"I've got lucky! I can collect a new machine next week. It's been really helpful to 'speak' to people here and to Kath. It alerted me to the fact that I'd slipped through the net. The clinic were very apologetic and now all…"
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Jenny Wren
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Feeling Abandoned by the Sleep Clinic
6 Replies
I was diagnosed with OSA back in 2017 following having used the Hope 2 Sleep diagnostic home thing. (Thank you!). Since being diagnosed with OSA I've also been diagnosed with hypertension and am…Continue
Started this discussion. Last reply by Jenny Wren Feb 8.
Jenny Wren's Page
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"Thanks. Good news for me today, my clinic did finally reply to me and they’re giving me a new machine. The person I spoke to was super helpful.
The NHS clinics are great when you’re able to speak to them, but they seem to be…"
"Yes, my machine is affected. Seems I slipped through the net. I'm now on the sleep clinic's radar again and am hopeful that this will be sorted soon. Thanks for your reply and stay well."
"I'm sorry to hear that. I emailed Kath about this and she was very helpful. She advised me to get in touch with my sleep clinic and I have had a reply from them. I so hope that you get a response soon."
"Hello
It seems you can check with Philips Respironics whether your machine is affected by the recall
https://www.philipssrcupdate.expertinquiry.com/?ulang=en
Hopefully it's not one of the problem machines, and at least you will know that your…"
"I can’t offer any advice but I sympathise with the feeling of being abandoned.
I got given my current Resmed machine about 8 or 9 years ago by my clinic, and I think it’s overdue replacement, but I can’t get a reply from my clinic,…"
Feeling Abandoned by the Sleep Clinic
I was diagnosed with OSA back in 2017 following having used the Hope 2 Sleep diagnostic home thing. (Thank you!). Since being diagnosed with OSA I've also been diagnosed with hypertension and am being treated for this with medication.I was given a Philips Respironics RemStar Auto A Flex (System One). Since then I was lucky enough to have a couple of reviews before Covid set in. But since then I've not been seen, so that's around 4 years.My machine isn't hooked up to Bluetooth or anything so the…See More
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- Treatment Being Used, if any?
- CPAP
- If Machine Being Used, What Make or Model?
- Philips Respronics REMstar Auto A-Flex
- If Mask Being Used, What Type or Name?
- N20 (over nose, not mouth)
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Latest Activity
"I would always be guided by Dr Vik Veer, who is the UK's leading ENT surgeon specialising in snoring, sleep apnoea and UARS. He doesn't say the exercises will cure moderate to severe sleep apnoea, but can help by strengthening the airway…"
"Good info thanks. I personally prefer nasal strips though."
A tale of two nasal dilators
Trying to get my nose to stay open, I've been experimenting with nasal dilators.So far I tried two types.- Generic tubes from ebay, 50p each- Fancy Airmax £10Both are moulded silicon rubber.I would say the packaging for the Airmax, which is really…See More
"Dab hand with a sewing machine :) The "stethoscope" pipes were detachable with a bit of careful persuasion."
"How did you fasten it?I suppose you could do it with tape or elastic bands. Cut up an old fleece jacket, wrap it round the tube, strap it up, bit of velcro. That sort of thing. I hadn't really thought of that."
"Come to think of it you could likely double up a hose cozy, one over another.This is a piece of N95 face mask I used for high grade filtration. I just put it where the filter usually goes.This is around 6 months dirt I would say, thereabouts. I used…"
"Neat clip for your hose!
I used to use the Respironics Comfort Curve one of the best masks ever, now discontinued of course. With its stethoscope-style tubing, I had to make my own fleecy cover."
"Oh cool. Did you do any other DIY mods?I made a clamped strap to go on the headboard and lift the tube. Just a spare c-clamp with a bit of nylon strap and a clip but works well."
"Yes, I bought some fleecy material and made my own "snuggle hose" 10+ years ago. "
"Did you try a sleeve for the tube, Jonathan? For rain out? I got one off ebay for a few quid and I think it helps. It's a fleece sleeve you zip over the main tube."
Oropharyngeal exercises
I asked medics at the Castle Hill CPAP clinic about tongue and throat exercises. They said no evidence, and it can't work anyway because the muscles fully relax during sleep.Yet I'm watching Vik Veer, head of ENT at a London hospital, offer evidence…See More
"Well I found out what the norm was by asking my doctor to do the Cottle maneuver on herself, and she said there was no difference with and without.Whereas for me it's massively different.The Cottle maneuver is where you pull the skin by the…"
"It's a suspiciously round number I wonder how they arrived at it?I asked the People at Castle Hill and they didn't really enlighten me on it, but I was told that it's normal for people to have apnoeas, which I didn't know.I…"
"An apnoea or hypopnoea of less than 10 seconds won't be reported as an event, in the same way they're not reported on a sleep study, as that's the cut-off point."
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