Hope2SleepGuide

Sleep Apnoea Forum Bringing Help + Support to the Patient

Terry Vella
  • Male
  • Melbourne Victoria
  • Australia
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Terry Vella's Friends

  • Alan Seddon
  • June Ostiadel
  • David Vinnicombe
  • Kathryn Chapman,
  • Allan Whitton
  • Tricia Dickson
  • suzanne erdbrink
  • Wanda Polk
  • Frances Helton
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  • Jan Johnson
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  • Lisa
  • Kath Hope

Terry Vella's Discussions

Hope your well, Kath
3 Replies

Kath, just read your newsletter and hope you and your husband are on the improve and make sure you don't over do it.Continue

Started this discussion. Last reply by Kath Hope Jul 31, 2013.

Another sad story
1 Reply

I'm sure Kath would have got around to posting this sad story, it just makes me think how lucky we have been to be diagnosed. James Gray Bolton  by Brenda  (Baton Rouge, LA) He was my beautiful…Continue

Started this discussion. Last reply by Kath Hope Jan 13, 2013.

Merry Christmas
1 Reply

To all my sleep apnea friends, it's Christmas Day here in Australia so can wish you a merry Christmas, to everyone else around the world have a good nights sleep tonight and every night.Continue

Started this discussion. Last reply by Kath Hope Dec 25, 2012.

Why we have to use CPAP
1 Reply

Just read this story on another site, I'm sure the lady would be happy to share as she wants to get the SA story out. Anyone that reads this should understand why we have to use a CPAP.Jim Farrell,…Continue

Started this discussion. Last reply by Kath Hope Nov 10, 2012.

 

Terry Vella's Page

Profile Information

My Interest in Sleep Apnoea
I have Sleep Apnoea
Treatment Being Used, If Any
Auto-Adjusting CPAP
If Machine Being Used, What Make? (e.g., Respironics M Series with A-Flex Auto-Adjusting CPAP)
Resmed S9 Auto
If Mask Being Used, What Type? (e.g., ResMed Activa Nasal Mask)
Resmed Mirage Quattro FF

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Comment Wall (27 comments)

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At 7:11 on April 18, 2013, Kathryn Chapman, said…

Gday Terry , congratulations for your award !!!yeah , that's right , not using one at all until , I hear back from Centrelink . I know its not very healthy . !. when I hear back , I ll go ands get it . I have enough money in the bank , but only just        k  

At 2:42 on April 18, 2013, Kathryn Chapman, said…

Hi Terry , how you going . I  had to bring the trial machine back last week . I went to centrelink ( they reckon they can help by a couple hundred dollars towards the new machine ). I made an appt to see the Dr. to help fill it out , its in a couple of weeks.. is that your machine in the photo., how much was that.the Fisher & paykel will be $2500 ! cheers                     Kath

At 8:44 on March 11, 2013, Sheila Skelhorn said…
Hospital didn't give one as they said its to much for the NHL expenses there reluctant about the filters as well but there a needed thing
At 8:21 on March 10, 2013, Sheila Skelhorn said…
It can be a nuisance some nights it's ok but other it's very squeaky but tolerate it just thank you for your input where would I buy a hose stand
At 22:03 on January 11, 2013, Kath Hope said…

Yes I do Terry, but thanks for thinking of me

At 1:18 on January 1, 2013, Kath Hope said…

Ba Humbug - fancy someone daring to do fireworks on New Year's Eve I saw the lovely display in Sydney on the tv.  London looked nice tonight at midnight too.  Fireworks wouldn't have bothered me, as I'm a night owl, but my New Year's resolution is to get to bed by midnight.  I made the same one last year and it never worked, so watch this space...Absolutely hated it when I fell asleep without the mask though... I used to do it in the early days when I read my book in bed before putting the mask on.  Now I read on my Kindle with big fonts with the mask safely in place.  Happy New Year!

At 18:01 on December 31, 2012, Kath Hope said…

Had a great Christmas thank and just preparing for our New Year Celebrations now with 6 hours to go.......  Happy 2013 Terry and thank for all your imput on here during 2012

At 1:36 on December 31, 2012, suzanne erdbrink said…

Social Media marketing is another ball game really. You really need someone that knows all the platforms in depth and the key is a good sound strategy. We use Facebook,Pinterest,You Tube,Twitter and Google Plus is another we are just starting with. Annie Infinite is an absolute gem. Any hoozle it sounds like you have an amazing job......you know i have just realised you are a man! I thought i had been chatting to a lady! LOL! As for medications and other stuff would rather not chat about that openly on a forum. Happy to share by email though. 

At 11:52 on December 30, 2012, Kath Hope said…

This discussion is reminding me of a funny post I put on Pinterest (yes, yet another place people like to be Terry   Here's the link http://pinterest.com/pin/87398048990369118/

I wasn't a lover of Facebook myself, but I've realised just how valuable it is to communicate with people.  I use all the different social media sites so I can help people in the place they feel more comfortable.  There are lots of people who are uncomfortable in forums too.  We have hundreds of visitors every day, but not everyone joins.  At least they're getting help though

At 8:37 on December 30, 2012, suzanne erdbrink said…

How very interesting, well if you need anyone to help you with strategy i know an amazing lady up here in Queensland , she runs Saucy Social Media http://saucysocialmedia.com/ she really is an absolute guru and could do amazing things for your brands without charging ridiculous prices! take a look at her website and see what you think. My role is far more humble.....i look after Social Media and PR for Maleny Dairies. We are a fourth generation dairy farm and have taken on the big guys by building our own processing plant so that we can support other farming familiies and pay them a decent price for their milk. We also run tours of the farm and factory which is quite unique for a dairy farm. Works well for me as i work from home mostly so no-one knows i am still in my P.J's!!! Have not been able to have a full time role now for years, you know why! 

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Latest Activity

Jonathan replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Hi I was a mouth breather.  I also slept flat on my stomach.  I now sleep on my side, and with a nose-only mask rapidly learned to keep my trap shut at night :)  The airway through my nose has significantly improved, which makes…"
yesterday
Andy Falconer replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Thank you both for the welcome and the advice! I've read a lot about the humidifiers, so I suspect this will be one of the first things I will purchase. I'm a mouth breather, so I'm hoping the hospital will provide a full mask when I…"
yesterday
Jonathan replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Hi Andy Sorry you've had a rough ride.  How times change.  My sleep study 10 years ago was just a finger pulse thing, and a camera.  I had 86 events per hour.  I guess we're all different, but the first night with my…"
Saturday
Iain Noble replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Andy, Sorry you have had so little support from the NHS. We have an excellent sleep clinic here in Cleveland. You won't have to surrender your driving licence but you will have to tell them if you are diagnosed with sleep apnea. Once you are…"
Saturday
Andy Falconer replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Hi everyone, I'm Andy and I am currently in the process of being diagnosed with OSA (I suspect), with an appointment at the Royal Stoke Uni Hospital to be fitted for a CPAP machine this coming Monday.   So far it has taken 12 months from…"
Friday
Andy Falconer is now a member of Hope2SleepGuide
Friday
Kath Hope replied to Linda's discussion Do charities take new surplus CPAP masks?
"Hi Linda I just wanted to say thanks for sending us your surplus cushions and headgear.  We've already given out one of the cushions to someone who was struggling with a split cushion.  We really do appreciate this and so did the…"
Dec 3
Sleep2snore replied to Judy Y's discussion Could I have developed Central Sleep Apnoea ?
"Hi Judy, Try drinking a glass if water before going to bed. Dehydration can play a part in the mornings."
Dec 2
Amanda Moore is now a member of Hope2SleepGuide
Nov 30
Judy Y replied to Judy Y's discussion Could I have developed Central Sleep Apnoea ?
"Hi again Kath, Just found how I can see Clear airway/Obstructed airway. So sorry for the previous question. It appears I have approx 80% obstructed. Thanks for your time, best regards"
Nov 28
Judy Y replied to Judy Y's discussion Could I have developed Central Sleep Apnoea ?
"Thanks for your answer Kath. The app I have is Philips Dreamapper . It tells me minimum/maximam/ 90% pressure, My AHI and mask fit, Hours usage. I cant see anything about obstructive or centrals. Is my app out of date, or my machine?"
Nov 28
Kath Hope replied to Judy Y's discussion Could I have developed Central Sleep Apnoea ?
"I don't think those symptoms are specific to central sleep apnoea.  Your app should tell you if those apnoeas are obstructive or  centrals.  It sometimes says 'CA.'  Sometimes when people first wake it takes a…"
Nov 27
Judy Y posted a discussion

Could I have developed Central Sleep Apnoea ?

HiI was diagnosed with severe sleep apnoea Jan 2017 after hiring a device from Hope2sleep. Think I had this problem for around 10 years. I eventually got my cpap machine in August 2017. I have had a few ups and downs, and had my machine adjusted a…See More
Nov 26
Edam replied to Edam's discussion Double inhaling
"Im on Warfarin for life because of leg DVT,s and Warfarin would be stopped 5 days before the operation. This could leave me at risk of another DVT.. Also the last time my Warfarin was stopped I has to self inject Heparin so my belly turned into a…"
Nov 25
Sleep2snore replied to Edam's discussion Double inhaling
"That sounds like a get out for the ENT surgeon. There are a lot of people gone through this op' and even bigger op's to the nose. Maybe he is just not up to it?"
Nov 22
Kath Hope replied to Linda's discussion Do charities take new surplus CPAP masks?
"Hi Linda.  Due to the way some of the manufacturer package their masks, eg multiple sizes of cushions, some clinics just hand the whole pack out to the patients, and then there are others that are more resourceful in that they take out the…"
Nov 22
Linda replied to Linda's discussion Do charities take new surplus CAPD masks?
"Thanks Kath and I will forward the spare masks on as you have suggested.  It seems very wasteful that my NHS provider gives me a pack which I believe costs well over £100 when I only require one mask.  Do you know if this is…"
Nov 21
Edam replied to Edam's discussion Double inhaling
"I think the combination of nasal polyps ,deviated septum and COPD is too much for the Resmed to sort out. The polyp in my left nostril does act like a one way valve and closes on exhale which may explain why the EPR increase helps. It looks like the…"
Nov 20
Sleep2snore replied to Edam's discussion Double inhaling
"Hummmm!  That just shouldn't work! There must be something unique to the way you breath when sleeping confusing the machine. It is all a bit strange and a bit confusing!  The Resperonics machines are slightly slower to respond, so it…"
Nov 19
bonum noctem posted a discussion
Nov 18

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