"no such luck getting F40 as was not in stock yet at the hospital. Tried the F30 but unfortunately my nose is so small that even the smallest mask is not small enough and leeks. Now trying out the Philips Dreamwear full mask/ Hybrid mask.
So…"
Sleep Apnoea Forum Bringing Help + Support to the Patient
Happy new year hope 2012 you all breath easy :)
Hi
Been absent from the boards for a few months life is so busy
Travis has Bilateral Vocal Cord Palsy which is intermitant he is due to get a NG tube on the 18th if that doesnt work we will be trialling CPAP
Jaydon had a psg in Nov that showed no significant obstruction so we are now looking at his lower airway and immune system as well as CF however Im not convinced I think he has OSA caused by his upper airway he has sever harrisons sulci
I videoed him napping today any comments appreciated ......is my gut instinct correct and I need to push them to review this do average 2 year olds breath like this when sleeping ???
Carolanne
Views: 173
Replies to This Discussion
-
Permalink Reply by Kath Hope on
-
Oh Carol, no wonder you're worried. Perhaps our good friend and expert Rock might see this. I'm no expert and not trying to be, but keep pushing and ring up to see if your email has been received.
carol murphy said:got a daytimenap video I notice 4 mins into video his neck sinks in at same time as chest any ideas why ?
-
Permalink Reply by carol murphy on
-
just updating my post for anyone who reads it through searching jaydon had tonsils adnoids and revised supraglottoplasty in June 2012 and 25th September after the data on his psg showing no real issues again video footage showed him clearly obstructing (thank god for video) and he started Cpap so gut instinct was correct and his study results werent true to his visual breathing
-
-
Thanks for the update Carol and thank goodness for a mother's intuition, which is is normally the case, proves correct. Take a look at this post where we're waiting for news about Tracey's son who had his tonsils removed and is about to go for a 2nd sleep study - again, because the 'mother' persisted. http://hope2sleepguide.co.uk/forum/topics/hello-have-just-found-out...
How's Jaydon doing now he's on CPAP?
-
-
Updating again for those that search for information Jaydon has been on cpap a pressure of 5 for now we need to increase to 8 but will be a gradual process
We are on week 6 and the difference in him is astounding his utter daytime exhaustion and his inability to function has ceased he is no longer emotional. aggresive, so tired he dragged his body and often almost slept standing up !!
It has been a case of gradual desensitization and as the weeks pass the longer he uses it without wakening previously 2 hour intervals last night was 5.5 hours
Cpap has been a complete life changing experience for the good
The sleep deprevation made his character ugly through no fault of his own he is now thanks to cpap funny happy and engaging
It has been a long road to get to this point and throughout it all my instinct was right so If my advice would be if you think something isnt right you are probably correct and keep fighting until you are heard
- ‹ Previous
- 1
- 2
- Next ›
About
Sleep Apnoea Forum
New to the Sleep Apnoea Forum?
1. Stop by our Sleep Apnoea Welcome Center to introduce yourself to the SleepGuide community.
2. Start a New Topic of Conversation.
3. Post your photos - of yourself, your old CPAP machine, your new CPAP machine, your pet, something about you!
Interested in advertising, have a problem or need to contact us? Click the Report an Issue page.
Latest Activity
mask "whiskers" marks
Hello lovely wise people,How do you prevent/ remove marks (indents) on your face left by mask for hours later. I call them my "whiskers". Still experimenting trying to loosen mask straps but keeping the seal.Using my Xylimelts at night for dry mouth…See More
"I have an appointment with my NHS Respiratory physio team on Friday and will plead my case for an F30 or F40. They said to me last week they did not have f40 in as yet however they are soon to see resmed rep any day now."
Headgear tips please
Hi, this is a rather trivial question, and apologies if it isn't appropriate for this forum, but I’m hoping someone might have some tips.I use the Resmed N20 mask. I also dye my white hair roots with a decent brand (as it would take several years to…See More
"Hi. No first hand experience, but you can see reviews here, which are mixed: https://www.cpap.com/productpage/resmed-airfit-f40-full-face-cpap-mask
I notice cpap.com still appear to be selling the Quattro FX. I have imported stuff from…"
Resmed Airfit F20 Woes
Dear FolksI have been using the Resmed Quattro FX mask ever since I was diagnosed over 7 years ago.…See More
"Hi
All I can say is I feel your pain! I got the F20 as a replacement this year and it is very uncomfortable. I have just ordered the new Resmed F40 which is very small and light and so far it has been a lot easier to use for a mouth breather that…"
"It sounds like you're getting rainout issues (condensation) so here's an article to help with this.
www.hope2sleep.co.uk/water-in-the-mask-hose-known-as-rainout"
noisy humidifier normal?
Hello,I have an air sense 10 auto.When I have the humidifier and the heated tube plugged in it makes a sort of drumming noise. Like that at the gallows in films.Is this normal? It wakes me up and I have to give up and switch off for the night.See More
Dentists in Hull that know about Mewing ?
I was wondering if there are any dentists in Hull who know about John & Mike Mew, and changing jaw shape over time?I could add that I saw an ENT consultant recently and she said jaw shape, malocclusion, is genetic, which has become a debatable…See More
"I did replace the tank in my SleepCube, and had to regularly take the silicone sealing gasket out and give it a goof clean, but not infrequently found it standing in a pool of water in the morning. The machine sat on a tray because of…"
Nasal valve collapse
Does anyone have any experience of nasal valve collapse?Wondering if I have this but I don't know what the norm is.Been trying widgets that hold the nose open and it's like night and day.See More
"Wow it's the other way round for me.I found with the Sleepcube I'd often have a good bit of water still there in the morning. Today I woke up with a dry tank on the Resmed again and it's not on full heat or flow. I got it on 6…"
F20 AirFit small marking bridge of nose
Please help or give advice all wise people on here.I have had the Resmed F20 AirFit small mask for over a month. Seals yet…See More
© 2024 Created by The SleepGuide Crew.
Powered by
