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Sleep Apnoea Forum Bringing Help + Support to the Patient

Kath Hope
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Kath Hope's Groups

Kath Hope's Discussions

Philips Respironics New Sleep Apnoea Diagnostic Service

If you snore and are tired, you could be suffering from sleep apnoea (see signs + symptoms on our website)…Continue

Started Apr 8, 2018

RAFFLE for out UK Supporters - ends Saturday 21st October 2017

We're extending our raffle to our United Kingdom Supporters *(sorry rules mean we can't share this out of…Continue

Started Oct 19, 2017

Driving with Sleep Apnoea costs unnecessary lives. Please share to raise awareness.
1 Reply

The father of Toby (the young man killed in a traffic accident) meets up with the driver responsible for his death, due to undiagnosed sleep apnoea.  Both these men live with their own horrific scars…Continue

Tags: tired, sleep-apnoea, DVLA, driving

Started this discussion. Last reply by Sleep2snore Feb 24, 2017.

Research into Snoring Children and those with Down's Syndrome

This is a fantastic opportunity for parents and carers of Children ages 3 to 4 years old (they have enough 2 year olds now) who Snore and those beautiful children with Down's Syndrome to take part in…Continue

Started Apr 1, 2016

 

Kath Hope's Page

Latest Activity

Kath Hope replied to Lee's discussion Philips Dreamstation autoset
"The DreamStation should definitely not be noisy and they've particularly done some tests on this aspect and state it's quieter than Resmed.  You can see how your doing, re AHI, leaks etc on the CPAP Pro and Auto versions, but not on…"
Dec 1
Kath Hope replied to Lee's discussion Philips Dreamstation autoset
"Well I sleep next to my husband who uses the DreamStation and there's no noise at all unless he gets a mask leak.  We also don't hear of people complaining about the Resmed S9, although people who have been moved to the Airsense 10 do…"
Nov 29
Kath Hope replied to Lee's discussion Philips Dreamstation autoset
"Hi Lee I'm just trying to understand.....do you mean you're using the Resmed S9 machine now and asking whether the Philips DreamStation is less noisy?  Neither of the machines should be noisy though."
Nov 29
Kath Hope replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"A belated welcome Andrew and you're definitely not alone.  It won't be long before some of your friends and family get diagnosed due to how common sleep apnoea is, and it's you who'll be helping them :)  As Jonathan has…"
Aug 13
Kath Hope replied to Eric Swindon's discussion Repeated air blowing out of mouth
"Eric, just in case, check the mask's exhale valve hasn't got stuck in an either closed or open position.  Also check your hose at both ends to see if when it twists there's a blockage.  Check there's no holes in it too.…"
Aug 4
Kath Hope replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"You could try that Maxine, but just a piece of material under the straps would at least let you know if it's the straps themselves causing the issue.  The softcap I mentioned is for using without the mask's headgear.  Good luck!…"
Jul 16
Kath Hope replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Welcome Maxine and good you got diagnosed with such a severe case.  I wonder if the itchy scalp is due to the nights being hotter at the moment or if you've washed the straps with something that's causing an allergy.  If you…"
Jul 15
Kath Hope replied to Judy Y's discussion Sleep apnoea and TMJ
"Sorry to head this Judy, and it could well be the fact that you're having to tighten the mask a little too much that's causing the jaw problems.  It could also simply be that the mask isn't suitable for you, so worth asking your…"
Apr 29

Profile Information

My Interest in Sleep Apnoea
I have Sleep Apnoea, Other
Treatment Being Used, If Any
BiPAP
If Machine Being Used, What Make? (e.g., Respironics M Series with A-Flex Auto-Adjusting CPAP)
Respironics PR One APAP
Devilbiss Sleep cube APAP (Known as Intellipap in the USA)
Respironics ASV
Resmed VPAP
If Mask Being Used, What Type? (e.g., ResMed Activa Nasal Mask)
Respironics Fit Life
Respironics Amara View
Sleepnet Hybrid
Amara Gel
Devilbiss D100
Fisher Paykel 432

(just need 2 more, than I'll have one for everyday of the week lol)

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Kath Hope's Blog

Medications Affecting Sleep

A number of drugs disrupt sleep, while others can cause daytime drowsiness. Your clinician may be able to suggest alternatives.

Medication

Used to treat

Examples

Possible effects on sleep/daytime…

Continue

Posted on October 16, 2014 at 22:27

CPAP TIPS

The following are my own tips in helping with my own treatment, and are not meant as a substitute for medical advice. However, I hope they prove useful. 



CPAP/APAP/BIPAP TOLERANCE PROBLEMS

A lot of people find it hard to tolerate their equipment at first, so it's a good idea to set it up during the day whilst relaxing, such as watching tv,…

Continue

Posted on October 25, 2011 at 20:00

Comment Wall (95 comments)

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At 15:32 on November 2, 2017, YasminVaughan said…
Hi Kath I've being using a cpap machine for over 3 years the res meds one and full mask the last few weeks I have been getting bad headaches and dried sinuses making me feel horrid . I've got pressure on 7 a wooly cover for hose humidifier, I'm running out of ideas I did use a nasal spray at nite but was told to stop this I've joined today many thanks
At 15:22 on August 23, 2014, Bernadette Plunkett said…

Hi Kath, thanks for the welcome. Having just started therapy after a 2 year struggle to get diagnosed I have a bunch of questions but I'll try to see if they've been asked and answered on the forum first before raining them down on everyone. 

At 10:26 on March 12, 2014, Amelia Kennedy said…

Thanks Kath, I'll wait until Marion's able to reply. I don't want to disturb while she's poorly - it can wait for now.  Thanks once again for your help x

At 14:01 on March 10, 2014, Amelia Kennedy said…

Hi Kath, thanks for the comment about Marion and sorry to hear she's not well.  I've added her as a friend and am waiting for her to accept.  I'm not sure where I should copy/paste my comment to her though as it already appears to be there?  I'm not familiar with the forum set-up yet - that's my excuse anyway! x

At 0:12 on March 8, 2014, Sandra Gibbens said…

Thank you for adding me, already I've received so much support and information, and it's very much appreciated!

At 15:51 on March 6, 2014, Amelia Kennedy said…

Thanks Kath!

At 15:12 on March 6, 2014, Amelia Kennedy said…

Interesting ... thanks Kath, I'll take a look.  I've also been using mine for years - 15 in fact and get along with it fine now (after a load of teething problems!).  What I do hate is the weight and bulk of it.  I'm worrying about how me and my husband can get away for a few days in the summer as he's just had his driving licence revoked due to ill-health and I can't drive.  I guess I'll be pleading with Papworth again when I go in a couple of months to test me on other (smaller) machines - usually to no avail!

At 19:57 on February 6, 2014, June Ostiadel said…

Hi Kath, thanks again for the useful info. Firstly I did wonder if it's some natural oils coming out of my skin; I always wash before bed and use no creams. You mentioned the change in temperature during the night, well, my face often gets hot and I wondered if that could cause the mask to slip as well as a drop in temp.

I clean my mask every day, wiping with a little washing up liquid then wipe/rinse with clean wet cloth.

The hospital tried me on APAP but when the pressure rose it caused leaking so they change it for me.

I have a medium size mask (the hospital fitted it) and although I have a small face I have quite a big nose lol.

I visited the sleep clinic last June/July at St James Hospital in Leeds, when I was given the CPAP machine. I haven't been asked to go back yet; they only gave me one spare filter. How long would you expect a mask to last and how often should I change the filter?

NB I have just order some items from your website which may help me too; the cleansing wipes, the cream to help sore skin etc and the card (in case of emergency).

 

Thank you so much for your help, glad I found you

At 6:23 on February 6, 2014, June Ostiadel said…

I almost always get off get off to sleep with no problem at all; my mask appears to fit quite well, however, after maybe two or three hours I wake up; mask leaking usually from around top of nose. Trouble is when I awake I then want the loo, anyway, I have realised that if I wipe my face and mask with a damp cloth (I have this at the side of bed) after I've done faffing, I can sometimes go back to sleep for another hour or so, but, sometimes at this time I just cannot get the mask to fit without it leaking; then I give up.

At 17:48 on February 5, 2014, June Ostiadel said…

Thank you Kath it's nice to be here.  I was diagnosed with Sleep Apnea about 5 months and have just about mastered the equipment, however, on some occasions I struggle and unfortunately ,I have to sleep without using the machine all night. I found this site when someone on Health Unlocked recommended it

June

 

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Latest Activity

Lee and Suren Jinasena are now friends
Dec 2
Lee replied to Lee's discussion Philips Dreamstation autoset
"Also I have moved my Resmed so hopefully it will be quiet now  "
Dec 2
Lee replied to Lee's discussion Philips Dreamstation autoset
"Hi thanks for your help, just my luck that I’d get the basic machine lol. I’ll phone them and ask. many thanks  "
Dec 2
Richard Brown posted a blog post

Backpacking With a CPAP Machine

I thought I would write this blog post to hopefully inspire others.  Using a CPAP isn't the end of the world if you are an outdoors person.  If you like a bit of car camping there are many options, cheap lead acid/sealed batteries are available and…See More
Dec 1
Kath Hope replied to Lee's discussion Philips Dreamstation autoset
"The DreamStation should definitely not be noisy and they've particularly done some tests on this aspect and state it's quieter than Resmed.  You can see how your doing, re AHI, leaks etc on the CPAP Pro and Auto versions, but not on…"
Dec 1
Lee replied to Lee's discussion Philips Dreamstation autoset
"Hi no it’s not the mask leaking, the very nice lady said she would order me a Dreamstation if I wanted but said about it also being noisy so I thought I’d ask people that have this machine also is the Dreamstation a better machine ?, can…"
Dec 1
Frank Foy is now a member of Hope2SleepGuide
Nov 30
Kath Hope replied to Lee's discussion Philips Dreamstation autoset
"Well I sleep next to my husband who uses the DreamStation and there's no noise at all unless he gets a mask leak.  We also don't hear of people complaining about the Resmed S9, although people who have been moved to the Airsense 10 do…"
Nov 29
Lee replied to Lee's discussion Philips Dreamstation autoset
"Hi Kath yes that’s it, my Resmed S9+humidifier machine is very noisy in I can hear my breathing in/out at the machine very noisy. Had my annual check at Papworth and she said the Dreamstation is noisy to, she has had lots of phone calls from…"
Nov 29
Kath Hope replied to Lee's discussion Philips Dreamstation autoset
"Hi Lee I'm just trying to understand.....do you mean you're using the Resmed S9 machine now and asking whether the Philips DreamStation is less noisy?  Neither of the machines should be noisy though."
Nov 29
Lee replied to Suren Jinasena's discussion ResMed Gecko Nasal Pad (Small Size) Suitable for Nasal and Full Face Masks
"Hi have you still got this please "
Nov 29
Lee posted a discussion

Philips Dreamstation autoset

hi can anyone using this machine tell how noisy it ie please ie breathing in/out at the machine end. My machine an S9+humidifier I can hear my breathing in/out at the machine end and it’s really noisy many thanks See More
Nov 29
Brock Verfaillie is now a member of Hope2SleepGuide
Nov 16
Stella Havard left a comment for ashley yeats
"Hi Ashley,        Sorry, I’ve only just seen your response, I’m almost certainly going to buy one of your masks but am currently on holiday so it won’t be until I return home in a couple of weeks (if you still…"
Oct 13
Stella Havard and ashley yeats are now friends
Oct 13
ashley yeats replied to ashley yeats's discussion Various CPAP Masks for Sale new and Sealed resmed, simplus, phillips in the group Buy-Sell-Swap
Oct 8
ashley yeats replied to ashley yeats's discussion Various CPAP Masks for Sale new and Sealed resmed, simplus, phillips in the group Buy-Sell-Swap
"Yes it's still availble and comes with harness/headgear"
Oct 8
Stella Havard replied to ashley yeats's discussion Various CPAP Masks for Sale new and Sealed resmed, simplus, phillips in the group Buy-Sell-Swap
"Hi,    Do you still have the medium F&P simplus and does the cost include the headgear? "
Oct 8
JOSEH KINCH added a discussion to the group Buy-Sell-Swap
Thumbnail

£450 Selling an (almost) brand new - Philips dreamstation - Auto Cpap with Bluetooth

I bought this machine as a back up machine to the one i am still using. I have never needed it - hence me selling it now. I also bought it from Hope 2 Sleep. This machine is a SMART Cpap machine, it hooks up via your phone to provide further…See More
Oct 1
halfluke is now a member of Hope2SleepGuide
Sep 30

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