Sleep Apnoea Forum Bringing Help + Support to the Patient
-
Alex Lalvani
- Male
- London
- United Kingdom
- Kath's Apnoea Blog
- Discussions (15)
- Events
- Groups
- Sleep Apnoea Photos
- Photo Albums
- Sleep Apnoea Videos
Alex Lalvani's Discussions
NHS waiting time for CPAP machine - can anyone beat this?
4 Replies
Diagnosed on 18th December 2023 with severe sleep apnoea.Received letter a few days later advising that earliest I could get a CPAP is 23rd December 2024 - over a year! This is in Oxford.I'm prepared…Continue
Started this discussion. Last reply by Kath Hope Jan 25, 2024.
Alex Lalvani's Page
Latest Activity
"Good to hear Alex, and tell them you're willing to take a cancellation at short notice and it might be less 🙏"
"Thanks for the replies. Today I got a referral to a new hospital in London which is quoting a 6 month wait time.
My oxygen was at 89% during the sleep study, I'm not sure what the other figures are."
"Hi Alex. That's really too long to wait! I was diagnosed in August 2023 also with severe sleep apnoea. It took 6 months from seeing the Dr > sleep study > getting a CPAP machine. I was given a CPAP machine on the same day…"
"Sorry to hear this Alex, and that does sound like a long wait for severe sleep apnoea. The problem has been due to a worldwide CPAP shortage so this is happening at a lot of clinics. Take a look at nearby clinics on this link but you'd need to…"
"Hi Dave,
Just read your story, sorry to hear your woes. I've been diagnosed with severe sleep apnoea but been told it's 11 months before I can get a CPAP machine. I'm considering buying one privately as I wake up several times a night…"
NHS waiting time for CPAP machine - can anyone beat this?
Diagnosed on 18th December 2023 with severe sleep apnoea.Received letter a few days later advising that earliest I could get a CPAP is 23rd December 2024 - over a year! This is in Oxford.I'm prepared to go anywhere in the country to get a machine although South East/London would be easiest. Does anyone have any experience of better/worse waiting times?ThanksSee More
Profile Information
- Treatment Being Used, if any?
- No treatment
- If Machine Being Used, What Make or Model?
- N/A
- If Mask Being Used, What Type or Name?
- N/A
Comment Wall
- No comments yet!
About
Sleep Apnoea Forum
New to the Sleep Apnoea Forum?
1. Stop by our Sleep Apnoea Welcome Center to introduce yourself to the SleepGuide community.
2. Start a New Topic of Conversation.
3. Post your photos - of yourself, your old CPAP machine, your new CPAP machine, your pet, something about you!
Interested in advertising, have a problem or need to contact us? Click the Report an Issue page.
Latest Activity
"Hi
The SleepCube was a private purchase, as way back then my local sleep clinic assessed patients by filming them overnight, whilst wearing an oximeter, and only issued CPAP machines without humidifiers. There was no remote monitoring and…"
"Yeah I was wondering about email address. I thought probably if they wanted me to mail them they would have given out an address. I can imagine heart data is considered more acute than sleep data, so it would make more sense to have that…"
"Hi.
I didn't use PatientsKnowBest (ironic name), but I have an email address for my heart department for sending in ECGs. I was just saying that they may be able to review a PDF when then cannot review a data file from your O2 ring.
I am…"
"Hi Jonathan, did you do that through PatientKnowsBest?"
"On an unrelated topic, I've been able to send ECGs by PDF to my heart clinic.
On the subject of Resmed and apnoeas, take a look at https://youtu.be/ufOOAfyzZso?si=Tpdl4EEiCQBZR4iD&t=276
Your machine may be under-reporting.
Good…"
Wellu O2 Ring - is it accurate enough for the medics?
Moving some furniture my long lost O2 ring continuous oxygen saturation monitor turned up. So I've been wearing it and it tells me I have loads of saturation drops during the night even though my Airsense 10 says I have very few apneas.So I get two…See More
"Hi,
Just thought I'd give an update. So, I had my appointment with the NHS sleep clinic which was much quicker than I anticipated and I've now had the overnight sleep study. My AHI is now 6, down from over 30, so I'm…"
"Hi Sally from what I read the airsense doesn't suffer the same foam degredation issues as the infamous Phillips machine.I can conceive it's possible that microplastics may be shed from the flexible main tube.What worries me more about the…"
"Hi
My sleep clinic discharged me, saying they were happy I was self-managing. Roll on a decade and the cardiologists taking care of me were very unimpressed and I was re-enrolled. I expect remote monitoring with current generation Resmed…"
"Hi Jonathan,
Thanks again for the info. My cpap *should* be monitored by the NHS though I haven’t had any contact from them since pre-covid. I checked out the link you gave to access extra data and I think that’s going to be…"
"Hi
I have the ResMed Airsense 10 Autoset (APAP). It's monitored remotely by my NHS sleep clinic and I believe they can make changes to the settings. I don't know whether they are notified if I make changes, nor whether they…"
"Hi Jonathan,
Thanks for the reply. I'd say that I'm fairly technical. I have the ResMed Airsense 10 Elite machine. I've discovered that I can upload data wirelessly from my machine and having lowered the pressure by…"
"Hi
You don't say how technical you are, or what sort of machine you use. However https://www.sleephq.com/ has software which allows you to upload data from compatible machines, and analyse your sleep "score", including a…"
air bubbles after weight loss
Hi,I've been on Mounjaro for about 3 months now, not primarily for weight loss, but I have lost weight around my face and neck. I've noticed that I am increasingly getting air bubbles in my mouth which of course is disturbing my sleep (and my…See More
Micro plastics risks
I was reading an article in the I newspaper today written by a journalist who had her blood tested for micro plastics and was shocked by the results.…See More
job with the charity
Was wondering if there might be a job for me with Hope2Sleep?(I also just asked this of a group by mistake)See More
For Sale - Ventura Full Total Face CPAP Mask
I’m selling an Ventura Full Total Face CPAP Mask Large and two spare liners. I bought it new from the Hope2Sleep shop, but it is not suitable for me. Only used for about two weeks so I have washed it thoroughly. Because of this, it is very much…See More
"I put in a claim for PIP which was denied and now I am over 66 and on pension I tried for AA. Denied again.I have other health conditions ( Diverticular disease and Bile Acid Malabsorbtion ) which I consider hard to live with and they refused all of…"
© 2025 Created by The SleepGuide Crew.
Powered by
