"i'm rather late to the conversation, but i was in almost the same situation.
I did manage to get an nhs sleep study, but my numbers were under their threshold. Hardly surprising as i didn't actually sleep during the night. So I got a…"
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Natalie Gray
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Been declined Nhs treatment
9 Replies
Hi. I did a home sleep study privately which showed I have moderate sleep apnoea. That wasn’t really a surprise as I snore terribly and my partner tells me that I stop breathing. According to the…Continue
Started this discussion. Last reply by Richard King May 17, 2023.
Natalie Gray's Page
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"So I’ve been turned down again. I asked about a different Trust and was told that they would turn me down too as I’m not tired during the day. He’s right, I’m not tired during the day however I don’t fancy the…"
"Philips don't have a service at the moment Michael but hoping to set it up again soon."
"If no other hospital, I am sure the Philips service is CQC and NHS registered. Your GP could refer if the local CCG approves funding.
Hope you get sorted."
"I had a private assessment so I already know that I have a moderate AHI. I don’t need another assessment but I think the hospital will probably want me to. Ideally I’d just join a list for cpap as recommended on my report but I…"
"Hi,
I had the same problem in that I was not a priority to be screened because my Epworth Score was low but was an epic snorer! I waited 26 months before seeing a specialist.
You have an option to be preferred to another “provider” or…"
"Hi,
Thank you for your reply. That is so frustrating. My partner would certainly disagree that I’m asymptomatic! I will wait and hear what my gp says once he has heard back from them again.
Many thanks"
"Hi Natalie
This frustration is more common than you think as there are still some clinics that accept referrals based on the Epworth Sleepiness Score. The current NICE guidelines (due to be updated this August) state that patients with…"
Been declined Nhs treatment
Hi. I did a home sleep study privately which showed I have moderate sleep apnoea. That wasn’t really a surprise as I snore terribly and my partner tells me that I stop breathing. According to the results I stop breathing 21 times an hour. For background, my dad has sleep apnoea and a range of cardiac and blood pressure problems that he has been told are likely related. I don’t have any other issues and I am not tired during the day. My gp referred me but has rang today to say the referral is…See More
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"I would always be guided by Dr Vik Veer, who is the UK's leading ENT surgeon specialising in snoring, sleep apnoea and UARS. He doesn't say the exercises will cure moderate to severe sleep apnoea, but can help by strengthening the airway…"
"Good info thanks. I personally prefer nasal strips though."
A tale of two nasal dilators
Trying to get my nose to stay open, I've been experimenting with nasal dilators.So far I tried two types.- Generic tubes from ebay, 50p each- Fancy Airmax £10Both are moulded silicon rubber.I would say the packaging for the Airmax, which is really…See More
"Dab hand with a sewing machine :) The "stethoscope" pipes were detachable with a bit of careful persuasion."
"How did you fasten it?I suppose you could do it with tape or elastic bands. Cut up an old fleece jacket, wrap it round the tube, strap it up, bit of velcro. That sort of thing. I hadn't really thought of that."
"Come to think of it you could likely double up a hose cozy, one over another.This is a piece of N95 face mask I used for high grade filtration. I just put it where the filter usually goes.This is around 6 months dirt I would say, thereabouts. I used…"
"Neat clip for your hose!
I used to use the Respironics Comfort Curve one of the best masks ever, now discontinued of course. With its stethoscope-style tubing, I had to make my own fleecy cover."
"Oh cool. Did you do any other DIY mods?I made a clamped strap to go on the headboard and lift the tube. Just a spare c-clamp with a bit of nylon strap and a clip but works well."
"Yes, I bought some fleecy material and made my own "snuggle hose" 10+ years ago. "
"Did you try a sleeve for the tube, Jonathan? For rain out? I got one off ebay for a few quid and I think it helps. It's a fleece sleeve you zip over the main tube."
Oropharyngeal exercises
I asked medics at the Castle Hill CPAP clinic about tongue and throat exercises. They said no evidence, and it can't work anyway because the muscles fully relax during sleep.Yet I'm watching Vik Veer, head of ENT at a London hospital, offer evidence…See More
"Well I found out what the norm was by asking my doctor to do the Cottle maneuver on herself, and she said there was no difference with and without.Whereas for me it's massively different.The Cottle maneuver is where you pull the skin by the…"
"It's a suspiciously round number I wonder how they arrived at it?I asked the People at Castle Hill and they didn't really enlighten me on it, but I was told that it's normal for people to have apnoeas, which I didn't know.I…"
"An apnoea or hypopnoea of less than 10 seconds won't be reported as an event, in the same way they're not reported on a sleep study, as that's the cut-off point."
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