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Kath Hope
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  • HULL
  • United Kingdom
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RAFFLE for out UK Supporters - ends Saturday 21st October 2017

We're extending our raffle to our United Kingdom Supporters *(sorry rules mean we can't share this out of…Continue

Started Oct 19

Driving with Sleep Apnoea costs unnecessary lives. Please share to raise awareness.
1 Reply

The father of Toby (the young man killed in a traffic accident) meets up with the driver responsible for his death, due to undiagnosed sleep apnoea.  Both these men live with their own horrific scars…Continue

Tags: tired, sleep-apnoea, DVLA, driving

Started this discussion. Last reply by Sleep2snore Feb 24.

Research into Snoring Children and those with Down's Syndrome

This is a fantastic opportunity for parents and carers of Children ages 3 to 4 years old (they have enough 2 year olds now) who Snore and those beautiful children with Down's Syndrome to take part in…Continue

Started Apr 1, 2016

Daily Mail Highlights Snoring in Women
4 Replies

I was pleased to be part of this article in the Daily Mail about snoring in women, as it was a good opportunity to raise awareness of Sleep Apnoea, which as we know affects women and children too!…Continue

Started this discussion. Last reply by Kath Hope Mar 18, 2016.

 

Kath Hope's Page

Latest Activity

Kath Hope left a comment for YasminVaughan
"Have you remembered to turn up your humidifier now the season has changed? Another thing to try is Breathe Right Strips and perhaps a natural nasal spray like Sterimar."
Nov 2
YasminVaughan left a comment for Kath Hope
"Hi Kath I've being using a cpap machine for over 3 years the res meds one and full mask the last few weeks I have been getting bad headaches and dried sinuses making me feel horrid . I've got pressure on 7 a wooly cover for hose…"
Nov 2
Kath Hope posted a discussion

RAFFLE for out UK Supporters - ends Saturday 21st October 2017

We're extending our raffle to our United Kingdom Supporters *(sorry rules mean we can't share this out of the UK)*RAFFLE WILL BE DRAWN THIS SATURDAY 21ST OCTOBER.This is in celebration of the official opening of our Sleep Support Centre recently held in here in Hull…See More
Oct 19
Kath Hope replied to George's discussion Sleep Apnea and DVLA
"I George.  I can only tell you what I did....I immediately stopped driving (on advice of the sleep clinic and because I'd never have lived with myself if I'd caused an accident - my own Grandma was killed by a driver that…"
Oct 7
Kath Hope replied to George's discussion Sleep Apnea and DVLA
"You're welcome George, and shocked at the 26 weeks to wait, but good to know you're at least going to be eventually sorted out.  Keep us posted how things go."
Oct 4
Kath Hope replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Welcome Angie and feel free to start up a new discussion if you need any support, and hope you find our forum a good place to be. Kath"
Oct 1
Kath Hope replied to David Waterton's discussion Long term sleep deprivation
"Oh David....I wish I'd seen your post last week.  I'm actually currently travelling home from the SASA (Scottish Association for Sleep Apnoea) Conference.  I was speaking there and so was Dr Tom Mackay.  Anyway, I hope you…"
Oct 1

Profile Information

My Interest in Sleep Apnoea
I have Sleep Apnoea, Other
Treatment Being Used, If Any
BiPAP
If Machine Being Used, What Make? (e.g., Respironics M Series with A-Flex Auto-Adjusting CPAP)
Respironics PR One APAP
Devilbiss Sleep cube APAP (Known as Intellipap in the USA)
Respironics ASV
Resmed VPAP
If Mask Being Used, What Type? (e.g., ResMed Activa Nasal Mask)
Respironics Fit Life
Respironics Amara View
Sleepnet Hybrid
Amara Gel
Devilbiss D100
Fisher Paykel 432

(just need 2 more, than I'll have one for everyday of the week lol)

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Kath Hope's Blog

Medications Affecting Sleep

A number of drugs disrupt sleep, while others can cause daytime drowsiness. Your clinician may be able to suggest alternatives.

Medication

Used to treat

Examples

Possible effects on sleep/daytime…

Continue

Posted on October 16, 2014 at 22:27

CPAP TIPS

The following are my own tips in helping with my own treatment, and are not meant as a substitute for medical advice. However, I hope they prove useful. 



CPAP/APAP/BIPAP TOLERANCE PROBLEMS

A lot of people find it hard to tolerate their equipment at first, so it's a good idea to set it up during the day whilst relaxing, such as watching tv,…

Continue

Posted on October 25, 2011 at 20:00

Comment Wall (97 comments)

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At 15:32 on November 2, 2017, YasminVaughan said…
Hi Kath I've being using a cpap machine for over 3 years the res meds one and full mask the last few weeks I have been getting bad headaches and dried sinuses making me feel horrid . I've got pressure on 7 a wooly cover for hose humidifier, I'm running out of ideas I did use a nasal spray at nite but was told to stop this I've joined today many thanks
At 15:22 on August 23, 2014, Bernadette Plunkett said…

Hi Kath, thanks for the welcome. Having just started therapy after a 2 year struggle to get diagnosed I have a bunch of questions but I'll try to see if they've been asked and answered on the forum first before raining them down on everyone. 

At 10:26 on March 12, 2014, Amelia Kennedy said…

Thanks Kath, I'll wait until Marion's able to reply. I don't want to disturb while she's poorly - it can wait for now.  Thanks once again for your help x

At 14:01 on March 10, 2014, Amelia Kennedy said…

Hi Kath, thanks for the comment about Marion and sorry to hear she's not well.  I've added her as a friend and am waiting for her to accept.  I'm not sure where I should copy/paste my comment to her though as it already appears to be there?  I'm not familiar with the forum set-up yet - that's my excuse anyway! x

At 0:12 on March 8, 2014, Sandra Gibbens said…

Thank you for adding me, already I've received so much support and information, and it's very much appreciated!

At 15:51 on March 6, 2014, Amelia Kennedy said…

Thanks Kath!

At 15:12 on March 6, 2014, Amelia Kennedy said…

Interesting ... thanks Kath, I'll take a look.  I've also been using mine for years - 15 in fact and get along with it fine now (after a load of teething problems!).  What I do hate is the weight and bulk of it.  I'm worrying about how me and my husband can get away for a few days in the summer as he's just had his driving licence revoked due to ill-health and I can't drive.  I guess I'll be pleading with Papworth again when I go in a couple of months to test me on other (smaller) machines - usually to no avail!

At 19:57 on February 6, 2014, June Ostiadel said…

Hi Kath, thanks again for the useful info. Firstly I did wonder if it's some natural oils coming out of my skin; I always wash before bed and use no creams. You mentioned the change in temperature during the night, well, my face often gets hot and I wondered if that could cause the mask to slip as well as a drop in temp.

I clean my mask every day, wiping with a little washing up liquid then wipe/rinse with clean wet cloth.

The hospital tried me on APAP but when the pressure rose it caused leaking so they change it for me.

I have a medium size mask (the hospital fitted it) and although I have a small face I have quite a big nose lol.

I visited the sleep clinic last June/July at St James Hospital in Leeds, when I was given the CPAP machine. I haven't been asked to go back yet; they only gave me one spare filter. How long would you expect a mask to last and how often should I change the filter?

NB I have just order some items from your website which may help me too; the cleansing wipes, the cream to help sore skin etc and the card (in case of emergency).

 

Thank you so much for your help, glad I found you

At 6:23 on February 6, 2014, June Ostiadel said…

I almost always get off get off to sleep with no problem at all; my mask appears to fit quite well, however, after maybe two or three hours I wake up; mask leaking usually from around top of nose. Trouble is when I awake I then want the loo, anyway, I have realised that if I wipe my face and mask with a damp cloth (I have this at the side of bed) after I've done faffing, I can sometimes go back to sleep for another hour or so, but, sometimes at this time I just cannot get the mask to fit without it leaking; then I give up.

At 17:48 on February 5, 2014, June Ostiadel said…

Thank you Kath it's nice to be here.  I was diagnosed with Sleep Apnea about 5 months and have just about mastered the equipment, however, on some occasions I struggle and unfortunately ,I have to sleep without using the machine all night. I found this site when someone on Health Unlocked recommended it

June

 

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Latest Activity

Nick Cook is now a member of Hope2SleepGuide
Sunday
A updated their profile
Nov 15
Sue Butcher left a comment for A
"Yes, I still have it"
Nov 14
Sue Butcher and A are now friends
Nov 14
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Nov 14
Wendy Jordan is now a member of Hope2SleepGuide
Nov 8
Sleep2snore replied to Sue Butcher's discussion Best CPAP MACHINE FOR CAMPING?
"If you are hooking up to the mains it is not a problem if you are in the camper van. I used to use CPAP in a caravan hooked up to the mains all the time. However, if you are in a tent, that is a whole new ballgame."
Nov 6
Kevin Pigott replied to Kevin Pigott's discussion Portable Machines
"Thank you for the feedback. I think I will opt for the portable battery pack rather than a portable CPAP machine. Regards, Kevin."
Nov 6
Dimi. Mauropodi is now a member of Hope2SleepGuide
Nov 5
Sue Butcher replied to Sue Butcher's discussion Best CPAP MACHINE FOR CAMPING?
"  Thank you Graeme"
Nov 4
Kath Hope left a comment for YasminVaughan
"Have you remembered to turn up your humidifier now the season has changed? Another thing to try is Breathe Right Strips and perhaps a natural nasal spray like Sterimar."
Nov 2
YasminVaughan left a comment for Kath Hope
"Hi Kath I've being using a cpap machine for over 3 years the res meds one and full mask the last few weeks I have been getting bad headaches and dried sinuses making me feel horrid . I've got pressure on 7 a wooly cover for hose…"
Nov 2
YasminVaughan is now a member of Hope2SleepGuide
Nov 2
Graeme Joy replied to Kevin Pigott's discussion Portable Machines
"Up Date to CPAP on a Battery. Hi Sue and welcome to the party, we are not all mad here, but it helps! Have a look under PORTABLE MACHINES from Kevin Pigott,I posted there and would add an up date on battery packs on your post. Screen Grab. We do…"
Nov 1
Graeme Joy replied to Adam Humphreys's discussion DC power leads
"Update to previous"
Nov 1
Graeme Joy replied to Sue Butcher's discussion Best CPAP MACHINE FOR CAMPING?
"Hi Sue and welcome to the party, we are not all mad here, but it helps! Have a look under PORTABLE MACHINES from Kevin Pigott,I posted there and would add an up date on battery packs on your post. Screen Grab. We do offer a battery pack that can be…"
Nov 1
Sue Butcher shared Sabrina Jones's photo on Facebook
Oct 31
Sue Butcher posted a discussion

Best CPAP MACHINE FOR CAMPING?

HiI'm new to the forum.  I would like a compact machine for use in a camper van.  Does anyone have experience of this using electric hook up?  I would welcome your comments.  See More
Oct 31
Sue Butcher added a discussion to the group Buy-Sell-Swap
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RESMED S9 ESCAPE CPAP AND HUMIDIFIER

Resmed CPAP for salePower packHumidifier4 filtersSD cardTravel bagAll great conditionCollect or post to UK for £10Sensible offers                       See More
Oct 31
Sleep2snore replied to Terry Foxon's discussion Sore nose irritated face
"Maybe you have a reaction to silicone? What type of Nasal Pillows did they give you and what sore of pressures are you on? CPAP or APAP? Do you have a humidifier? Nasal Pillows can irritate the inside of the nose until you get used to them being…"
Oct 31

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