"Thanks Chris and we certainly are doing our homework Sleep2Snore. Our charity work hard to get the right products at the right price for our fellow sufferers, and we have lots of loyal customers who purchase from us both to support the charity…"
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Kath Hope
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- United Kingdom
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Kath Hope's Discussions
Philips Respironics New Sleep Apnoea Diagnostic Service
If you snore and are tired, you could be suffering from sleep apnoea (see signs + symptoms on our website)…Continue
Started Apr 8
RAFFLE for out UK Supporters - ends Saturday 21st October 2017
We're extending our raffle to our United Kingdom Supporters *(sorry rules mean we can't share this out of…Continue
Started Oct 19, 2017
Driving with Sleep Apnoea costs unnecessary lives. Please share to raise awareness.
1 Reply
The father of Toby (the young man killed in a traffic accident) meets up with the driver responsible for his death, due to undiagnosed sleep apnoea. Both these men live with their own horrific scars…Continue
Tags: tired, sleep-apnoea, DVLA, driving
Started this discussion. Last reply by Sleep2snore Feb 24, 2017.
Research into Snoring Children and those with Down's Syndrome
This is a fantastic opportunity for parents and carers of Children ages 3 to 4 years old (they have enough 2 year olds now) who Snore and those beautiful children with Down's Syndrome to take part in…Continue
Started Apr 1, 2016
Kath Hope's Page
Latest Activity
Kath Hope replied to John Wilkinson's discussion I've 'hit a wall' can any body help me?"Sorry to hear after a good start you've taken a step backwards, and it could well be due to the reduction in pressure. We don't recommend adjusting pressures but you're right to contact your hospital who will probably re-adjust…"
Kath Hope replied to Chris Vesey's discussion Medistron batteries"Chris why did you purchase Medistrom as opposed to the Resmed battery? Don't get me wrong as I've heard great things about the Medistrom and recommended it myself to people, but looking at the prices it seems just as or even more…"
Kath Hope replied to Helen Page's discussion Another newbie with a gazillion questions"Hi and welcome Helen. The wait is different at all clinics, but St James is a very good one. Most people find that once they're on CPAP their fibromyalgia pain does ease due to the healthy sleep and good oxygen levels. If…"
Kath Hope replied to Mathura Dutt Kalauny's discussion Pressure difference between Resmed S8 Vs Breas Z1"You're welcome Mathura"
Kath Hope replied to Mathura Dutt Kalauny's discussion Pressure difference between Resmed S8 Vs Breas Z1"Hi Mathura and welcome to our forum. With good results like that it shouldn't cause a concern, as it could just be that the Z1 algorithm suits you better. Just like with masks suiting people better, so can machines, but mostly…"
Kath Hope replied to Savannah A.'s discussion Sleep Centre in UK that measures UARS"Great to hear you're having an in-patient sleep study Savannah. You may not need to investigate UARS either, because if a simple study (probably pulse oximetry) has picked up an issue that warrants an in-patient study, then it's…"
Kath Hope posted a discussionPhilips Respironics New Sleep Apnoea Diagnostic Service
If you snore and are tired, you could be suffering from sleep apnoea (see signs + symptoms on our website) http://www.hope2sleep.co.uk/sleep-apnoea-information.html Here's a chance to earn yourself £90 and find out more.... Interested in sharing your thoughts on a brand new private sleep diagnostic service in the UK? Philips Respironics is holding evening…See More
Kath Hope replied to Ruth Furniss's discussion New to cpap"Sometimes the tiredness can feel worse Ruth if you're having some interrupted sleep when new to CPAP. I definitely felt like that. Although I'd been diagnosed with severe sleep apnoea I slept through it all, whereas when I was…"
Kath Hope replied to ROBERT O'BRIEN's discussion c pap mask"I agree with giving it your best shot at getting the 'right' mask for you Bob, but even with all the best reviews in the world it's not possible to guarantee if it will be the 'right' mask for you. It's why when…"
Kath Hope replied to Savannah A.'s discussion Sleep Centre in UK that measures UARS"Unfortunately, there aren't as many as we'd like there to be. The only way of truly diagnosing UARS is via Esophageal Manometry (Pes) which is rarer still here in the UK. Take a look at our charity's webpage on this…"
Kath Hope replied to Dave Cheeseman's discussion New diagnosis!"Hi Dave, and sorry to hear you've been diagnosed with severe sleep apnoea, but when you get on CPAP you should start to feel so much better.
To purchase a CPAP machine you need a prescription from the consultant, and if you really want to…"
Kath Hope replied to Bernadette Plunkett's discussion Advice on ordering a CPAP machine from overseas"Ha Ha, I just replied to this post then realised I'd replied to Bernadette and her post was from 2016. Have deleted it as it was irrelevant Good to hear you've got your DreamStation Go on the app now though."
Kath Hope replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here."Great.....will look forward to hearing from you Jonny. This is where we put patient stories http://www.hope2sleep.co.uk/patient-stories.html"
Kath Hope replied to David Anthony Burnley's discussion Another Benefit of BPAP!"I'm not knowledgeable on the link between diabetes and heart attacks, but both of them are definitely linked with sleep apnoea, and whilst type 2 is the main one, there has also been research into the link between sleep apnoea and type 1…"
Kath Hope replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here."Aw, thank you so much Jonny and it truly is a pleasure to be part of the journey to people being signposted to better health and, hopefully, life-changing benefits The DreamWear mask is a fabulous one for nose breathers, but for people like you and…"
Profile Information
- My Interest in Sleep Apnoea
- I have Sleep Apnoea, Other
- Treatment Being Used, If Any
- BiPAP
- If Machine Being Used, What Make? (e.g., Respironics M Series with A-Flex Auto-Adjusting CPAP)
- Respironics PR One APAP
Devilbiss Sleep cube APAP (Known as Intellipap in the USA)
Respironics ASV
Resmed VPAP
- If Mask Being Used, What Type? (e.g., ResMed Activa Nasal Mask)
- Respironics Fit Life
Respironics Amara View
Sleepnet Hybrid
Amara Gel
Devilbiss D100
Fisher Paykel 432
(just need 2 more, than I'll have one for everyday of the week lol)
Kath Hope's Photos
Kath Hope's Videos
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Children Also Have Sleep Apnoea
Added by Kath Hope
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Kath Hope's Blog
Medications Affecting Sleep
A number of drugs disrupt sleep, while others can cause daytime drowsiness. Your clinician may be able to suggest alternatives. |
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Medication |
Used to treat |
Examples |
Possible effects on sleep/daytime… |
Posted on October 16, 2014 at 22:27
CPAP TIPS
The following are my own tips in helping with my own treatment, and are not meant as a substitute for medical advice. However, I hope they prove useful.
CPAP/APAP/BIPAP TOLERANCE PROBLEMS
A lot of people find it hard to tolerate their equipment at first, so it's a good idea to set it up during the day whilst relaxing, such as watching tv,…
ContinuePosted on October 25, 2011 at 20:00
Comment Wall (97 comments)
- At 15:32 on November 2, 2017,
YasminVaughan said… - Hi Kath I've being using a cpap machine for over 3 years the res meds one and full mask the last few weeks I have been getting bad headaches and dried sinuses making me feel horrid . I've got pressure on 7 a wooly cover for hose humidifier, I'm running out of ideas I did use a nasal spray at nite but was told to stop this I've joined today many thanks
- At 15:22 on August 23, 2014, Bernadette Plunkett said…
Hi Kath, thanks for the welcome. Having just started therapy after a 2 year struggle to get diagnosed I have a bunch of questions but I'll try to see if they've been asked and answered on the forum first before raining them down on everyone.
- At 10:26 on March 12, 2014,
Amelia Kennedy said… Thanks Kath, I'll wait until Marion's able to reply. I don't want to disturb while she's poorly - it can wait for now. Thanks once again for your help x
- At 14:01 on March 10, 2014, Amelia Kennedy said…
Hi Kath, thanks for the comment about Marion and sorry to hear she's not well. I've added her as a friend and am waiting for her to accept. I'm not sure where I should copy/paste my comment to her though as it already appears to be there? I'm not familiar with the forum set-up yet - that's my excuse anyway! x
- At 0:12 on March 8, 2014,
Sandra Gibbens said… Thank you for adding me, already I've received so much support and information, and it's very much appreciated!
- At 15:51 on March 6, 2014, Amelia Kennedy said…
Thanks Kath!
- At 15:12 on March 6, 2014, Amelia Kennedy said…
Interesting ... thanks Kath, I'll take a look. I've also been using mine for years - 15 in fact and get along with it fine now (after a load of teething problems!). What I do hate is the weight and bulk of it. I'm worrying about how me and my husband can get away for a few days in the summer as he's just had his driving licence revoked due to ill-health and I can't drive. I guess I'll be pleading with Papworth again when I go in a couple of months to test me on other (smaller) machines - usually to no avail!
- At 19:57 on February 6, 2014,
June Ostiadel said… Hi Kath, thanks again for the useful info. Firstly I did wonder if it's some natural oils coming out of my skin; I always wash before bed and use no creams. You mentioned the change in temperature during the night, well, my face often gets hot and I wondered if that could cause the mask to slip as well as a drop in temp.
I clean my mask every day, wiping with a little washing up liquid then wipe/rinse with clean wet cloth.
The hospital tried me on APAP but when the pressure rose it caused leaking so they change it for me.
I have a medium size mask (the hospital fitted it) and although I have a small face I have quite a big nose lol.
I visited the sleep clinic last June/July at St James Hospital in Leeds, when I was given the CPAP machine. I haven't been asked to go back yet; they only gave me one spare filter. How long would you expect a mask to last and how often should I change the filter?
NB I have just order some items from your website which may help me too; the cleansing wipes, the cream to help sore skin etc and the card (in case of emergency).
Thank you so much for your help, glad I found you
- At 6:23 on February 6, 2014, June Ostiadel said…
I almost always get off get off to sleep with no problem at all; my mask appears to fit quite well, however, after maybe two or three hours I wake up; mask leaking usually from around top of nose. Trouble is when I awake I then want the loo, anyway, I have realised that if I wipe my face and mask with a damp cloth (I have this at the side of bed) after I've done faffing, I can sometimes go back to sleep for another hour or so, but, sometimes at this time I just cannot get the mask to fit without it leaking; then I give up.
- At 17:48 on February 5, 2014, June Ostiadel said…
Thank you Kath it's nice to be here. I was diagnosed with Sleep Apnea about 5 months and have just about mastered the equipment, however, on some occasions I struggle and unfortunately ,I have to sleep without using the machine all night. I found this site when someone on Health Unlocked recommended it
June
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Latest Activity
John Wilkinson replied to John Wilkinson's discussion I've 'hit a wall' can any body help me?"Thanks for your advice. I really appreciate your help.
I wasn't aware that there different types of apnoeas.
I will be seeing the sleep nurse next week. I will keep you informed.
John "
John Wilkinson replied to John Wilkinson's discussion I've 'hit a wall' can any body help me?"Thanks for that Kath. I am due to see the sleep clinic next week. Hopefully they will re-adjust the pressure. I will keep you informed.
John"
Edam replied to Edam's discussion Double inhaling"I have read that APAP machines are not suitable for people with Asthma and give the same problems that I have been having.
I am now having to use twice the dose of steriods just to keep the APAP happy
If I can ever get in touch with my hospital I…"
Kath Hope replied to Chris Vesey's discussion Medistron batteries"Thanks Chris and we certainly are doing our homework Sleep2Snore. Our charity work hard to get the right products at the right price for our fellow sufferers, and we have lots of loyal customers who purchase from us both to support the charity…"
Kath Hope replied to John Wilkinson's discussion I've 'hit a wall' can any body help me?"Sorry to hear after a good start you've taken a step backwards, and it could well be due to the reduction in pressure. We don't recommend adjusting pressures but you're right to contact your hospital who will probably re-adjust…"
Sleep2snore replied to John Wilkinson's discussion I've 'hit a wall' can any body help me?"They have reduced it to far. The max was 16, they should have left the machine at 18 if it is an APAP (automatic pressure) if it is a CPAP you have now same applies. However, it might not be quite that straight forward as that as the…"
John Wilkinson posted a discussionI've 'hit a wall' can any body help me?
I was diagnosed with severe OSA in November and I have been using a Philips Respironics CPAP machine and full face mask from early December up to now (about 5 months). My HPI's went down from 44 to about 14 in about 10 weeks and I was feeling much…See More
Sleep2snore replied to Chris Vesey's discussion Medistron batteries"They are very costly things to have sitting around to go wrong or if you forget to charge them by their date.
You could try to see if they will do it on a sale or return basis, them you could keep one or two. However, I think most are ordering…"
Chris Vesey replied to Chris Vesey's discussion Medistron batteries"Hi,
I see from medistrom website they are looking for dealers, is it worth considering Kath"
Sleep2snore replied to Chris Vesey's discussion Medistron batteries"I wish the ResMed was 12Vdc, it would make life a lot easier.
I wonder why they need 24Vdc anyway?
My APAP is not mine to and see why it has to be 24Vdc!
I don't think the clinic might be to impressed if I opened it for a look. "
Sleep2snore replied to Edam's discussion Double inhaling"I would like to see how the hospital is going to explain that your Apnoea is getting worse with an AHU of 0.
That is almost incompetent.
It might also be that it is not straight forward Sleep Apnoea you have and might benefit from an advanced…"
Chris Vesey replied to Chris Vesey's discussion Medistron batteries"hi,
just looked on internet, it seems that medistrom may not have a dealer in the uk but a company called sleep tight advertise the pilot 24 for £345, don't know about the co pilot. The very expensive one on amazon comes from Israel, good…"
Chris Vesey replied to Chris Vesey's discussion Medistron batteries"hi,
at the time amazon were selling the pilot for £285 and the co pilot for £137, gone up a lot since then
chris"
Edam replied to Edam's discussion Double inhaling"I have read that if you have Asthma a CPAP is better than a APAP
When the APAP increases the pressure it makes the asthma worse and then the APAP increases the pressure again which makes the asthma even worse .....
This is exactly whats…"
Kath Hope replied to Chris Vesey's discussion Medistron batteries"Chris why did you purchase Medistrom as opposed to the Resmed battery? Don't get me wrong as I've heard great things about the Medistrom and recommended it myself to people, but looking at the prices it seems just as or even more…"
Chris Vesey posted a discussionMedistron batteries
Hi,I bought a pilot and co pilot set up a few months ago and have recently been trying them out. I have found by trial and error the following,First switch off all humidifiers etc.Switch to airplane mode, this reduces the amount of battery power…See More
Chris Vesey replied to Helen Page's discussion Another newbie with a gazillion questions"Hi,
I informed the dvla by post using the relevant form they sent me. When the form arrived i was warned that i needed to return it within 14 days! As it takes a week for any dvla letter to arrive i was not amused. Even though i had started…"
Edam replied to Edam's discussion Double inhaling"You are right about needing the extra humidity.
Its been very dry lately , I measured it at 39%RH, so I will start to us the "Warm Up" on the H5i to get the humidity up straight away
On my last visit to the hospital I was told that…"
Sleep2snore replied to Edam's discussion Double inhaling"It is a machine and if you have COPD and suffer from hay fever and asthma it will cause problems that you will have to find a work around for. Looks like you have already found one that helps.
It is very much a case of experiment and see. "
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