"A bit of medical micropore tape over the lips can work pretty well. You just need an inch and a half like a Hitler moustache, no need to tape along the entire lips. Can get tape from Home Bargains or Poundstretcher type shops for about a quid."
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My Apnoea / CPAP journey
5 Replies
Hi all,Apologies in advance for the long thread!I'm 51 and always suspected I had apnoea, but didn’t like the sound of CPAP so never did anything about it. This was despite never feeling like I had…Continue
Started this discussion. Last reply by John Feb 1, 2024.
Dave Austin's Page
Latest Activity
"Hi Jonathan,
I have a hybrid mask now, but it's not helping.
I did see my dentist yesterday for a rouitne checkup and mentioned the apnoea; weirdly, he said has been researching it as friends have it. He has suggested a mandibular device to…"
"Hi Alex,
I have fed back to the sleep clinic, and they refered me onto a spcialist who does want me in overnight. There's a 6-9 month waiting list for that though!
I am going to push my GP for an ENT appt I'm the meantime, to see if…"
"I was a mouth breather, but was given a nasal mask, and had to keep my mouth shut!(*) I did try a chin strap to keep my mouth shut but I couldn't tolerate it. I would say I got used to the nasal mask very quickly. I was…"
"Hi Dave,
Just read your story, sorry to hear your woes. I've been diagnosed with severe sleep apnoea but been told it's 11 months before I can get a CPAP machine. I'm considering buying one privately as I wake up several times a night…"
My Apnoea / CPAP journey
Hi all,Apologies in advance for the long thread!I'm 51 and always suspected I had apnoea, but didn’t like the sound of CPAP so never did anything about it. This was despite never feeling like I had slept well, even as a child (always very active and sporty; I just pushed on through the tiredness and 'got on with it').Always been a heavy snorer, too. Not overweight, don't smoke, and very rarely drink.That ability to carry on seemed to leave me a couple of years ago, and the day time fatigue just…See More
"Hello all,I was diagnosed with mild/moderate apnoea (15 per hour) back in the summer of '23, and have been using a full face mask CPAP machine for a few months now.Not getting on at all well with it, but will post another thread on this; for…"
Profile Information
- Treatment Being Used, if any?
- Auto-Adjusting CPAP
- If Machine Being Used, What Make or Model?
- Philips Dreamstation
- If Mask Being Used, What Type or Name?
- Sefam full face mask
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Latest Activity
"Yeah I was wondering about email address. I thought probably if they wanted me to mail them they would have given out an address. I can imagine heart data is considered more acute than sleep data, so it would make more sense to have that…"
"Hi.
I didn't use PatientsKnowBest (ironic name), but I have an email address for my heart department for sending in ECGs. I was just saying that they may be able to review a PDF when then cannot review a data file from your O2 ring.
I am…"
"Hi Jonathan, did you do that through PatientKnowsBest?"
"On an unrelated topic, I've been able to send ECGs by PDF to my heart clinic.
On the subject of Resmed and apnoeas, take a look at https://youtu.be/ufOOAfyzZso?si=Tpdl4EEiCQBZR4iD&t=276
Your machine may be under-reporting.
Good…"
Wellu O2 Ring - is it accurate enough for the medics?
Moving some furniture my long lost O2 ring continuous oxygen saturation monitor turned up. So I've been wearing it and it tells me I have loads of saturation drops during the night even though my Airsense 10 says I have very few apneas.So I get two…See More
"Hi,
Just thought I'd give an update. So, I had my appointment with the NHS sleep clinic which was much quicker than I anticipated and I've now had the overnight sleep study. My AHI is now 6, down from over 30, so I'm…"
"Hi Sally from what I read the airsense doesn't suffer the same foam degredation issues as the infamous Phillips machine.I can conceive it's possible that microplastics may be shed from the flexible main tube.What worries me more about the…"
"Hi
My sleep clinic discharged me, saying they were happy I was self-managing. Roll on a decade and the cardiologists taking care of me were very unimpressed and I was re-enrolled. I expect remote monitoring with current generation Resmed…"
"Hi Jonathan,
Thanks again for the info. My cpap *should* be monitored by the NHS though I haven’t had any contact from them since pre-covid. I checked out the link you gave to access extra data and I think that’s going to be…"
"Hi
I have the ResMed Airsense 10 Autoset (APAP). It's monitored remotely by my NHS sleep clinic and I believe they can make changes to the settings. I don't know whether they are notified if I make changes, nor whether they…"
"Hi Jonathan,
Thanks for the reply. I'd say that I'm fairly technical. I have the ResMed Airsense 10 Elite machine. I've discovered that I can upload data wirelessly from my machine and having lowered the pressure by…"
"Hi
You don't say how technical you are, or what sort of machine you use. However https://www.sleephq.com/ has software which allows you to upload data from compatible machines, and analyse your sleep "score", including a…"
air bubbles after weight loss
Hi,I've been on Mounjaro for about 3 months now, not primarily for weight loss, but I have lost weight around my face and neck. I've noticed that I am increasingly getting air bubbles in my mouth which of course is disturbing my sleep (and my…See More
Micro plastics risks
I was reading an article in the I newspaper today written by a journalist who had her blood tested for micro plastics and was shocked by the results.…See More
job with the charity
Was wondering if there might be a job for me with Hope2Sleep?(I also just asked this of a group by mistake)See More
For Sale - Ventura Full Total Face CPAP Mask
I’m selling an Ventura Full Total Face CPAP Mask Large and two spare liners. I bought it new from the Hope2Sleep shop, but it is not suitable for me. Only used for about two weeks so I have washed it thoroughly. Because of this, it is very much…See More
"I put in a claim for PIP which was denied and now I am over 66 and on pension I tried for AA. Denied again.I have other health conditions ( Diverticular disease and Bile Acid Malabsorbtion ) which I consider hard to live with and they refused all of…"
"No personal experience, but CPAP.com review of AirMini
The AirMini runs at about 30 decibels, which is about the same sound level as a whispered conversation. For comparison, full-sized CPAPs tend to run around 26-28 decibels. Due to their…"
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