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Kath Hope
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Survey for UK CPAP Users
1 Reply

UK Members on CPAP for Sleep Apnoea Therapy Please consider spending a few minutes completing this survey for research led by the Imperial College, London who are working with some NHS Sleep…Continue

Tags: Imperial-College, Research, CPAP, Survey

Started this discussion. Last reply by Angel Eyes Feb 18, 2023.

'Rainout' - Water in the Hose and/or Mask from the CPAP Humidifier

We're having lots more queries this winter than normal at the Charity about…Continue

Started Jan 15, 2023

Hope2Sleep Charity Raffle

Only 24 hours to purchase Raffle Tickets as the draw is tomorrow (Monday 4th April), and we're looking forward to giving good news to 20 lucky winners!Tickets can be bought at…Continue

Tags: Charity, Raffle

Started Apr 3, 2022

Hope2Sleep Charity Helps with India's COVID-19 Crisis

Sorry the forum hasn't been as active as normal as all of us at the Hope2Sleep Charity have hardly had chance to breathe (except in sleep with our masks on thankfully) as we've been so busy.  We've…Continue

Tags: Ventilators, Oxygen-Concentrators, COVID-19, India

Started May 25, 2021

 

Kath Hope's Page

Latest Activity

Kath Hope replied to John's discussion Oropharyngeal exercises
"I would always be guided by Dr Vik Veer, who is the UK's leading ENT surgeon specialising in snoring, sleep apnoea and UARS. He doesn't say the exercises will cure moderate to severe sleep apnoea, but can help by strengthening the airway…"
yesterday
Kath Hope replied to John's discussion A tale of two nasal dilators
"Good info thanks. I personally prefer nasal strips though."
yesterday
Kath Hope replied to John's discussion Short apneas - official definition
"An apnoea or hypopnoea of less than 10 seconds won't be reported as an event, in the same way they're not reported on a sleep study, as that's the cut-off point."
May 31
Kath Hope replied to Becky Murkin's discussion noisy humidifier normal?
"It sounds like you're getting rainout issues (condensation) so here's an article to help with this. www.hope2sleep.co.uk/water-in-the-mask-hose-known-as-rainout"
Apr 16
Kath Hope replied to John's discussion Are resmed airsense reports really accurate?
"The o2 ring is good if you can retrieve it 😂 Yes I've seen Nick's videos and he has a lot of great content, but it doesn't mean everything is 100% correct (same for us all as we just try our best with the knowledge we have).…"
Feb 1
Kath Hope replied to John's discussion Are resmed airsense reports really accurate?
"The hospitals see far more than we see on the app in their clinical software, and do bear in mind that it's the opinion of a Youtuber you must have seen, as sleep professionals worldwide have used their software for many years, and…"
Feb 1
Kath Hope replied to Alex Lalvani's discussion NHS waiting time for CPAP machine - can anyone beat this?
"Good to hear Alex, and tell them you're willing to take a cancellation at short notice and it might be less 🙏"
Jan 25
Kath Hope replied to Alex Lalvani's discussion NHS waiting time for CPAP machine - can anyone beat this?
"Sorry to hear this Alex, and that does sound like a long wait for severe sleep apnoea. The problem has been due to a worldwide CPAP shortage so this is happening at a lot of clinics. Take a look at nearby clinics on this link but you'd need to…"
Jan 25
Kath Hope replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"We hear you Dave and empathise, as it's not 'normal' tiredness that comes with untreated sleep apnoea. Once you're on good CPAP treatment every night and for 7-9 hours of continuous sleep you'll start to feel better though.…"
Jan 8
Kath Hope replied to Leoni Atkins's discussion Using CPAP during and after COVID and a chest infection
"You're welcome Leoni and hope you're better soon x"
Jan 2
Kath Hope replied to Leoni Atkins's discussion Using CPAP during and after COVID and a chest infection
"Hi Leoni Although it's challenging, it's always advisable to use CPAP with a cold or chest infection as sleep apnoea is usually worse at these times, and also having good oxygen levels helps with a quicker recovery. The only thing, along…"
Jan 2
Kath Hope replied to James Bryson's discussion Amara View Compatibility with NHS provided Dreamstation 2
"There's just one more thought I had if my previous suggestion doesn't solve it.......If by chance your clinic supplied you with a slimmer 12mm hose then a mask adapter is needed. However, you should already have one that you've been…"
Dec 22, 2023
Kath Hope replied to James Bryson's discussion Amara View Compatibility with NHS provided Dreamstation 2
"Hi David Please always contact us at the charity direct for any problem with orders as we can help you much quicker. The Amara View definitely works with your DreamStation 2 and what has probably happened, is that the adapter from the end of your…"
Dec 22, 2023
Kath Hope replied to Jim Scullion's discussion Resmed Airsense 10 Humidifier
"You're very welcome Jim and I can honestly say I'd struggle without the hose lift and have one permanently in my suitcase as it comes everywhere with me. It has other uses too (less mask leaks from the hose dragging)."
Sep 19, 2023
Kath Hope replied to Jim Scullion's discussion Resmed Airsense 10 Humidifier
"This in-depth article should help you on our website https://www.hope2sleep.co.uk/water-in-the-mask-hose-known-as-rainout.html"
Sep 19, 2023
Kath Hope replied to Jim Scullion's discussion Resmed Airsense 10 Humidifier
"Yes, definitely ask for a humidifier Jim. In the meantime the XyliMelts work really well for most of us with a dry mouth and some of us use both https://www.hope2sleep.co.uk/xylimelts-dry-mouth-discs.html"
Sep 3, 2023

Profile Information

Treatment Being Used, if any?
BiPAP
If Machine Being Used, What Make or Model?
Respironics PR One APAP
Devilbiss Sleep cube APAP (Known as Intellipap in the USA)
Respironics ASV
Resmed VPAP
If Mask Being Used, What Type or Name?
Respironics Fit Life
Respironics Amara View
Sleepnet Hybrid
Amara Gel
Devilbiss D100
Fisher Paykel 432

(just need 2 more, than I'll have one for everyday of the week lol)

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Kath Hope's Blog

Medications Affecting Sleep

A number of drugs disrupt sleep, while others can cause daytime drowsiness. Your clinician may be able to suggest alternatives.

Medication

Used to treat

Examples

Possible effects on sleep/daytime…

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Posted on October 16, 2014 at 22:27

CPAP TIPS

The following are my own tips in helping with my own treatment, and are not meant as a substitute for medical advice. However, I hope they prove useful. 



CPAP/APAP/BIPAP TOLERANCE PROBLEMS

A lot of people find it hard to tolerate their equipment at first, so it's a good idea to set it up during the day whilst relaxing, such as watching tv,…

Continue

Posted on October 25, 2011 at 20:00

Comment Wall (96 comments)

You need to be a member of Hope2SleepGuide to add comments!

Join Hope2SleepGuide

At 15:28 on February 12, 2021, Sue Abson said…

Hi Kath - I've made my profile private to friends only, so that Sarah's number shouldn't now be public.  But how do you delete a comment?  I can't see a way of deleting my own? 

At 15:32 on November 2, 2017, YasminVaughan said…
Hi Kath I've being using a cpap machine for over 3 years the res meds one and full mask the last few weeks I have been getting bad headaches and dried sinuses making me feel horrid . I've got pressure on 7 a wooly cover for hose humidifier, I'm running out of ideas I did use a nasal spray at nite but was told to stop this I've joined today many thanks
At 15:22 on August 23, 2014, Bernadette Plunkett said…

Hi Kath, thanks for the welcome. Having just started therapy after a 2 year struggle to get diagnosed I have a bunch of questions but I'll try to see if they've been asked and answered on the forum first before raining them down on everyone. 

At 10:26 on March 12, 2014, Amelia Kennedy said…

Thanks Kath, I'll wait until Marion's able to reply. I don't want to disturb while she's poorly - it can wait for now.  Thanks once again for your help x

At 14:01 on March 10, 2014, Amelia Kennedy said…

Hi Kath, thanks for the comment about Marion and sorry to hear she's not well.  I've added her as a friend and am waiting for her to accept.  I'm not sure where I should copy/paste my comment to her though as it already appears to be there?  I'm not familiar with the forum set-up yet - that's my excuse anyway! x

At 0:12 on March 8, 2014, Sandra Gibbens said…

Thank you for adding me, already I've received so much support and information, and it's very much appreciated!

At 15:51 on March 6, 2014, Amelia Kennedy said…

Thanks Kath!

At 15:12 on March 6, 2014, Amelia Kennedy said…

Interesting ... thanks Kath, I'll take a look.  I've also been using mine for years - 15 in fact and get along with it fine now (after a load of teething problems!).  What I do hate is the weight and bulk of it.  I'm worrying about how me and my husband can get away for a few days in the summer as he's just had his driving licence revoked due to ill-health and I can't drive.  I guess I'll be pleading with Papworth again when I go in a couple of months to test me on other (smaller) machines - usually to no avail!

At 19:57 on February 6, 2014, June Ostiadel said…

Hi Kath, thanks again for the useful info. Firstly I did wonder if it's some natural oils coming out of my skin; I always wash before bed and use no creams. You mentioned the change in temperature during the night, well, my face often gets hot and I wondered if that could cause the mask to slip as well as a drop in temp.

I clean my mask every day, wiping with a little washing up liquid then wipe/rinse with clean wet cloth.

The hospital tried me on APAP but when the pressure rose it caused leaking so they change it for me.

I have a medium size mask (the hospital fitted it) and although I have a small face I have quite a big nose lol.

I visited the sleep clinic last June/July at St James Hospital in Leeds, when I was given the CPAP machine. I haven't been asked to go back yet; they only gave me one spare filter. How long would you expect a mask to last and how often should I change the filter?

NB I have just order some items from your website which may help me too; the cleansing wipes, the cream to help sore skin etc and the card (in case of emergency).

 

Thank you so much for your help, glad I found you

At 6:23 on February 6, 2014, June Ostiadel said…

I almost always get off get off to sleep with no problem at all; my mask appears to fit quite well, however, after maybe two or three hours I wake up; mask leaking usually from around top of nose. Trouble is when I awake I then want the loo, anyway, I have realised that if I wipe my face and mask with a damp cloth (I have this at the side of bed) after I've done faffing, I can sometimes go back to sleep for another hour or so, but, sometimes at this time I just cannot get the mask to fit without it leaking; then I give up.

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Latest Activity

Kath Hope replied to John's discussion Oropharyngeal exercises
"I would always be guided by Dr Vik Veer, who is the UK's leading ENT surgeon specialising in snoring, sleep apnoea and UARS. He doesn't say the exercises will cure moderate to severe sleep apnoea, but can help by strengthening the airway…"
yesterday
Kath Hope replied to John's discussion A tale of two nasal dilators
"Good info thanks. I personally prefer nasal strips though."
yesterday
Tommas M is now a member of Hope2SleepGuide
Sunday
Irene Price is now a member of Hope2SleepGuide
Jun 11
John posted a discussion

A tale of two nasal dilators

Trying to get my nose to stay open, I've been experimenting with nasal dilators.So far I tried two types.- Generic tubes from ebay, 50p each- Fancy Airmax £10Both are moulded silicon rubber.I would say the packaging for the Airmax, which is really…See More
Jun 9
Jonathan replied to John's discussion Airsense 10 -humidifier runs dry
"Dab hand with a sewing machine :)  The "stethoscope" pipes were detachable with a bit of careful persuasion."
Jun 8
John replied to John's discussion Airsense 10 -humidifier runs dry
"How did you fasten it?I suppose you could do it with tape or elastic bands. Cut up an old fleece jacket, wrap it round the tube, strap it up, bit of velcro. That sort of thing. I hadn't really thought of that."
Jun 8
John replied to John's discussion Airsense 10 -humidifier runs dry
"Come to think of it you could likely double up a hose cozy, one over another.This is a piece of N95 face mask I used for high grade filtration. I just put it where the filter usually goes.This is around 6 months dirt I would say, thereabouts. I used…"
Jun 8
Jonathan replied to John's discussion Airsense 10 -humidifier runs dry
"Neat clip for your hose! I used to use the Respironics Comfort Curve one of the best masks ever, now discontinued of course.  With its stethoscope-style tubing, I had to make my own fleecy cover."
Jun 8
John replied to John's discussion Airsense 10 -humidifier runs dry
"Oh cool. Did you do any other DIY mods?I made a clamped strap to go on the headboard and lift the tube. Just a spare c-clamp with a bit of nylon strap and a clip but works well."
Jun 8
Jonathan replied to John's discussion Airsense 10 -humidifier runs dry
"Yes, I bought some fleecy material and made my own "snuggle hose" 10+ years ago. "
Jun 8
John replied to John's discussion Airsense 10 -humidifier runs dry
"Did you try a sleeve for the tube, Jonathan? For rain out? I got one off ebay for a few quid and I think it helps. It's a fleece sleeve  you zip over the main tube."
Jun 7
John posted a discussion

Oropharyngeal exercises

I asked medics at the Castle Hill CPAP clinic about tongue and throat exercises. They said no evidence, and it can't work anyway because the muscles fully relax during sleep.Yet I'm watching Vik Veer, head of ENT at a London hospital, offer evidence…See More
Jun 7
John replied to John's discussion Nasal valve collapse
"Well I found out what the norm was by asking my doctor to do the Cottle maneuver on herself, and she said there was no difference with and without.Whereas for me it's massively different.The Cottle maneuver is where you pull the skin by the…"
May 31
John replied to John's discussion Short apneas - official definition
"It's a suspiciously round number I wonder how they arrived at it?I asked the People at Castle Hill and they didn't really enlighten me on it, but I was told that it's normal for people to have apnoeas, which I didn't know.I…"
May 31
Kath Hope replied to John's discussion Short apneas - official definition
"An apnoea or hypopnoea of less than 10 seconds won't be reported as an event, in the same way they're not reported on a sleep study, as that's the cut-off point."
May 31
Emma Matthews is now a member of Hope2SleepGuide
May 31
Anne Olson is now a member of Hope2SleepGuide
May 30
John posted a discussion

Short apneas - official definition

I'm reading the Resmed definition of apnea and hypopnia."Apnea" means "no breath." An apnea happens when you stop breathing for 10 seconds or longer during sleep."Hypopnea is a partial blockage of the airway (shallow breathing). During a hypopnea,…See More
May 22
Andy Griffiths is now a member of Hope2SleepGuide
May 20

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