Hope2SleepGuide

Sleep Apnoea Forum Bringing Help + Support to the Patient

Terry Vella
  • Male
  • Melbourne Victoria
  • Australia
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Terry Vella's Friends

  • Alan Seddon
  • June Ostiadel
  • David Vinnicombe
  • Kathryn Chapman,
  • Allan Whitton
  • Tricia Dickson
  • suzanne erdbrink
  • Wanda Polk
  • Frances Helton
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  • Jan Johnson
  • Carolyn Tipping
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  • Lisa
  • Kath Hope

Terry Vella's Discussions

Hope your well, Kath
3 Replies

Kath, just read your newsletter and hope you and your husband are on the improve and make sure you don't over do it.Continue

Started this discussion. Last reply by Kath Hope Jul 31, 2013.

Another sad story
1 Reply

I'm sure Kath would have got around to posting this sad story, it just makes me think how lucky we have been to be diagnosed. James Gray Bolton  by Brenda  (Baton Rouge, LA) He was my beautiful…Continue

Started this discussion. Last reply by Kath Hope Jan 13, 2013.

Merry Christmas
1 Reply

To all my sleep apnea friends, it's Christmas Day here in Australia so can wish you a merry Christmas, to everyone else around the world have a good nights sleep tonight and every night.Continue

Started this discussion. Last reply by Kath Hope Dec 25, 2012.

Why we have to use CPAP
1 Reply

Just read this story on another site, I'm sure the lady would be happy to share as she wants to get the SA story out. Anyone that reads this should understand why we have to use a CPAP.Jim Farrell,…Continue

Started this discussion. Last reply by Kath Hope Nov 10, 2012.

 

Terry Vella's Page

Profile Information

My Interest in Sleep Apnoea
I have Sleep Apnoea
Treatment Being Used, If Any
Auto-Adjusting CPAP
If Machine Being Used, What Make? (e.g., Respironics M Series with A-Flex Auto-Adjusting CPAP)
Resmed S9 Auto
If Mask Being Used, What Type? (e.g., ResMed Activa Nasal Mask)
Resmed Mirage Quattro FF

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Comment Wall (27 comments)

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At 7:11 on April 18, 2013, Kathryn Chapman, said…

Gday Terry , congratulations for your award !!!yeah , that's right , not using one at all until , I hear back from Centrelink . I know its not very healthy . !. when I hear back , I ll go ands get it . I have enough money in the bank , but only just        k  

At 2:42 on April 18, 2013, Kathryn Chapman, said…

Hi Terry , how you going . I  had to bring the trial machine back last week . I went to centrelink ( they reckon they can help by a couple hundred dollars towards the new machine ). I made an appt to see the Dr. to help fill it out , its in a couple of weeks.. is that your machine in the photo., how much was that.the Fisher & paykel will be $2500 ! cheers                     Kath

At 8:44 on March 11, 2013, Sheila Skelhorn said…
Hospital didn't give one as they said its to much for the NHL expenses there reluctant about the filters as well but there a needed thing
At 8:21 on March 10, 2013, Sheila Skelhorn said…
It can be a nuisance some nights it's ok but other it's very squeaky but tolerate it just thank you for your input where would I buy a hose stand
At 22:03 on January 11, 2013, Kath Hope said…

Yes I do Terry, but thanks for thinking of me

At 1:18 on January 1, 2013, Kath Hope said…

Ba Humbug - fancy someone daring to do fireworks on New Year's Eve I saw the lovely display in Sydney on the tv.  London looked nice tonight at midnight too.  Fireworks wouldn't have bothered me, as I'm a night owl, but my New Year's resolution is to get to bed by midnight.  I made the same one last year and it never worked, so watch this space...Absolutely hated it when I fell asleep without the mask though... I used to do it in the early days when I read my book in bed before putting the mask on.  Now I read on my Kindle with big fonts with the mask safely in place.  Happy New Year!

At 18:01 on December 31, 2012, Kath Hope said…

Had a great Christmas thank and just preparing for our New Year Celebrations now with 6 hours to go.......  Happy 2013 Terry and thank for all your imput on here during 2012

At 1:36 on December 31, 2012, suzanne erdbrink said…

Social Media marketing is another ball game really. You really need someone that knows all the platforms in depth and the key is a good sound strategy. We use Facebook,Pinterest,You Tube,Twitter and Google Plus is another we are just starting with. Annie Infinite is an absolute gem. Any hoozle it sounds like you have an amazing job......you know i have just realised you are a man! I thought i had been chatting to a lady! LOL! As for medications and other stuff would rather not chat about that openly on a forum. Happy to share by email though. 

At 11:52 on December 30, 2012, Kath Hope said…

This discussion is reminding me of a funny post I put on Pinterest (yes, yet another place people like to be Terry   Here's the link http://pinterest.com/pin/87398048990369118/

I wasn't a lover of Facebook myself, but I've realised just how valuable it is to communicate with people.  I use all the different social media sites so I can help people in the place they feel more comfortable.  There are lots of people who are uncomfortable in forums too.  We have hundreds of visitors every day, but not everyone joins.  At least they're getting help though

At 8:37 on December 30, 2012, suzanne erdbrink said…

How very interesting, well if you need anyone to help you with strategy i know an amazing lady up here in Queensland , she runs Saucy Social Media http://saucysocialmedia.com/ she really is an absolute guru and could do amazing things for your brands without charging ridiculous prices! take a look at her website and see what you think. My role is far more humble.....i look after Social Media and PR for Maleny Dairies. We are a fourth generation dairy farm and have taken on the big guys by building our own processing plant so that we can support other farming familiies and pay them a decent price for their milk. We also run tours of the farm and factory which is quite unique for a dairy farm. Works well for me as i work from home mostly so no-one knows i am still in my P.J's!!! Have not been able to have a full time role now for years, you know why! 

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Latest Activity

Sleep2snore replied to Bernadette Plunkett's discussion Advice on ordering a CPAP machine from overseas
"It is the manufactures own rules, but they will not look at a machine bought overseas under warranty. If you ask ResMed, they will only say that they will not honer any warranty if you buy a machine abroad. They know that they can't stop you…"
1 hour ago
N replied to Bernadette Plunkett's discussion Advice on ordering a CPAP machine from overseas
"Hello, Yes, it is a very old fashioned way of doing business. Apple used to do the same years ago until they realised that people travel and use the Internet, and now all their products cost more or less the same globally. Furthermore, as we still…"
5 hours ago
Kath Hope replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Not all the clinics like supplying the FitLife (total face) mask as it's the most expensive one.  It's been a favourite one of mine for a long time, and in the early days I had to purchase it myself, but my clinic does now.  Hope…"
yesterday
Kath Hope replied to Chris Vesey's discussion Dvla / hospital
"Yes it's annoying Chris.  However, due to the fact that the DVLA themselves don't appear to know how to handle this all correctly (it depends who you reach at the time) then it's advisable not to email or ring them, but to rely…"
yesterday
Kath Hope replied to Bernadette Plunkett's discussion Advice on ordering a CPAP machine from overseas
"Welcome to the forum N.  Sorry to hear about your experience, and in actual fact the USA Store have broken the rules sending the machine from the USA as they're not supposed to.  Although they can be cheaper, it can work out more…"
yesterday
N replied to Bernadette Plunkett's discussion Advice on ordering a CPAP machine from overseas
"Hello, I ordered a DreamStation Go Auto CPAP machine from the CPAP Shop in the US - as advised on the Philips US website.The machine is not available in the UK and I wanted it for travelling - I have a DreamStation with humidifier from the NHS but…"
yesterday
N replied to John Wilkinson's discussion Dreamstation humidifier heated hose and simplus 'mask type' settings
"Hi John, I had the same problem until I disvovered that the setting for the heating was “adaptive” (works following a piece of software that switches the humidifier on/off during the night), as opposed to “fixed”. I changed…"
yesterday
N replied to Edam's discussion Amara view mask
"Hi Edam, There are several reviews on YouTube about the Amara; the results are very  mixed. I tried it and I found that it leaked too much; a real pity as the idea is very good. I then tried the ResMed F-20 (full-face, no forehead support) and…"
yesterday
N is now a member of Hope2SleepGuide
yesterday
Chris Vesey posted a discussion

Dvla / hospital

Hi,Wrote to the dvla for the correct form, phoned them when nothing arrived, form came a week later. Filled it out and sent it back 3 weeks ago, a week ago I had a letter a week ago saying they had written to the cosultant, resmed agreed to send a…See More
yesterday
Sven Mischkies replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Hi, thanks for the responses. I tried to loosen the straps to the point just before it starts leaking, but to no avail. I thought the Amara View would be the worst mask for me, because it sits right there where I get the numbness from the…"
Friday
Edam replied to Edam's discussion Amara view mask
"Respironics have confirmed that the slot is 2.5cm on the small and mediom cushions and 3 cm on the large"
Thursday
Edam replied to Edam's discussion Amara view mask
Thursday
Edam posted discussions
Wednesday
Edam replied to Edam's discussion Amara view mask
"Thanks for that. After looking through 7 pages of reviews I found somebody who had measured the slot at 1in by 0.5 in at its shortest.  As my nose is about 1.25 in wide any movement would cause a major leak. I wish Respironics would publish a…"
Wednesday
Sleep2snore replied to Edam's discussion Amara view mask
"There is some information here https://www.cpap.com/blog/amara-view-respironics/ scan down the page to see helpful comments and a guide."
Wednesday
grumpycamel updated their profile
Feb 13
grumpycamel replied to John Wilkinson's discussion Dreamstation humidifier heated hose and simplus 'mask type' settings
"Hi John, It may help if you switch on the preheat function on the DreamStation main menu before you go to bed. It warms up the humidifier for 30 minutes and switches itself off to get things warmed up. I tend to have the hose and humidifier on 5…"
Feb 13
Kath Hope replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Welcome Sven and you've been given a lovely machine.  The Simplus mask is also a very good one, but unfortunately getting the 'right' mask is the harder part and many of us have to try several masks until we find the one that…"
Feb 13
Jonathan replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Hi I am not familiar with the mask in question, but some masks only need the lightest tension.  If you pull the straps tight they are more likely to leak.  I've certainly never experienced numbness - currently using a Respironics…"
Feb 13

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