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Manda Liversage
  • Female
  • St Asaph
  • United Kingdom
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  • DeeNJai

Manda Liversage's Discussions

Pain and CPAP
11 Replies

Hi all I am a chronic pain sufferer (Fibromyalgia) who was diagnosed with OSA in January of this year.I've been on CPAP for 2 months and I'm delighted to report that a lot of the bone-crushing…Continue

Started this discussion. Last reply by Kath Hope May 2, 2014.

New and I have questions.... (Bit long, sorry)
9 Replies

Hi - I'm pretty new to the whole OSA thing.  I have struggled to sleep for a long time - even had sleeping tablets which didn't seem to help and my CPAP has done away with the need for those and I…Continue

Started this discussion. Last reply by Kath Hope Feb 26, 2014.

 

Manda Liversage's Page

Profile Information

My Interest in Sleep Apnoea
I have Sleep Apnoea
Treatment Being Used, If Any
Auto-Adjusting CPAP
If Machine Being Used, What Make? (e.g., Respironics M Series with A-Flex Auto-Adjusting CPAP)
ResMed S9 Autoset with H5i humidifier
If Mask Being Used, What Type? (e.g., ResMed Activa Nasal Mask)
Mirage Quattro and Resmed Quattro Air

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Comment Wall (4 comments)

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At 9:46 on May 13, 2014, DeeNJai said…

Hi Manda

I am get on with my GP he is quite supportive but haven't had any input from The Pain Clinic for over 10 years.  They thought that I could control my pain without their support. Since I have cut down the Gabapentin my quality of sleep has decreased since.  Hopefully this is a temporary thing and once my body gets use to the lower dose.    I need to male an appointment with the GP about getting the purified water for the APAP and also for my new steam mop as I have had two mops fail within a year of purchase.  Vax is going to replace it.  

Dee

At 8:52 on May 12, 2014, DeeNJai said…

The sleep doctor wants me to reduce 4 of the medications I am on because he feels that these are causing the CSA.  I am going to reduce the dose by 100mg today and see how I feel.  My pain levels are on the increase at the moment.  He also wants me to come off Tramadol, Mirtazapine and Citialopram but it will all take a while to come off them.

Dee

PS: Sorry to hear about your husband.

At 21:50 on May 11, 2014, DeeNJai said…

Hi Manda

I'm doing okay. The Mirtazapine is working now i feel better. Currently I am trying to reduce my Gapabentin I am noticing that my pain levels are on the increase, tomorrow will be the second week of the reduction.  How are you I hope ok.

Dee

At 13:03 on January 30, 2014, Kath Hope said…

Welcome to the forum Amanda, and I see from your profile you're currently awaiting your CPAP treatment. I hope you find lots of good help and information here in the forum, and feel free to start up any new discussions for questions you may have.

Best Wishes

Kath

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Latest Activity

Edam updated their profile
20 hours ago
N replied to Bernadette Plunkett's discussion Advice on ordering a CPAP machine from overseas
"Very interesting conversation; many thanks. Philips says (website) the machines are expected to last about 5 years. We’ll see.  I think that if you travel a lot and/or for extended periods you need something very portable. if you are away…"
Tuesday
Sleep2snore replied to Bernadette Plunkett's discussion Advice on ordering a CPAP machine from overseas
"It is the manufactures own rules, but they will not look at a machine bought overseas under warranty. If you ask ResMed, they will only say that they will not honer any warranty if you buy a machine abroad. They know that they can't stop you…"
Monday
N replied to Bernadette Plunkett's discussion Advice on ordering a CPAP machine from overseas
"Hello, Yes, it is a very old fashioned way of doing business. Apple used to do the same years ago until they realised that people travel and use the Internet, and now all their products cost more or less the same globally. Furthermore, as we still…"
Monday
Kath Hope replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Not all the clinics like supplying the FitLife (total face) mask as it's the most expensive one.  It's been a favourite one of mine for a long time, and in the early days I had to purchase it myself, but my clinic does now.  Hope…"
Sunday
Kath Hope replied to Chris Vesey's discussion Dvla / hospital
"Yes it's annoying Chris.  However, due to the fact that the DVLA themselves don't appear to know how to handle this all correctly (it depends who you reach at the time) then it's advisable not to email or ring them, but to rely…"
Sunday
Kath Hope replied to Bernadette Plunkett's discussion Advice on ordering a CPAP machine from overseas
"Welcome to the forum N.  Sorry to hear about your experience, and in actual fact the USA Store have broken the rules sending the machine from the USA as they're not supposed to.  Although they can be cheaper, it can work out more…"
Sunday
N replied to Bernadette Plunkett's discussion Advice on ordering a CPAP machine from overseas
"Hello, I ordered a DreamStation Go Auto CPAP machine from the CPAP Shop in the US - as advised on the Philips US website.The machine is not available in the UK and I wanted it for travelling - I have a DreamStation with humidifier from the NHS but…"
Sunday
N replied to John Wilkinson's discussion Dreamstation humidifier heated hose and simplus 'mask type' settings
"Hi John, I had the same problem until I disvovered that the setting for the heating was “adaptive” (works following a piece of software that switches the humidifier on/off during the night), as opposed to “fixed”. I changed…"
Sunday
N replied to Edam's discussion Amara view mask
"Hi Edam, There are several reviews on YouTube about the Amara; the results are very  mixed. I tried it and I found that it leaked too much; a real pity as the idea is very good. I then tried the ResMed F-20 (full-face, no forehead support) and…"
Sunday
N is now a member of Hope2SleepGuide
Sunday
Chris Vesey posted a discussion

Dvla / hospital

Hi,Wrote to the dvla for the correct form, phoned them when nothing arrived, form came a week later. Filled it out and sent it back 3 weeks ago, a week ago I had a letter a week ago saying they had written to the cosultant, resmed agreed to send a…See More
Sunday
Sven Mischkies replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Hi, thanks for the responses. I tried to loosen the straps to the point just before it starts leaking, but to no avail. I thought the Amara View would be the worst mask for me, because it sits right there where I get the numbness from the…"
Friday
Edam replied to Edam's discussion Amara view mask
"Respironics have confirmed that the slot is 2.5cm on the small and mediom cushions and 3 cm on the large"
Feb 15
Edam replied to Edam's discussion Amara view mask
Feb 15
Edam posted discussions
Feb 14
Edam replied to Edam's discussion Amara view mask
"Thanks for that. After looking through 7 pages of reviews I found somebody who had measured the slot at 1in by 0.5 in at its shortest.  As my nose is about 1.25 in wide any movement would cause a major leak. I wish Respironics would publish a…"
Feb 14
Sleep2snore replied to Edam's discussion Amara view mask
"There is some information here https://www.cpap.com/blog/amara-view-respironics/ scan down the page to see helpful comments and a guide."
Feb 14
grumpycamel updated their profile
Feb 13
grumpycamel replied to John Wilkinson's discussion Dreamstation humidifier heated hose and simplus 'mask type' settings
"Hi John, It may help if you switch on the preheat function on the DreamStation main menu before you go to bed. It warms up the humidifier for 30 minutes and switches itself off to get things warmed up. I tend to have the hose and humidifier on 5…"
Feb 13

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