"Hi Andy. That's a good first night and sounding positive already. You may find your AHI comes down over the next few nights. Ideally we're looking for it to be up to 5 which is classed as 'normal.'
Your other goods will be…"
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Kath Hope
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Kath Hope's Discussions
Philips Respironics New Sleep Apnoea Diagnostic Service
If you snore and are tired, you could be suffering from sleep apnoea (see signs + symptoms on our website)…Continue
Started Apr 8
RAFFLE for out UK Supporters - ends Saturday 21st October 2017
We're extending our raffle to our United Kingdom Supporters *(sorry rules mean we can't share this out of…Continue
Started Oct 19, 2017
Driving with Sleep Apnoea costs unnecessary lives. Please share to raise awareness.
1 Reply
The father of Toby (the young man killed in a traffic accident) meets up with the driver responsible for his death, due to undiagnosed sleep apnoea. Both these men live with their own horrific scars…Continue
Tags: tired, sleep-apnoea, DVLA, driving
Started this discussion. Last reply by Sleep2snore Feb 24, 2017.
Research into Snoring Children and those with Down's Syndrome
This is a fantastic opportunity for parents and carers of Children ages 3 to 4 years old (they have enough 2 year olds now) who Snore and those beautiful children with Down's Syndrome to take part in…Continue
Started Apr 1, 2016
Kath Hope's Page
Latest Activity
Kath Hope replied to Linda's discussion Do charities take new surplus CPAP masks?"Hi Linda
I just wanted to say thanks for sending us your surplus cushions and headgear. We've already given out one of the cushions to someone who was struggling with a split cushion. We really do appreciate this and so did the…"
Kath Hope replied to Judy Y's discussion Could I have developed Central Sleep Apnoea ?"I don't think those symptoms are specific to central sleep apnoea. Your app should tell you if those apnoeas are obstructive or centrals. It sometimes says 'CA.' Sometimes when people first wake it takes a…"
Kath Hope replied to Linda's discussion Do charities take new surplus CPAP masks?"Hi Linda. Due to the way some of the manufacturer package their masks, eg multiple sizes of cushions, some clinics just hand the whole pack out to the patients, and then there are others that are more resourceful in that they take out the…"
Kath Hope replied to Linda's discussion Do charities take new surplus CAPD masks?"I know exactly what you mean Linda. It's good when people purchase them when unsure of their size, but wasteful otherwise. You can send them to our Hope2Sleep Charity who run this forum and address is on the contact…"
Kath Hope replied to Ruth Furniss's discussion Cold air"Like you say yourself Ruth, warming up the bedroom will help, but also if you don't have a heated humidifier then that would help - as will covering the tube with a Hose Cover."
Kath Hope replied to Kyla Davies's discussion Soclean machine in the group Buy-Sell-Swap"Oh what a shame Kyla. We are all so different with our sensitivies to smells, as I love the clean smell after using mine. I'd advise you edit this with the price you're looking for, to save lots of messages agreeing and…"
Kath Hope replied to Chris Vesey's discussion Cure for wind"This is a common problem Sally, and especially when new to CPAP, irrespective of whatever machines people use. It's definitely not just an Airsense 10 problem.
If you've not clicked on the link I posted above in my reply to Chris…"
Kath Hope replied to Bob Blair's discussion So Clean sanitiser"I'm not aware of finance, and we at the Hope2Sleep Charity certainly couldn't offer this unfortunately. However, if you have a Paypal account then you can apply for Paypal Credit which is offered for products over £150 I…"
Kath Hope replied to Bob Blair's discussion So Clean sanitiser"Great to hear this Andy Just as importantly they will help prevent gum disease from dry mouth (plus less dental bills)."
Kath Hope replied to Bob Blair's discussion So Clean sanitiser"Thanks for supporting our charity with your order Andy, and they'll be sent out tomorrow. I love the Beaumont Citrus Wipes and have tried all the others, and these are definitely the best. I use them everyday. Hope you find the…"
Kath Hope replied to Bob Blair's discussion So Clean sanitiser"The SoClean will never be supplied by the NHS as they can't afford to give out products like this. We have the SoClean at the charity at the price we've been told it has to be sold for…"
Kath Hope replied to Bob Blair's discussion So Clean sanitiser"I still haven't seen the advert Andy, but lots of people are contacting us about purchasing. First and foremost, whether with the SoClean or not, it is important to keep our equipment cleaned. You're doing the right thing…"
Kath Hope replied to ged's discussion no EPR setting REsmed S8 spirit 2 autoset"It may be what I suspected, that it wasn't available on your international version, as I remember people complaining about it many years ago. If it helps to know I never found EPR helpful when I was on CPAP (I'm on VPAP now). …"
Kath Hope replied to ged's discussion no EPR setting REsmed S8 spirit 2 autoset"As you know Ged the S8 Spirit is an old machine, and I understand why you're loathe to give it up if your clinic supplies machines with no data. I do recall from many years ago there was talk that the international version of the Auto…"
Kath Hope replied to Eric Swindon's discussion Unused Masks for sale in the group Buy-Sell-Swap"Thanks Eric. I'll mark the post as all sold"
Profile Information
- My Interest in Sleep Apnoea
- I have Sleep Apnoea, Other
- Treatment Being Used, If Any
- BiPAP
- If Machine Being Used, What Make? (e.g., Respironics M Series with A-Flex Auto-Adjusting CPAP)
- Respironics PR One APAP
Devilbiss Sleep cube APAP (Known as Intellipap in the USA)
Respironics ASV
Resmed VPAP
- If Mask Being Used, What Type? (e.g., ResMed Activa Nasal Mask)
- Respironics Fit Life
Respironics Amara View
Sleepnet Hybrid
Amara Gel
Devilbiss D100
Fisher Paykel 432
(just need 2 more, than I'll have one for everyday of the week lol)
Kath Hope's Photos
Kath Hope's Videos
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Children Also Have Sleep Apnoea
Added by Kath Hope
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Kath Hope's Blog
Medications Affecting Sleep
A number of drugs disrupt sleep, while others can cause daytime drowsiness. Your clinician may be able to suggest alternatives. |
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Medication |
Used to treat |
Examples |
Possible effects on sleep/daytime… |
Posted on October 16, 2014 at 22:27
CPAP TIPS
The following are my own tips in helping with my own treatment, and are not meant as a substitute for medical advice. However, I hope they prove useful.
CPAP/APAP/BIPAP TOLERANCE PROBLEMS
A lot of people find it hard to tolerate their equipment at first, so it's a good idea to set it up during the day whilst relaxing, such as watching tv,…
ContinuePosted on October 25, 2011 at 20:00
Comment Wall (97 comments)
- At 15:32 on November 2, 2017,
YasminVaughan said… - Hi Kath I've being using a cpap machine for over 3 years the res meds one and full mask the last few weeks I have been getting bad headaches and dried sinuses making me feel horrid . I've got pressure on 7 a wooly cover for hose humidifier, I'm running out of ideas I did use a nasal spray at nite but was told to stop this I've joined today many thanks
- At 15:22 on August 23, 2014, Bernadette Plunkett said…
Hi Kath, thanks for the welcome. Having just started therapy after a 2 year struggle to get diagnosed I have a bunch of questions but I'll try to see if they've been asked and answered on the forum first before raining them down on everyone.
- At 10:26 on March 12, 2014,
Amelia Kennedy said… Thanks Kath, I'll wait until Marion's able to reply. I don't want to disturb while she's poorly - it can wait for now. Thanks once again for your help x
- At 14:01 on March 10, 2014, Amelia Kennedy said…
Hi Kath, thanks for the comment about Marion and sorry to hear she's not well. I've added her as a friend and am waiting for her to accept. I'm not sure where I should copy/paste my comment to her though as it already appears to be there? I'm not familiar with the forum set-up yet - that's my excuse anyway! x
- At 0:12 on March 8, 2014,
Sandra Gibbens said… Thank you for adding me, already I've received so much support and information, and it's very much appreciated!
- At 15:51 on March 6, 2014, Amelia Kennedy said…
Thanks Kath!
- At 15:12 on March 6, 2014, Amelia Kennedy said…
Interesting ... thanks Kath, I'll take a look. I've also been using mine for years - 15 in fact and get along with it fine now (after a load of teething problems!). What I do hate is the weight and bulk of it. I'm worrying about how me and my husband can get away for a few days in the summer as he's just had his driving licence revoked due to ill-health and I can't drive. I guess I'll be pleading with Papworth again when I go in a couple of months to test me on other (smaller) machines - usually to no avail!
- At 19:57 on February 6, 2014,
June Ostiadel said… Hi Kath, thanks again for the useful info. Firstly I did wonder if it's some natural oils coming out of my skin; I always wash before bed and use no creams. You mentioned the change in temperature during the night, well, my face often gets hot and I wondered if that could cause the mask to slip as well as a drop in temp.
I clean my mask every day, wiping with a little washing up liquid then wipe/rinse with clean wet cloth.
The hospital tried me on APAP but when the pressure rose it caused leaking so they change it for me.
I have a medium size mask (the hospital fitted it) and although I have a small face I have quite a big nose lol.
I visited the sleep clinic last June/July at St James Hospital in Leeds, when I was given the CPAP machine. I haven't been asked to go back yet; they only gave me one spare filter. How long would you expect a mask to last and how often should I change the filter?
NB I have just order some items from your website which may help me too; the cleansing wipes, the cream to help sore skin etc and the card (in case of emergency).
Thank you so much for your help, glad I found you
- At 6:23 on February 6, 2014, June Ostiadel said…
I almost always get off get off to sleep with no problem at all; my mask appears to fit quite well, however, after maybe two or three hours I wake up; mask leaking usually from around top of nose. Trouble is when I awake I then want the loo, anyway, I have realised that if I wipe my face and mask with a damp cloth (I have this at the side of bed) after I've done faffing, I can sometimes go back to sleep for another hour or so, but, sometimes at this time I just cannot get the mask to fit without it leaking; then I give up.
- At 17:48 on February 5, 2014, June Ostiadel said…
Thank you Kath it's nice to be here. I was diagnosed with Sleep Apnea about 5 months and have just about mastered the equipment, however, on some occasions I struggle and unfortunately ,I have to sleep without using the machine all night. I found this site when someone on Health Unlocked recommended it
June
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Latest Activity
"Hi Kath,
I'm hoping the next few nights will see me get my AHI down further, but i'm also keen not to put too much pressure on the situation.
I have to say i'm very impressed with the Hope2Sleep service so far, with regular updates…"
Kath Hope replied to Andy Falconer's discussion First night with CPAP"Hi Andy. That's a good first night and sounding positive already. You may find your AHI comes down over the next few nights. Ideally we're looking for it to be up to 5 which is classed as 'normal.'
Your other goods will be…"
First night with CPAP
So last night was my first with my new CPAP machine (a Philips DreamStation with an Amara style mask), and got on surprisingly well. It took me a while to fall asleep and woke briefly a handful of times in the night but I would say it was very…See More
Jonathan replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here."Hi
I was a mouth breather. I also slept flat on my stomach. I now sleep on my side, and with a nose-only mask rapidly learned to keep my trap shut at night :) The airway through my nose has significantly improved, which makes…"
"Thank you both for the welcome and the advice! I've read a lot about the humidifiers, so I suspect this will be one of the first things I will purchase.
I'm a mouth breather, so I'm hoping the hospital will provide a full mask when I…"
Jonathan replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here."Hi Andy
Sorry you've had a rough ride. How times change. My sleep study 10 years ago was just a finger pulse thing, and a camera. I had 86 events per hour. I guess we're all different, but the first night with my…"
Iain Noble replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here."Andy,
Sorry you have had so little support from the NHS. We have an excellent sleep clinic here in Cleveland.
You won't have to surrender your driving licence but you will have to tell them if you are diagnosed with sleep apnea.
Once you are…"
"Hi everyone,
I'm Andy and I am currently in the process of being diagnosed with OSA (I suspect), with an appointment at the Royal Stoke Uni Hospital to be fitted for a CPAP machine this coming Monday.
So far it has taken 12 months from…"
Kath Hope replied to Linda's discussion Do charities take new surplus CPAP masks?"Hi Linda
I just wanted to say thanks for sending us your surplus cushions and headgear. We've already given out one of the cushions to someone who was struggling with a split cushion. We really do appreciate this and so did the…"
Sleep2snore replied to Judy Y's discussion Could I have developed Central Sleep Apnoea ?"Hi Judy,
Try drinking a glass if water before going to bed. Dehydration can play a part in the mornings."
Judy Y replied to Judy Y's discussion Could I have developed Central Sleep Apnoea ?"Hi again Kath, Just found how I can see Clear airway/Obstructed airway. So sorry for the previous question. It appears I have approx 80% obstructed. Thanks for your time, best regards"
Judy Y replied to Judy Y's discussion Could I have developed Central Sleep Apnoea ?"Thanks for your answer Kath. The app I have is Philips Dreamapper . It tells me minimum/maximam/ 90% pressure, My AHI and mask fit, Hours usage. I cant see anything about obstructive or centrals. Is my app out of date, or my machine?"
Kath Hope replied to Judy Y's discussion Could I have developed Central Sleep Apnoea ?"I don't think those symptoms are specific to central sleep apnoea. Your app should tell you if those apnoeas are obstructive or centrals. It sometimes says 'CA.' Sometimes when people first wake it takes a…"
Judy Y posted a discussionCould I have developed Central Sleep Apnoea ?
HiI was diagnosed with severe sleep apnoea Jan 2017 after hiring a device from Hope2sleep. Think I had this problem for around 10 years. I eventually got my cpap machine in August 2017. I have had a few ups and downs, and had my machine adjusted a…See More
Edam replied to Edam's discussion Double inhaling"Im on Warfarin for life because of leg DVT,s and Warfarin would be stopped 5 days before the operation. This could leave me at risk of another DVT.. Also the last time my Warfarin was stopped I has to self inject Heparin so my belly turned into a…"
Sleep2snore replied to Edam's discussion Double inhaling"That sounds like a get out for the ENT surgeon.
There are a lot of people gone through this op' and even bigger op's to the nose.
Maybe he is just not up to it?"
Kath Hope replied to Linda's discussion Do charities take new surplus CPAP masks?"Hi Linda. Due to the way some of the manufacturer package their masks, eg multiple sizes of cushions, some clinics just hand the whole pack out to the patients, and then there are others that are more resourceful in that they take out the…"
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