"I've got lucky! I can collect a new machine next week. It's been really helpful to 'speak' to people here and to Kath. It alerted me to the fact that I'd slipped through the net. The clinic were very apologetic and now all…"
Sleep Apnoea Forum Bringing Help + Support to the Patient
-
Jenny Wren
- Female
- Somerset
- United Kingdom
- Kath's Apnoea Blog
- Discussions (4)
- Events
- Groups
- Sleep Apnoea Photos
- Photo Albums
- Sleep Apnoea Videos
Jenny Wren's Discussions
Feeling Abandoned by the Sleep Clinic
6 Replies
I was diagnosed with OSA back in 2017 following having used the Hope 2 Sleep diagnostic home thing. (Thank you!). Since being diagnosed with OSA I've also been diagnosed with hypertension and am…Continue
Started this discussion. Last reply by Jenny Wren Feb 8.
Jenny Wren's Page
Latest Activity
"Thanks. Good news for me today, my clinic did finally reply to me and they’re giving me a new machine. The person I spoke to was super helpful.
The NHS clinics are great when you’re able to speak to them, but they seem to be…"
"Yes, my machine is affected. Seems I slipped through the net. I'm now on the sleep clinic's radar again and am hopeful that this will be sorted soon. Thanks for your reply and stay well."
"I'm sorry to hear that. I emailed Kath about this and she was very helpful. She advised me to get in touch with my sleep clinic and I have had a reply from them. I so hope that you get a response soon."
"Hello
It seems you can check with Philips Respironics whether your machine is affected by the recall
https://www.philipssrcupdate.expertinquiry.com/?ulang=en
Hopefully it's not one of the problem machines, and at least you will know that your…"
"I can’t offer any advice but I sympathise with the feeling of being abandoned.
I got given my current Resmed machine about 8 or 9 years ago by my clinic, and I think it’s overdue replacement, but I can’t get a reply from my clinic,…"
Feeling Abandoned by the Sleep Clinic
I was diagnosed with OSA back in 2017 following having used the Hope 2 Sleep diagnostic home thing. (Thank you!). Since being diagnosed with OSA I've also been diagnosed with hypertension and am being treated for this with medication.I was given a Philips Respironics RemStar Auto A Flex (System One). Since then I was lucky enough to have a couple of reviews before Covid set in. But since then I've not been seen, so that's around 4 years.My machine isn't hooked up to Bluetooth or anything so the…See More
Profile Information
- Treatment Being Used, if any?
- CPAP
- If Machine Being Used, What Make or Model?
- Philips Respronics REMstar Auto A-Flex
- If Mask Being Used, What Type or Name?
- N20 (over nose, not mouth)
Comment Wall
- No comments yet!
About
Sleep Apnoea Forum
New to the Sleep Apnoea Forum?
1. Stop by our Sleep Apnoea Welcome Center to introduce yourself to the SleepGuide community.
2. Start a New Topic of Conversation.
3. Post your photos - of yourself, your old CPAP machine, your new CPAP machine, your pet, something about you!
Interested in advertising, have a problem or need to contact us? Click the Report an Issue page.
Latest Activity
"Yes, it does the job. I use a Powapacs Atom for portable power "
"Hi Nick thanks. Does it do the job and could you camp with it?"
CPAP Total Face Mask
I was curious whether anyone has used the CPAP Total Face Masks and could pass on their observations? I've been using an Airfit F20 for years which is fine apart from the permanent red mark on the bridge of my nose, and have recently tried the…See More
"I've been using the Resmed Airmini for about 5 years when travelling - overall lightweight and small and can be controlled by an App, but it does produce a loud whistling/wind sound for me which hasn't been reduced by an inline filter or…"
"Hi
It sounds like you need to have more conversations with your sleep clinic. There's little point in having a high pressure if it means you cannot tolerate the machine. There's an interesting video here…"
Pressure waking me up. Belching and wind
HiI'm using the prisma smart max machine. Initially I was just on a nasal mask, this changed as I was sleeping with my mouth open. I then went to face and nose mask and complained of bad wind and belching. Sometimes the pressure in the night was…See More
"Just to tidy this up, I finally had an in-person review by my sleep clinic yesterday, who agreed the ResMed AirSense 10 was "wheezy" and replaced the machine."
"thank you jonathan,i did get the it pack so tried the small and still struggled but i was sat up in bed so will try lying down great suggestion "
"Hi
My first thought is "don't panic"! We're all a bit different, and there are many things that can be tweaked. I took to CPAP therapy like a duck to water, but I've had friends who say they can't cope, but…"
1st time and I’ve failed the mask leak test
Hi everyone, today I received my rental kit - prisma smart max, plus a Philips dreamwear mask which I’ve been wearing unconnected to try and get used to it. I just did a mask fit test using a medium mask and got a constant red/orange leak warning…See More
Are every small CPAP machines any good?
Travel sized, micro - any good?See More
"Ha well it lasted a couple of days but started howling again. But it's a step in the right direction, just needs a bit more work."
"Nope, I just accept that some people's throats tend to close when they sleep, due to a loss of muscle tone during deeper sleep. Back when I was diagnosed, the sleep lab just filmed you whilst you slept, stuck an O2 meter on your finger,…"
"Did anyone tell you exactly what the anatomical issue is, Jonathan?"
"Can't say I know about this."
"So I tore some fabric from one of the filters and glued it over the holes - and it worked!It was dead quiet, and the air was still flowing freely.It was quiet all night then after a few hours a bit of whistling until I gave it a wipe.Vast…"
© 2024 Created by The SleepGuide Crew.
Powered by
