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Latest Activity

Profile Icontim richards, mark & les, Lesley Parks and 1 more joined Hope2SleepGuide
Feb 13
Jenny Wren replied to Jenny Wren's discussion Feeling Abandoned by the Sleep Clinic
"I've got lucky! I can collect a new machine next week. It's been really helpful to 'speak' to people here and to Kath. It alerted me to the fact that I'd slipped through the net. The clinic were very apologetic and now all…"
Feb 8
Ejog1 replied to Jenny Wren's discussion Feeling Abandoned by the Sleep Clinic
"Thanks. Good news for me today, my clinic did finally reply to me and they’re giving me a new machine. The person I spoke to was super helpful. The NHS clinics are great when you’re able to speak to them, but they seem to be…"
Feb 7
Jenny Wren replied to Jenny Wren's discussion Feeling Abandoned by the Sleep Clinic
"Yes, my machine is affected. Seems I slipped through the net. I'm now on the sleep clinic's radar again and am hopeful that this will be sorted soon. Thanks for your reply and stay well."
Feb 7
Jenny Wren replied to Jenny Wren's discussion Feeling Abandoned by the Sleep Clinic
"I'm sorry to hear that. I emailed Kath about this and she was very helpful. She advised me to get in touch with my sleep clinic and I have had a reply from them. I so hope that you get a response soon."
Feb 7
Jonathan replied to Jenny Wren's discussion Feeling Abandoned by the Sleep Clinic
"Hello It seems you can check with Philips Respironics whether your machine is affected by the recall https://www.philipssrcupdate.expertinquiry.com/?ulang=en Hopefully it's not one of the problem machines, and at least you will know that your…"
Feb 5
Jonathan replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Hello, I was diagnosed about the same time as you, and also found CPAP therapy live-changing.  My original machine was an NHS issue Respironics, with no reporting or logging of data.  After a throat infection which wouldn't go away, I…"
Feb 5
Ejog1 replied to Jenny Wren's discussion Feeling Abandoned by the Sleep Clinic
"I can’t offer any advice but I sympathise with the feeling of being abandoned. I got given my current Resmed machine about 8 or 9 years ago by my clinic, and I think it’s overdue replacement, but I can’t get a reply from my clinic,…"
Feb 5
Ejog1 replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Hi,  thanks for approving my application to the forum. I was first diagnosed in 2007 although for many years I had been suffering from extreme tiredness, and my snoring and stunted breathing at night was often joked about amongst friends and…"
Feb 5
Ejog1 is now a member of Hope2SleepGuide
Feb 5
Jenny Wren posted a discussion

Feeling Abandoned by the Sleep Clinic

I was diagnosed with OSA back in 2017 following having used the Hope 2 Sleep diagnostic home thing. (Thank you!). Since being diagnosed with OSA I've also been diagnosed with hypertension and am being treated for this with medication.I was given a…See More
Feb 3
John replied to John's discussion How often do medics tell you the cause of apnea, rather than just prescribe CPAP and forget
"So the medical world is getting into ultrasound diagnosis, looks like early stages"
Feb 2
John replied to John's discussion How often do medics tell you the cause of apnea, rather than just prescribe CPAP and forget
Feb 2
Jonathan Oakden is now a member of Hope2SleepGuide
Feb 2
John posted discussions
Feb 2
John replied to John's discussion Are resmed airsense reports really accurate?
"Hi Kath, thanks for your great answer. I think even if the CPAP was perfect it's the other rigmarole interferes with sleep, for me anyway - oh the pipe's gurgling, oh didn't shave and have to tighten everything, oh the temperature…"
Feb 2
Kath Hope replied to John's discussion Are resmed airsense reports really accurate?
"The o2 ring is good if you can retrieve it 😂 Yes I've seen Nick's videos and he has a lot of great content, but it doesn't mean everything is 100% correct (same for us all as we just try our best with the knowledge we have).…"
Feb 1
John replied to John's discussion Are resmed airsense reports really accurate?
"Hi Kath, I did get myself an O2 Ring, but it hid behind some furniture somewhere and won't come out. When I find it I can check what's going on. I read that, like you say, smart watches aren't that good so I went for dedicated kit…"
Feb 1
Kath Hope replied to John's discussion Are resmed airsense reports really accurate?
"The hospitals see far more than we see on the app in their clinical software, and do bear in mind that it's the opinion of a Youtuber you must have seen, as sleep professionals worldwide have used their software for many years, and…"
Feb 1
John replied to Dave Austin's discussion My Apnoea / CPAP journey
"A bit of medical micropore tape over the lips can work pretty well. You just need an inch and a half like a Hitler moustache, no need to tape along the entire lips. Can get tape from Home Bargains or Poundstretcher type shops for about a quid."
Feb 1

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