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Jim Scullion
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  • Ayr
  • United Kingdom
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Jim Scullion's Discussions

UK Attendance Allowance
1 Reply

Does anyone know if Obstructive Sleep Apnoea can be the basis for a claim for attendance allowance in the UK?Continue

Started this discussion. Last reply by Jonathan Sep 16.

Resmed Airsense 10 Humidifier
7 Replies

The NHS sleep clinic has provided me with a Resmed Airsense 10 Cpap machine with no humidifier tank. I'm having problems with a very dry mouth and throat. Should I ask the clinic to provide a tank? Continue

Started this discussion. Last reply by John Jan 12.

 

Jim Scullion's Page

Latest Activity

Jonathan replied to Jim Scullion's discussion UK Attendance Allowance
"My sleep apnoea just requires me to pop a mask on before I go to bed.  But your circumstances may be different."
Sep 16
Jim Scullion posted a discussion

UK Attendance Allowance

Does anyone know if Obstructive Sleep Apnoea can be the basis for a claim for attendance allowance in the UK?See More
Sep 14
John replied to Jim Scullion's discussion Resmed Airsense 10 Humidifier
"A hose lift - I will have to look into that because I get the gurgling too.Another thing I get is whistling mask which drives me mad. On high humidity condensation builds up on the small vent holes on the front of the mask.One trick I used is to…"
Jan 12
Kath Hope replied to Jim Scullion's discussion Resmed Airsense 10 Humidifier
"You're very welcome Jim and I can honestly say I'd struggle without the hose lift and have one permanently in my suitcase as it comes everywhere with me. It has other uses too (less mask leaks from the hose dragging)."
Sep 19, 2023
Jim Scullion replied to Jim Scullion's discussion Resmed Airsense 10 Humidifier
"Thank you so much once again Kath. That's extremely helpful. I've ordered a hose lift."
Sep 19, 2023
Kath Hope replied to Jim Scullion's discussion Resmed Airsense 10 Humidifier
"This in-depth article should help you on our website https://www.hope2sleep.co.uk/water-in-the-mask-hose-known-as-rainout.html"
Sep 19, 2023
Jim Scullion replied to Jim Scullion's discussion Resmed Airsense 10 Humidifier
"An update on this. I got a humidifier tank from the clinic, and I bought a heated hose to suit the ResMed Airsense 10. On the default humidity setting of 4 I still get a dry mouth and throat. If I set it above 4 I don't get the dryness, but I…"
Sep 19, 2023
Jim Scullion replied to Jim Scullion's discussion Resmed Airsense 10 Humidifier
"Thank you. I'll do that."
Sep 3, 2023
Kath Hope replied to Jim Scullion's discussion Resmed Airsense 10 Humidifier
"Yes, definitely ask for a humidifier Jim. In the meantime the XyliMelts work really well for most of us with a dry mouth and some of us use both https://www.hope2sleep.co.uk/xylimelts-dry-mouth-discs.html"
Sep 3, 2023
Jim Scullion posted a discussion

Resmed Airsense 10 Humidifier

The NHS sleep clinic has provided me with a Resmed Airsense 10 Cpap machine with no humidifier tank. I'm having problems with a very dry mouth and throat. Should I ask the clinic to provide a tank? See More
Sep 2, 2023
Jim Scullion is now a member of Hope2SleepGuide
Aug 28, 2023

Profile Information

Treatment Being Used, if any?
CPAP, Auto-Adjusting CPAP
If Machine Being Used, What Make or Model?
Resmed Airsense 10
If Mask Being Used, What Type or Name?
Full face

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Latest Activity

Jonathan replied to Collette rose's discussion 1st time and I’ve failed the mask leak test
"Hi My first thought is "don't panic"!  We're all a bit different, and there are many things that can be tweaked.  I took to CPAP therapy like a duck to water, but I've had friends who say they can't cope, but…"
3 hours ago
Collette rose posted a discussion

1st time and I’ve failed the mask leak test

Hi everyone, today I received my rental kit - prisma smart max, plus a Philips dreamwear mask which I’ve been wearing unconnected to try and get used to it. I just did a mask fit test using a medium mask and got a constant red/orange leak warning…See More
8 hours ago
Collette rose is now a member of Hope2SleepGuide
Thursday
John posted a discussion
Wednesday
Profile IconBill Wright, Nicole Watson, TJ Bennett and 2 more joined Hope2SleepGuide
Tuesday
John replied to John's discussion evil mask noise
"Ha well it lasted a couple of days but started howling again. But it's a step in the right direction, just needs a bit more work."
Oct 24
Jonathan replied to John's discussion Has anyone been told root cause of their OSA?
"Nope, I just accept that some people's throats tend to close when they sleep, due to a loss of muscle tone during deeper sleep.  Back when I was diagnosed, the sleep lab just filmed you whilst you slept, stuck an O2 meter on your finger,…"
Oct 24
Jonathan replied to John's discussion evil mask noise
"Good to know you found a solution!"
Oct 24
John replied to John's discussion Has anyone been told root cause of their OSA?
"Did anyone tell you exactly what the anatomical issue is, Jonathan?"
Oct 21
John replied to Jonathan's discussion ResMed AirSense 10 getting noisy
"Can't say I know about this."
Oct 20
John replied to John's discussion evil mask noise
"So I tore some fabric from one of the filters and glued it over the holes - and it worked!It was dead quiet, and the air was still flowing freely.It was quiet all night then after a few hours a bit of whistling until I gave it a wipe.Vast…"
Oct 19
John replied to John's discussion evil mask noise
"Hi Jonathan, well see my nose is blocked a lot, so I mouth breath which really sucks a lot more moisture and makes my mouth dry. So I put humidity on maximum, which makes for condensation at the mask end, which becomes a demonic reed instrument.Now…"
Oct 17
Jonathan posted a discussion

ResMed AirSense 10 getting noisy

HelloI have an NHS issued ResMed AirSense 10 with heated humidifier.  In the last couple of weeks, it's developed an annoying noise, when I inhale. It bothers me a little and my partner a lot! I sometimes get problems if the water container in the…See More
Oct 16
Jonathan replied to John's discussion evil mask noise
"Hi My first question is why is condensation forming?  I very occasionally get some condensation, may be once a month, but I can quickly run a finger around the inside of the mask, and wipe it away.  I use a nasal mask, with the humidifier…"
Oct 16
John replied to John's discussion What's a good Apnea forum?
"11K+? Ok that's probably where I should look then :-)"
Oct 16
Kath Hope replied to John's discussion What's a good Apnea forum?
"Hi John. Thanks for the compliment as I do my best popping on here, but it's difficult due to us now supporting 25k+ patients at the charity. To be honest, the forum is quiet because most people seem to prefer Facebook and forums aren't as…"
Oct 16
John posted discussions
Oct 16
Jonathan replied to John's discussion Has anyone been told root cause of their OSA?
"There's some information here, but generally it's very common and likely due to our anatomy."
Oct 12
John replied to John's discussion A tale of two nasal dilators
"I've found they get lost easy. The Airmax one is £10, lasted a couple of weeks before disappearing.The white ones are quite cheap, work out about 50p each off Ebay.I was wanting to experiment with making a mould and crafting my own…"
Oct 7
John posted a discussion

Has anyone been told root cause of their OSA?

Hi, I'm having trouble getting diagnoses for anything from the NHS recently. A pressing one being what exactly causes my apnea.Is it like this for everyone or do some people get told what is the specific physical problem and root cause?See More
Oct 7

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