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Manda Liversage
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- United Kingdom
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Manda Liversage's Discussions
Pain and CPAP
11 Replies
Hi all I am a chronic pain sufferer (Fibromyalgia) who was diagnosed with OSA in January of this year.I've been on CPAP for 2 months and I'm delighted to report that a lot of the bone-crushing…Continue
Started this discussion. Last reply by Kath Hope May 2, 2014.
New and I have questions.... (Bit long, sorry)
9 Replies
Hi - I'm pretty new to the whole OSA thing. I have struggled to sleep for a long time - even had sleeping tablets which didn't seem to help and my CPAP has done away with the need for those and I…Continue
Started this discussion. Last reply by Kath Hope Feb 26, 2014.
Manda Liversage's Page
Profile Information
- Treatment Being Used, if any?
- Auto-Adjusting CPAP
- If Machine Being Used, What Make or Model?
- ResMed S9 Autoset with H5i humidifier
- If Mask Being Used, What Type or Name?
- Mirage Quattro and Resmed Quattro Air
Manda Liversage's Photos
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Latest Activity
"Hi Nick thanks. Does it do the job and could you camp with it?"
CPAP Total Face Mask
I was curious whether anyone has used the CPAP Total Face Masks and could pass on their observations? I've been using an Airfit F20 for years which is fine apart from the permanent red mark on the bridge of my nose, and have recently tried the…See More
"I've been using the Resmed Airmini for about 5 years when travelling - overall lightweight and small and can be controlled by an App, but it does produce a loud whistling/wind sound for me which hasn't been reduced by an inline filter or…"
"Hi
It sounds like you need to have more conversations with your sleep clinic. There's little point in having a high pressure if it means you cannot tolerate the machine. There's an interesting video here…"
Pressure waking me up. Belching and wind
HiI'm using the prisma smart max machine. Initially I was just on a nasal mask, this changed as I was sleeping with my mouth open. I then went to face and nose mask and complained of bad wind and belching. Sometimes the pressure in the night was…See More
"Just to tidy this up, I finally had an in-person review by my sleep clinic yesterday, who agreed the ResMed AirSense 10 was "wheezy" and replaced the machine."
"thank you jonathan,i did get the it pack so tried the small and still struggled but i was sat up in bed so will try lying down great suggestion "
"Hi
My first thought is "don't panic"! We're all a bit different, and there are many things that can be tweaked. I took to CPAP therapy like a duck to water, but I've had friends who say they can't cope, but…"
1st time and I’ve failed the mask leak test
Hi everyone, today I received my rental kit - prisma smart max, plus a Philips dreamwear mask which I’ve been wearing unconnected to try and get used to it. I just did a mask fit test using a medium mask and got a constant red/orange leak warning…See More
Are every small CPAP machines any good?
Travel sized, micro - any good?See More
"Ha well it lasted a couple of days but started howling again. But it's a step in the right direction, just needs a bit more work."
"Nope, I just accept that some people's throats tend to close when they sleep, due to a loss of muscle tone during deeper sleep. Back when I was diagnosed, the sleep lab just filmed you whilst you slept, stuck an O2 meter on your finger,…"
"Did anyone tell you exactly what the anatomical issue is, Jonathan?"
"Can't say I know about this."
"So I tore some fabric from one of the filters and glued it over the holes - and it worked!It was dead quiet, and the air was still flowing freely.It was quiet all night then after a few hours a bit of whistling until I gave it a wipe.Vast…"
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Hi Manda
I am get on with my GP he is quite supportive but haven't had any input from The Pain Clinic for over 10 years. They thought that I could control my pain without their support. Since I have cut down the Gabapentin my quality of sleep has decreased since. Hopefully this is a temporary thing and once my body gets use to the lower dose. I need to male an appointment with the GP about getting the purified water for the APAP and also for my new steam mop as I have had two mops fail within a year of purchase. Vax is going to replace it.
Dee
The sleep doctor wants me to reduce 4 of the medications I am on because he feels that these are causing the CSA. I am going to reduce the dose by 100mg today and see how I feel. My pain levels are on the increase at the moment. He also wants me to come off Tramadol, Mirtazapine and Citialopram but it will all take a while to come off them.
Dee
PS: Sorry to hear about your husband.
Hi Manda
I'm doing okay. The Mirtazapine is working now i feel better. Currently I am trying to reduce my Gapabentin I am noticing that my pain levels are on the increase, tomorrow will be the second week of the reduction. How are you I hope ok.
Dee
Welcome to the forum Amanda, and I see from your profile you're currently awaiting your CPAP treatment. I hope you find lots of good help and information here in the forum, and feel free to start up any new discussions for questions you may have.
Best Wishes
Kath