"Hi
The SleepCube was a private purchase, as way back then my local sleep clinic assessed patients by filming them overnight, whilst wearing an oximeter, and only issued CPAP machines without humidifiers. There was no remote monitoring and…"
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Manda Liversage
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Manda Liversage's Discussions
Pain and CPAP
11 Replies
Hi all I am a chronic pain sufferer (Fibromyalgia) who was diagnosed with OSA in January of this year.I've been on CPAP for 2 months and I'm delighted to report that a lot of the bone-crushing…Continue
Started this discussion. Last reply by Kath Hope May 2, 2014.
New and I have questions.... (Bit long, sorry)
9 Replies
Hi - I'm pretty new to the whole OSA thing. I have struggled to sleep for a long time - even had sleeping tablets which didn't seem to help and my CPAP has done away with the need for those and I…Continue
Started this discussion. Last reply by Kath Hope Feb 26, 2014.
Manda Liversage's Page
Profile Information
- Treatment Being Used, if any?
- Auto-Adjusting CPAP
- If Machine Being Used, What Make or Model?
- ResMed S9 Autoset with H5i humidifier
- If Mask Being Used, What Type or Name?
- Mirage Quattro and Resmed Quattro Air
Manda Liversage's Photos
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Latest Activity
"Yeah I was wondering about email address. I thought probably if they wanted me to mail them they would have given out an address. I can imagine heart data is considered more acute than sleep data, so it would make more sense to have that…"
"Hi.
I didn't use PatientsKnowBest (ironic name), but I have an email address for my heart department for sending in ECGs. I was just saying that they may be able to review a PDF when then cannot review a data file from your O2 ring.
I am…"
"Hi Jonathan, did you do that through PatientKnowsBest?"
"On an unrelated topic, I've been able to send ECGs by PDF to my heart clinic.
On the subject of Resmed and apnoeas, take a look at https://youtu.be/ufOOAfyzZso?si=Tpdl4EEiCQBZR4iD&t=276
Your machine may be under-reporting.
Good…"
Wellu O2 Ring - is it accurate enough for the medics?
Moving some furniture my long lost O2 ring continuous oxygen saturation monitor turned up. So I've been wearing it and it tells me I have loads of saturation drops during the night even though my Airsense 10 says I have very few apneas.So I get two…See More
"Hi,
Just thought I'd give an update. So, I had my appointment with the NHS sleep clinic which was much quicker than I anticipated and I've now had the overnight sleep study. My AHI is now 6, down from over 30, so I'm…"
"Hi Sally from what I read the airsense doesn't suffer the same foam degredation issues as the infamous Phillips machine.I can conceive it's possible that microplastics may be shed from the flexible main tube.What worries me more about the…"
"Hi
My sleep clinic discharged me, saying they were happy I was self-managing. Roll on a decade and the cardiologists taking care of me were very unimpressed and I was re-enrolled. I expect remote monitoring with current generation Resmed…"
"Hi Jonathan,
Thanks again for the info. My cpap *should* be monitored by the NHS though I haven’t had any contact from them since pre-covid. I checked out the link you gave to access extra data and I think that’s going to be…"
"Hi
I have the ResMed Airsense 10 Autoset (APAP). It's monitored remotely by my NHS sleep clinic and I believe they can make changes to the settings. I don't know whether they are notified if I make changes, nor whether they…"
"Hi Jonathan,
Thanks for the reply. I'd say that I'm fairly technical. I have the ResMed Airsense 10 Elite machine. I've discovered that I can upload data wirelessly from my machine and having lowered the pressure by…"
"Hi
You don't say how technical you are, or what sort of machine you use. However https://www.sleephq.com/ has software which allows you to upload data from compatible machines, and analyse your sleep "score", including a…"
air bubbles after weight loss
Hi,I've been on Mounjaro for about 3 months now, not primarily for weight loss, but I have lost weight around my face and neck. I've noticed that I am increasingly getting air bubbles in my mouth which of course is disturbing my sleep (and my…See More
Micro plastics risks
I was reading an article in the I newspaper today written by a journalist who had her blood tested for micro plastics and was shocked by the results.…See More
job with the charity
Was wondering if there might be a job for me with Hope2Sleep?(I also just asked this of a group by mistake)See More
For Sale - Ventura Full Total Face CPAP Mask
I’m selling an Ventura Full Total Face CPAP Mask Large and two spare liners. I bought it new from the Hope2Sleep shop, but it is not suitable for me. Only used for about two weeks so I have washed it thoroughly. Because of this, it is very much…See More
"I put in a claim for PIP which was denied and now I am over 66 and on pension I tried for AA. Denied again.I have other health conditions ( Diverticular disease and Bile Acid Malabsorbtion ) which I consider hard to live with and they refused all of…"
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Hi Manda
I am get on with my GP he is quite supportive but haven't had any input from The Pain Clinic for over 10 years. They thought that I could control my pain without their support. Since I have cut down the Gabapentin my quality of sleep has decreased since. Hopefully this is a temporary thing and once my body gets use to the lower dose. I need to male an appointment with the GP about getting the purified water for the APAP and also for my new steam mop as I have had two mops fail within a year of purchase. Vax is going to replace it.
Dee
The sleep doctor wants me to reduce 4 of the medications I am on because he feels that these are causing the CSA. I am going to reduce the dose by 100mg today and see how I feel. My pain levels are on the increase at the moment. He also wants me to come off Tramadol, Mirtazapine and Citialopram but it will all take a while to come off them.
Dee
PS: Sorry to hear about your husband.
Hi Manda
I'm doing okay. The Mirtazapine is working now i feel better. Currently I am trying to reduce my Gapabentin I am noticing that my pain levels are on the increase, tomorrow will be the second week of the reduction. How are you I hope ok.
Dee
Welcome to the forum Amanda, and I see from your profile you're currently awaiting your CPAP treatment. I hope you find lots of good help and information here in the forum, and feel free to start up any new discussions for questions you may have.
Best Wishes
Kath