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Kath Hope
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Kath Hope's Groups

Kath Hope's Discussions

Philips Respironics New Sleep Apnoea Diagnostic Service

If you snore and are tired, you could be suffering from sleep apnoea (see signs + symptoms on our website)…Continue

Started Apr 8

RAFFLE for out UK Supporters - ends Saturday 21st October 2017

We're extending our raffle to our United Kingdom Supporters *(sorry rules mean we can't share this out of…Continue

Started Oct 19, 2017

Driving with Sleep Apnoea costs unnecessary lives. Please share to raise awareness.
1 Reply

The father of Toby (the young man killed in a traffic accident) meets up with the driver responsible for his death, due to undiagnosed sleep apnoea.  Both these men live with their own horrific scars…Continue

Tags: tired, sleep-apnoea, DVLA, driving

Started this discussion. Last reply by Sleep2snore Feb 24, 2017.

Research into Snoring Children and those with Down's Syndrome

This is a fantastic opportunity for parents and carers of Children ages 3 to 4 years old (they have enough 2 year olds now) who Snore and those beautiful children with Down's Syndrome to take part in…Continue

Started Apr 1, 2016

 

Kath Hope's Page

Latest Activity

Kath Hope replied to Alan Burt's discussion Painful, dry nose
"PS  Sterimar is a popular spray people try first as it contains only natural ingredients."
yesterday
Kath Hope replied to Alan Burt's discussion Painful, dry nose
"Welcome to the forum David It's very common for nasal dryness and good you didn't suffer from it previously.  The humidifier should sort this for you, but in the meantime you can try a Saline spray as it's better to use those…"
yesterday
Kath Hope replied to Neil Jay's discussion Remstar M series repair?
"I don't think Resmed would repair a Respironics machine Sleep2Snore although I could be wrong."
Jul 5
Kath Hope replied to Neil Jay's discussion Remstar M series repair?
"I've not heard of any repairers here in the UK.  If it's the System One Remstar and it's under 2 years old it has a 2-year manufacturer's warranty.  If you got it from your hospital they will change it for you."
Jul 5
Kath Hope replied to sharon's discussion struggling with CPAP
"I've just realised I've replied to some of your comments on the other 'welcome' thread.  It's definitely worth trying the liners that Amelia mentioned http://www.hope2sleep.co.uk/silent-night-mask-liners.html  I…"
Jul 4
Kath Hope replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Welcome Sharon, and although you've having a few teething problems, after just 3 weeks you're doing pretty good.  It's also great to hear you're feeling daytime improvements, and just imagine how much better you'll feel…"
Jul 4
Kath Hope replied to Chris Vesey's discussion Insurance
"We have had confirmation several times about this in our Facebook Group from sleep technicians and nurses, who state that the machines are covered by the NHS' insurance."
Jun 22
Kath Hope replied to Chris Vesey's discussion What pressures?
"Hi Chris I think you mean 'APAP' rather than 'acap' and if so, it will have automatic pressures.  It's not really recommended to alter your own pressures, and people only usually do that in desperation if they…"
Jun 6
Kath Hope replied to Bethany's discussion Help for the hubby
"Welcome to our forum Bethany, but so sorry to read of what you're both going through.  Glad your husband's severe sleep apnoea got picked up finally and at least you know he's on good treatment for that.  However, it's…"
Jun 6
Kath Hope replied to Mags's discussion What is a good oxygen Oximeter
"The Airsense Autoset does show the data in you look in the 'Sleep Report' section on your screen you can then scroll down to AHI and should also be able to see leakage.  If you can't see the AHI then it means the hospital have…"
Jun 4
Kath Hope replied to Mags's discussion What is a good oxygen Oximeter
"It does sound to me like the hospital perhaps don't realise what is out there to help us all  Margaret, because some of our hospitals even supply liners, and many that don't refer people to our charity for them.  I use them…"
Jun 3
Kath Hope replied to Mags's discussion What is a good oxygen Oximeter
"Welcome to the forum Margaret.  I must say that I find the comments about liners strange from your clinic though, as many clinics recommend their patients purchase or even make liners.  Our charity sell the Silent Night brand and many…"
Jun 3
Kath Hope replied to Chris Vesey's discussion Medistron batteries
"Thanks Chris and we certainly are doing our homework Sleep2Snore.  Our charity work hard to get the right products at the right price for our fellow sufferers, and we have lots of loyal customers who purchase from us both to support the charity…"
May 17
Kath Hope replied to John Wilkinson's discussion I've 'hit a wall' can any body help me?
"Sorry to hear after a good start you've taken a step backwards, and it could well be due to the reduction in pressure.  We don't recommend adjusting pressures but you're right to contact your hospital who will probably re-adjust…"
May 17
Kath Hope replied to Chris Vesey's discussion Medistron batteries
"Chris why did you purchase Medistrom as opposed to the Resmed battery?  Don't get me wrong as I've heard great things about the Medistrom and recommended it myself to people, but looking at the prices it seems just as or even more…"
May 13
Kath Hope replied to Helen Page's discussion Another newbie with a gazillion questions
"Hi and welcome Helen.  The wait is different at all clinics, but St James is a very good one.  Most people find that once they're on CPAP their fibromyalgia pain does ease due to the healthy sleep and good oxygen levels.  If…"
May 1

Profile Information

My Interest in Sleep Apnoea
I have Sleep Apnoea, Other
Treatment Being Used, If Any
BiPAP
If Machine Being Used, What Make? (e.g., Respironics M Series with A-Flex Auto-Adjusting CPAP)
Respironics PR One APAP
Devilbiss Sleep cube APAP (Known as Intellipap in the USA)
Respironics ASV
Resmed VPAP
If Mask Being Used, What Type? (e.g., ResMed Activa Nasal Mask)
Respironics Fit Life
Respironics Amara View
Sleepnet Hybrid
Amara Gel
Devilbiss D100
Fisher Paykel 432

(just need 2 more, than I'll have one for everyday of the week lol)

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Kath Hope's Blog

Medications Affecting Sleep

A number of drugs disrupt sleep, while others can cause daytime drowsiness. Your clinician may be able to suggest alternatives.

Medication

Used to treat

Examples

Possible effects on sleep/daytime…

Continue

Posted on October 16, 2014 at 22:27

CPAP TIPS

The following are my own tips in helping with my own treatment, and are not meant as a substitute for medical advice. However, I hope they prove useful. 



CPAP/APAP/BIPAP TOLERANCE PROBLEMS

A lot of people find it hard to tolerate their equipment at first, so it's a good idea to set it up during the day whilst relaxing, such as watching tv,…

Continue

Posted on October 25, 2011 at 20:00

Comment Wall (97 comments)

You need to be a member of Hope2SleepGuide to add comments!

Join Hope2SleepGuide

At 15:32 on November 2, 2017, YasminVaughan said…
Hi Kath I've being using a cpap machine for over 3 years the res meds one and full mask the last few weeks I have been getting bad headaches and dried sinuses making me feel horrid . I've got pressure on 7 a wooly cover for hose humidifier, I'm running out of ideas I did use a nasal spray at nite but was told to stop this I've joined today many thanks
At 15:22 on August 23, 2014, Bernadette Plunkett said…

Hi Kath, thanks for the welcome. Having just started therapy after a 2 year struggle to get diagnosed I have a bunch of questions but I'll try to see if they've been asked and answered on the forum first before raining them down on everyone. 

At 10:26 on March 12, 2014, Amelia Kennedy said…

Thanks Kath, I'll wait until Marion's able to reply. I don't want to disturb while she's poorly - it can wait for now.  Thanks once again for your help x

At 14:01 on March 10, 2014, Amelia Kennedy said…

Hi Kath, thanks for the comment about Marion and sorry to hear she's not well.  I've added her as a friend and am waiting for her to accept.  I'm not sure where I should copy/paste my comment to her though as it already appears to be there?  I'm not familiar with the forum set-up yet - that's my excuse anyway! x

At 0:12 on March 8, 2014, Sandra Gibbens said…

Thank you for adding me, already I've received so much support and information, and it's very much appreciated!

At 15:51 on March 6, 2014, Amelia Kennedy said…

Thanks Kath!

At 15:12 on March 6, 2014, Amelia Kennedy said…

Interesting ... thanks Kath, I'll take a look.  I've also been using mine for years - 15 in fact and get along with it fine now (after a load of teething problems!).  What I do hate is the weight and bulk of it.  I'm worrying about how me and my husband can get away for a few days in the summer as he's just had his driving licence revoked due to ill-health and I can't drive.  I guess I'll be pleading with Papworth again when I go in a couple of months to test me on other (smaller) machines - usually to no avail!

At 19:57 on February 6, 2014, June Ostiadel said…

Hi Kath, thanks again for the useful info. Firstly I did wonder if it's some natural oils coming out of my skin; I always wash before bed and use no creams. You mentioned the change in temperature during the night, well, my face often gets hot and I wondered if that could cause the mask to slip as well as a drop in temp.

I clean my mask every day, wiping with a little washing up liquid then wipe/rinse with clean wet cloth.

The hospital tried me on APAP but when the pressure rose it caused leaking so they change it for me.

I have a medium size mask (the hospital fitted it) and although I have a small face I have quite a big nose lol.

I visited the sleep clinic last June/July at St James Hospital in Leeds, when I was given the CPAP machine. I haven't been asked to go back yet; they only gave me one spare filter. How long would you expect a mask to last and how often should I change the filter?

NB I have just order some items from your website which may help me too; the cleansing wipes, the cream to help sore skin etc and the card (in case of emergency).

 

Thank you so much for your help, glad I found you

At 6:23 on February 6, 2014, June Ostiadel said…

I almost always get off get off to sleep with no problem at all; my mask appears to fit quite well, however, after maybe two or three hours I wake up; mask leaking usually from around top of nose. Trouble is when I awake I then want the loo, anyway, I have realised that if I wipe my face and mask with a damp cloth (I have this at the side of bed) after I've done faffing, I can sometimes go back to sleep for another hour or so, but, sometimes at this time I just cannot get the mask to fit without it leaking; then I give up.

At 17:48 on February 5, 2014, June Ostiadel said…

Thank you Kath it's nice to be here.  I was diagnosed with Sleep Apnea about 5 months and have just about mastered the equipment, however, on some occasions I struggle and unfortunately ,I have to sleep without using the machine all night. I found this site when someone on Health Unlocked recommended it

June

 

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Latest Activity

Kath Hope replied to Alan Burt's discussion Painful, dry nose
"PS  Sterimar is a popular spray people try first as it contains only natural ingredients."
yesterday
Kath Hope replied to Alan Burt's discussion Painful, dry nose
"Welcome to the forum David It's very common for nasal dryness and good you didn't suffer from it previously.  The humidifier should sort this for you, but in the meantime you can try a Saline spray as it's better to use those…"
yesterday
Alan Burt posted a discussion

Painful, dry nose

Greetings everyone. I'm new to the forum and came across it whilst doing an internet search on CPAP.It looks like a very supportive and resourceful place to be. I use a Resmed S9 (upgraded from an S8 two weeks ago) with a nasal mask. My pressure has…See More
Friday
Profile IconAlan Burt and C Riley joined Hope2SleepGuide
Thursday
Sleep2snore replied to Ann Murch's discussion New by wondering what to do next
"You're welcome."
Aug 8
Ann Murch replied to Ann Murch's discussion New by wondering what to do next
"That was great.  I am confident I can now sort out the problem and start getting a good nights sleep.  Thank you"
Aug 8
Sleep2snore replied to Ann Murch's discussion New by wondering what to do next
"Here is a YouTube Clinical video for the Devilbiss SLEEPCUBE clinical settings. https://youtu.be/V8pns9BYn64 It might be easier to watch, shows how to set up pressures etc. https://youtu.be/V8pns9BYn64"
Aug 8
Sleep2snore replied to Ann Murch's discussion New by wondering what to do next
"Make sure you have SmartFlex turned on, this will drop the pressure when you breath out. You didn't say what model you have, but as pressure was rising it must at least be Automatic. If you look in the manual it will tell you how to get into…"
Aug 8
Sleep2snore replied to Cathy's discussion New full face mask
"If it works for you use it. They are a bit quieter I am told so on its own will help, but comfort is the name of the game and if it fits the bill........ Glad you found a mask that works for you."
Aug 8
Profile IconMajella Ryan and Caroline Harvey joined Hope2SleepGuide
Jul 22
Ann Murch posted a discussion

New by wondering what to do next

Hi,my name is Ann and I stumbled across this site when looking to see where I could sell my CPAP machine but after reading some discussions, I now think that I may be better keeping it. I bought the  Sleep Cube as it was fully automatic and as I…See More
Jul 16
Ann Murch is now a member of Hope2SleepGuide
Jul 14
Cathy posted a discussion

New full face mask

Hi, I’ve been using the ResMed mirage Quattro since I was as diagnosed5 years ago. I’ve always hated it and found it so uncomfortable. Last week I bought myself a ResMed  airfit F20 with quiet air and it’s the best thing ever. Nothing covering my…See More
Jul 11
Kyla Davies joined The SleepGuide Crew's group
Jul 11
John Wilkinson replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Hi Sharon, I have been using a Cpap machine for 7 months. I too struggled with a full face mask (Simplus as issued by sleep clinic) but I changed from a large to medium size mask and it is a lot more comfortable and, because it fits better, I…"
Jul 9
Edam replied to Edam's discussion Double inhaling
"Using the Quatro Air is certainly working. My 95% pressures are still below 15 and also Im getting a much better sleep. I think the reason its working is that the inlet is lower on the Quatro Air and is also directed downwards. This direction of…"
Jul 9
Eric Swindon added a discussion to the group Buy-Sell-Swap
Thumbnail

Unused Masks for sale

 I am offering these never used masks (all in original packaging with User Manuals) for half the current retail price (check them at www.eu-pap.co.uk) , that is £50 or £60 including shipping within the U.K. …See More
Jul 8
Eric Swindon joined The SleepGuide Crew's group
Jul 8
Profile IconKyla Davies and Trina joined Hope2SleepGuide
Jul 8
Trina replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Thanks for accepting me! I am new to the sleep apnea world, but suspect I have had it for many, many years. It was just diagnosed as many of things. "
Jul 7

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