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Kath Hope
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Kath Hope's Discussions

Philips Respironics New Sleep Apnoea Diagnostic Service

If you snore and are tired, you could be suffering from sleep apnoea (see signs + symptoms on our website)…Continue

Started Apr 8, 2018

RAFFLE for out UK Supporters - ends Saturday 21st October 2017

We're extending our raffle to our United Kingdom Supporters *(sorry rules mean we can't share this out of…Continue

Started Oct 19, 2017

Driving with Sleep Apnoea costs unnecessary lives. Please share to raise awareness.
1 Reply

The father of Toby (the young man killed in a traffic accident) meets up with the driver responsible for his death, due to undiagnosed sleep apnoea.  Both these men live with their own horrific scars…Continue

Tags: tired, sleep-apnoea, DVLA, driving

Started this discussion. Last reply by Sleep2snore Feb 24, 2017.

Research into Snoring Children and those with Down's Syndrome

This is a fantastic opportunity for parents and carers of Children ages 3 to 4 years old (they have enough 2 year olds now) who Snore and those beautiful children with Down's Syndrome to take part in…Continue

Started Apr 1, 2016

 

Kath Hope's Page

Latest Activity

Kath Hope replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Hi Booksy This is a great 1st night's result regarding already feeling the benefits of CPAP.   It's absolutely normal to get a few teething problems at first but if you feel the air pressure is still too low contact your sleep…"
Mar 23
Kath Hope replied to Damien's discussion Newly diagnosed via Phillips at home test and needing advice
"Hi Judith Sorry to hear there's such a long waiting list in your area.  It's been made worse because a lot of staff from the sleep clinics are respiratory specialists and these are the very professionals who were needed in ICU and on…"
Mar 10
Kath Hope replied to Damien's discussion Newly diagnosed via Phillips at home test and needing advice
"Sorry I missed this question Damien but I've spoken to you since at the charity and know you should have the machine by now.  Hope things are going well."
Mar 10
Kath Hope replied to Damien's discussion Newly diagnosed via Phillips at home test and needing advice
"Bless you and do understand, now you've got a diagnosis with 'hope' in sight for an end, or at least vast improvements, to your symptoms.  We got some more machines ordered today, although only one APAP without a humifidier...the…"
Mar 2
Kath Hope replied to Raza silveira's discussion Sleep disorder following mini stroke
"You definitely will be in good hands Raza and we look forward to helping you soon :)  Meanwhile, if you've not registered you might want to join us this Thursday on our support webinar…"
Mar 1
Kath Hope replied to Damien's discussion Newly diagnosed via Phillips at home test and needing advice
"Agree Damien, that although 14.6 is classed as mild (on the border of moderate though) I'd want that AHI and spo2 treating asap and especially if symptomatic. I'm not sure why you'd wait for recommendation from ENT though re CPAP when…"
Mar 1
Kath Hope replied to Raza silveira's discussion Sleep disorder following mini stroke
"You're welcome Raza and if it's us at the charity you've booked the sleep study with then it will be me who gives you the results, and the sleep consultant we use is very thorough indeed and will take all your medical history and any…"
Feb 28
Kath Hope replied to Damien's discussion Newly diagnosed via Phillips at home test and needing advice
"Hi and welcome Damien What were the results of your sleep study....mild, moderate or severe sleep apnoea?  You're right that most private insurance doesn't cover sleep apnoea, although will sometimes pay for an initial…"
Feb 28
Kath Hope replied to Raza silveira's discussion Sleep disorder following mini stroke
"Hi Raza and glad you found us. Firstly to say, there are many of us who aren't overweight, smokers or regular drinkers (mine's severe), as the main reason for sleep apnoea is due to craniofacial issues that we inherit, but of course being…"
Feb 26
An event by Kath Hope was featured
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Hope2Sleep Charity's Free Online Webinar at Online

March 4, 2021 from 8pm to 9:30pm
All Welcome to our Hope2Sleep Charity's 2nd Online Webinar.  Please note you do not need a Zoom account to join our webinar and you won't be on camera so no need to be shy!You can also ask questions during the webinar to be answered by the speakers.Click to Register…See More
Feb 25
Kath Hope posted an event
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Hope2Sleep Charity's Free Online Webinar at Online

March 4, 2021 from 8pm to 9:30pm
All Welcome to our Hope2Sleep Charity's 2nd Online Webinar.  Please note you do not need a Zoom account to join our webinar and you won't be on camera so no need to be shy!You can also ask questions during the webinar to be answered by the speakers.Click to Register…See More
Feb 25
Kath Hope replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"In one way John, bearing in mind your AHI was 45 on diagnosis, 9 is very good, although if you're still experiencing the brain fog and tiredness etc., it's a pity the clinic haven't managed to get it lower despite them trying. …"
Jan 22
Kath Hope replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Hi Crabbleite I can't speak for the Resmed Mirage FX, but we've sold the Wisp for years at the charity and our site has all 5 star reviews.  The DreamWisp is the newest version with the difference being the hose comes out of the top…"
Jan 22
Kath Hope replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Frankam, you're with a very good sleep clinic who remotely check and monitor your therapy so please don't try to adjust any settings.  If the machine needs to go up to a pressure of 10 it's because that pressure is needed to…"
Jan 18
Kath Hope replied to ScottishSleepyHead's discussion Newly diagnosed not sure what happens next - Scottish NHS
"Yes it can be a shock to get the results of a sleep study Mark and to find out you're stopping breathing 24 times per hour, because this is happening whilst asleep so most often the sufferer is totally unaware of this.  This forum is…"
Jan 15
Kath Hope replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Hi again Frankam and was glad to be of help and reassurance.  I was speaking with one of your nurses earlier and told her of your great overnight success, and she was really pleased.  The nurses aren't here on the forum but they are…"
Jan 14

Profile Information

Treatment Being Used, if any?
BiPAP
If Machine Being Used, What Make or Model?
Respironics PR One APAP
Devilbiss Sleep cube APAP (Known as Intellipap in the USA)
Respironics ASV
Resmed VPAP
If Mask Being Used, What Type or Name?
Respironics Fit Life
Respironics Amara View
Sleepnet Hybrid
Amara Gel
Devilbiss D100
Fisher Paykel 432

(just need 2 more, than I'll have one for everyday of the week lol)

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Kath Hope's Blog

Medications Affecting Sleep

A number of drugs disrupt sleep, while others can cause daytime drowsiness. Your clinician may be able to suggest alternatives.

Medication

Used to treat

Examples

Possible effects on sleep/daytime…

Continue

Posted on October 16, 2014 at 22:27

CPAP TIPS

The following are my own tips in helping with my own treatment, and are not meant as a substitute for medical advice. However, I hope they prove useful. 



CPAP/APAP/BIPAP TOLERANCE PROBLEMS

A lot of people find it hard to tolerate their equipment at first, so it's a good idea to set it up during the day whilst relaxing, such as watching tv,…

Continue

Posted on October 25, 2011 at 20:00

Comment Wall (96 comments)

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At 15:28 on February 12, 2021, Sue Abson said…

Hi Kath - I've made my profile private to friends only, so that Sarah's number shouldn't now be public.  But how do you delete a comment?  I can't see a way of deleting my own? 

At 15:32 on November 2, 2017, YasminVaughan said…
Hi Kath I've being using a cpap machine for over 3 years the res meds one and full mask the last few weeks I have been getting bad headaches and dried sinuses making me feel horrid . I've got pressure on 7 a wooly cover for hose humidifier, I'm running out of ideas I did use a nasal spray at nite but was told to stop this I've joined today many thanks
At 15:22 on August 23, 2014, Bernadette Plunkett said…

Hi Kath, thanks for the welcome. Having just started therapy after a 2 year struggle to get diagnosed I have a bunch of questions but I'll try to see if they've been asked and answered on the forum first before raining them down on everyone. 

At 10:26 on March 12, 2014, Amelia Kennedy said…

Thanks Kath, I'll wait until Marion's able to reply. I don't want to disturb while she's poorly - it can wait for now.  Thanks once again for your help x

At 14:01 on March 10, 2014, Amelia Kennedy said…

Hi Kath, thanks for the comment about Marion and sorry to hear she's not well.  I've added her as a friend and am waiting for her to accept.  I'm not sure where I should copy/paste my comment to her though as it already appears to be there?  I'm not familiar with the forum set-up yet - that's my excuse anyway! x

At 0:12 on March 8, 2014, Sandra Gibbens said…

Thank you for adding me, already I've received so much support and information, and it's very much appreciated!

At 15:51 on March 6, 2014, Amelia Kennedy said…

Thanks Kath!

At 15:12 on March 6, 2014, Amelia Kennedy said…

Interesting ... thanks Kath, I'll take a look.  I've also been using mine for years - 15 in fact and get along with it fine now (after a load of teething problems!).  What I do hate is the weight and bulk of it.  I'm worrying about how me and my husband can get away for a few days in the summer as he's just had his driving licence revoked due to ill-health and I can't drive.  I guess I'll be pleading with Papworth again when I go in a couple of months to test me on other (smaller) machines - usually to no avail!

At 19:57 on February 6, 2014, June Ostiadel said…

Hi Kath, thanks again for the useful info. Firstly I did wonder if it's some natural oils coming out of my skin; I always wash before bed and use no creams. You mentioned the change in temperature during the night, well, my face often gets hot and I wondered if that could cause the mask to slip as well as a drop in temp.

I clean my mask every day, wiping with a little washing up liquid then wipe/rinse with clean wet cloth.

The hospital tried me on APAP but when the pressure rose it caused leaking so they change it for me.

I have a medium size mask (the hospital fitted it) and although I have a small face I have quite a big nose lol.

I visited the sleep clinic last June/July at St James Hospital in Leeds, when I was given the CPAP machine. I haven't been asked to go back yet; they only gave me one spare filter. How long would you expect a mask to last and how often should I change the filter?

NB I have just order some items from your website which may help me too; the cleansing wipes, the cream to help sore skin etc and the card (in case of emergency).

 

Thank you so much for your help, glad I found you

At 6:23 on February 6, 2014, June Ostiadel said…

I almost always get off get off to sleep with no problem at all; my mask appears to fit quite well, however, after maybe two or three hours I wake up; mask leaking usually from around top of nose. Trouble is when I awake I then want the loo, anyway, I have realised that if I wipe my face and mask with a damp cloth (I have this at the side of bed) after I've done faffing, I can sometimes go back to sleep for another hour or so, but, sometimes at this time I just cannot get the mask to fit without it leaking; then I give up.

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Latest Activity

Drew Siegert is now a member of Hope2SleepGuide
Monday
Linda updated their profile
Sunday
Profile IconPaula Tanner and Steve Ward joined Hope2SleepGuide
Saturday
Janet Martin is now a member of Hope2SleepGuide
Apr 4
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Mar 31
Kath Hope replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Hi Booksy This is a great 1st night's result regarding already feeling the benefits of CPAP.   It's absolutely normal to get a few teething problems at first but if you feel the air pressure is still too low contact your sleep…"
Mar 23
Sleep2snore replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
Mar 23
Sleep2snore replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Either they have not set your minimum pressure and the machine is slowly finding the level you require, or they have not set up a minimum pressure. I don't know how or if they set your machine up, but my mate got one and under Covid rules they…"
Mar 23
Booksy replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Hi Everyone, I’m 50 and was diagnosed last month with moderate sleep apnea with a score of 28. Last night was my first night with my cpap machine and mask. I slept a whole 8 hours without waking! I also feel quite a bit brighter and less foggy…"
Mar 23
Mr Matt Boadle is now a member of Hope2SleepGuide
Mar 21
Judith Wilson replied to Damien's discussion Newly diagnosed via Phillips at home test and needing advice
"Glad to hear you are settling into APAP machine Damien...it did sound preferable to CPAP ones.The more I use my oximeter as I wake up during sleep I think I’m discovering my problem with low oxygen seems to be only in the morning as I snooze,…"
Mar 13
Damien replied to Damien's discussion Newly diagnosed via Phillips at home test and needing advice
"Hi Judith, sorry to hear you are struggling. I’ve been using my apap since Tuesday and noticed some small improvements but i think i’ll need to up the pressure to get AHI lower as although its much lower than my test result i’m…"
Mar 13
Judith Wilson replied to Damien's discussion Newly diagnosed via Phillips at home test and needing advice
"Thank you Kath, yes I suspected Lung/Sleep folks had been commandeered’ to covid, but this seems to include appointment staff too! Although I’d love a remedy ( no matter how partial) to my existing conditions I am a bit fearful of the…"
Mar 10
Kath Hope replied to Damien's discussion Newly diagnosed via Phillips at home test and needing advice
"Hi Judith Sorry to hear there's such a long waiting list in your area.  It's been made worse because a lot of staff from the sleep clinics are respiratory specialists and these are the very professionals who were needed in ICU and on…"
Mar 10
Kath Hope replied to Damien's discussion Newly diagnosed via Phillips at home test and needing advice
"Sorry I missed this question Damien but I've spoken to you since at the charity and know you should have the machine by now.  Hope things are going well."
Mar 10
Judith Wilson replied to Damien's discussion Newly diagnosed via Phillips at home test and needing advice
"I am rather like Damien. Got a referral to Lung/Sleep consultant but no appointments in nhs for at least 10 months. Ordered the charities two night monitoring kit to test for sleep apnoea, but will this count as diagnosis to get prescription if I…"
Mar 10
Judith Wilson is now a member of Hope2SleepGuide
Mar 10
Damien replied to Damien's discussion Newly diagnosed via Phillips at home test and needing advice
"Hi Kathy, i bit the bullet the other day and just ordered the apap. What is the usual waiting time for order and delivery completion in mainland UK? thanks  damien "
Mar 4
Kath Hope replied to Damien's discussion Newly diagnosed via Phillips at home test and needing advice
"Bless you and do understand, now you've got a diagnosis with 'hope' in sight for an end, or at least vast improvements, to your symptoms.  We got some more machines ordered today, although only one APAP without a humifidier...the…"
Mar 2
Damien replied to Damien's discussion Newly diagnosed via Phillips at home test and needing advice
"Hi Kath, I’m just holding off to see final sight of my insurance docs and to speak to them (on the very unlikely chance they can do anything) but it does look like it will be excluded so will likely buy the apap this week and then see ENT…"
Mar 2

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