"Yeah I was wondering about email address. I thought probably if they wanted me to mail them they would have given out an address. I can imagine heart data is considered more acute than sleep data, so it would make more sense to have that…"
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Terry Vella
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Terry Vella's Discussions
Hope your well, Kath
3 Replies
Kath, just read your newsletter and hope you and your husband are on the improve and make sure you don't over do it.Continue
Started this discussion. Last reply by Kath Hope Jul 31, 2013.
Another sad story
1 Reply
I'm sure Kath would have got around to posting this sad story, it just makes me think how lucky we have been to be diagnosed. James Gray Bolton by Brenda (Baton Rouge, LA) He was my beautiful…Continue
Started this discussion. Last reply by Kath Hope Jan 13, 2013.
Merry Christmas
1 Reply
To all my sleep apnea friends, it's Christmas Day here in Australia so can wish you a merry Christmas, to everyone else around the world have a good nights sleep tonight and every night.Continue
Started this discussion. Last reply by Kath Hope Dec 25, 2012.
Why we have to use CPAP
1 Reply
Just read this story on another site, I'm sure the lady would be happy to share as she wants to get the SA story out. Anyone that reads this should understand why we have to use a CPAP.Jim Farrell,…Continue
Started this discussion. Last reply by Kath Hope Nov 10, 2012.
Terry Vella's Page
Profile Information
- Treatment Being Used, if any?
- Auto-Adjusting CPAP
- If Machine Being Used, What Make or Model?
- Resmed S9 Auto
- If Mask Being Used, What Type or Name?
- Resmed Mirage Quattro FF
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Latest Activity
"Hi.
I didn't use PatientsKnowBest (ironic name), but I have an email address for my heart department for sending in ECGs. I was just saying that they may be able to review a PDF when then cannot review a data file from your O2 ring.
I am…"
"Hi Jonathan, did you do that through PatientKnowsBest?"
"On an unrelated topic, I've been able to send ECGs by PDF to my heart clinic.
On the subject of Resmed and apnoeas, take a look at https://youtu.be/ufOOAfyzZso?si=Tpdl4EEiCQBZR4iD&t=276
Your machine may be under-reporting.
Good…"
Wellu O2 Ring - is it accurate enough for the medics?
Moving some furniture my long lost O2 ring continuous oxygen saturation monitor turned up. So I've been wearing it and it tells me I have loads of saturation drops during the night even though my Airsense 10 says I have very few apneas.So I get two…See More
"Hi,
Just thought I'd give an update. So, I had my appointment with the NHS sleep clinic which was much quicker than I anticipated and I've now had the overnight sleep study. My AHI is now 6, down from over 30, so I'm…"
"Hi Sally from what I read the airsense doesn't suffer the same foam degredation issues as the infamous Phillips machine.I can conceive it's possible that microplastics may be shed from the flexible main tube.What worries me more about the…"
"Hi
My sleep clinic discharged me, saying they were happy I was self-managing. Roll on a decade and the cardiologists taking care of me were very unimpressed and I was re-enrolled. I expect remote monitoring with current generation Resmed…"
"Hi Jonathan,
Thanks again for the info. My cpap *should* be monitored by the NHS though I haven’t had any contact from them since pre-covid. I checked out the link you gave to access extra data and I think that’s going to be…"
"Hi
I have the ResMed Airsense 10 Autoset (APAP). It's monitored remotely by my NHS sleep clinic and I believe they can make changes to the settings. I don't know whether they are notified if I make changes, nor whether they…"
"Hi Jonathan,
Thanks for the reply. I'd say that I'm fairly technical. I have the ResMed Airsense 10 Elite machine. I've discovered that I can upload data wirelessly from my machine and having lowered the pressure by…"
"Hi
You don't say how technical you are, or what sort of machine you use. However https://www.sleephq.com/ has software which allows you to upload data from compatible machines, and analyse your sleep "score", including a…"
air bubbles after weight loss
Hi,I've been on Mounjaro for about 3 months now, not primarily for weight loss, but I have lost weight around my face and neck. I've noticed that I am increasingly getting air bubbles in my mouth which of course is disturbing my sleep (and my…See More
Micro plastics risks
I was reading an article in the I newspaper today written by a journalist who had her blood tested for micro plastics and was shocked by the results.…See More
job with the charity
Was wondering if there might be a job for me with Hope2Sleep?(I also just asked this of a group by mistake)See More
For Sale - Ventura Full Total Face CPAP Mask
I’m selling an Ventura Full Total Face CPAP Mask Large and two spare liners. I bought it new from the Hope2Sleep shop, but it is not suitable for me. Only used for about two weeks so I have washed it thoroughly. Because of this, it is very much…See More
"I put in a claim for PIP which was denied and now I am over 66 and on pension I tried for AA. Denied again.I have other health conditions ( Diverticular disease and Bile Acid Malabsorbtion ) which I consider hard to live with and they refused all of…"
"No personal experience, but CPAP.com review of AirMini
The AirMini runs at about 30 decibels, which is about the same sound level as a whispered conversation. For comparison, full-sized CPAPs tend to run around 26-28 decibels. Due to their…"
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Gday Terry , congratulations for your award !!!yeah , that's right , not using one at all until , I hear back from Centrelink . I know its not very healthy . !. when I hear back , I ll go ands get it . I have enough money in the bank , but only just k
Hi Terry , how you going . I had to bring the trial machine back last week . I went to centrelink ( they reckon they can help by a couple hundred dollars towards the new machine ). I made an appt to see the Dr. to help fill it out , its in a couple of weeks.. is that your machine in the photo., how much was that.the Fisher & paykel will be $2500 ! cheers Kath
Yes I do Terry, but thanks for thinking of me
Ba Humbug - fancy someone daring to do fireworks on New Year's Eve
I saw the lovely display in Sydney on the tv. London looked nice tonight at midnight too. Fireworks wouldn't have bothered me, as I'm a night owl, but my New Year's resolution is to get to bed by midnight. I made the same one last year and it never worked, so watch this space...
Absolutely hated it when I fell asleep without the mask though... I used to do it in the early days when I read my book in bed before putting the mask on. Now I read on my Kindle with big fonts with the mask safely in place. Happy New Year!
Had a great Christmas thank and just preparing for our New Year Celebrations now with 6 hours to go....... Happy 2013 Terry and thank for all your imput on here during 2012
Social Media marketing is another ball game really. You really need someone that knows all the platforms in depth and the key is a good sound strategy. We use Facebook,Pinterest,You Tube,Twitter and Google Plus is another we are just starting with. Annie Infinite is an absolute gem. Any hoozle it sounds like you have an amazing job......you know i have just realised you are a man! I thought i had been chatting to a lady! LOL! As for medications and other stuff would rather not chat about that openly on a forum. Happy to share by email though.
This discussion is reminding me of a funny post I put on Pinterest (yes, yet another place people like to be Terry
Here's the link http://pinterest.com/pin/87398048990369118/
I wasn't a lover of Facebook myself, but I've realised just how valuable it is to communicate with people. I use all the different social media sites so I can help people in the place they feel more comfortable. There are lots of people who are uncomfortable in forums too. We have hundreds of visitors every day, but not everyone joins. At least they're getting help though
How very interesting, well if you need anyone to help you with strategy i know an amazing lady up here in Queensland , she runs Saucy Social Media http://saucysocialmedia.com/ she really is an absolute guru and could do amazing things for your brands without charging ridiculous prices! take a look at her website and see what you think. My role is far
more humble.....i look after Social Media and PR for Maleny Dairies. We are a fourth generation dairy farm and have taken on the big guys by building our own processing plant so that we can support other farming familiies and pay them a decent price for their milk. We also run tours of the farm and factory which is quite unique for a dairy farm. Works well for me as i work from home mostly so no-one knows i am still in my P.J's!!! Have not been able to have a full time role now for years, you know why!
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