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Jayzee
  • Middlesbrough, Cleveland
  • United Kingdom
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Feeling deflated
8 Replies

Hi everyoneI haven't posted in a while but that was because I thought everything was going ok...how wrong I was!My partner told me one morning that I was starting to snore again with my CPAP machine.…Continue

Started this discussion. Last reply by Kath Hope Mar 21.

New to CPAP and related disorders
6 Replies

Hi everyone, ifor the last 18 months - 2 years I have suffered with 'zonking' out episodes to the point where I can't wake up, open my eyes, send gobbledegook text messages, talk jumbled up etc etc.…Continue

Tags: down, new, not, listening, up

Started this discussion. Last reply by Sleep2snore Mar 17.

 

Jayzee's Page

Latest Activity

Kath Hope replied to Jayzee's discussion Feeling deflated
"You took the words right out of my mouth as I was reading about the sore nostrils Jayzee.....I was going to suggest the CPAP Cream. Lots of people us this with nasal pillows masks and I used to use it myself with the Liberty mask you have and the…"
Mar 21
Jayzee replied to Jayzee's discussion Feeling deflated
"Thank you both for your info. I will look into her sleep pattern etc in next few weeks. Sleep2Snore, it did irritate my nostrils and they were sore after removing my mask but tbh I will be keeping on this mask as it was great last night. Took a bit…"
Mar 21
Sleep2snore replied to Jayzee's discussion Feeling deflated
"You have been issued with the Hybrid mask that I mentioned above, if you can use this mask it should sort out your problems.  I hope it does not leak and that he checked the fit while you were lying down? You may get a bit of irritation just…"
Mar 21
Kath Hope replied to Jayzee's discussion Feeling deflated
"Jayzee most parents of children with sleep apnoea have a long battle to get them diagnosed sadly, and many of them get labelled as 'over anxious' parents.  Whilst not wanting to jump to conclusions, certainly the restlessness,…"
Mar 21
Jayzee replied to Jayzee's discussion Feeling deflated
"Hi Kath My daughter is suffering with childhood depression and anxiety disorder which is a constant battle. I have been at loggerheads with the doctors who say they can only refer her for therapy and can not prescribe any medications but won't…"
Mar 20
Kath Hope replied to Jayzee's discussion Feeling deflated
"Hi Jayzee.  I spotted your post this morning but didn't have time to reply.  However, it's good to see that during the day you've made good progress at the clinic and hope the new mask helps. I was NOT impressed that it was…"
Mar 20
Jayzee replied to Jayzee's discussion Feeling deflated
"Thanks Sleep2Snore for your info. Just to update you I have been back to the sleep clinic today where the sleep nurse called her manager in who has a wealth of knowledge when it comes to masks etc. He saw me put the mask on and said I was fitting it…"
Mar 20
Jayzee updated their profile
Mar 20
Sleep2snore replied to Jayzee's discussion Feeling deflated
"It has nothing to do with the mask weight, it is the size and fit that matters as well as how well it seals. You are not on a high pressure, so there should be no real problem with a proper fitting mask of the correct size sealing. However, there…"
Mar 20
Jayzee posted a discussion

Feeling deflated

Hi everyoneI haven't posted in a while but that was because I thought everything was going ok...how wrong I was!My partner told me one morning that I was starting to snore again with my CPAP machine. I had my sleep clinic review and they increased the pressure but I had been having problems with the full face mask that they provided me with. I explained that the mask was leaking, making 'fart' sounds, giving me dry eye from where it was leaking from and causing not only myself but my partner to…See More
Mar 20
Sleep2snore replied to Jayzee's discussion New to CPAP and related disorders
"If you snore with the mask and machine running the pressure is to low, the mask is leaking to much or air is getting out via the mouth. Just had a quick read of you first post.  Though you say this happens during the day, I wonder if you have…"
Mar 17
Kath Hope replied to Jayzee's discussion New to CPAP and related disorders
"Janine, if you are still snoring in the mask it could well be that the CPAP pressures need adjusting.  Do you have data on the machine that shows your AHI whilst on therapy?"
Feb 25
Jayzee replied to Jayzee's discussion New to CPAP and related disorders
"Thank you both for your information and opinions on what it could be. I have had another home oximetry test and they have asked me to do another as the data collected have some issues with! I am due to collect this again on Monday, I am also due to…"
Feb 24
Sleep2snore replied to Jayzee's discussion New to CPAP and related disorders
"Hi Janine,              Narcolepsy was my first thought, however, there are other things that can cause this and I am not a doctor. If you can't wake up properly there is something…"
Feb 24
Jayzee replied to Jayzee's discussion New to CPAP and related disorders
"Thanks for your insight and views kath, I will be making sure these other elements are looked into! I'm having my third b12 injection next month and have been taking iron tablets for the last 6 months and the vitamin d I have been taking for 10…"
Jan 15
Kath Hope replied to Jayzee's discussion New to CPAP and related disorders
"Well done Janine for standing your ground with the GP, and good to hear you're with a good sleep clinic willing to treat your UARS as not all clinics do.  Interestingly, there are a lot of people with UARS that require higher…"
Jan 13

Profile Information

My Interest in Sleep Apnoea
I have Sleep Apnoea
Treatment Being Used, If Any
CPAP
If Machine Being Used, What Make? (e.g., Respironics M Series with A-Flex Auto-Adjusting CPAP)
resmed full face mask with resmed my air machine

This has now been changed to resmed my air machine with mirage liberty nasal and mouth mask
If Mask Being Used, What Type? (e.g., ResMed Activa Nasal Mask)
Full face

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"Hi Perry, thanks for your quick reply but I think I am suited now. All the best, Zack"
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A Perry replied to A Perry's discussion CPAP MACHINE FOR SALE
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Kevin Pigott posted a discussion

Portable Machines

Does anyone have experience of using a portable machine? I have been invited to join a walking holiday in the far east and at some overnight stops there may be no 220V supply for a mains operated machine.  Kevin.See More
Sep 13
Mauro Cipriani replied to Mauro Cipriani's discussion Side Effects of CPAP / Corneal Ulcer
"Hi Kath, thanks for your reply. Just had an eye Clinic appointment and consultant fairly certain that this is attributable to mask leakage. I suffer with dry eyes and have prescribed gels and drops anyway, need to put more gel in. I will try some…"
Sep 11
Kath Hope replied to Susan Mooney's discussion Jury Service
"Sorry to hear that Susan.  If he's still so tired it would be worth asking for help with the clinic in case his pressures need adjusting (assuming he uses his CPAP for all sleeps of course, as that would cause tiredness).  If his…"
Sep 8
Susan Mooney replied to Susan Mooney's discussion Jury Service
"Thanks Kath, he has been on cpap for a few years now and has regular check ups but is still extremely tired when he relaxes, he is also self employed which is another stumbling point. They are a pain these jury service, will need to look into it.…"
Sep 7
Kath Hope replied to Susan Mooney's discussion Jury Service
"Hi Susan and welcome :) Regarding your question about jury service, I don't know much about the exemptions as I've never been called up and hope I aren't! However, if your husband is on good CPAP therapy and approved by the DVLA to…"
Sep 7
Kath Hope replied to Mauro Cipriani's discussion Side Effects of CPAP / Corneal Ulcer
"Sorry you've had no response to this post Mauro as I was hoping someone may have an answer, as corneal ulcer's isn't something I've heard of caused by CPAP.  However, we do often warn of why it's important to ensure the…"
Sep 7
Susan Mooney posted a discussion

Jury Service

Hello,Thanks for adding me...my husband has chronic sleep apnea and has just received papers for jury service. Does anyone know if he can be exempt from this?SueSee More
Sep 6
Susan Mooney is now a member of Hope2SleepGuide
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joy Fuchter is now a member of Hope2SleepGuide
Sep 4
Kath Hope replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Hi Julia.  I struggle with neck pain too and I use the alternative softcap headgear.Due to the fact the straps stick anywhere on the cap it means I can angle the lower straps upwards instead of across the back of my neck, as I have to have my…"
Sep 3

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