, What Make or Model?
- None
- If Mask Being Used, What Type or Name?
- None
Comment Wall
- No comments yet!
About
Sleep Apnoea Forum
New to the Sleep Apnoea Forum?
1. Stop by our Sleep Apnoea Welcome Center to introduce yourself to the SleepGuide community.
2. Start a New Topic of Conversation.
3. Post your photos - of yourself, your old CPAP machine, your new CPAP machine, your pet, something about you!
Interested in advertising, have a problem or need to contact us? Click the Report an Issue page.
Latest Activity
"Yes, it does the job. I use a Powapacs Atom for portable power "
"Hi Nick thanks. Does it do the job and could you camp with it?"
CPAP Total Face Mask
I was curious whether anyone has used the CPAP Total Face Masks and could pass on their observations? I've been using an Airfit F20 for years which is fine apart from the permanent red mark on the bridge of my nose, and have recently tried the…See More
"I've been using the Resmed Airmini for about 5 years when travelling - overall lightweight and small and can be controlled by an App, but it does produce a loud whistling/wind sound for me which hasn't been reduced by an inline filter or…"
"Hi
It sounds like you need to have more conversations with your sleep clinic. There's little point in having a high pressure if it means you cannot tolerate the machine. There's an interesting video here…"
Pressure waking me up. Belching and wind
HiI'm using the prisma smart max machine. Initially I was just on a nasal mask, this changed as I was sleeping with my mouth open. I then went to face and nose mask and complained of bad wind and belching. Sometimes the pressure in the night was…See More
"Just to tidy this up, I finally had an in-person review by my sleep clinic yesterday, who agreed the ResMed AirSense 10 was "wheezy" and replaced the machine."
"thank you jonathan,i did get the it pack so tried the small and still struggled but i was sat up in bed so will try lying down great suggestion "
"Hi
My first thought is "don't panic"! We're all a bit different, and there are many things that can be tweaked. I took to CPAP therapy like a duck to water, but I've had friends who say they can't cope, but…"
1st time and I’ve failed the mask leak test
Hi everyone, today I received my rental kit - prisma smart max, plus a Philips dreamwear mask which I’ve been wearing unconnected to try and get used to it. I just did a mask fit test using a medium mask and got a constant red/orange leak warning…See More
Are every small CPAP machines any good?
Travel sized, micro - any good?See More
"Ha well it lasted a couple of days but started howling again. But it's a step in the right direction, just needs a bit more work."
"Nope, I just accept that some people's throats tend to close when they sleep, due to a loss of muscle tone during deeper sleep. Back when I was diagnosed, the sleep lab just filmed you whilst you slept, stuck an O2 meter on your finger,…"
"Did anyone tell you exactly what the anatomical issue is, Jonathan?"
"Can't say I know about this."
"So I tore some fabric from one of the filters and glued it over the holes - and it worked!It was dead quiet, and the air was still flowing freely.It was quiet all night then after a few hours a bit of whistling until I gave it a wipe.Vast…"
© 2024 Created by The SleepGuide Crew.
Powered by
