Apnea reading

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Permalink Reply by Margaret Ward on November 25, 2011 at 8:27

Thanks for your comment and am pleased to see your great results. Mine is obstructive and I have only been on the machine for just over 2 weeks.  I am struggling a bit with it, but do already feel better than I did.  I am hoping also that my results are good at my review in 3 months.

Terry Vella said:

Mine was 30 and after 6 months of CPAP, I'm down to 3.1 and most of those left are Centrals. I do know someone that was 120 per hour he is overweight and has had a heart attack and bypass. Margaret are yours Obstructive or Central or both and have you commenced treatment? If so, it will be interesting to see what they are after 3-6 months.

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Permalink Reply by Margaret Ward on November 25, 2011 at 8:28

Thanks for that.  A weight loss  would be an added plus - will keep you informed.

Rosemary Kemp said:

Hi Margaret,

 

When I was diagnosed they told me that they stopped counting at 30 times per hour but that I was at the highest end of 30 to 100 times per hour. I have since lost eight stone and my health is much better three years into treatment. The cpap and apap treatment isn't exactly foolproof even now but I registered 7 apnoeas for the whole night last time it was measured. Stay with the treatment and do what you can. Best of luck.

Rosemary   

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Permalink Reply by Margaret Ward on November 25, 2011 at 8:29

Brilliant!!!

paula jones said:

My Apnea's where 60 times an Hour,  Dont have them anymore since Cpap but im no more awake for it, x x x

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Permalink Reply by Margaret Ward on November 25, 2011 at 8:30

That is reassuring - thanks

Helen said:

My reading was 76 per hour on my first sleep study.  I started using CPAP in August and feel so much better. Still early days for me, my machine pressure is still very high which I am told I need.

 

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Permalink Reply by Margaret Ward on November 25, 2011 at 8:33

I have only been on CPAP for just over 2 weeks but feel much less sleepy.  I do hope it kicks in for you soon too x

paula jones said:

My Apnea's where 60 times an Hour,  Dont have them anymore since Cpap but im no more awake for it, x x x

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Permalink Reply by Terry Vella on November 25, 2011 at 19:54

Margaret, which part are you struggling with, the CPAP consept itself or the equipment i.e. mask leaks etc.

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Permalink Reply by Carolyn Tipping on November 26, 2011 at 0:48

 I started on 34 ahi.I am down to around 19-22. I go to clinic on friday so i'll see what my next move is.

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Permalink Reply by Margaret Ward on November 27, 2011 at 16:11

Hi

Not struggling with the machine but I find the masks ( I have tried 2) very uncomfortable and easily leak if I move around too much.  I do sleep but in 1 hour/1 and a half hour sessions.
Terry Vella said:

Margaret, which part are you struggling with, the CPAP consept itself or the equipment i.e. mask leaks etc.

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Permalink Reply by Rosemary Kemp on November 27, 2011 at 21:02

Have you got a hose lift Margaret? The hose moves better when it is high up and the mask tends to leak less. The hose lift can be bought on Hope2sleep and I reckon it is the cleverest gadget I have ever bought. Not too expensive either. If you already have one and it isn't helping, you might find that a better pillow arrangement may help too. If you have your head in a reasonably comfortable position you tend to move less (I think) and then the risk of leakage is reduced. This is a really difficult thing to come to terms with. Just keep trying to adjust the mask straps. The cream also helps me. There is this special moisturising cream that doesn't damage the mask but seems to make the seal better next to the face. I also struggled like this for a long time and even now there are bad nights. It has become easier after three years and lots of different masks. I think we all find we have favourite masks but the favourite mask changes from week to week for me! Keep on experimenting and be brave.  

Keep on talking to us all.

Rosemary   

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Permalink Reply by Helen on November 27, 2011 at 21:11

Hi Margaret,

 

I am on my 4th mask - full comfort gel.  I was reluctant to try it but find it has a better fit.  I find it does leak sometimes as I move about a lot and sleep on my side (I used to sleep  on my back but trained myself over the years not to!).  I cleanse my face and mask just before I fit it to ensure there is no grease on my skin.  I usually get a good 6 hours sleep now and sometimes even 8 - I am amazed!!

I'm only 3 months into this and find it is still trial and error.  I am fortunate in that my hospital, Salford Royal,  have allowed me to try so many masks and that they have the variety they do!  

Keep at it and read up on this site - I have found it invaluable and Kath Hope is just fantastic to speak to.  She is very helpful and supportive and reading the forum is reassuring that everyone here has been where we are now!

Take each night as it comes and know it does get better!

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Permalink Reply by Terry Vella on November 27, 2011 at 22:18

Maragret, Rosemary is right about the Hose lift,it has helped my leaks dramatically, also try mask liners there are different types, I bought a 6 pack of RemZzz's and now make my own. Also, as dicussed try different pillow positions, I have mine horizontal rather than vertical so if I roll onto either side, there is less pillow to knock the mask. I don't think you mentioned the type of mask you are currently trialing, but keep trying them until you get one that suits. I eventually found the Resmed Mirage Quattro full face best for me as I am a mouth breather but everybody is different and have different facial features. It is frustrating going through all this but it is worth it in the end, it took me about 6 months to get it fairly right but some nights I still have problems.

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Permalink Reply by Rosemary Kemp on November 27, 2011 at 22:31

I forgot to mention the liners Terry. They are good and really do help to stop the leaks. I also made my own for a while when the leaks were really bad. I bought cotton lawn (I think that is the spelling) on ebay and cut my own from the Remzz as a template. The Remzz seem to cost about £1 a night and that is ridiculous (unless they save your life of course)! I found my cotton lawn ones were just as good and really cheap. I could wash mine whereas the Remzz say they can't be washed.  

There are gel liners which last a bit longer than the fabric ones but I don't find them very comfortable and they are very slimy to the touch in my opinion. They may well work really well for other people of course. We are all different and have to try everything on the market! I also agree that the gel masks are the most comfortable but my hospital don't offer many masks and they are expensive for us to buy for ourselves once again, especailly as we can't try them before buying. 

I bought some of these special pillows on ebay but found in the end that the really soft normal pillows were the best for me. I wish someone would bring out a pillow that would help us and that it shouldn't cost an arm and a leg. Just a leg will be expensive enough!  

Rosemary

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