"In one way John, bearing in mind your AHI was 45 on diagnosis, 9 is very good, although if you're still experiencing the brain fog and tiredness etc., it's a pity the clinic haven't managed to get it lower despite them trying. …"
Sleep Apnoea Forum Bringing Help + Support to the Patient
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Kath Hope
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- United Kingdom
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Kath Hope's Discussions
Philips Respironics New Sleep Apnoea Diagnostic Service
If you snore and are tired, you could be suffering from sleep apnoea (see signs + symptoms on our website)…Continue
Started Apr 8, 2018
RAFFLE for out UK Supporters - ends Saturday 21st October 2017
We're extending our raffle to our United Kingdom Supporters *(sorry rules mean we can't share this out of…Continue
Started Oct 19, 2017
Driving with Sleep Apnoea costs unnecessary lives. Please share to raise awareness.
1 Reply
The father of Toby (the young man killed in a traffic accident) meets up with the driver responsible for his death, due to undiagnosed sleep apnoea. Both these men live with their own horrific scars…Continue
Tags: tired, sleep-apnoea, DVLA, driving
Started this discussion. Last reply by Sleep2snore Feb 24, 2017.
Research into Snoring Children and those with Down's Syndrome
This is a fantastic opportunity for parents and carers of Children ages 3 to 4 years old (they have enough 2 year olds now) who Snore and those beautiful children with Down's Syndrome to take part in…Continue
Started Apr 1, 2016
Kath Hope's Page
Latest Activity
"Hi Crabbleite
I can't speak for the Resmed Mirage FX, but we've sold the Wisp for years at the charity and our site has all 5 star reviews. The DreamWisp is the newest version with the difference being the hose comes out of the top…"
"Frankam, you're with a very good sleep clinic who remotely check and monitor your therapy so please don't try to adjust any settings. If the machine needs to go up to a pressure of 10 it's because that pressure is needed to…"
"Yes it can be a shock to get the results of a sleep study Mark and to find out you're stopping breathing 24 times per hour, because this is happening whilst asleep so most often the sufferer is totally unaware of this. This forum is…"
"Hi again Frankam and was glad to be of help and reassurance. I was speaking with one of your nurses earlier and told her of your great overnight success, and she was really pleased. The nurses aren't here on the forum but they are…"
"Welcome Mark and good to hear you got diagnosed and will hopefully soon be treated. An AHI of 24 is classed as moderate sleep apnoea (30 and above is severe). Good that you don't drink as it makes sleep apnoea worse. Being…"
"I had this same conversation with my own dentist after a tooth extraction. My dentist also has sleep apnoea himself and said that CPAP isn't likely to cause dry socket and advised me to continue using my CPAP as good oxygen is needed for…"
Hope2Sleep Charity's Free Online Webinar at Online
November 26, 2020 from 8pm to 9:30pm
Hope2Sleep Charity's Free Online Webinar at Online
November 26, 2020 from 8pm to 9:30pm
"Glad you're joining us Ken and looking forward to it, except I won't be allowed to have my hair done lol x"
"Looking forward to it Kath x"
Hope2Sleep Charity's Free Online Webinar at Online
November 26, 2020 from 8pm to 9:30pm
Hope2Sleep Charity's Free Online Webinar at Online
November 26, 2020 from 8pm to 9:30pm
"Sorry Cazack but only just seen you post. The sleep study we do at the charity is very similar to the one you've already had done and in fact it's not a sleep study that can 100% diagnose UARS, but the consultant who does the studies…"
"Only just seen your post Hugh, so a belated welcome to our forum, and sorry to hear it was a car accident needing you to go back onto CPAP. On the plus side it's good you feel you can contribute to others as we're all in this…"
"Yes, that would be find Amanda and I know Joseph who runs the clinic and am sure he'll be very helpful too."
Profile Information
- Treatment Being Used, if any?
- BiPAP
- If Machine Being Used, What Make or Model?
- Respironics PR One APAP
Devilbiss Sleep cube APAP (Known as Intellipap in the USA)
Respironics ASV
Resmed VPAP
- If Mask Being Used, What Type or Name?
- Respironics Fit Life
Respironics Amara View
Sleepnet Hybrid
Amara Gel
Devilbiss D100
Fisher Paykel 432
(just need 2 more, than I'll have one for everyday of the week lol)
Kath Hope's Photos
Kath Hope's Videos
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Children Also Have Sleep Apnoea
Added by Kath Hope
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Kath Hope's Blog
Medications Affecting Sleep
A number of drugs disrupt sleep, while others can cause daytime drowsiness. Your clinician may be able to suggest alternatives. |
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Medication |
Used to treat |
Examples |
Possible effects on sleep/daytime… |
Posted on October 16, 2014 at 22:27
CPAP TIPS
The following are my own tips in helping with my own treatment, and are not meant as a substitute for medical advice. However, I hope they prove useful.
CPAP/APAP/BIPAP TOLERANCE PROBLEMS
A lot of people find it hard to tolerate their equipment at first, so it's a good idea to set it up during the day whilst relaxing, such as watching tv,…
ContinuePosted on October 25, 2011 at 20:00
Comment Wall (95 comments)
- At 15:32 on November 2, 2017,
YasminVaughan said…
- Hi Kath I've being using a cpap machine for over 3 years the res meds one and full mask the last few weeks I have been getting bad headaches and dried sinuses making me feel horrid . I've got pressure on 7 a wooly cover for hose humidifier, I'm running out of ideas I did use a nasal spray at nite but was told to stop this I've joined today many thanks
- At 15:22 on August 23, 2014,
Hi Kath, thanks for the welcome. Having just started therapy after a 2 year struggle to get diagnosed I have a bunch of questions but I'll try to see if they've been asked and answered on the forum first before raining them down on everyone.
- At 10:26 on March 12, 2014,
Amelia Kennedy said…
Thanks Kath, I'll wait until Marion's able to reply. I don't want to disturb while she's poorly - it can wait for now. Thanks once again for your help x
- At 14:01 on March 10, 2014,
Hi Kath, thanks for the comment about Marion and sorry to hear she's not well. I've added her as a friend and am waiting for her to accept. I'm not sure where I should copy/paste my comment to her though as it already appears to be there? I'm not familiar with the forum set-up yet - that's my excuse anyway! x
- At 0:12 on March 8, 2014,
Sandra Gibbens said…
Thank you for adding me, already I've received so much support and information, and it's very much appreciated!
- At 15:51 on March 6, 2014,
Thanks Kath!
- At 15:12 on March 6, 2014,
Interesting ... thanks Kath, I'll take a look. I've also been using mine for years - 15 in fact and get along with it fine now (after a load of teething problems!). What I do hate is the weight and bulk of it. I'm worrying about how me and my husband can get away for a few days in the summer as he's just had his driving licence revoked due to ill-health and I can't drive. I guess I'll be pleading with Papworth again when I go in a couple of months to test me on other (smaller) machines - usually to no avail!
- At 19:57 on February 6, 2014,
June Ostiadel said…
Hi Kath, thanks again for the useful info. Firstly I did wonder if it's some natural oils coming out of my skin; I always wash before bed and use no creams. You mentioned the change in temperature during the night, well, my face often gets hot and I wondered if that could cause the mask to slip as well as a drop in temp.
I clean my mask every day, wiping with a little washing up liquid then wipe/rinse with clean wet cloth.
The hospital tried me on APAP but when the pressure rose it caused leaking so they change it for me.
I have a medium size mask (the hospital fitted it) and although I have a small face I have quite a big nose lol.
I visited the sleep clinic last June/July at St James Hospital in Leeds, when I was given the CPAP machine. I haven't been asked to go back yet; they only gave me one spare filter. How long would you expect a mask to last and how often should I change the filter?
NB I have just order some items from your website which may help me too; the cleansing wipes, the cream to help sore skin etc and the card (in case of emergency).
Thank you so much for your help, glad I found you
- At 6:23 on February 6, 2014,
I almost always get off get off to sleep with no problem at all; my mask appears to fit quite well, however, after maybe two or three hours I wake up; mask leaking usually from around top of nose. Trouble is when I awake I then want the loo, anyway, I have realised that if I wipe my face and mask with a damp cloth (I have this at the side of bed) after I've done faffing, I can sometimes go back to sleep for another hour or so, but, sometimes at this time I just cannot get the mask to fit without it leaking; then I give up.
- At 17:48 on February 5, 2014,
Thank you Kath it's nice to be here. I was diagnosed with Sleep Apnea about 5 months and have just about mastered the equipment, however, on some occasions I struggle and unfortunately ,I have to sleep without using the machine all night. I found this site when someone on Health Unlocked recommended it
June
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Latest Activity
"Thanks Kath. I am going to start adapting to the mask by wearing it in the day at first. Once I get one or two nights on it I reckon I will be OK.
other forums have said there is no point in tweaking my pressure because of the high leak rate and I…"
"but it's also worth considering if you definitely ONLY breathe through your nose during sleep as that could cause a higher AHI...”
Crabbleite, maybe you are one of the relative minority like me, who find that with CPAP you physically…"
"In one way John, bearing in mind your AHI was 45 on diagnosis, 9 is very good, although if you're still experiencing the brain fog and tiredness etc., it's a pity the clinic haven't managed to get it lower despite them trying. …"
"Hi Crabbleite
I can't speak for the Resmed Mirage FX, but we've sold the Wisp for years at the charity and our site has all 5 star reviews. The DreamWisp is the newest version with the difference being the hose comes out of the top…"
"Hi. I was diagnosed about 3 years ago with severe sleep (45 AHI). I'm 63, fairly active and only slightly overweight. My AHI came down to 9 after about 12 months and I get about 7 hours sleep a night. Despite their best efforts my clinic has…"
"Hi
I have been using xPAP fo around 15 years and have never really for it to work for me. I am joining this forum with eh aim of getting my AHI below 5.
I have been using a Respirinicas Comfort Gel nasal mask for a long time now and it is well…"
"Frankam, you're with a very good sleep clinic who remotely check and monitor your therapy so please don't try to adjust any settings. If the machine needs to go up to a pressure of 10 it's because that pressure is needed to…"
"An update here tonight is my 6th night with the cpap...The first night was great slept solid,however the last three days i just could not …"
"Those adrenaline shots when you stop breathing and your brain wakes you up can certainly send you dashing to the loo. CPAP worked for me too (diagnosed 2008). Great night's sleep on night one, and only got better."
"Yes it can be a shock to get the results of a sleep study Mark and to find out you're stopping breathing 24 times per hour, because this is happening whilst asleep so most often the sufferer is totally unaware of this. This forum is…"
"Hi Kath, thank you for the quick response.
Until last February I had never heard of sleep apnea, so it's been a bit of a journey until now even.
When the GP first explained sleep apnea as being asleep and your throat closing then you stop…"
"Hi again Frankam and was glad to be of help and reassurance. I was speaking with one of your nurses earlier and told her of your great overnight success, and she was really pleased. The nurses aren't here on the forum but they are…"
"Welcome Mark and good to hear you got diagnosed and will hopefully soon be treated. An AHI of 24 is classed as moderate sleep apnoea (30 and above is severe). Good that you don't drink as it makes sleep apnoea worse. Being…"
Newly diagnosed not sure what happens next - Scottish NHS
Hi,Firstly my names Mark and I am totally alien to all of this.I had a sleep test done by the Scottish NHS about 14 weeks ago, after waiting since January to get it, given all the Covid problems I thought that was quite quick. The results came back…See More
"Well i finally made it here..thanks for all the help and advice fromKath who has been a great help.I used my philips cpap machine last night for …"
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