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Kath Hope
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Kath Hope's Discussions

Survey for UK CPAP Users
1 Reply

UK Members on CPAP for Sleep Apnoea Therapy Please consider spending a few minutes completing this survey for research led by the Imperial College, London who are working with some NHS Sleep…Continue

Tags: Imperial-College, Research, CPAP, Survey

Started this discussion. Last reply by Angel Eyes Feb 18, 2023.

'Rainout' - Water in the Hose and/or Mask from the CPAP Humidifier

We're having lots more queries this winter than normal at the Charity about…Continue

Started Jan 15, 2023

Hope2Sleep Charity Raffle

Only 24 hours to purchase Raffle Tickets as the draw is tomorrow (Monday 4th April), and we're looking forward to giving good news to 20 lucky winners!Tickets can be bought at…Continue

Tags: Charity, Raffle

Started Apr 3, 2022

Hope2Sleep Charity Helps with India's COVID-19 Crisis

Sorry the forum hasn't been as active as normal as all of us at the Hope2Sleep Charity have hardly had chance to breathe (except in sleep with our masks on thankfully) as we've been so busy.  We've…Continue

Tags: Ventilators, Oxygen-Concentrators, COVID-19, India

Started May 25, 2021

 

Kath Hope's Page

Latest Activity

Kath Hope replied to John's discussion Are resmed airsense reports really accurate?
"The o2 ring is good if you can retrieve it 😂 Yes I've seen Nick's videos and he has a lot of great content, but it doesn't mean everything is 100% correct (same for us all as we just try our best with the knowledge we have).…"
Feb 1
Kath Hope replied to John's discussion Are resmed airsense reports really accurate?
"The hospitals see far more than we see on the app in their clinical software, and do bear in mind that it's the opinion of a Youtuber you must have seen, as sleep professionals worldwide have used their software for many years, and…"
Feb 1
Kath Hope replied to Alex Lalvani's discussion NHS waiting time for CPAP machine - can anyone beat this?
"Good to hear Alex, and tell them you're willing to take a cancellation at short notice and it might be less 🙏"
Jan 25
Kath Hope replied to Alex Lalvani's discussion NHS waiting time for CPAP machine - can anyone beat this?
"Sorry to hear this Alex, and that does sound like a long wait for severe sleep apnoea. The problem has been due to a worldwide CPAP shortage so this is happening at a lot of clinics. Take a look at nearby clinics on this link but you'd need to…"
Jan 25
Kath Hope replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"We hear you Dave and empathise, as it's not 'normal' tiredness that comes with untreated sleep apnoea. Once you're on good CPAP treatment every night and for 7-9 hours of continuous sleep you'll start to feel better though.…"
Jan 8
Kath Hope replied to Leoni Atkins's discussion Using CPAP during and after COVID and a chest infection
"You're welcome Leoni and hope you're better soon x"
Jan 2
Kath Hope replied to Leoni Atkins's discussion Using CPAP during and after COVID and a chest infection
"Hi Leoni Although it's challenging, it's always advisable to use CPAP with a cold or chest infection as sleep apnoea is usually worse at these times, and also having good oxygen levels helps with a quicker recovery. The only thing, along…"
Jan 2
Kath Hope replied to James Bryson's discussion Amara View Compatibility with NHS provided Dreamstation 2
"There's just one more thought I had if my previous suggestion doesn't solve it.......If by chance your clinic supplied you with a slimmer 12mm hose then a mask adapter is needed. However, you should already have one that you've been…"
Dec 22, 2023
Kath Hope replied to James Bryson's discussion Amara View Compatibility with NHS provided Dreamstation 2
"Hi David Please always contact us at the charity direct for any problem with orders as we can help you much quicker. The Amara View definitely works with your DreamStation 2 and what has probably happened, is that the adapter from the end of your…"
Dec 22, 2023
Kath Hope replied to Jim Scullion's discussion Resmed Airsense 10 Humidifier
"You're very welcome Jim and I can honestly say I'd struggle without the hose lift and have one permanently in my suitcase as it comes everywhere with me. It has other uses too (less mask leaks from the hose dragging)."
Sep 19, 2023
Kath Hope replied to Jim Scullion's discussion Resmed Airsense 10 Humidifier
"This in-depth article should help you on our website https://www.hope2sleep.co.uk/water-in-the-mask-hose-known-as-rainout.html"
Sep 19, 2023
Kath Hope replied to Jim Scullion's discussion Resmed Airsense 10 Humidifier
"Yes, definitely ask for a humidifier Jim. In the meantime the XyliMelts work really well for most of us with a dry mouth and some of us use both https://www.hope2sleep.co.uk/xylimelts-dry-mouth-discs.html"
Sep 3, 2023
Kath Hope replied to Paula Brocklesby's discussion What Fantastic Service
"Aw thanks Paula, and I too am very relieved you'll soon be on the CPAP therapy your poor body desperately needs - especially due to the severity of your sleep apnoea and very low oxygen desaturations. I will look forward to hearing how you get…"
Jul 7, 2023
Kath Hope replied to Alexander Fryatt's discussion Sell CPAP machine
"You can advertise it in our Buy/Sell/Swap Group here on the forum Alexander http://hope2sleepguide.co.uk/group/buy-sell We've had to make the group private as we were getting bombarded with dodgy dealers trying to sell machines."
Jun 2, 2023
Kath Hope replied to John Kemp's discussion Pillows that might help - not CPAP
"Sorry your post was overlooked. No advice regarding a pillow, except to make sure it's not too high or firm to cause your neck to drop which can block your airways more. Was the sleep study one with breathing cannulas, or just a pulse oximeter…"
May 2, 2023
Kath Hope replied to Terry Eustace's discussion DVLA
"Sorry to hear this and hope it is resolved soon. If you need any further help with DVLA there's a lot of info at SATA https://sleep-apnoea-trust.org/driving-and-sleep-apnoea/detailed-guidance-to-uk-drivers-with-sleep-apnoea/"
May 2, 2023

Profile Information

Treatment Being Used, if any?
BiPAP
If Machine Being Used, What Make or Model?
Respironics PR One APAP
Devilbiss Sleep cube APAP (Known as Intellipap in the USA)
Respironics ASV
Resmed VPAP
If Mask Being Used, What Type or Name?
Respironics Fit Life
Respironics Amara View
Sleepnet Hybrid
Amara Gel
Devilbiss D100
Fisher Paykel 432

(just need 2 more, than I'll have one for everyday of the week lol)

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Kath Hope's Blog

Medications Affecting Sleep

A number of drugs disrupt sleep, while others can cause daytime drowsiness. Your clinician may be able to suggest alternatives.

Medication

Used to treat

Examples

Possible effects on sleep/daytime…

Continue

Posted on October 16, 2014 at 22:27

CPAP TIPS

The following are my own tips in helping with my own treatment, and are not meant as a substitute for medical advice. However, I hope they prove useful. 



CPAP/APAP/BIPAP TOLERANCE PROBLEMS

A lot of people find it hard to tolerate their equipment at first, so it's a good idea to set it up during the day whilst relaxing, such as watching tv,…

Continue

Posted on October 25, 2011 at 20:00

Comment Wall (96 comments)

You need to be a member of Hope2SleepGuide to add comments!

Join Hope2SleepGuide

At 15:28 on February 12, 2021, Sue Abson said…

Hi Kath - I've made my profile private to friends only, so that Sarah's number shouldn't now be public.  But how do you delete a comment?  I can't see a way of deleting my own? 

At 15:32 on November 2, 2017, YasminVaughan said…
Hi Kath I've being using a cpap machine for over 3 years the res meds one and full mask the last few weeks I have been getting bad headaches and dried sinuses making me feel horrid . I've got pressure on 7 a wooly cover for hose humidifier, I'm running out of ideas I did use a nasal spray at nite but was told to stop this I've joined today many thanks
At 15:22 on August 23, 2014, Bernadette Plunkett said…

Hi Kath, thanks for the welcome. Having just started therapy after a 2 year struggle to get diagnosed I have a bunch of questions but I'll try to see if they've been asked and answered on the forum first before raining them down on everyone. 

At 10:26 on March 12, 2014, Amelia Kennedy said…

Thanks Kath, I'll wait until Marion's able to reply. I don't want to disturb while she's poorly - it can wait for now.  Thanks once again for your help x

At 14:01 on March 10, 2014, Amelia Kennedy said…

Hi Kath, thanks for the comment about Marion and sorry to hear she's not well.  I've added her as a friend and am waiting for her to accept.  I'm not sure where I should copy/paste my comment to her though as it already appears to be there?  I'm not familiar with the forum set-up yet - that's my excuse anyway! x

At 0:12 on March 8, 2014, Sandra Gibbens said…

Thank you for adding me, already I've received so much support and information, and it's very much appreciated!

At 15:51 on March 6, 2014, Amelia Kennedy said…

Thanks Kath!

At 15:12 on March 6, 2014, Amelia Kennedy said…

Interesting ... thanks Kath, I'll take a look.  I've also been using mine for years - 15 in fact and get along with it fine now (after a load of teething problems!).  What I do hate is the weight and bulk of it.  I'm worrying about how me and my husband can get away for a few days in the summer as he's just had his driving licence revoked due to ill-health and I can't drive.  I guess I'll be pleading with Papworth again when I go in a couple of months to test me on other (smaller) machines - usually to no avail!

At 19:57 on February 6, 2014, June Ostiadel said…

Hi Kath, thanks again for the useful info. Firstly I did wonder if it's some natural oils coming out of my skin; I always wash before bed and use no creams. You mentioned the change in temperature during the night, well, my face often gets hot and I wondered if that could cause the mask to slip as well as a drop in temp.

I clean my mask every day, wiping with a little washing up liquid then wipe/rinse with clean wet cloth.

The hospital tried me on APAP but when the pressure rose it caused leaking so they change it for me.

I have a medium size mask (the hospital fitted it) and although I have a small face I have quite a big nose lol.

I visited the sleep clinic last June/July at St James Hospital in Leeds, when I was given the CPAP machine. I haven't been asked to go back yet; they only gave me one spare filter. How long would you expect a mask to last and how often should I change the filter?

NB I have just order some items from your website which may help me too; the cleansing wipes, the cream to help sore skin etc and the card (in case of emergency).

 

Thank you so much for your help, glad I found you

At 6:23 on February 6, 2014, June Ostiadel said…

I almost always get off get off to sleep with no problem at all; my mask appears to fit quite well, however, after maybe two or three hours I wake up; mask leaking usually from around top of nose. Trouble is when I awake I then want the loo, anyway, I have realised that if I wipe my face and mask with a damp cloth (I have this at the side of bed) after I've done faffing, I can sometimes go back to sleep for another hour or so, but, sometimes at this time I just cannot get the mask to fit without it leaking; then I give up.

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Latest Activity

Profile Icontim richards, mark & les, Lesley Parks and 1 more joined Hope2SleepGuide
Feb 13
Jenny Wren replied to Jenny Wren's discussion Feeling Abandoned by the Sleep Clinic
"I've got lucky! I can collect a new machine next week. It's been really helpful to 'speak' to people here and to Kath. It alerted me to the fact that I'd slipped through the net. The clinic were very apologetic and now all…"
Feb 8
Ejog1 replied to Jenny Wren's discussion Feeling Abandoned by the Sleep Clinic
"Thanks. Good news for me today, my clinic did finally reply to me and they’re giving me a new machine. The person I spoke to was super helpful. The NHS clinics are great when you’re able to speak to them, but they seem to be…"
Feb 7
Jenny Wren replied to Jenny Wren's discussion Feeling Abandoned by the Sleep Clinic
"Yes, my machine is affected. Seems I slipped through the net. I'm now on the sleep clinic's radar again and am hopeful that this will be sorted soon. Thanks for your reply and stay well."
Feb 7
Jenny Wren replied to Jenny Wren's discussion Feeling Abandoned by the Sleep Clinic
"I'm sorry to hear that. I emailed Kath about this and she was very helpful. She advised me to get in touch with my sleep clinic and I have had a reply from them. I so hope that you get a response soon."
Feb 7
Jonathan replied to Jenny Wren's discussion Feeling Abandoned by the Sleep Clinic
"Hello It seems you can check with Philips Respironics whether your machine is affected by the recall https://www.philipssrcupdate.expertinquiry.com/?ulang=en Hopefully it's not one of the problem machines, and at least you will know that your…"
Feb 5
Jonathan replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Hello, I was diagnosed about the same time as you, and also found CPAP therapy live-changing.  My original machine was an NHS issue Respironics, with no reporting or logging of data.  After a throat infection which wouldn't go away, I…"
Feb 5
Ejog1 replied to Jenny Wren's discussion Feeling Abandoned by the Sleep Clinic
"I can’t offer any advice but I sympathise with the feeling of being abandoned. I got given my current Resmed machine about 8 or 9 years ago by my clinic, and I think it’s overdue replacement, but I can’t get a reply from my clinic,…"
Feb 5
Ejog1 replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Hi,  thanks for approving my application to the forum. I was first diagnosed in 2007 although for many years I had been suffering from extreme tiredness, and my snoring and stunted breathing at night was often joked about amongst friends and…"
Feb 5
Ejog1 is now a member of Hope2SleepGuide
Feb 5
Jenny Wren posted a discussion

Feeling Abandoned by the Sleep Clinic

I was diagnosed with OSA back in 2017 following having used the Hope 2 Sleep diagnostic home thing. (Thank you!). Since being diagnosed with OSA I've also been diagnosed with hypertension and am being treated for this with medication.I was given a…See More
Feb 3
John replied to John's discussion How often do medics tell you the cause of apnea, rather than just prescribe CPAP and forget
"So the medical world is getting into ultrasound diagnosis, looks like early stages"
Feb 2
John replied to John's discussion How often do medics tell you the cause of apnea, rather than just prescribe CPAP and forget
Feb 2
Jonathan Oakden is now a member of Hope2SleepGuide
Feb 2
John posted discussions
Feb 2
John replied to John's discussion Are resmed airsense reports really accurate?
"Hi Kath, thanks for your great answer. I think even if the CPAP was perfect it's the other rigmarole interferes with sleep, for me anyway - oh the pipe's gurgling, oh didn't shave and have to tighten everything, oh the temperature…"
Feb 2
Kath Hope replied to John's discussion Are resmed airsense reports really accurate?
"The o2 ring is good if you can retrieve it 😂 Yes I've seen Nick's videos and he has a lot of great content, but it doesn't mean everything is 100% correct (same for us all as we just try our best with the knowledge we have).…"
Feb 1
John replied to John's discussion Are resmed airsense reports really accurate?
"Hi Kath, I did get myself an O2 Ring, but it hid behind some furniture somewhere and won't come out. When I find it I can check what's going on. I read that, like you say, smart watches aren't that good so I went for dedicated kit…"
Feb 1
Kath Hope replied to John's discussion Are resmed airsense reports really accurate?
"The hospitals see far more than we see on the app in their clinical software, and do bear in mind that it's the opinion of a Youtuber you must have seen, as sleep professionals worldwide have used their software for many years, and…"
Feb 1
John replied to Dave Austin's discussion My Apnoea / CPAP journey
"A bit of medical micropore tape over the lips can work pretty well. You just need an inch and a half like a Hitler moustache, no need to tape along the entire lips. Can get tape from Home Bargains or Poundstretcher type shops for about a quid."
Feb 1

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