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Kath Hope
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Kath Hope's Discussions

Philips Respironics New Sleep Apnoea Diagnostic Service

If you snore and are tired, you could be suffering from sleep apnoea (see signs + symptoms on our website)…Continue

Started Apr 8, 2018

RAFFLE for out UK Supporters - ends Saturday 21st October 2017

We're extending our raffle to our United Kingdom Supporters *(sorry rules mean we can't share this out of…Continue

Started Oct 19, 2017

Driving with Sleep Apnoea costs unnecessary lives. Please share to raise awareness.
1 Reply

The father of Toby (the young man killed in a traffic accident) meets up with the driver responsible for his death, due to undiagnosed sleep apnoea.  Both these men live with their own horrific scars…Continue

Tags: tired, sleep-apnoea, DVLA, driving

Started this discussion. Last reply by Sleep2snore Feb 24, 2017.

Research into Snoring Children and those with Down's Syndrome

This is a fantastic opportunity for parents and carers of Children ages 3 to 4 years old (they have enough 2 year olds now) who Snore and those beautiful children with Down's Syndrome to take part in…Continue

Started Apr 1, 2016

 

Kath Hope's Page

Latest Activity

Kath Hope replied to Amanda S's discussion Which is the best sleep apnoea test?
"Yes, that would be find Amanda and I know Joseph who runs the clinic and am sure he'll be very helpful too."
Sep 2
Kath Hope replied to Amanda S's discussion Which is the best sleep apnoea test?
"Hi Amanda You don't need to start a new discussion as we're following this one fine :)  It would be worth getting your GP to refer you to Oxford as the waiting list will no doubt be long due to this pandemic so at least he'll be…"
Aug 18
Kath Hope replied to Amanda S's discussion Which is the best sleep apnoea test?
"You're welcome Amanda and ask the sleep clinic what your husband's AHI was on the sleep study.  If people are symptomatic for sleep apnoea, even in the mild criteria which is an AHI of 5-15 then they should be given a CPAP…"
Aug 15
Kath Hope replied to Holly's discussion Hot weather
"You're welcome Holly and will notice the article mentions the Silent Night Liners which helps with sweat.  I realise you probably haven't got any at the moment, but you can try making a liner from an old t-shirt (stretchy…"
Aug 8
Kath Hope replied to Stuart Adrian Gillespie's discussion I'm so worried about my Health condition and putting on weight.
"So sorry that this post got missed Stuart and was flagged up thanks to Holly's reply.  Do let us know which machine you have so we can help."
Aug 8
Kath Hope replied to Holly's discussion Hot weather
Aug 8
Kath Hope replied to Mark's discussion Help! I'm not sure where to turn anymore.
"Hi Mark Just to let you know we've replied to your email, so can you check you've received the message in case it's gone to your junk or spam by mistake. Thanks."
Aug 5
Kath Hope replied to Amanda S's discussion Which is the best sleep apnoea test?
"Welcome Amanda and sorry to hear of your husband's struggles.  It sounds like he either went to a clinic that don't treat people with an AHI of less than 15 from the sleep study results, or he could have had a pulse oximetry sleep…"
Aug 4
Kath Hope replied to David's discussion Breas Z1 cpap machine error 33,
"Good luck and definitely stress you only used it for travel so had very little use."
Aug 3
Kath Hope replied to David's discussion Breas Z1 cpap machine error 33,
"Heck, that's not lasted long David, and I assume you've not used it much either (more for travel).  Might be worth saving up for the DreamStation Go which has most features the same as your DreamStation.  We sell it at the…"
Aug 2
Kath Hope replied to John Garbutt's discussion Dream mapper 90% pressure changes
"You're welcome John (my next appointment's October too as the May one got cancelled due to COVID).  Just one other little thought is that if it's only been occuring recently it could be that you're getting more nasal…"
Jul 23
Kath Hope replied to John Garbutt's discussion Dream mapper 90% pressure changes
"This can happen John when the default minimum pressure of 4 is set, which I stress does work for a lot of people, but sometimes clinics do raise that minimum pressure as if the pressure tends to run very low in between the apnoeas and then suddenly…"
Jul 23
Kath Hope replied to Mark's discussion Help! I'm not sure where to turn anymore.
"You're welcome Mark and an ENT consultation could certainly prove useful and they'll be able to spot the reason for your obstructive sleep apnoea. Acid reflux is often caused by the sleep apnoea.  I'm no medic, so will explain…"
Jul 23
Kath Hope replied to Mark's discussion Help! I'm not sure where to turn anymore.
"Sorry to hear how you're struggling Mark and if on your initial sleep study your AHI was only just into the border of sleep apnoea, it's likely that it did start off as UARS and has progressed into the sleep apnoea range.  Many people…"
Jul 22
Kath Hope replied to Savannah A.'s discussion Sanitising machines
"Hi Savannah and great to hear you're now successfully treated on CPAP.   We sell the SoClean at the charity and if you go to his link you'll see honest reviews from our own sales, and I've used the SoClean myself for the…"
Jul 22
Kath Hope replied to Leoni Atkins's discussion Want to buy CPAP machine and mask without testing
"Hi again Leoni.  I'm following you lol as have just replied to you on the other thread, so will repeat most of it here in case you don't see it. If you had a private sleep test with Philips then you will have got an official…"
Jul 5

Profile Information

Treatment Being Used, if any?
BiPAP
If Machine Being Used, What Make or Model?
Respironics PR One APAP
Devilbiss Sleep cube APAP (Known as Intellipap in the USA)
Respironics ASV
Resmed VPAP
If Mask Being Used, What Type or Name?
Respironics Fit Life
Respironics Amara View
Sleepnet Hybrid
Amara Gel
Devilbiss D100
Fisher Paykel 432

(just need 2 more, than I'll have one for everyday of the week lol)

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Kath Hope's Blog

Medications Affecting Sleep

A number of drugs disrupt sleep, while others can cause daytime drowsiness. Your clinician may be able to suggest alternatives.

Medication

Used to treat

Examples

Possible effects on sleep/daytime…

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Posted on October 16, 2014 at 22:27

CPAP TIPS

The following are my own tips in helping with my own treatment, and are not meant as a substitute for medical advice. However, I hope they prove useful. 



CPAP/APAP/BIPAP TOLERANCE PROBLEMS

A lot of people find it hard to tolerate their equipment at first, so it's a good idea to set it up during the day whilst relaxing, such as watching tv,…

Continue

Posted on October 25, 2011 at 20:00

Comment Wall (95 comments)

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At 15:32 on November 2, 2017, YasminVaughan said…
Hi Kath I've being using a cpap machine for over 3 years the res meds one and full mask the last few weeks I have been getting bad headaches and dried sinuses making me feel horrid . I've got pressure on 7 a wooly cover for hose humidifier, I'm running out of ideas I did use a nasal spray at nite but was told to stop this I've joined today many thanks
At 15:22 on August 23, 2014, Bernadette Plunkett said…

Hi Kath, thanks for the welcome. Having just started therapy after a 2 year struggle to get diagnosed I have a bunch of questions but I'll try to see if they've been asked and answered on the forum first before raining them down on everyone. 

At 10:26 on March 12, 2014, Amelia Kennedy said…

Thanks Kath, I'll wait until Marion's able to reply. I don't want to disturb while she's poorly - it can wait for now.  Thanks once again for your help x

At 14:01 on March 10, 2014, Amelia Kennedy said…

Hi Kath, thanks for the comment about Marion and sorry to hear she's not well.  I've added her as a friend and am waiting for her to accept.  I'm not sure where I should copy/paste my comment to her though as it already appears to be there?  I'm not familiar with the forum set-up yet - that's my excuse anyway! x

At 0:12 on March 8, 2014, Sandra Gibbens said…

Thank you for adding me, already I've received so much support and information, and it's very much appreciated!

At 15:51 on March 6, 2014, Amelia Kennedy said…

Thanks Kath!

At 15:12 on March 6, 2014, Amelia Kennedy said…

Interesting ... thanks Kath, I'll take a look.  I've also been using mine for years - 15 in fact and get along with it fine now (after a load of teething problems!).  What I do hate is the weight and bulk of it.  I'm worrying about how me and my husband can get away for a few days in the summer as he's just had his driving licence revoked due to ill-health and I can't drive.  I guess I'll be pleading with Papworth again when I go in a couple of months to test me on other (smaller) machines - usually to no avail!

At 19:57 on February 6, 2014, June Ostiadel said…

Hi Kath, thanks again for the useful info. Firstly I did wonder if it's some natural oils coming out of my skin; I always wash before bed and use no creams. You mentioned the change in temperature during the night, well, my face often gets hot and I wondered if that could cause the mask to slip as well as a drop in temp.

I clean my mask every day, wiping with a little washing up liquid then wipe/rinse with clean wet cloth.

The hospital tried me on APAP but when the pressure rose it caused leaking so they change it for me.

I have a medium size mask (the hospital fitted it) and although I have a small face I have quite a big nose lol.

I visited the sleep clinic last June/July at St James Hospital in Leeds, when I was given the CPAP machine. I haven't been asked to go back yet; they only gave me one spare filter. How long would you expect a mask to last and how often should I change the filter?

NB I have just order some items from your website which may help me too; the cleansing wipes, the cream to help sore skin etc and the card (in case of emergency).

 

Thank you so much for your help, glad I found you

At 6:23 on February 6, 2014, June Ostiadel said…

I almost always get off get off to sleep with no problem at all; my mask appears to fit quite well, however, after maybe two or three hours I wake up; mask leaking usually from around top of nose. Trouble is when I awake I then want the loo, anyway, I have realised that if I wipe my face and mask with a damp cloth (I have this at the side of bed) after I've done faffing, I can sometimes go back to sleep for another hour or so, but, sometimes at this time I just cannot get the mask to fit without it leaking; then I give up.

At 17:48 on February 5, 2014, June Ostiadel said…

Thank you Kath it's nice to be here.  I was diagnosed with Sleep Apnea about 5 months and have just about mastered the equipment, however, on some occasions I struggle and unfortunately ,I have to sleep without using the machine all night. I found this site when someone on Health Unlocked recommended it

June

 

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Latest Activity

Mark Buckley is now a member of Hope2SleepGuide
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Sherell Cunningham replied to Jason Moore's discussion Resmed S9 Autoset EPR CPAP Machine in the group Buy-Sell-Swap
"Hi there is this still available please."
Sep 4
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Sep 4
Kath Hope replied to Amanda S's discussion Which is the best sleep apnoea test?
"Yes, that would be find Amanda and I know Joseph who runs the clinic and am sure he'll be very helpful too."
Sep 2
Amanda S replied to Amanda S's discussion Which is the best sleep apnoea test?
"Hi Kath, Thanks for the advice. I now have the go ahead from my husband to do another test. I think it will take too long via the doctors and would like to do a test straight away. I am thinking of going for the sleep disorder clinic as they do…"
Sep 2
Barbara lyttle is now a member of Hope2SleepGuide
Aug 26
Sue Abson added a discussion to the group Buy-Sell-Swap
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ResMed AirSense 10 Elite CPAP machine - almost new!

For SaleResMed AirSense 10 Elite CPAP machine, complete with carry bag, power pack, ResMed HumidAir humidifier, instruction booklets/documentation, 1 x brand new unopened hose and 1 x unopened large pack of filters.  Can also include a slightly used…See More
Aug 23
Sue Abson joined The SleepGuide Crew's group
Aug 23
Anthony Hilbert is now a member of Hope2SleepGuide
Aug 22
Kath Hope replied to Amanda S's discussion Which is the best sleep apnoea test?
"Hi Amanda You don't need to start a new discussion as we're following this one fine :)  It would be worth getting your GP to refer you to Oxford as the waiting list will no doubt be long due to this pandemic so at least he'll be…"
Aug 18
Amanda S replied to Amanda S's discussion Which is the best sleep apnoea test?
"Hi Kath, not used to the way the posting works on this forum . It feels as if I am collecting to much text. Should I start new topic? Have rung the clinic in Oxford and they said D has to be referred through the GP. I have found his Diagnosis from…"
Aug 18
Sleep2snore replied to Amanda S's discussion Which is the best sleep apnoea test?
"He really needs the attitude that if he is given a machine or a trial "This is going to work for came hell or high water!"  though it is not easy getting started or used to a CPAP machine.  Sometimes you just need to keep…"
Aug 17
Sleep2snore replied to thatbloke's discussion Having major trouble and getting very frustrated trying to use CPAP machine - help?
Aug 16
Sleep2snore replied to thatbloke's discussion Having major trouble and getting very frustrated trying to use CPAP machine - help?
"This came to a head a couple of weeks back where, even while just sat in front of my computer at home, I felt like I wasn't breathing properly, even with none of this going on - I was having to manually breathe. I got tested for covid that day…"
Aug 16
Sleep2snore replied to thatbloke's discussion Having major trouble and getting very frustrated trying to use CPAP machine - help?
"With the last point in mind, because I never feel like I'm breathing "normally" with the mask on, I then end up taking over and "manually" trying to concentrate on my breathing with it on. This, of course, means that…"
Aug 16
Sleep2snore replied to thatbloke's discussion Having major trouble and getting very frustrated trying to use CPAP machine - help?
"Note that this feeling of not breathing properly also happens even if I put the mask on for a bit during the day, just to try to get used to it. I simply do not ever feel like I'm taking in enough air when I breathe in, and therefore have to…"
Aug 16
Sleep2snore replied to thatbloke's discussion Having major trouble and getting very frustrated trying to use CPAP machine - help?
"Additionally, with the mask on, within literally about 5 breaths, my mouth becomes drier than the sahara desert - You NEED a HUMIDIFIER."
Aug 16

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