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Kath Hope
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Kath Hope's Discussions

Hope2Sleep Charity Raffle

Only 24 hours to purchase Raffle Tickets as the draw is tomorrow (Monday 4th April), and we're looking forward to giving good news to 20 lucky winners!Tickets can be bought at…Continue

Tags: Charity, Raffle

Started Apr 3

Hope2Sleep Charity Helps with India's COVID-19 Crisis

Sorry the forum hasn't been as active as normal as all of us at the Hope2Sleep Charity have hardly had chance to breathe (except in sleep with our masks on thankfully) as we've been so busy.  We've…Continue

Tags: Ventilators, Oxygen-Concentrators, COVID-19, India

Started May 25, 2021

Help for NHS Research when New to CPAP

We've been asked to help a team of researchers from the NHS (including Professor Joerg Steier from Guy's & St Thomas' who is our charity's medical advisor) if we will help them develop a package…Continue

Started May 25, 2021

Philips Respironics New Sleep Apnoea Diagnostic Service

If you snore and are tired, you could be suffering from sleep apnoea (see signs + symptoms on our website)…Continue

Started Apr 8, 2018

 

Kath Hope's Page

Latest Activity

Kath Hope posted a discussion

Hope2Sleep Charity Raffle

Only 24 hours to purchase Raffle Tickets as the draw is tomorrow (Monday 4th April), and we're looking forward to giving good news to 20 lucky winners!Tickets can be bought at https://www.peoplesfundraising.com/raffle/hope2sleep-charitySleep Awareness Month ends on a high…See More
Apr 3
Kath Hope replied to Glenys Everest's discussion Spare unused nasal pillows
"Glenys, if you move this post to our Buy, Sell and Swap section people are more likely to see it. You should see a tab to it on the top bar or click this link to take you there http://hope2sleepguide.co.uk/group/buy-sell The reason the clinics give…"
Mar 23
Kath Hope replied to David's discussion Where do you got your distilled water for humidifier
"Sorry David as missed your question. To be fair all the manufacturers say to use distilled water in the manual, but as you've discovered it's hard to get it here. I live in a very hard water area so I do purchase it but it's not…"
Mar 22
Kath Hope replied to Sewing1's discussion First night with Lowenstein Prisma Smart Max and ResMed Airfit F 20. Talk to me- please!
"Linda, try not to over-think things and you did very well on your first night. It's rare to feel a big positive difference after the first night as you're trying to adjust to sleeping with a mask on with pressure blowing and and the…"
Feb 5
Fran Hiam replied to Kath Hope's discussion Choosing The Right CPAP or BiPAP Mask For You
"Hi Kath  Thanks for the message. I’m very interested in the chin cushion & keep looking to see if there is any stock. I will keep looking in on that item. The other strap looks interesting as well so will look into that further. …"
Dec 31, 2021
Kath Hope replied to Kath Hope's discussion Choosing The Right CPAP or BiPAP Mask For You
"Hi Fran. It can be hard finding the 'right' mask for us and as a sleep consultant quotes "you have to kiss several frogs until you find your prince" which is so true. I too struggled for a long time when first on CPAP and in…"
Dec 30, 2021
Fran Hiam replied to Kath Hope's discussion Choosing The Right CPAP or BiPAP Mask For You
"Hi Kath  Thanks got your reply. I’ve tried the the F20 which is a full face mask but I found it quite harsh on the nose & face. I’ve tried mask covers & nasal nasal pads but they seemed cause mask leaks & gave me more…"
Dec 29, 2021
Kath Hope replied to Kath Hope's discussion Choosing The Right CPAP or BiPAP Mask For You
"Sorry for the delay over the Christmas holidays Fran, but there's no company we're aware of that makes bespoke masks. I'm sure the day will come, but not soon. Which masks have you tried already and what are the problems?"
Dec 29, 2021
Fran Hiam replied to Kath Hope's discussion Choosing The Right CPAP or BiPAP Mask For You
"Hi Kath  I’m wondering if there is anywhere in the uk that makes cpap masks from a 3d printer scan?  I have TMD as well as sleep apnoea & I’m finding it difficult to find the right mask.Any help would be appreciated. Fran"
Dec 23, 2021
Kath Hope replied to lee smeaton's discussion Explain the DVLA to me like I am a 5 year old please
"Great to hear Lee - good on them and hope they also send the pdf from the DVLA to educate the doctor!!"
Dec 16, 2021
Kath Hope replied to lee smeaton's discussion Explain the DVLA to me like I am a 5 year old please
"Great Lee as at least you know and it's good your CPAP therapy is going well :) Even if rounded down it's still moderate OSA lol, and this was just based on one night so other nights it could have been higher or lower. The important thing…"
Dec 16, 2021
Kath Hope replied to lee smeaton's discussion Explain the DVLA to me like I am a 5 year old please
"Agree with you Lee and we always point out to people that it's 'sleepiness' the Epworth scores on. Glad you didn't have an accident with the micro sleep, and of course this could certainly be due to the untreated sleep apnoea,…"
Dec 15, 2021
Kath Hope replied to Dave Jones's discussion Consultant recommendation please?
"Sorry Dave, but missed your post. Was your sleep study done by an NHS sleep clinic or privately, as the first place for help would really be best from the sleep consultant who did your initial sleep study and can view the data on your CPAP?"
Dec 15, 2021
Kath Hope replied to lee smeaton's discussion Explain the DVLA to me like I am a 5 year old please
"Hi Lee Papworth are correct that it is not the decision of the BUPA doctor to tell you whether or not to drive. The rules have changed as in my day when I got diagnosed many years ago, all of us had to stop driving if we'd been diagnosed with…"
Dec 15, 2021
Kath Hope replied to John's discussion Do tongue exercises work ?
"Sorry, but I missed your post. Tongue exercises have been proven to work to improve sleep apnoea but, depending on the severity, don't usually cure it unless very mild and assuming the tongue is the only cause of the sleep apnoea. We have the…"
Dec 2, 2021
Kath Hope replied to Patrick Heffer's discussion Morning apnoea
"Sorry Patrick as I missed your reply but good to hear all well with your CPAP. One of the biggest causes of hypnic jerks is sleep depravation so if you're not getting a good 7-9 hours of sleep on CPAP that would be the first thing to try.…"
Dec 2, 2021

Profile Information

Treatment Being Used, if any?
BiPAP
If Machine Being Used, What Make or Model?
Respironics PR One APAP
Devilbiss Sleep cube APAP (Known as Intellipap in the USA)
Respironics ASV
Resmed VPAP
If Mask Being Used, What Type or Name?
Respironics Fit Life
Respironics Amara View
Sleepnet Hybrid
Amara Gel
Devilbiss D100
Fisher Paykel 432

(just need 2 more, than I'll have one for everyday of the week lol)

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Medications Affecting Sleep

A number of drugs disrupt sleep, while others can cause daytime drowsiness. Your clinician may be able to suggest alternatives.

Medication

Used to treat

Examples

Possible effects on sleep/daytime…

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Posted on October 16, 2014 at 22:27

CPAP TIPS

The following are my own tips in helping with my own treatment, and are not meant as a substitute for medical advice. However, I hope they prove useful. 



CPAP/APAP/BIPAP TOLERANCE PROBLEMS

A lot of people find it hard to tolerate their equipment at first, so it's a good idea to set it up during the day whilst relaxing, such as watching tv,…

Continue

Posted on October 25, 2011 at 20:00

Comment Wall (96 comments)

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At 15:28 on February 12, 2021, Sue Abson said…

Hi Kath - I've made my profile private to friends only, so that Sarah's number shouldn't now be public.  But how do you delete a comment?  I can't see a way of deleting my own? 

At 15:32 on November 2, 2017, YasminVaughan said…
Hi Kath I've being using a cpap machine for over 3 years the res meds one and full mask the last few weeks I have been getting bad headaches and dried sinuses making me feel horrid . I've got pressure on 7 a wooly cover for hose humidifier, I'm running out of ideas I did use a nasal spray at nite but was told to stop this I've joined today many thanks
At 15:22 on August 23, 2014, Bernadette Plunkett said…

Hi Kath, thanks for the welcome. Having just started therapy after a 2 year struggle to get diagnosed I have a bunch of questions but I'll try to see if they've been asked and answered on the forum first before raining them down on everyone. 

At 10:26 on March 12, 2014, Amelia Kennedy said…

Thanks Kath, I'll wait until Marion's able to reply. I don't want to disturb while she's poorly - it can wait for now.  Thanks once again for your help x

At 14:01 on March 10, 2014, Amelia Kennedy said…

Hi Kath, thanks for the comment about Marion and sorry to hear she's not well.  I've added her as a friend and am waiting for her to accept.  I'm not sure where I should copy/paste my comment to her though as it already appears to be there?  I'm not familiar with the forum set-up yet - that's my excuse anyway! x

At 0:12 on March 8, 2014, Sandra Gibbens said…

Thank you for adding me, already I've received so much support and information, and it's very much appreciated!

At 15:51 on March 6, 2014, Amelia Kennedy said…

Thanks Kath!

At 15:12 on March 6, 2014, Amelia Kennedy said…

Interesting ... thanks Kath, I'll take a look.  I've also been using mine for years - 15 in fact and get along with it fine now (after a load of teething problems!).  What I do hate is the weight and bulk of it.  I'm worrying about how me and my husband can get away for a few days in the summer as he's just had his driving licence revoked due to ill-health and I can't drive.  I guess I'll be pleading with Papworth again when I go in a couple of months to test me on other (smaller) machines - usually to no avail!

At 19:57 on February 6, 2014, June Ostiadel said…

Hi Kath, thanks again for the useful info. Firstly I did wonder if it's some natural oils coming out of my skin; I always wash before bed and use no creams. You mentioned the change in temperature during the night, well, my face often gets hot and I wondered if that could cause the mask to slip as well as a drop in temp.

I clean my mask every day, wiping with a little washing up liquid then wipe/rinse with clean wet cloth.

The hospital tried me on APAP but when the pressure rose it caused leaking so they change it for me.

I have a medium size mask (the hospital fitted it) and although I have a small face I have quite a big nose lol.

I visited the sleep clinic last June/July at St James Hospital in Leeds, when I was given the CPAP machine. I haven't been asked to go back yet; they only gave me one spare filter. How long would you expect a mask to last and how often should I change the filter?

NB I have just order some items from your website which may help me too; the cleansing wipes, the cream to help sore skin etc and the card (in case of emergency).

 

Thank you so much for your help, glad I found you

At 6:23 on February 6, 2014, June Ostiadel said…

I almost always get off get off to sleep with no problem at all; my mask appears to fit quite well, however, after maybe two or three hours I wake up; mask leaking usually from around top of nose. Trouble is when I awake I then want the loo, anyway, I have realised that if I wipe my face and mask with a damp cloth (I have this at the side of bed) after I've done faffing, I can sometimes go back to sleep for another hour or so, but, sometimes at this time I just cannot get the mask to fit without it leaking; then I give up.

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Glassdaisy added a discussion to the group Buy-Sell-Swap
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Phillips RESPIRONICS New Sealed Wisp Nasal Mask with Fabric Frame

Hi, I have brand new nasal mask as above for sale. I need full face mask so it was unwanted.£75 including postageSee More
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Apr 9
Kath Hope posted a discussion

Hope2Sleep Charity Raffle

Only 24 hours to purchase Raffle Tickets as the draw is tomorrow (Monday 4th April), and we're looking forward to giving good news to 20 lucky winners!Tickets can be bought at…See More
Apr 3
Chris Mayers is now a member of Hope2SleepGuide
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Mar 28
Glenys Everest replied to Glenys Everest's discussion Spare unused nasal pillows
"Thanks will do xxI actually asked the clinic yesterday.  They thought it was a good idea, but wasn't something they do.  They do however break into new headgear packs to take odd ones out (so no idea if they can still pass on the…"
Mar 25
Kath Hope replied to Glenys Everest's discussion Spare unused nasal pillows
"Glenys, if you move this post to our Buy, Sell and Swap section people are more likely to see it. You should see a tab to it on the top bar or click this link to take you there http://hope2sleepguide.co.uk/group/buy-sell The reason the clinics give…"
Mar 23
Glenys Everest posted a discussion

Spare unused nasal pillows

Is there a swap section on here, please?I have some Large Nuance nasal pillows, still in their package, that I won't be using, and wondered if there is anyone out there with some mediums that they don't need and could swap with me please?Our clinic…See More
Mar 23
Kath Hope replied to David's discussion Where do you got your distilled water for humidifier
"Sorry David as missed your question. To be fair all the manufacturers say to use distilled water in the manual, but as you've discovered it's hard to get it here. I live in a very hard water area so I do purchase it but it's not…"
Mar 22
Jonathan replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Welcome.  I was diagnosed in 2009 at 80+ events per hour, but was discharged by the sleep clinic many years ago, on the basis that I was "self managing".  I bought an APAP machine, which allows me to see how well I am doing, and…"
Mar 22
Jonathan updated their profile
Mar 22

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