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Sleep Apnoea Forum Bringing Help + Support to the Patient

Sleep Apnoea (773)

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Welcome to our Forum - Feel Free to Introduce Yourself Here.

Welcome to the Hope2SleepGuide Forum, which is a service run by the Hope2Sleep Charity founded by Kath Hope with a marvellous team of trust…

Started by The SleepGuide CrewLatest Reply

Discussions Replies Latest Activity

Welcome to our Forum - Feel Free to Introduce Yourself Here.

Welcome to the Hope2SleepGuide Forum, which is a service run by the Hope2Sleep Charity founded by Kath Hope with a marvellous team of trust…

Started by The SleepGuide Crew

708 Mar 23
Reply by Kath Hope

Newly diagnosed via Phillips at home test and needing advice

Hi all, I have recently been diagnosed with OSA via home test i paid for privately with Phillips and looking at some advice to get treated…

Started by Damien

12 Mar 13
Reply by Judith Wilson

Sleep disorder following mini stroke

Hi Kath and everybody. My name is Raza and am new to this forum. It feels really good to sound out people who have first hand experience of…

Started by Raza silveira

5 Mar 1
Reply by Kath Hope

Face mask marks

My hubby was having problems with his resmed mask leaving marks. He now uses large black out silk sleep masks which are not so thick to sto…

Started by Sarah

0 Feb 12

Newly diagnosed not sure what happens next - Scottish NHS

Hi, Firstly my names Mark and I am totally alien to all of this. I had a sleep test done by the Scottish NHS about 14 weeks ago, after wait…

Started by ScottishSleepyHead

3 Jan 15
Reply by Kath Hope

Upper Airways Resistance Syndrome

Hi, I am new to the group! I just wanted to ask for some advice if possible please. I have recently done a Philips home sleep apnoea test…

Started by Cazack

2 Dec 6, 2020
Reply by Cazack

Ear ache

Hi all I have recently been diagnosed with severe sleep apnoea and have been using CPAP treatment for about 3 months. Up to about two weeks…

Started by Gary

0 Nov 25, 2020

Dental Pain

I would be grateful for any body else who has suffered from 'dry socket' after tooth extraction.  I wear a full face mask as I am a mouth b…

Started by Carys

1 Nov 24, 2020
Reply by Kath Hope

Which is the best sleep apnoea test?

This is my first post and I am very grateful to have found this forum. My husband was tested for sleep apnoea  using a home test on the NH…

Started by Amanda S

10 Sep 2, 2020
Reply by Kath Hope

Having major trouble and getting very frustrated trying to use CPAP machine - help?

I have, for a number of years, had problems sleeping. Although I'd (most of the time) sleep for a normal amount of time (7-9 hours), I'd fr…

Started by thatbloke

11 Aug 16, 2020
Reply by Sleep2snore

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Latest Activity

Drew Siegert is now a member of Hope2SleepGuide
Monday
Linda updated their profile
Sunday
Profile IconPaula Tanner and Steve Ward joined Hope2SleepGuide
Saturday
Janet Martin is now a member of Hope2SleepGuide
Apr 4
Lynda smith is now a member of Hope2SleepGuide
Mar 31
Kath Hope replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Hi Booksy This is a great 1st night's result regarding already feeling the benefits of CPAP.   It's absolutely normal to get a few teething problems at first but if you feel the air pressure is still too low contact your sleep…"
Mar 23
Sleep2snore replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
Mar 23
Sleep2snore replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Either they have not set your minimum pressure and the machine is slowly finding the level you require, or they have not set up a minimum pressure. I don't know how or if they set your machine up, but my mate got one and under Covid rules they…"
Mar 23
Booksy replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Hi Everyone, I’m 50 and was diagnosed last month with moderate sleep apnea with a score of 28. Last night was my first night with my cpap machine and mask. I slept a whole 8 hours without waking! I also feel quite a bit brighter and less foggy…"
Mar 23
Mr Matt Boadle is now a member of Hope2SleepGuide
Mar 21
Judith Wilson replied to Damien's discussion Newly diagnosed via Phillips at home test and needing advice
"Glad to hear you are settling into APAP machine Damien...it did sound preferable to CPAP ones.The more I use my oximeter as I wake up during sleep I think I’m discovering my problem with low oxygen seems to be only in the morning as I snooze,…"
Mar 13
Damien replied to Damien's discussion Newly diagnosed via Phillips at home test and needing advice
"Hi Judith, sorry to hear you are struggling. I’ve been using my apap since Tuesday and noticed some small improvements but i think i’ll need to up the pressure to get AHI lower as although its much lower than my test result i’m…"
Mar 13
Judith Wilson replied to Damien's discussion Newly diagnosed via Phillips at home test and needing advice
"Thank you Kath, yes I suspected Lung/Sleep folks had been commandeered’ to covid, but this seems to include appointment staff too! Although I’d love a remedy ( no matter how partial) to my existing conditions I am a bit fearful of the…"
Mar 10
Kath Hope replied to Damien's discussion Newly diagnosed via Phillips at home test and needing advice
"Hi Judith Sorry to hear there's such a long waiting list in your area.  It's been made worse because a lot of staff from the sleep clinics are respiratory specialists and these are the very professionals who were needed in ICU and on…"
Mar 10
Kath Hope replied to Damien's discussion Newly diagnosed via Phillips at home test and needing advice
"Sorry I missed this question Damien but I've spoken to you since at the charity and know you should have the machine by now.  Hope things are going well."
Mar 10
Judith Wilson replied to Damien's discussion Newly diagnosed via Phillips at home test and needing advice
"I am rather like Damien. Got a referral to Lung/Sleep consultant but no appointments in nhs for at least 10 months. Ordered the charities two night monitoring kit to test for sleep apnoea, but will this count as diagnosis to get prescription if I…"
Mar 10
Judith Wilson is now a member of Hope2SleepGuide
Mar 10
Damien replied to Damien's discussion Newly diagnosed via Phillips at home test and needing advice
"Hi Kathy, i bit the bullet the other day and just ordered the apap. What is the usual waiting time for order and delivery completion in mainland UK? thanks  damien "
Mar 4
Kath Hope replied to Damien's discussion Newly diagnosed via Phillips at home test and needing advice
"Bless you and do understand, now you've got a diagnosis with 'hope' in sight for an end, or at least vast improvements, to your symptoms.  We got some more machines ordered today, although only one APAP without a humifidier...the…"
Mar 2
Damien replied to Damien's discussion Newly diagnosed via Phillips at home test and needing advice
"Hi Kath, I’m just holding off to see final sight of my insurance docs and to speak to them (on the very unlikely chance they can do anything) but it does look like it will be excluded so will likely buy the apap this week and then see ENT…"
Mar 2

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