Hope2SleepGuide

Sleep Apnoea Forum Bringing Help + Support to the Patient

The SleepGuide Crew
  • United Kingdom
Share

The SleepGuide Crew's Friends

  • David Anthony Burnley
  • RockRpsgt
  • Kath Hope

The SleepGuide Crew's Groups

The SleepGuide Crew's Discussions

Philips Announces New Partnership

March 18, 2011 Philips and World Association of Sleep Medicine join efforts to expand people’s awareness of the impact of sleep on health and well-being Special sleep module launched as part of the…Continue

Started Mar 19, 2011

Welcome to our Forum - Feel Free to Introduce Yourself Here.
640 Replies

Welcome to the Hope2SleepGuide Forum, which is a service run by the Hope2Sleep Charity founded by Kath Hope…Continue

Started this discussion. Last reply by Kath Hope Mar 4.

 

The SleepGuide Crew's Page

Latest Activity

Kevin Pigott joined The SleepGuide Crew's group
Apr 24
Adam Cartwright joined The SleepGuide Crew's group
Mar 16
Chris Vesey joined The SleepGuide Crew's group
Mar 7
Kath Hope replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Great.....will look forward to hearing from you Jonny.  This is where we put patient stories http://www.hope2sleep.co.uk/patient-stories.html"
Mar 4
JonnyJ replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Hi Kath, My pleasure, and nothing but the truth - what you do is wonderful! I also tried the Amara Gel mask which was very good in helping with symptoms, but did give me many red marks on my face and a rather painful point on the bridge of my nose -…"
Mar 4
Kath Hope replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Aw, thank you so much Jonny and it truly is a pleasure to be part of the journey to people being signposted to better health and, hopefully, life-changing benefits The DreamWear mask is a fabulous one for nose breathers, but for people like you and…"
Mar 4
Kath Hope replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"It's harder for people like you and I Amelia because you being on the Nippy and me being on the VPAP mean we are on a lot higher pressures than people on CPAP.  It's certainly worth trying anything you see out there.  Those…"
Mar 4
Amelia Kennedy replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Hi Kath, thanks for the reply! I've tried every size of (possibly) every available mask and they all leak.  Thanks for the link ... I'll take a look. I may well try one of the pad-a-cheeks as the reviews are pretty good and…"
Mar 3
JonnyJ replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Hi All, Just here to introduce myself to this wonderful forum and fellow hoseheads! (As we were very amusingly described back at the beginning of this thread). I'm Jonny, a 42 year man and I have been on CPAP for around four months now, using a…"
Mar 3
Kath Hope replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Hi Amelia.  I know we've spoken before via email The answer isn't to tighten the straps as if they're too tight that will cause leaks.  There's a chance your mask isn't the correct size so maybe they could let you…"
Mar 3
Amelia Kennedy replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Hi all, just saying "hello" to fellow sleep apnoea sufferers.  I'm 59 and have been using Nippy ventilators for the last 20 years for my combination apnoea caused by a brain haemorrhage.  I'm treated at Papworth and…"
Mar 3
Kath Hope replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Hi Simon and welcome to the forum.  It's great to read your story and a prime example of how badly untreated sleep apnoea can affect people.  Sorry to hear you had to go through a tough time, but fab to hear it sounds like you've…"
Mar 2
Simon Carr replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Hi, Thank you for allowing me to join this forum. I have been on CPAP for the last 7 months now. My consultant diagnosed me with Floppy Larynx Syndrome as part of my Sleep Apnoea. Also my AHI was 77. So far I'm really happy with the benefit it…"
Mar 2
Kath Hope replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Not all the clinics like supplying the FitLife (total face) mask as it's the most expensive one.  It's been a favourite one of mine for a long time, and in the early days I had to purchase it myself, but my clinic does now.  Hope…"
Feb 18
Sven Mischkies replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Hi, thanks for the responses. I tried to loosen the straps to the point just before it starts leaking, but to no avail. I thought the Amara View would be the worst mask for me, because it sits right there where I get the numbness from the…"
Feb 16
Kath Hope replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Welcome Sven and you've been given a lovely machine.  The Simplus mask is also a very good one, but unfortunately getting the 'right' mask is the harder part and many of us have to try several masks until we find the one that…"
Feb 13

The SleepGuide Crew's Photos

  • Add Photos
  • View All

The SleepGuide Crew's Videos

  • Add Videos
  • View All

The SleepGuide Crew's Blog

A to Zzz's of Sleep Definitions and Abbreviations

A to Zzz of SLEEP DEFINITIONS AND ABBREVIATIONS



APNOEA:  Without Breath (also spelt Apnea in some countries).  Therefore, Sleep Apnoea means pauses in breathing whilst sleeping.



APNOEA/HYPOPNOEA INDEX (AHI):  The number of apnoea/hypopnoea incidents per hour.



APNOEA INDEX (AI):  The number of apnoea events per hour.



AROUSAL:  Going from sleep to wakefulness, or…

Continue

Posted on April 7, 2011 at 14:46

Sleep Apnoea Myths Exposed !!!

SLEEP APNOEA MYTHS EXPOSED!!



I WAS TOLD I WON’T BE ABLE TO DRIVE IF I HAVE SLEEP APNOEA

Not True!  Once your treatment is proving to be successful your sleep clinician can fill in a form to be sent to the DVLA, who should give you permission to drive.

 

SLEEP APNOEA ONLY AFFECTS OBESE PEOPLE

Not True!  Yes, of course obese people are affected, just like obesity can cause other…

Continue

Posted on March 7, 2011 at 18:10 — 9 Comments

Comment Wall (2 comments)

You need to be a member of Hope2SleepGuide to add comments!

Join Hope2SleepGuide

At 16:58 on March 20, 2011, Judy said…
I like it and prefer this design. Plus it is more attractive than "our" sleepguide's new design.
At 19:40 on March 8, 2011, Niel Fordon said…
Hi there thanks very much for the help I'm all sorted now :-))

WordPress

 
 
 

Sleep Apnoea Forum

New to the Sleep Apnoea Forum? 

1. Stop by our Sleep Apnoea Welcome Center to introduce yourself to the SleepGuide community.
2. Start a New Topic of Conversation.
3. Post your photos - of yourself, your old CPAP machine, your new CPAP machine, your pet, something about you!

Interested in advertising, have a problem or need to contact us? Click the Report an Issue page.

 

Latest Activity

John Wilkinson replied to John Wilkinson's discussion I've 'hit a wall' can any body help me?
"Thanks for your advice. I really appreciate your help. I wasn't aware that there different types of apnoeas. I will be seeing the sleep nurse next week. I will keep you informed. John "
Thursday
John Wilkinson replied to John Wilkinson's discussion I've 'hit a wall' can any body help me?
"Thanks for that Kath. I am due to see the sleep clinic next week. Hopefully they will re-adjust the pressure. I will keep you informed. John"
Thursday
Edam replied to Edam's discussion Double inhaling
"I have read that APAP machines are not suitable for people with Asthma and give the same problems that I have been having. I am now having to use twice the dose of steriods just to keep the APAP happy If I can ever get in touch with my hospital I…"
Thursday
Kath Hope replied to Chris Vesey's discussion Medistron batteries
"Thanks Chris and we certainly are doing our homework Sleep2Snore.  Our charity work hard to get the right products at the right price for our fellow sufferers, and we have lots of loyal customers who purchase from us both to support the charity…"
Thursday
Kath Hope replied to John Wilkinson's discussion I've 'hit a wall' can any body help me?
"Sorry to hear after a good start you've taken a step backwards, and it could well be due to the reduction in pressure.  We don't recommend adjusting pressures but you're right to contact your hospital who will probably re-adjust…"
Thursday
Sleep2snore replied to John Wilkinson's discussion I've 'hit a wall' can any body help me?
"They have reduced it to far.  The max was 16, they should have left the machine at 18 if it is an APAP (automatic pressure) if it is a CPAP you have now same applies.  However, it might not be quite that straight forward as that as the…"
Wednesday
John Wilkinson posted a discussion

I've 'hit a wall' can any body help me?

I was diagnosed with severe OSA in November and I have been using a Philips Respironics CPAP machine and full face mask from early December up to now (about 5 months). My HPI's went down from 44 to about  14 in about 10 weeks and I was feeling much…See More
Wednesday
Sleep2snore replied to Chris Vesey's discussion Medistron batteries
"They are very costly things to have sitting around to go wrong or if you forget to charge them by their date. You could try to see if they will do it on a sale or return basis, them you could keep one or two.  However, I think most are ordering…"
Tuesday
Chris Vesey replied to Chris Vesey's discussion Medistron batteries
"Hi, I see from medistrom website they are looking for dealers, is it worth considering Kath"
Tuesday
Sleep2snore replied to Chris Vesey's discussion Medistron batteries
"I wish the ResMed was 12Vdc, it would make life a lot easier. I wonder why they need 24Vdc anyway? My APAP is not mine to and see why it has to be 24Vdc! I don't think the clinic might be to impressed if I opened it for a look. "
Monday
Sleep2snore replied to Edam's discussion Double inhaling
"I would like to see how the hospital is going to explain that your Apnoea is getting worse with an AHU of 0. That is almost incompetent. It might also be that it is not straight forward Sleep Apnoea you have and might benefit from an advanced…"
Monday
Chris Vesey replied to Chris Vesey's discussion Medistron batteries
"hi, just looked on internet, it seems that medistrom may not have a dealer in the uk but a company called sleep tight advertise the pilot 24 for £345, don't know about the co pilot. The very expensive one on amazon comes from Israel, good…"
May 13
Chris Vesey replied to Chris Vesey's discussion Medistron batteries
"hi, at the time amazon were selling the pilot for £285 and the co pilot for £137, gone up a lot since then chris"
May 13
Edam replied to Edam's discussion Double inhaling
"I have read that if you have Asthma a CPAP is better than a APAP  When the APAP increases the pressure it makes the asthma worse and then the APAP increases the pressure again which makes the asthma even worse ..... This is exactly whats…"
May 13
Kath Hope replied to Chris Vesey's discussion Medistron batteries
"Chris why did you purchase Medistrom as opposed to the Resmed battery?  Don't get me wrong as I've heard great things about the Medistrom and recommended it myself to people, but looking at the prices it seems just as or even more…"
May 13
Chris Vesey posted a discussion

Medistron batteries

Hi,I bought a pilot and co pilot set up a few months ago and have recently been trying them out. I have found by trial and error the following,First switch off all humidifiers etc.Switch to airplane mode, this reduces the amount of battery power…See More
May 13
Emma Bennett is now a member of Hope2SleepGuide
May 13
Chris Vesey replied to Helen Page's discussion Another newbie with a gazillion questions
"Hi, I informed the dvla by post using the relevant form they sent me. When the form arrived i was warned that i needed to return it within 14 days! As it takes a week for any dvla letter to arrive i was not amused. Even though i had started…"
May 12
Edam replied to Edam's discussion Double inhaling
"You are right about needing the extra humidity. Its been very dry lately , I measured it at 39%RH,  so I will start to us the "Warm Up" on the H5i to get the humidity up straight away On my last visit to the hospital I was told that…"
May 11
Sleep2snore replied to Edam's discussion Double inhaling
"It is a machine and if you have COPD and suffer from hay fever and asthma it will cause problems that you will have to find a work around for.  Looks like you have already found one that helps. It is very much a case of experiment and see. "
May 11

© 2018   Created by The SleepGuide Crew.   Powered by

Badges  |  Report an Issue  |  Terms of Service