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Kath Hope
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Driving with Sleep Apnoea costs unnecessary lives. Please share to raise awareness.
1 Reply

The father of Toby (the young man killed in a traffic accident) meets up with the driver responsible for his death, due to undiagnosed sleep apnoea.  Both these men live with their own horrific scars…Continue

Tags: tired, sleep-apnoea, DVLA, driving

Started this discussion. Last reply by Sleep2snore Feb 24.

Research into Snoring Children and those with Down's Syndrome

This is a fantastic opportunity for parents and carers of Children ages 3 to 4 years old (they have enough 2 year olds now) who Snore and those beautiful children with Down's Syndrome to take part in…Continue

Started Apr 1, 2016

Daily Mail Highlights Snoring in Women
4 Replies

I was pleased to be part of this article in the Daily Mail about snoring in women, as it was a good opportunity to raise awareness of Sleep Apnoea, which as we know affects women and children too!…Continue

Started this discussion. Last reply by Kath Hope Mar 18, 2016.

Inquest States Young Boxer's Cause of Death Is Sleep Apnoea

An inquest into the death of this young 39 year old Welsh Boxer has confirmed Sleep Apnoea was the contributory factor to his death. There's no mention that he was on treatment for his Sleep Apnoea,…Continue

Started Jul 17, 2015

 

Kath Hope's Page

Profile Information

My Interest in Sleep Apnoea
I have Sleep Apnoea, Other
Treatment Being Used, If Any
BiPAP
If Machine Being Used, What Make? (e.g., Respironics M Series with A-Flex Auto-Adjusting CPAP)
Respironics PR One APAP
Devilbiss Sleep cube APAP (Known as Intellipap in the USA)
Respironics ASV
Resmed VPAP
If Mask Being Used, What Type? (e.g., ResMed Activa Nasal Mask)
Respironics Fit Life
Respironics Amara View
Sleepnet Hybrid
Amara Gel
Devilbiss D100
Fisher Paykel 432

(just need 2 more, than I'll have one for everyday of the week lol)

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Medications Affecting Sleep

A number of drugs disrupt sleep, while others can cause daytime drowsiness. Your clinician may be able to suggest alternatives.

Medication

Used to treat

Examples

Possible effects on sleep/daytime…

Continue

Posted on October 16, 2014 at 22:27

CPAP TIPS

The following are my own tips in helping with my own treatment, and are not meant as a substitute for medical advice. However, I hope they prove useful. 



CPAP/APAP/BIPAP TOLERANCE PROBLEMS

A lot of people find it hard to tolerate their equipment at first, so it's a good idea to set it up during the day whilst relaxing, such as watching tv,…

Continue

Posted on October 25, 2011 at 20:00

Comment Wall (96 comments)

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At 15:22 on August 23, 2014, Bernadette Plunkett said…

Hi Kath, thanks for the welcome. Having just started therapy after a 2 year struggle to get diagnosed I have a bunch of questions but I'll try to see if they've been asked and answered on the forum first before raining them down on everyone. 

At 10:26 on March 12, 2014, Amelia Kennedy said…

Thanks Kath, I'll wait until Marion's able to reply. I don't want to disturb while she's poorly - it can wait for now.  Thanks once again for your help x

At 14:01 on March 10, 2014, Amelia Kennedy said…

Hi Kath, thanks for the comment about Marion and sorry to hear she's not well.  I've added her as a friend and am waiting for her to accept.  I'm not sure where I should copy/paste my comment to her though as it already appears to be there?  I'm not familiar with the forum set-up yet - that's my excuse anyway! x

At 0:12 on March 8, 2014, Sandra Gibbens said…

Thank you for adding me, already I've received so much support and information, and it's very much appreciated!

At 15:51 on March 6, 2014, Amelia Kennedy said…

Thanks Kath!

At 15:12 on March 6, 2014, Amelia Kennedy said…

Interesting ... thanks Kath, I'll take a look.  I've also been using mine for years - 15 in fact and get along with it fine now (after a load of teething problems!).  What I do hate is the weight and bulk of it.  I'm worrying about how me and my husband can get away for a few days in the summer as he's just had his driving licence revoked due to ill-health and I can't drive.  I guess I'll be pleading with Papworth again when I go in a couple of months to test me on other (smaller) machines - usually to no avail!

At 19:57 on February 6, 2014, June Ostiadel said…

Hi Kath, thanks again for the useful info. Firstly I did wonder if it's some natural oils coming out of my skin; I always wash before bed and use no creams. You mentioned the change in temperature during the night, well, my face often gets hot and I wondered if that could cause the mask to slip as well as a drop in temp.

I clean my mask every day, wiping with a little washing up liquid then wipe/rinse with clean wet cloth.

The hospital tried me on APAP but when the pressure rose it caused leaking so they change it for me.

I have a medium size mask (the hospital fitted it) and although I have a small face I have quite a big nose lol.

I visited the sleep clinic last June/July at St James Hospital in Leeds, when I was given the CPAP machine. I haven't been asked to go back yet; they only gave me one spare filter. How long would you expect a mask to last and how often should I change the filter?

NB I have just order some items from your website which may help me too; the cleansing wipes, the cream to help sore skin etc and the card (in case of emergency).

 

Thank you so much for your help, glad I found you

At 6:23 on February 6, 2014, June Ostiadel said…

I almost always get off get off to sleep with no problem at all; my mask appears to fit quite well, however, after maybe two or three hours I wake up; mask leaking usually from around top of nose. Trouble is when I awake I then want the loo, anyway, I have realised that if I wipe my face and mask with a damp cloth (I have this at the side of bed) after I've done faffing, I can sometimes go back to sleep for another hour or so, but, sometimes at this time I just cannot get the mask to fit without it leaking; then I give up.

At 17:48 on February 5, 2014, June Ostiadel said…

Thank you Kath it's nice to be here.  I was diagnosed with Sleep Apnea about 5 months and have just about mastered the equipment, however, on some occasions I struggle and unfortunately ,I have to sleep without using the machine all night. I found this site when someone on Health Unlocked recommended it

June

 

.

At 21:41 on October 22, 2013, JOJO said…

Thanks fro the welcome kath i can see this site is going to be veryhelpful for me

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Latest Activity

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Kevin Pigott posted a discussion

Portable Machines

Does anyone have experience of using a portable machine? I have been invited to join a walking holiday in the far east and at some overnight stops there may be no 220V supply for a mains operated machine.  Kevin.See More
Sep 13
Mauro Cipriani replied to Mauro Cipriani's discussion Side Effects of CPAP / Corneal Ulcer
"Hi Kath, thanks for your reply. Just had an eye Clinic appointment and consultant fairly certain that this is attributable to mask leakage. I suffer with dry eyes and have prescribed gels and drops anyway, need to put more gel in. I will try some…"
Sep 11
Kath Hope replied to Susan Mooney's discussion Jury Service
"Sorry to hear that Susan.  If he's still so tired it would be worth asking for help with the clinic in case his pressures need adjusting (assuming he uses his CPAP for all sleeps of course, as that would cause tiredness).  If his…"
Sep 8
Susan Mooney replied to Susan Mooney's discussion Jury Service
"Thanks Kath, he has been on cpap for a few years now and has regular check ups but is still extremely tired when he relaxes, he is also self employed which is another stumbling point. They are a pain these jury service, will need to look into it.…"
Sep 7
Kath Hope replied to Susan Mooney's discussion Jury Service
"Hi Susan and welcome :) Regarding your question about jury service, I don't know much about the exemptions as I've never been called up and hope I aren't! However, if your husband is on good CPAP therapy and approved by the DVLA to…"
Sep 7
Kath Hope replied to Mauro Cipriani's discussion Side Effects of CPAP / Corneal Ulcer
"Sorry you've had no response to this post Mauro as I was hoping someone may have an answer, as corneal ulcer's isn't something I've heard of caused by CPAP.  However, we do often warn of why it's important to ensure the…"
Sep 7
Susan Mooney posted a discussion

Jury Service

Hello,Thanks for adding me...my husband has chronic sleep apnea and has just received papers for jury service. Does anyone know if he can be exempt from this?SueSee More
Sep 6
Susan Mooney is now a member of Hope2SleepGuide
Sep 6
joy Fuchter is now a member of Hope2SleepGuide
Sep 4

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