"Sorry for the delay as I managed to get myself locked out of the forum lol. Please don't be messing with the pressures and contact your hospital if your wife has noticed you looking gray. Perhaps go back to a different mask until…"
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Kath Hope
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Kath Hope's Discussions
Philips Respironics New Sleep Apnoea Diagnostic Service
If you snore and are tired, you could be suffering from sleep apnoea (see signs + symptoms on our website)…Continue
Started Apr 8, 2018
RAFFLE for out UK Supporters - ends Saturday 21st October 2017
We're extending our raffle to our United Kingdom Supporters *(sorry rules mean we can't share this out of…Continue
Started Oct 19, 2017
Driving with Sleep Apnoea costs unnecessary lives. Please share to raise awareness.
1 Reply
The father of Toby (the young man killed in a traffic accident) meets up with the driver responsible for his death, due to undiagnosed sleep apnoea. Both these men live with their own horrific scars…Continue
Tags: tired, sleep-apnoea, DVLA, driving
Started this discussion. Last reply by Sleep2snore Feb 24, 2017.
Research into Snoring Children and those with Down's Syndrome
This is a fantastic opportunity for parents and carers of Children ages 3 to 4 years old (they have enough 2 year olds now) who Snore and those beautiful children with Down's Syndrome to take part in…Continue
Started Apr 1, 2016
Kath Hope's Page
Latest Activity
Kath Hope replied to Lee's discussion DreamWear full face"Hi Lee. Sorry to hear you're still having problems with masks. It's not normal to feel there's not enough air with the DreamWear as that mask usually give people the opposite sensation of feeling more pressure than…"
Kath Hope replied to Lee's discussion SoClean 2"I use both the SoClean at the DreamWear mask. Remember the SoClean is a sanitiser rather than a cleaner, so the mask still needs cleaning of our facial oils. I use the CPAP Mask Wipes before putting the mask, including headgear, into the…"
Kath Hope replied to Lee's discussion SoClean 2"I use both the SoClean at the DreamWear mask. Remember the SoClean is a sanitiser rather than a cleaner, so the mask still needs cleaning of our facial oils. I use the CPAP Mask Wipes before putting the mask, including headgear, into the…"
Kath Hope replied to Ruth Furniss's discussion Blocked nose"Definitely nothing inside the humidifier chamber except plain water. Olbas Oil on a tissue or Vicks as Eric states, and there's a more detailed article on the website here https://www.hope2sleep.co.uk/blog/cpap-masks-with-a-cold.html"
Kath Hope replied to Andy Falconer's discussion First night with CPAP"Hi Andy. That's a good first night and sounding positive already. You may find your AHI comes down over the next few nights. Ideally we're looking for it to be up to 5 which is classed as 'normal.'
Your other goods will be…"
Kath Hope replied to Linda's discussion Do charities take new surplus CPAP masks?"Hi Linda
I just wanted to say thanks for sending us your surplus cushions and headgear. We've already given out one of the cushions to someone who was struggling with a split cushion. We really do appreciate this and so did the…"
Kath Hope replied to Judy Y's discussion Could I have developed Central Sleep Apnoea ?"I don't think those symptoms are specific to central sleep apnoea. Your app should tell you if those apnoeas are obstructive or centrals. It sometimes says 'CA.' Sometimes when people first wake it takes a…"
Kath Hope replied to Linda's discussion Do charities take new surplus CPAP masks?"Hi Linda. Due to the way some of the manufacturer package their masks, eg multiple sizes of cushions, some clinics just hand the whole pack out to the patients, and then there are others that are more resourceful in that they take out the…"
Kath Hope replied to Linda's discussion Do charities take new surplus CAPD masks?"I know exactly what you mean Linda. It's good when people purchase them when unsure of their size, but wasteful otherwise. You can send them to our Hope2Sleep Charity who run this forum and address is on the contact…"
Kath Hope replied to Ruth Furniss's discussion Cold air"Like you say yourself Ruth, warming up the bedroom will help, but also if you don't have a heated humidifier then that would help - as will covering the tube with a Hose Cover."
Kath Hope replied to Kyla Davies's discussion Soclean machine in the group Buy-Sell-Swap"Oh what a shame Kyla. We are all so different with our sensitivies to smells, as I love the clean smell after using mine. I'd advise you edit this with the price you're looking for, to save lots of messages agreeing and…"
Kath Hope replied to Chris Vesey's discussion Cure for wind"This is a common problem Sally, and especially when new to CPAP, irrespective of whatever machines people use. It's definitely not just an Airsense 10 problem.
If you've not clicked on the link I posted above in my reply to Chris…"
Kath Hope replied to Bob Blair's discussion So Clean sanitiser"I'm not aware of finance, and we at the Hope2Sleep Charity certainly couldn't offer this unfortunately. However, if you have a Paypal account then you can apply for Paypal Credit which is offered for products over £150 I…"
Kath Hope replied to Bob Blair's discussion So Clean sanitiser"Great to hear this Andy Just as importantly they will help prevent gum disease from dry mouth (plus less dental bills)."
Kath Hope replied to Bob Blair's discussion So Clean sanitiser"Thanks for supporting our charity with your order Andy, and they'll be sent out tomorrow. I love the Beaumont Citrus Wipes and have tried all the others, and these are definitely the best. I use them everyday. Hope you find the…"
Profile Information
- My Interest in Sleep Apnoea
- I have Sleep Apnoea, Other
- Treatment Being Used, If Any
- BiPAP
- If Machine Being Used, What Make? (e.g., Respironics M Series with A-Flex Auto-Adjusting CPAP)
- Respironics PR One APAP
Devilbiss Sleep cube APAP (Known as Intellipap in the USA)
Respironics ASV
Resmed VPAP
- If Mask Being Used, What Type? (e.g., ResMed Activa Nasal Mask)
- Respironics Fit Life
Respironics Amara View
Sleepnet Hybrid
Amara Gel
Devilbiss D100
Fisher Paykel 432
(just need 2 more, than I'll have one for everyday of the week lol)
Kath Hope's Photos
Kath Hope's Videos
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Children Also Have Sleep Apnoea
Added by Kath Hope
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Kath Hope's Blog
Medications Affecting Sleep
A number of drugs disrupt sleep, while others can cause daytime drowsiness. Your clinician may be able to suggest alternatives. |
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Medication |
Used to treat |
Examples |
Possible effects on sleep/daytime… |
Posted on October 16, 2014 at 22:27
CPAP TIPS
The following are my own tips in helping with my own treatment, and are not meant as a substitute for medical advice. However, I hope they prove useful.
CPAP/APAP/BIPAP TOLERANCE PROBLEMS
A lot of people find it hard to tolerate their equipment at first, so it's a good idea to set it up during the day whilst relaxing, such as watching tv,…
ContinuePosted on October 25, 2011 at 20:00
Comment Wall (97 comments)
- At 15:32 on November 2, 2017,
YasminVaughan said… - Hi Kath I've being using a cpap machine for over 3 years the res meds one and full mask the last few weeks I have been getting bad headaches and dried sinuses making me feel horrid . I've got pressure on 7 a wooly cover for hose humidifier, I'm running out of ideas I did use a nasal spray at nite but was told to stop this I've joined today many thanks
- At 15:22 on August 23, 2014, Bernadette Plunkett said…
Hi Kath, thanks for the welcome. Having just started therapy after a 2 year struggle to get diagnosed I have a bunch of questions but I'll try to see if they've been asked and answered on the forum first before raining them down on everyone.
- At 10:26 on March 12, 2014,
Amelia Kennedy said… Thanks Kath, I'll wait until Marion's able to reply. I don't want to disturb while she's poorly - it can wait for now. Thanks once again for your help x
- At 14:01 on March 10, 2014, Amelia Kennedy said…
Hi Kath, thanks for the comment about Marion and sorry to hear she's not well. I've added her as a friend and am waiting for her to accept. I'm not sure where I should copy/paste my comment to her though as it already appears to be there? I'm not familiar with the forum set-up yet - that's my excuse anyway! x
- At 0:12 on March 8, 2014,
Sandra Gibbens said… Thank you for adding me, already I've received so much support and information, and it's very much appreciated!
- At 15:51 on March 6, 2014, Amelia Kennedy said…
Thanks Kath!
- At 15:12 on March 6, 2014, Amelia Kennedy said…
Interesting ... thanks Kath, I'll take a look. I've also been using mine for years - 15 in fact and get along with it fine now (after a load of teething problems!). What I do hate is the weight and bulk of it. I'm worrying about how me and my husband can get away for a few days in the summer as he's just had his driving licence revoked due to ill-health and I can't drive. I guess I'll be pleading with Papworth again when I go in a couple of months to test me on other (smaller) machines - usually to no avail!
- At 19:57 on February 6, 2014,
June Ostiadel said… Hi Kath, thanks again for the useful info. Firstly I did wonder if it's some natural oils coming out of my skin; I always wash before bed and use no creams. You mentioned the change in temperature during the night, well, my face often gets hot and I wondered if that could cause the mask to slip as well as a drop in temp.
I clean my mask every day, wiping with a little washing up liquid then wipe/rinse with clean wet cloth.
The hospital tried me on APAP but when the pressure rose it caused leaking so they change it for me.
I have a medium size mask (the hospital fitted it) and although I have a small face I have quite a big nose lol.
I visited the sleep clinic last June/July at St James Hospital in Leeds, when I was given the CPAP machine. I haven't been asked to go back yet; they only gave me one spare filter. How long would you expect a mask to last and how often should I change the filter?
NB I have just order some items from your website which may help me too; the cleansing wipes, the cream to help sore skin etc and the card (in case of emergency).
Thank you so much for your help, glad I found you
- At 6:23 on February 6, 2014, June Ostiadel said…
I almost always get off get off to sleep with no problem at all; my mask appears to fit quite well, however, after maybe two or three hours I wake up; mask leaking usually from around top of nose. Trouble is when I awake I then want the loo, anyway, I have realised that if I wipe my face and mask with a damp cloth (I have this at the side of bed) after I've done faffing, I can sometimes go back to sleep for another hour or so, but, sometimes at this time I just cannot get the mask to fit without it leaking; then I give up.
- At 17:48 on February 5, 2014, June Ostiadel said…
Thank you Kath it's nice to be here. I was diagnosed with Sleep Apnea about 5 months and have just about mastered the equipment, however, on some occasions I struggle and unfortunately ,I have to sleep without using the machine all night. I found this site when someone on Health Unlocked recommended it
June
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Latest Activity
Lee replied to Lee's discussion DreamWear full face"Well I turned EPR on and tried the mask again last night, but again I stopped breathing which woke me up gasping for air. It seems to happen just after or not long after I drop off, after the third time I changed mask back to original one and went…"
Kath Hope replied to Lee's discussion DreamWear full face"Sorry for the delay as I managed to get myself locked out of the forum lol. Please don't be messing with the pressures and contact your hospital if your wife has noticed you looking gray. Perhaps go back to a different mask until…"
Edam replied to Edam's discussion APAP or BIPAP"There is no link between the 95% pressure and the AHI.
A few nights back my 95% pressure was 19.46 with AHI 0
Last night my 95% pressure was 17 with AHI 0
When the AHI does increase its normally hypopnoea,s
So why does the APAP want to increase the…"
Lee replied to Lee's discussion DreamWear full face"Hi thanks for the reply’s I will look at this as the wife said I was gray yesterday and after looking at the instructions again it says about the symptoms I had to not use and talk to my clinic so a bit worried. I used my other full face mask…"
Sleep2snore replied to Lee's discussion DreamWear full face"I would say if you have the Ramp Start enabled to make it start at a higher pressure. Check also if you are using a big enough cushion as this is a common mistake. Same with Nasal Pillows, people tend too use a size to small. Check you…"
Sleep2snore replied to Edam's discussion APAP or BIPAP"That is not impossible, even dust and mites can cause problems, even the mites that are so tiny you can't see them and they live on your body. However, only you yourself can work out if certain food make things worse. It could be…"
Edam replied to Edam's discussion APAP or BIPAP"I am now finding that the pressure the APAP runs at during the night is dependent on what I have eaten that evening.
I have found that if I have bolied rice rather than chips with the evening meal then my 95% pressure can reduce by as much as…"
Kath Hope replied to Lee's discussion DreamWear full face"Hi Lee. Sorry to hear you're still having problems with masks. It's not normal to feel there's not enough air with the DreamWear as that mask usually give people the opposite sensation of feeling more pressure than…"
Lee posted a discussionDreamWear full face
Hi all I’m having trouble with my DreamWear full face mask,I’ve spent a long time getting the fit right but I have two problems 1. The bit between my nostrils somehow hurts it’s bearable but I would sooner not have the pain and 2. I have to breathe…See More
Sleep2snore replied to SleepyHead's discussion NHS or Private to get diagnosis to determine treatment"How are you getting on, any progress?"
Sleep2snore replied to Edam's discussion APAP or BIPAP"I was not off for a few days.
The results were the same as when I started!
Which I have to say was bad!"
Edam replied to Edam's discussion APAP or BIPAP"It is my understanding that when a new sleep test is required you need to be off CPAP for a few days to get a accurate test. Is this correct
The London hospital does not seem to be aware of this"
SleepyHead replied to SleepyHead's discussion NHS or Private to get diagnosis to determine treatment"Thank you - that is very helpful"
Sleep2snore replied to SleepyHead's discussion NHS or Private to get diagnosis to determine treatment"Private and will not be cheap! London Sleep Clinic (PRIVATE)
London Bridge Hospital know nothing about this one.
Sleep & Snoring Institute Know nothing about this one either,
If you are near London try getting to one of the…"
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