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Linda
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Linda's Discussions

Do charities take new surplus CPAP masks?
4 Replies

when I request a replacement medium Phillips Respironics mask from my NHS provider I am given a pack that includes all size masks and new headgear.  I have queried this and have been advised this is…Continue

Started this discussion. Last reply by Kath Hope Dec 3.

Cleaning tubing
6 Replies

hi all, this is my first post.   I clean my mask daily. I feel I don't clean my tubing often enough as I find it difficult to get it dry and there are always droplets of water left inside which I…Continue

Started this discussion. Last reply by Kath Hope Dec 29, 2017.

 

Linda's Page

Latest Activity

Kath Hope replied to Linda's discussion Do charities take new surplus CPAP masks?
"Hi Linda I just wanted to say thanks for sending us your surplus cushions and headgear.  We've already given out one of the cushions to someone who was struggling with a split cushion.  We really do appreciate this and so did the…"
Dec 3
Kath Hope replied to Linda's discussion Do charities take new surplus CPAP masks?
"Hi Linda.  Due to the way some of the manufacturer package their masks, eg multiple sizes of cushions, some clinics just hand the whole pack out to the patients, and then there are others that are more resourceful in that they take out the…"
Nov 22
Linda replied to Linda's discussion Do charities take new surplus CAPD masks?
"Thanks Kath and I will forward the spare masks on as you have suggested.  It seems very wasteful that my NHS provider gives me a pack which I believe costs well over £100 when I only require one mask.  Do you know if this is…"
Nov 21
Kath Hope replied to Linda's discussion Do charities take new surplus CAPD masks?
"I know exactly what you mean Linda. It's good when people purchase them when unsure of their size, but wasteful otherwise.  You can send them to our Hope2Sleep Charity who run this forum and address is on the contact…"
Nov 17
Linda posted a discussion

Do charities take new surplus CAPD masks?

when I request a replacement medium Phillips Respironics mask from my NHS provider I am given a pack that includes all size masks and new headgear.  I have queried this and have been advised this is how they are supplied.  It seems a terrible waste.  Is there a Charity that accepts the spare new masks and headgear?See More
Nov 17
Kath Hope replied to Linda's discussion Cleaning tubing
"It sounds like your house is on the cooler side Linda.  If it's just a few droplets you can put the hose onto your machine and blow the air which will probably dry it off, but a spare hose is a good idea anyway so you don't have to…"
Dec 29, 2017
Linda replied to Linda's discussion Cleaning tubing
"Thank you for your replies.  I washed mine yesterday and hung it up over a radiator but when I took it down to use still had minute water droplets like condensation inside it.  I assume that is ok and my worry about bacteria breeding is…"
Dec 29, 2017
Sleep2snore replied to Linda's discussion Cleaning tubing
"Who has time to clean a tube daily?  Tubes and water tanks once a week, only masks get a wipe daily and washed every week with me anyway. Water tanks get a rinse every day, but a good wash every week."
Dec 28, 2017
Edam replied to Linda's discussion Cleaning tubing
"My spare tube just sits in the drawer all the time. Never thought to use it whilst my regular one is drying out. ."
Dec 28, 2017
Kath Hope replied to Linda's discussion Cleaning tubing
"We sometimes hear of people who have difficulty getting their tubes dry.  I actually haven't noticed as I have a spare hose, so when I wash mine once a week I just put the spare one on it."
Dec 23, 2017
Sleep2snore replied to Linda's discussion Cleaning tubing
"Hi Linda, I just wash it in soapy water (Dish type) and hang it up in the morning, it is always dry by night and ready for use. Hang it from one end or the middle, both work just as well, anything in the tube will find its way our due to gravity. I…"
Dec 23, 2017
Linda posted a discussion

Cleaning tubing

hi all, this is my first post.   I clean my mask daily. I feel I don't clean my tubing often enough as I find it difficult to get it dry and there are always droplets of water left inside which I feel may harbour bacteria.  Any thoughts please.regards LindaSee More
Dec 23, 2017
Linda updated their profile
Dec 23, 2017
Linda is now a member of Hope2SleepGuide
Dec 7, 2017

Profile Information

My Interest in Sleep Apnoea
I have Sleep Apnoea
Treatment Being Used, If Any
Auto-Adjusting CPAP
If Machine Being Used, What Make? (e.g., Respironics M Series with A-Flex Auto-Adjusting CPAP)
Phillips Respironics
If Mask Being Used, What Type? (e.g., ResMed Activa Nasal Mask)
Nasal mask

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Latest Activity

Rod J Brunton posted a discussion

NEEDED: CPAP nasal pillow style mask & headgear - FX, DREAMWEAR or any similar style

Does anyone have a nasal pillow style mask & headgear they don't like or don't use? Mine vanished somewhere between Vancouver & Glasgow & I didn't notice till I got to Kirky.  I have a spare one at home, but that's not helping me while I…See More
yesterday
Rod J Brunton is now a member of Hope2SleepGuide
yesterday
Andy Falconer updated their profile
yesterday
Andy Falconer replied to Andy Falconer's discussion First night with CPAP
"Hi Kath, I'm hoping the next few nights will see me get my AHI down further, but i'm also keen not to put too much pressure on the situation. I have to say i'm very impressed with the Hope2Sleep service so far, with regular updates…"
yesterday
Kath Hope replied to Andy Falconer's discussion First night with CPAP
"Hi Andy. That's a good first night and sounding positive already. You may find your AHI comes down over the next few nights. Ideally we're looking for it to be up to 5 which is classed as 'normal.'  Your other goods will be…"
Tuesday
Andy Falconer posted a discussion

First night with CPAP

So last night was my first with my new CPAP machine (a Philips DreamStation with an Amara style mask), and got on surprisingly well. It took me a while to fall asleep and woke briefly a handful of times in the night but I would say it was very…See More
Tuesday
Jonathan replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Hi I was a mouth breather.  I also slept flat on my stomach.  I now sleep on my side, and with a nose-only mask rapidly learned to keep my trap shut at night :)  The airway through my nose has significantly improved, which makes…"
Sunday
Andy Falconer replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Thank you both for the welcome and the advice! I've read a lot about the humidifiers, so I suspect this will be one of the first things I will purchase. I'm a mouth breather, so I'm hoping the hospital will provide a full mask when I…"
Saturday
Jonathan replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Hi Andy Sorry you've had a rough ride.  How times change.  My sleep study 10 years ago was just a finger pulse thing, and a camera.  I had 86 events per hour.  I guess we're all different, but the first night with my…"
Saturday
Iain Noble replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Andy, Sorry you have had so little support from the NHS. We have an excellent sleep clinic here in Cleveland. You won't have to surrender your driving licence but you will have to tell them if you are diagnosed with sleep apnea. Once you are…"
Saturday
Andy Falconer replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Hi everyone, I'm Andy and I am currently in the process of being diagnosed with OSA (I suspect), with an appointment at the Royal Stoke Uni Hospital to be fitted for a CPAP machine this coming Monday.   So far it has taken 12 months from…"
Friday
Andy Falconer is now a member of Hope2SleepGuide
Friday
Kath Hope replied to Linda's discussion Do charities take new surplus CPAP masks?
"Hi Linda I just wanted to say thanks for sending us your surplus cushions and headgear.  We've already given out one of the cushions to someone who was struggling with a split cushion.  We really do appreciate this and so did the…"
Dec 3
Sleep2snore replied to Judy Y's discussion Could I have developed Central Sleep Apnoea ?
"Hi Judy, Try drinking a glass if water before going to bed. Dehydration can play a part in the mornings."
Dec 2
Amanda Moore is now a member of Hope2SleepGuide
Nov 30
Judy Y replied to Judy Y's discussion Could I have developed Central Sleep Apnoea ?
"Hi again Kath, Just found how I can see Clear airway/Obstructed airway. So sorry for the previous question. It appears I have approx 80% obstructed. Thanks for your time, best regards"
Nov 28
Judy Y replied to Judy Y's discussion Could I have developed Central Sleep Apnoea ?
"Thanks for your answer Kath. The app I have is Philips Dreamapper . It tells me minimum/maximam/ 90% pressure, My AHI and mask fit, Hours usage. I cant see anything about obstructive or centrals. Is my app out of date, or my machine?"
Nov 28
Kath Hope replied to Judy Y's discussion Could I have developed Central Sleep Apnoea ?
"I don't think those symptoms are specific to central sleep apnoea.  Your app should tell you if those apnoeas are obstructive or  centrals.  It sometimes says 'CA.'  Sometimes when people first wake it takes a…"
Nov 27
Judy Y posted a discussion

Could I have developed Central Sleep Apnoea ?

HiI was diagnosed with severe sleep apnoea Jan 2017 after hiring a device from Hope2sleep. Think I had this problem for around 10 years. I eventually got my cpap machine in August 2017. I have had a few ups and downs, and had my machine adjusted a…See More
Nov 26
Edam replied to Edam's discussion Double inhaling
"Im on Warfarin for life because of leg DVT,s and Warfarin would be stopped 5 days before the operation. This could leave me at risk of another DVT.. Also the last time my Warfarin was stopped I has to self inject Heparin so my belly turned into a…"
Nov 25

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